· Public charity
The Hemophilia Alliance Foundation
THE HEMOPHILIA ALLIANCE FOUNDATION is dedicated to receiving and administering funds to enable eligible organizations in the inherited bleeding and thrombotic disorders community to build capacity in order to achieve their mission and to support direct consumer financial assistance programs.
What you funded, over time
Every grant placed by its stated purpose and the recipient’s mission, by year — across FY2017–2024.
Where the money goes
Your grants by size, and where they go.
The 73 grants below total $804,925 — the rows itemised in this filing. The $978,925 headline is the total grant expense reported on the return, so the remaining $174,000 is giving the schedule does not break out: grants under the $5,000 itemisation floor, grants to individuals, and grants reported on other schedules. Every figure below describes the itemised rows only.
By grant size · FY2024
- Under $10k48 grants · $381k
- $10k–50k25 grants · $424k
| Recipient | Amount |
|---|---|
| HEMOPHILIA FOUNDATION OF MICHIGAN | $34,000 |
| BLEEDING DISORDERS FOUNDATION OF NORTH CAROLINA | $24,000 |
| HEMOPHILIA ASSOCIATION OF SAN DIEGO COUNTY | $24,000 |
| HEMOPHILIA FOUNDATION OF SOUTHERN CALIFORNIA | $24,000 |
| NORTHERN OHIO HEMOPHILIA FOUNDATION | $24,000 |
| BLEEDING DISORDERS ASSOCIATION OF SOUTH CAROLINA | $24,000 |
| HEMOPHILIA ASSOCIATION OF THE CAPITAL AREA | $24,000 |
| WEST VIRGINIA CHAPTER OF THE NATIONAL HEMOPHILIA FOUNDATION | $24,000 |
| GREAT LAKES HEMOPHILIA FOUNDATION | $18,000 |
| HEMOPHILIA ASSOCIATION OF NEW JERSEY | $16,000 |
| PACIFIC NORTHWEST BLEEDING DISORDERS | $16,000 |
| NATIONAL HEMOPHILIA FOUNDATION-NEBRASKA CHAPTER | $16,000 |
| NEVADA CHAPTER OF THE NATIONAL HEMOPHILIA FND | $16,000 |
| TRI-STATE BLEEDING DISORDER FOUNDATION | $16,000 |
| CASCADE FOUNDATION OF SOUTHERN ARIZONA | $16,000 |
Do your dollars go where the need is?
Each grant placed by the hardship in its grantee’s ZIP, then read against the area’s typical level.
Your human-services grants (FY17–24, $435k) land where the poverty rate runs at 9%, against an area that typically sits at 10%. 29% of those dollars go to grantees based in above-average-need neighborhoods. Your grants skew toward lower-need ZIPs.
Matched: human-services grants are those whose grantee’s IRS cause code is Human Services. Placed by people below the poverty linein the grantee’s ZIP, averaged from the tracts in that ZIP; grantee ZIP can differ from where services are delivered.
Which US states your grants reach
US grants placed by each grantee’s ZIP, which can differ from where services are actually delivered. Need from public data — U.S. Census/ACS, CDC PLACES, Eviction Lab, USDA — shown as context about the area, never attributed to your giving.
Who you back again
Which organizations you funded more than once, and which you funded a single time. Each grantee is matched to its own filings.
93 repeat relationships — 65 still active in FY2024, 28 since wound down; 3 grantees were first funded in FY2024 (too recent to call).
How the two cohorts compare
Organizations
Total granted
Median revenue growth · since first grant
Still filing today
New vs renewed · share of each year
In FY2024, 97% of grant dollars renewed an existing relationship; $24k went to new ones.
Where new relationships form · theme of each grantee’s first grant
First-time = a grantee’s first year in your filing window; renewed = funded in an earlier year too. As a portfolio matures the renewed share naturally climbs — once funded, an org stays “renewable” — so the signal is the years that buck it (a new-grantee intake wave). The earliest year is left-censored: relationships that predate the data read as “new.” Theme is the grantee’s IRS cause.
Backed again, and grew
- HFHemophilia Foundation of Michigan8× · 2017–2024 · $211k · revenue +54%
- HFHEMOPHILIA FOUNDATION OF SOUTHERN CALIFORNIA8× · 2017–2024 · $201k · revenue +43%
- BDBLEEDING DISORDERS FOUNDATION OF NORTH CAROLINA7× · 2018–2024 · $164k · revenue +61%
Funded once
- UHUTAH HEMOPHILIA FOUNDATIONgraduatedone grant, 2020 · $10k · revenue +60%
OREGON HEALTH & SCIENCE UNIVERSITY FOUNDATIONgraduatedone grant, 2023 · $10k · revenue +100%- SCSisters & Caregivers Bleeding Disorder Network Incone grant, 2020 · $10k · revenue -29%
Repeat = funded in two or more distinct years; growth and survival are read from each grantee’s own subsequent IRS filings.
The map has a center of gravity: the average direction from the rest of the sector toward the organizations the foundation funds — the shape of its giving. Scoring every nonprofit along that direction surfaces the ones that look most like the portfolio. These are the closest matchesthat aren’t grantees — a resemblance in what they say they do, not a recommendation.
The hemophilia alliance foundation is dedicated to receiving and administering funds to enable eligible organizations in the inherited bleeding and thrombotic disorders community to build capacity in order to achieve their mission and to…
The american thrombosis and hemostasis network (athn) is a nonprofit organization dedicated to improving the lives of people affected by bleeding and clotting disorders. we're using technology to secure data, advance knowledge, transform…
The hemophilia alliance provides member hemophilia treatment centers with resources and services to sustain the comprehensive care model for individuals with bleeding and clotting disorders.
The washington center for bleeding disorders is dedicated to assuring optimal health for people with bleeding disorders through comprehensive care, education, and research.
To provide expert comprehensive multidisciplinary care to patients with hemophilia and other bleeding and clotting disorders.
Auto-immune hepatitis association was formed to help support auto-immune hepatitis wellness and provide hope through disease education and giving our patients research opportunities. we want to ensure that all patients, no matter what…
The establishment and operation of a center for the promotion of education and research concerning clotting disorders, the distribution of blood derivatives and synthetic hemostatic agents to persons with clotting disorders on a discounted…
The primary purpose of the organization is to provide comprehensive clinical care to persons affected by inherited blood disorders and to administer programs supported by federal grants awarded by the department of health and human…
To advance and disseminate the science and practice of hepatology, and to promote liver health and quality patient care.
Help and support patients with hemophilia and their relatives by doing seminars, programs and activities to inform and educate them in health, social and emotional areas
For reference, the grantee most central to the portfolio’s shape is New England Hemophilia Association Inc and the most unlike its peers is Cascade Hemophilia Consortium. Resemblance is measured on each organization’s own IRS 990 mission text; it reflects how work is described, not its quality or impact.
Your grantees are a median of 29 years old; the field is 16. You back the established end — and your money leans older still.
The field is 22% startups (under 5 years old) — 2% of your grantees by number, and just 2% of your money.
The orgs you fund almost never close — 2% lost their exemption, against 13% of the field you don’t fund.
Age = years since IRS exemption (a founding proxy). “Closed” = auto-revocation for 3 years of non-filing — a floor on closure, not proof, and bigger established orgs lapse least. Association, not causation.
101 grantees tracked through their own filings, 2017–2025.
Each one resolved to its own IRS returns and tracked year by year — your grant beside their revenue from every source. Association, dated; never a causal claim.
Counted here: distinct organizations you funded across 2017–2025, not grant rows in a single year — so this will not match the grant count on the cover. 101 of the 125 grantees resolved in that span have returns of their own we could reconcile; the rest are funded organizations whose filings we could not track year by year.
Where your money sits — by cause, then by grantee
Each org by its size and your share of it — top-left is where you’re load-bearing
Go grantee by grantee — a decade per org, and how each moved after you funded them
A decade per grantee — revenue shaded, your grants as bars, all rows on one timeline.
- Who funds NATIONAL BLEEDING DISORDERS FOUNDATION ↗
- Who funds Hemophilia Foundation of Michigan ↗
- Who funds HEMOPHILIA FOUNDATION OF SOUTHERN CALIFORNIA ↗
- Who funds HEMOPHILIA FEDERATION OF AMERICA ↗
- Who funds BLEEDING DISORDERS FOUNDATION OF NORTH CAROLINA ↗
- Who funds GREAT LAKES HEMOPHILIA FOUNDATION INC ↗
- Who funds Bleeding Disorders Association of South Carolina ↗
- Who funds THE CENTER FOR COMPREHENSIVE CARE AND DIAGNOSIS OF INHERITED BLOOD DISORDERS ↗
- Who funds NEW ENGLAND HEMOPHILIA ASSOCIATION INC ↗
- Who funds GREATER OHIO BLEEDING DISORDERS FOUNDATION ↗
- Who funds PACIFIC NORTHWEST BLEEDING DISORDERS ↗
- Who funds TRI-STATE BLEEDING DISORDER FOUNDATION ↗
- Who funds HEMOPHILIA ALLIANCE OF MAINE INC ↗
- Who funds Foundation for Women and Girls with Blood Disorders ↗
- Who funds HEMOPHILIA ASSOCIATION OF THE CAPITAL AREA ↗
- Who funds ROCKY MOUNTAIN HEMOPHILIA AND BLEEDING DISORDER ASSOCIATION ↗
- Who funds Florida Bleeding Disorders Association Inc ↗
- Who funds Alaska Hemophilia Association ↗
- Who funds CHES FOUNDATION INC ↗
- Who funds WESTERN PENNSYLVANIA BLEEDING DISORDERS FOUNDATION ↗
- Who funds HEMOPHILIA FOUNDATION OF GREATER FLORIDA INC ↗
- Who funds Kentucky Hemophilia Foundation Inc ↗
- Who funds THE HEMOPHILIA ASSOC OF SAN DIEGO COUNTY ↗
- Who funds LOUISIANA HEMOPHILIA FOUNDATION ↗
- Who funds The Coalition for Hemophilia B Inc ↗
- Who funds VIRGINIA BLEEDING DISORDERS FOUNDATION ↗
- Who funds Orlando Health Inc ↗
- Who funds Hemophilia Foundation of MD Inc ↗
- Who funds NORTHERN CALIFORNIA BLEEDING DISORDERS FOUNDATION FORMERLY HEMOPHILIA FOUNDTN ↗
- Who funds UPPER MIDWEST BLEEDING DISORDERS ALLIANC ↗
- Who funds The Bleeding Disorder Foundation of Washington ↗
- Who funds HEMOPHILIA OF INDIANA INC ↗
- Who funds Bleeding Disorders Alliance Illinois ↗
- Who funds NEW YORK CITY HEMOPHILIA CHAPTER INC ↗
- Who funds VERSITI WISCONSIN INC ↗
- Who funds Hemophilia of Georgia Inc ↗
- Who funds SOUTHWESTERN OHIO HEMOPHILIA FOUNDATION ↗
- Who funds MARY M GOOLEY HEMOPHILIA CENTER INC ↗
The grantmakers whose grantees overlap with yours far more than size alone predicts. Each orbits closer the stronger the alignment; the arcs between them show where they also fund each other. Here it reads as a tightly interlocked camp — most of these funders back each other's grantees too.
Open a dossier: National Bleeding Disorders Foundation · The Hemophilia Alliance Group Purchasing Organization · Colburn-Keenan Foundation Inc · Hemophilia Federation of America · American Thrombosis and Hemostasis Network Inc · Pharmaceutical Research and Manufacturers of America · Cascade Hemophilia Consortium · Great Lakes Hemophilia Foundation Inc · Hemophilia of Georgia Inc · Child's Play · Indiana Hemophilia & Thrombosis Center Inc · Positudes Inc Dba the Alliance Pharmacy
Affinity is a Gamma-Poisson posterior co-funding rate, re-centered on the typical rate, so thin evidence shrinks toward no signal. A research starting point: overlap is association, not proof of shared intent.
Government reliance of your grantees
Every dot is one organization The Hemophilia Alliance Foundation funds. Left–right is the share of its income from government; up–down is the share from you. Bigger dots raise more. Filter to federal or a single department — and drag the year to watch it move.
- Oregon Health & Science University Foundation — 1% of income from government
- Orlando Health Inc — 0% of income from government
- St Joseph's Hospital Inc — 0% of income from government
Government income is each org’s traced federal awards (USASpending — grants and contracts) plus state payments (open checkbooks) as a share of its total revenue (IRS Form 990); the self-reported government-grant line (990 line 1e) is carried for cross-check: a grantee that reports government grants we could not trace to a source is left off the chart rather than shown as receiving none. An association, not a claim that your grant caused the public funding. Coverage is precision-first — a floor, not a census; state records exist for 9 states, so a grantee outside them shows no state figure (dimmed) rather than a false zero. Federal award amounts are obligations, which can span years, so a single-year share is indicative. 990 filings lag 12–24 months.
Warm introductions · Powered by PlinthPlus
How do I get to The Hemophilia Alliance Foundation?
Find your warmest path to The Hemophilia Alliance Foundation through trustees and officers whose names appear on both boards. Search for your organization and Plinth traces the shortest route it can evidence.
Each link is a name appearing on two organizations’ public IRS 990 filings, matched on that name and, where the filings support it, on location. A same-state match has geographic support, which is a second matching feature rather than confirmation that the two are one person; a cross-state one is the likeliest to be two people who share a name. Every hop shows its tier, low-confidence and distant paths are held back rather than guessed, and it is worth confirming the person before you use the introduction.