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The Hemophilia Alliance Foundation

THE HEMOPHILIA ALLIANCE FOUNDATION is dedicated to receiving and administering funds to enable eligible organizations in the inherited bleeding and thrombotic disorders community to build capacity in order to achieve their mission and to support direct consumer financial assistance programs.

$979k
Granted FY2024(still arriving)
73
Itemized grants FY2024
65
Organizations funded FY2023
14%
First-time grantees FY2023
Read the full brief
Itemized, FY2024
$805k
The rest is grants the schedule does not break out
Median grant, FY2024
$8,000
Largest grant, FY2024
$34,000
Organizations funded a year
50 to 72
FY2017 to FY2023
States reached, FY2024
38
Total assets, FY2024
$71k

How open it is to new grantees

In FY2023, 14% of the organizations The Hemophilia Alliance Foundation funded were first-time grantees, receiving 13% of its grant dollars.

New vs renewed · share of each year

In FY2023, 87% of grant dollars renewed an existing relationship; $116k went to new ones.

50%100%’18’19’20’21’22’23
RenewedFirst-time

Where new relationships form · theme of each grantee’s first grant

’18’19’20’21’22’23
HealthHuman ServicesEducationPhilanthropyOther
How this is measured
First-time means a grantee’s first year in the filing window; renewed means funded in an earlier year too. The renewed share climbs naturally as a portfolio matures, so the signal is a year that bucks it (a wave of new grantees). The earliest year is left-censored: relationships that predate the data read as new. Theme is the grantee’s IRS cause.
The numbers by year
Fiscal yearOrganizations fundedTo those organizationsFirst-time grantees
FY2024still arriving68$805k4%
FY202365$895k14%
FY202250$692k6%
FY202172$873k14%
FY202069$1.2M16%
FY201967$732k19%
FY201856$582k25%
FY201761$589kn/a
100% classified

What it funded, over time

Every grant placed by its stated purpose and the recipient’s mission, by year, FY2017 to 2024.

Health$6.4M

Where its grants go

Grant dollars by states, across the years we hold.

Which US states its grants reach

AK
ME
WA
ID
MT
ND
MN
IL
WI
MI
NY
MA
OR
NV
SD
IA
IN
OH
PA
NJ
CT
CA
UT
CO
NE
MO
KY
WV
VA
MD
AZ
NM
AR
TN
NC
SC
DC
HI
OK
LA
AL
GA
TX
FL

Top grantees

Largest recipients by total granted, FY2017 to FY2024, and the share of each one’s budget the grants supplied at peak.

Show all 124 grantees
All grantees of The Hemophilia Alliance Foundation by total granted
GranteeTotal grantedYearsShare of their budget
National Bleeding Disorders Foundation$715,49681%
Hemophilia Foundation of Michigan$211,00082%
Hemophilia Foundation of Southern California$201,00083%
Hemophilia Federation of America$166,00071%
Bleeding Disorders Foundation of North Carolina$164,00079%
Great Lakes Hemophilia Foundation Inc$146,00082%
Bleeding Disorders Association of South Carolina$138,00088%
The Center for Comprehensive Care and Diagnosis of Inherited Blood Disorders$137,54880%
New England Hemophilia Association Inc$137,00083%
Greater Ohio Bleeding Disorders Foundation$135,00074%
Pacific Northwest Bleeding Disorders$131,50084%
Tri-State Bleeding Disorder Foundation$127,000712%
Hemophilia Alliance of Maine Inc$112,500739%
Foundation for Women and Girls with Blood Disorders$98,50084%
Hemophilia Association of the Capital Area$91,06088%
Rocky Mountain Hemophilia and Bleeding Disorder Association$87,000810%
Florida Bleeding Disorders Association Inc$80,36474%
Alaska Hemophilia Association$78,000711%
Ches Foundation Inc$77,900313%
Western Pennsylvania Bleeding Disorders Foundation$74,000311%
Hemophilia Foundation of Greater Florida Inc$72,71583%
Kentucky Hemophilia Foundation Inc$72,00086%
The Hemophilia Assoc of San Diego County$70,50047%
Louisiana Hemophilia Foundation$68,00084%
The Coalition for Hemophilia B Inc$68,00071%
Virginia Bleeding Disorders Foundation$66,50082%
Hemophilia Foundation of MD Inc$66,00075%
Orlando Health Inc$66,00020%
Northern California Bleeding Disorders Foundation Formerly Hemophilia Foundtn$64,72055%
The Bleeding Disorder Foundation of Washington$62,50073%
Upper Midwest Bleeding Disorders Allianc$62,50075%
Hemophilia of Indiana Inc$61,70071%
Bleeding Disorders Alliance Illinois$61,63073%
New York City Hemophilia Chapter Inc$59,50064%
Versiti Wisconsin Inc$59,24080%
Regents of the University of Colorado$57,8752n/a
Hemophilia Foundation of Upstate New York Inc$56,0007n/a
Hemophilia of Georgia Inc$56,00060%
Southwestern Ohio Hemophilia Foundation$55,50075%
Mary M Gooley Hemophilia Center Inc$53,00070%
University of Louisville Physicians Inc$53,00070%
Michigan State University$53,0007n/a
University of California San Francisco$53,0007n/a
BLEEDING DISORDERS COUNCIL OF CALIFORNIA formerly HEMOPHILIA COUNCIL OF CALIF$52,33466%
Vwd Connect Foundation Inc$50,00055%
Western Pa Chp of the National Hemophilia Fnd$49,0005n/a
Tennessee Hemophilia & Bleeding Disorder Foundatio$48,50055%
Gateway Hemophilia Association$48,50055%
Eastern Pennsylvania Bleeding Disorders Foundation$48,00062%
Central California Bleeding Disorders Foundation$48,00065%
Dayton Children's Hospital$46,84060%
Hemophilia Association of New Jersey$46,50041%
Hope Charities Inc$46,00051%
Oregon Health & Science University$46,0005n/a
The Children's Hospital of Philadelphia$46,00050%
Bleeding Disorders Alliance of North Dakota$45,27869%
Lone Star Bleeding Disorders Foundation$42,50035%
Hemophilia Association of New York Inc$42,00052%
Oklahoma Hemophilia Foundation Inc$41,50055%
Icahn School of Medicine at Mount Sinai$38,00040%
Save One Life Inc$38,00041%
Sangre De Oro Inc$37,0003n/a
Great Plains Bleeding and Clotting Disorders Foundation Inc$36,0004n/a
St Joseph's Hospital Inc$35,68750%
Nationwide Childrens Hospital Inc$35,0005n/a
Northwest Ohio Hemophilia Foundation$33,000321%
East Carolina University$32,0004n/a
Bleeding & Clotting Disorders Institute$32,00040%
Asociacion Puertorriquena de Hemofilia Inc$32,00044%
Western New York Bloodcare Inc$31,94440%
Cascade Foundation of S Arizona Inc$30,500313%
Arizona Hemophilia Association Inc$30,50041%
Bleeding Disorders of Kentucky Inc$30,50035%
Hemophilia of Iowa Inc$28,00046%
United Hemophilia Foundation$26,00035%
Children's Hospital Medical Center of Akron$24,00030%
The Regents of the University of California San Diego$24,0002n/a
Texas Central Hemophilia Association Inc$23,30134%
Western New York Bloodcare Foundation In$23,15030%
Children's Health Care$22,57730%
Snake River Hemophilia & Bleeding Disorders Association Inc$21,8393n/a
Children's Hospital Medical Center$21,00030%
Accessia Health$18,00020%
University of Oklahoma Health Sciences Center$18,0002n/a
State University of Iowa$16,0002n/a
Presbyterian Hospital Foundation$16,00020%
Fairview Health Services$16,00020%
Bleeding Disorders Association of Northeastern Ny$16,00029%
University of Utah$15,9482n/a
Midwest Hemophilia Association$14,50023%
State University of Iowa Foundation$13,00020%
Hemophelia Outreach of Wisconsin Inc$13,00020%
Hemophilia and Bleeding Disorders of Alabama Inc$13,00022%
Utah Hemophilia Foundation$10,00014%
Sisters & Caregivers Bleeding Disorder Network Inc$10,0001n/a
Oregon Health & Science University Foundation$10,00010%
FAMOHIO Inc$8,00013%
Sanford$8,0001n/a
Arkansas Children's Foundation$8,00010%
Ann & Robert H Lurie Children's Hospital of Chicago$8,00010%
The Ohio State University$8,0001n/a
Washington University$8,00010%
Atrium Health Foundation$8,00010%
University Pediatricians$8,00010%
Cascade Hemophilia Consortium$8,00010%
The Univ of Tx Health Science Ctr of Sa$8,0001n/a
University of Texas Health Science Center Houston$8,0001n/a
University of Wisconsin Hospitals and Clinics Authority$8,0001n/a
Michigan State Univ$8,0001n/a
Colburn-Keenan Foundation Inc$8,00012%
Bleeding Disorders Advocacy Network$8,0001n/a
Baylor College of Medicine$8,00010%
Kapi'olani Health Foundation$8,00010%
Phoenix Children's Hospital$8,00010%
Shands Teaching Hospital and Clinics Inc$8,00010%
Ct Hemophilia Society Inc$8,00019%
University of New Mexico$8,0001n/a
Regents of the University of Michigan$7,9651n/a
University of Arizona$7,5981n/a
Children's Hospital Inc$7,00010%
Bleeding Disorders Education Inc$6,5001n/a
The Administrators of the Tulane Educational Fund$5,00010%
Henry Ford Health System$5,0001n/a
UT Medical Group Inc$5,00010%

Where it is load-bearing

The Hemophilia Alliance Foundation supplied at least a quarter of the budget for 1 of its grantees at some point. The chart plots its 96 largest grantees; load-bearing ones sit top left.

25%50%75%100%$100k$1.0M$10M$100Mgrantee revenue →↑ funder's share of their budgetNational Bleeding Disorders Foundation: $715,496 over 8y, 0.9% of budgetHemophilia Foundation of Michigan: $211,000 over 8y, 1.5% of budgetHemophilia Foundation of Southern California: $201,000 over 8y, 3.2% of budgetHemophilia Federation of America: $166,000 over 7y, 0.9% of budgetBleeding Disorders Foundation of North Carolina: $164,000 over 7y, 9.4% of budgetGreat Lakes Hemophilia Foundation Inc: $146,000 over 8y, 2.0% of budgetBleeding Disorders Association of South Carolina: $138,000 over 8y, 7.7% of budgetThe Center for Comprehensive Care and Diagnosis of Inherited Blood Disorders: $137,548 over 8y, 0.1% of budgetNew England Hemophilia Association Inc: $137,000 over 8y, 2.7% of budgetGreater Ohio Bleeding Disorders Foundation: $135,000 over 7y, 3.9% of budgetPacific Northwest Bleeding Disorders: $131,500 over 8y, 4.1% of budgetTri-State Bleeding Disorder Foundation: $127,000 over 7y, 12% of budgetHemophilia Alliance of Maine Inc: $112,500 over 7y, 39% of budgetFoundation for Women and Girls with Blood Disorders: $98,500 over 8y, 3.5% of budgetHemophilia Association of the Capital Area: $91,060 over 8y, 7.9% of budgetRocky Mountain Hemophilia and Bleeding Disorder Association: $87,000 over 8y, 9.8% of budgetFlorida Bleeding Disorders Association Inc: $80,364 over 7y, 4.2% of budgetAlaska Hemophilia Association: $78,000 over 7y, 11% of budgetChes Foundation Inc: $77,900 over 3y, 13% of budgetWestern Pennsylvania Bleeding Disorders Foundation: $74,000 over 3y, 11% of budgetHemophilia Foundation of Greater Florida Inc: $72,715 over 8y, 3.2% of budgetKentucky Hemophilia Foundation Inc: $72,000 over 8y, 6.3% of budgetThe Hemophilia Assoc of San Diego County: $70,500 over 4y, 7.0% of budgetLouisiana Hemophilia Foundation: $68,000 over 8y, 4.0% of budgetThe Coalition for Hemophilia B Inc: $68,000 over 7y, 0.5% of budgetVirginia Bleeding Disorders Foundation: $66,500 over 8y, 2.3% of budgetHemophilia Foundation of MD Inc: $66,000 over 7y, 5.0% of budgetOrlando Health Inc: $66,000 over 2y, 0.0% of budgetNorthern California Bleeding Disorders Foundation Formerly Hemophilia Foundtn: $64,720 over 5y, 4.7% of budgetThe Bleeding Disorder Foundation of Washington: $62,500 over 7y, 2.6% of budgetUpper Midwest Bleeding Disorders Allianc: $62,500 over 7y, 5.2% of budgetHemophilia of Indiana Inc: $61,700 over 7y, 1.4% of budgetBleeding Disorders Alliance Illinois: $61,630 over 7y, 3.2% of budgetNew York City Hemophilia Chapter Inc: $59,500 over 6y, 3.8% of budgetVersiti Wisconsin Inc: $59,240 over 8y, 0.0% of budgetHemophilia of Georgia Inc: $56,000 over 6y, 0.0% of budgetSouthwestern Ohio Hemophilia Foundation: $55,500 over 7y, 5.1% of budgetMary M Gooley Hemophilia Center Inc: $53,000 over 7y, 0.1% of budgetUniversity of Louisville Physicians Inc: $53,000 over 7y, 0.0% of budgetBLEEDING DISORDERS COUNCIL OF CALIFORNIA formerly HEMOPHILIA COUNCIL OF CALIF: $52,334 over 6y, 6.3% of budgetVwd Connect Foundation Inc: $50,000 over 5y, 4.7% of budgetTennessee Hemophilia & Bleeding Disorder Foundatio: $48,500 over 5y, 5.5% of budgetGateway Hemophilia Association: $48,500 over 5y, 5.1% of budgetEastern Pennsylvania Bleeding Disorders Foundation: $48,000 over 6y, 1.6% of budgetCentral California Bleeding Disorders Foundation: $48,000 over 6y, 4.6% of budgetDayton Children's Hospital: $46,840 over 6y, 0.0% of budgetHemophilia Association of New Jersey: $46,500 over 4y, 1.4% of budgetHope Charities Inc: $46,000 over 5y, 1.2% of budget

Tap a dot to name the grantee.

How this is measured
Share of budget is the funder’s grant in a year over the grantee’s total revenue that year, at its highest across the years we hold; revenue is from all sources. Only grantees confirmed against their own filings, whose grants do not exceed their revenue, are plotted: the largest 96.

Nonprofits that may fit its grantmaking

Co-funders

Grantmakers whose grantees overlap with this funder’s far more than size alone predicts. Closer means stronger alignment; arcs show where they also fund each other. Here they form a tightly interlocked group: most of these funders back each other's grantees too.

National Bleeding Disorders FoundationNY120.2× affinity55 shared granteesties to 10 of 11Hover any node to trace its alignments.Compare side by side →

Open a dossier: National Bleeding Disorders Foundation · The Hemophilia Alliance Group Purchasing Organization · Colburn-Keenan Foundation Inc · Hemophilia Federation of America · American Thrombosis and Hemostasis Network Inc · Pharmaceutical Research and Manufacturers of America · Cascade Hemophilia Consortium · Great Lakes Hemophilia Foundation Inc · Hemophilia of Georgia Inc · Child's Play · Indiana Hemophilia & Thrombosis Center Inc · Positudes Inc Dba the Alliance Pharmacy

How this is measured
Affinity is a Gamma-Poisson posterior co-funding rate, re-centered on the typical rate, so thin evidence shrinks toward no signal. Overlap is association, not proof of shared intent.

Compare The Hemophilia Alliance Foundation with peer funders

Warm introductions · Powered by PlinthPlus

How do I get to The Hemophilia Alliance Foundation?

Find your warmest path to The Hemophilia Alliance Foundation through trustees and officers whose names appear on both boards. Search for your organization and Plinth traces the shortest route it can evidence.

Each link is a name appearing on two organizations’ public IRS 990 filings, matched on that name and, where the filings support it, on location. A same-state match has geographic support, which is a second matching feature rather than confirmation that the two are one person; a cross-state one is the likeliest to be two people who share a name. Every hop shows its tier, low-confidence and distant paths are held back rather than guessed, and it is worth confirming the person before you use the introduction.

About The Hemophilia Alliance Foundation

How much does The Hemophilia Alliance Foundation give?
The Hemophilia Alliance Foundation reported 73 itemized grants totaling $804,925, out of $978,925 in total grant expense reported on the return in its FY2024 IRS filing. It funded between 50 and 72 organizations a year over FY2017 to FY2023.
What does The Hemophilia Alliance Foundation fund?
By grant dollars over FY2017 to FY2024, its largest causes are Health (100%).
Who are The Hemophilia Alliance Foundation's largest grantees?
By total granted over FY2017 to FY2024: National Bleeding Disorders Foundation ($715k), Hemophilia Foundation of Michigan ($211k), Hemophilia Foundation of Southern California ($201k).
Does The Hemophilia Alliance Foundation fund new organizations?
In FY2023, 14% of the organizations it funded were first-time grantees.
Which funders back the same organizations as The Hemophilia Alliance Foundation?
Its strongest co-funders, measured against what their size predicts, include National Bleeding Disorders Foundation, The Hemophilia Alliance Group Purchasing Organization, Colburn-Keenan Foundation Inc.
Where is The Hemophilia Alliance Foundation based?
The Hemophilia Alliance Foundation is based in FL.

On method. Every financial figure here is read from IRS e-file XML, the funder’s own 990/990-PF, and from the multi-year returns of the 125 grantees we resolved, each linked to its source. Grantee outcomes are each organization’s own program-service reporting (Form 990, Part III), read as association with funding, never as caused by it. Low-confidence name matches are suppressed rather than guessed. How we build these →

How this is measured
Each figure carries one of six labels. Filed is what the funder reported on its return. Official is another government record about an organization, such as a federal award or a charity register, joined by name where no shared identifier exists. Resolved is an identity we worked out where the filing named a recipient without an EIN, kept only above a measured confidence threshold. Computed is arithmetic over those, like themes, portfolio clusters and co-funder strength. Context is a statistic about a place rather than about an organization, which is what the need overlay is: it describes the area a grantee’s address sits in, not where its work lands. Inferred is drawn by a model from text, like the partnerships read out of public news and organization websites. Each is labeled where it appears.

Generated from the IRS Form 990 e-file return for fiscal year 2024, released 2024. Filings run roughly 12 to 24 months behind; figures are dated accordingly.

Source object · view filing

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