New York · Nonprofit
HEMOPHILIA ASSOCIATION OF NEW YORK INC
HEMOPHILIA ASSOCIATION OF NEW YORK INC (New York) receives grants from 14 organizations whose IRS filings report $400,922 to it, the largest being THE MERINGOFF FAMILY FOUNDATION INC ($200,000). 8 of them have funded it in more than one year.
- Revenue FY2025
- $441k
- Funders on record
- 14
- Grants received
- $401k
- Net assets
- $4.1M
What Hemophilia Association of New York Inc does
Mission
To provide information, advocacy, assistance and scholarships for those with bleeding disorders, as well as provide research funding for better therapies and potential cures for bleeding disorders.
As stated on its FY2025 Form 990.
Programs
Patient services - most of the association's activity is directed toward providing information and assistance to the bleeding disorders community. Some to specific individuals and families based on need. During 2023-2024 68.5% of staff time-effort was expended in this service function. Included was providing financial assistance, specific problem resolution, counseling, out-referrals, education, advocacy, and informational and educational materials for patients/clients. During the fiscal year 2023-2024 897 persons with bleeding disorders and their families were served. 11% of clients received emergency financial assistance or other forms of specific assistance or awards totaling $76,881.05 group meetings were conducted throughout the year. Highlights: teen retreat, a family educational conference, and a men's retreat.
$665,889 spentof which $104,412 as grants81% of program spendingResearch - the organization supports scientific studies and investigations at qualified institutions toward finding alleviation of the medical problems of hemophilia and other bleeding disorders and their complications. During the fiscal year 2023-2024 the association make $118,020 in payments toward the $200,000 research grant awarded in fy 2022-2023.
$136,766 spentof which $135,163 as grants17% of program spendingPublic health and rofessional healh education - in fiscal year 2023-2024 the association supported bleeding disorders professionals in attending national meetings. Information was provided to the general public on bleeding disorders.
$6,916 spentof which $3,034 as grants1% of program spendingCommunity services
$9,208 spent1% of program spending
The 4 programs described on its FY2023 Form 990, listed largest first by expense. Program spending in total: $818,779.
The organization over time
Each line starts at 100 in 2017, so what you read is the shape rather than the size: 150 means half as much again as 2017, 50 means half. The number beside each label in the key is where it ended. The shaded band is where the middle 50% of its peers' revenue would sit, given their growth.
Balance sheet
Total assets and total liabilities at each year end, in dollars. The largest one-year move in total assets was 2019 to 2020, from $2.8M to $4.3M (+52%).
How it's funded, over time
Each bar is one year's revenue split into where it came from, and every bar is the same height — these are shares, not amounts, so a year that raised twice as much looks the same size. Hover a bar for the split.
Government-grant reliance: 2021 26% · 2022 14%. Grants only. Government contracts and fees sit inside program revenue.
87% of HEMOPHILIA ASSOCIATION OF NEW YORK INC’s revenue is contributions — more donation-reliant than the typical peer (82% for the typical peer).
Surplus & reserves
Operating surplus or deficit each year, and months of liquidity in hand. 6 of the last 9 reported years ran a deficit.
reserve
Leadership and staff
The officers, directors, trustees and key employees listed on each return. Joined and no longer listed compare each filing with the year before, matching people by surname and first initial; a year after a gap, or a roster under three people, has no comparison.
Board chair
Mariam Voutsis
Chairman of the board
As listed on its FY2025 Form 990.
Who funds it, year by year
2017 → 2023: the base broadened from 3 funders to 8 funders, grant income rose $31k → $57k.
1 of 14 of your funders are donor-advised or pass-through sponsors (tagged DAF) — 2% of grant dollars received. That money is really individual donors directing a sponsor; the institutions to cultivate are the non-DAF funders.
From the IRS filings of HEMOPHILIA ASSOCIATION OF NEW YORK INC’s funders (the co-funder graph). Association, not causation. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How concentrated its funding is
HEMOPHILIA ASSOCIATION OF NEW YORK INC leans on a few funders — its largest provides 50% of grant income and the top three 70%; half comes from just 2 funders.
the vertical line marks half of all grant income — 2 funders to its left
30% of the income these shares are computed over arrives through pass-through sponsors or from payers whose filings do not say what kind of payment it is. Concentration is still measured over all of it, because the money is real; what it does not support is a claim about how many institutions have chosen to fund HEMOPHILIA ASSOCIATION OF NEW YORK INC.
Largest funder’s share by year: 2017 82% · 2018 100% · 2019 59% · 2020 37% · 2021 65% · 2022 46% · 2023 44% — diversifying over time.
“Effective funders” = inverse Herfindahl index (1 / Σ shareᵢ²) — the number of equal-sized funders that would give the same concentration. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How long its funders stay
56% of HEMOPHILIA ASSOCIATION OF NEW YORK INC's funders are still giving 3 years after their first grant; 57% give in more than one year at all.
Share of funders still giving k years after their first recorded grant, pooled across every acquisition cohort. A funder counts as retained in a year only if it made a grant that year. Measured to FY2023, the last fiscal year that has finished arriving — a funder cannot be counted as lapsed in a year most filers have not reached.
Where its funders are
62% of HEMOPHILIA ASSOCIATION OF NEW YORK INC's grant income comes from New York funders.
In-state vs out-of-state, by year
Funder states come from each funder’s own filing. $7k arriving through sponsors registered in 1 state is excluded from the map and the split above: a sponsor holds money on a donor’s behalf, so its registered address would place those dollars somewhere no donor need ever have been. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
Against its field
HEMOPHILIA ASSOCIATION OF NEW YORK INC's funding base is broadening — from 3 funders to 8 as grant income climbed.
this organization peer median middle 50% of peers· 7,883 health nonprofits $100k–$1M, FY2025
Organizations like HEMOPHILIA ASSOCIATION OF NEW YORK INC
Organizations whose mission and program text most resemble this one, by semantic similarity over every organization in the US filings — the closest peers, and often the clearest route to shared or prospective funders.
In New York
Nationally
Read directly from this organization’s own Form 990, as neutral context.
Where the money goes
65% of spending goes to programs.
Governance
Public support
87%
Share of support from the public (Schedule A) — the basis for its public-charity status.
Footprint & structure
Files a return copy in 1 state
Screen this organization
A dated, signed PDF of the compliance screen for HEMOPHILIA ASSOCIATION OF NEW YORK INC: IRS status (Business Master File, Publication 78, auto-revocation), the OFAC sanctions lists, the Internal Revenue Bulletin, and California registration, with the Rev. Proc. 2018-32 §8.01 reliance elements stated element by element. Generated from the current files at the moment you download it.
Screens are triage, not determinations; a source that cannot be read reports not screened, never clear. Screen this nonprofit · How the screen works · on the API as GET /api/screening/{ein}?format=pdf
Questions and answers
- Who funds HEMOPHILIA ASSOCIATION OF NEW YORK INC?
- HEMOPHILIA ASSOCIATION OF NEW YORK INC (New York) receives grants from 14 organizations whose IRS filings report $400,922 to it, the largest being THE MERINGOFF FAMILY FOUNDATION INC ($200,000). 8 of them have funded it in more than one year.
- How many funders does HEMOPHILIA ASSOCIATION OF NEW YORK INC have?
- IRS filings report 14 organizations giving $400,922 in grants to HEMOPHILIA ASSOCIATION OF NEW YORK INC, 8 of which have funded it in more than one year.
- Who is the largest funder of HEMOPHILIA ASSOCIATION OF NEW YORK INC?
- THE MERINGOFF FAMILY FOUNDATION INC is the largest funder on record, with $200,000 in grants. The full list of funders is on this page.
- How can an organization like HEMOPHILIA ASSOCIATION OF NEW YORK INC find more funders?
- Start with the funders already giving here, then look at the foundations that back similar organizations in New York. The funding by cause and by state pages list the largest funders for a given area and how to approach them.
These figures are read directly from IRS Form 990 / 990-PF e-file XML: this organization’s own return for FY2025 (financials across 2017–2025), and the filings of 14 funders that report grants to it. “On record” means captured in the filings we have parsed — a funder that does not e-file, or whose grant detail is not itemized, will not appear. Filings run roughly 12–24 months behind. Trends on this page end at FY2023, the last fiscal year that has finished arriving; later years are shown and marked, and move no figure. Data on this page was exported October 14, 2026. What this page cannot tell you · view filing