California · Nonprofit
BLEEDING DISORDERS COUNCIL OF CALIFORNIA formerly HEMOPHILIA COUNCIL OF CALIF
BLEEDING DISORDERS COUNCIL OF CALIFORNIA formerly HEMOPHILIA COUNCIL OF CALIF (California) receives grants from 9 organizations whose IRS filings report $288,207 to it, the largest being NATIONAL BLEEDING DISORDERS FOUNDATION ($116,500). 7 of them have funded it in more than one year.
- Revenue FY2024
- $367k
- Funders on record
- 9
- Grants received
- $288k
- Net assets
- $273k
What BLEEDING DISORDERS COUNCIL OF CALIFORNIA formerly HEMOPHILIA COUNCIL OF CALIF does
Mission
The mission of hcc is to improve access to care and treatment options in order to advance the quality of life for people with bleeding disorders through advocacy, education, and outreach in the collaboration with its founding member organizations.
As stated on its FY2024 Form 990.
Programs
Education - this includes policy and advocacy webinars, chapter presentations, andfuture leaders programs to educate our legislators and the public on the importance of hemophilia care both for the bleeding disorders community and the greater community. Hcc supports and encourages all patients with bleeding disorders to seek the expert care of trained professionals at the hemophilia treatment centers throughout the state. Hcc also supports choice of treatment and providers, and educates the hemophilia community on the range of options for treatment.
$153,462 spent50% of program spendingAdvocacy & policy - the hcc actively seeks the support of the california legislature for measures that will improve the quality of life of members in our community. Our efforts focus on supporting the current programs that exist, as well as evaluating changes to the current health system that may affect access and quality of treatment.in addition to serving the hcc board, the volunteer board of directors also serve the hemophilia community in various capacities. Some of these include education, advocacy, pharmaceutical insight, relational development, and future building.
$91,790 spent30% of program spendingHealthcare access forum - this is a quarterly bleeding disorders industry forum thatpromotes communication among consumers, industry, healthcare providers, specialtypharmacies and the state.
$29,890 spent10% of program spendingHcc policy summit program - hcc hosts an annual health summit on healthcare policy and consumer healthcare access barriers. The attendees include some of the top ten pharmaceutical companies, pharmaceutical manufacturers, health care providers, patient advocates, regional/national patient organizations, and health-related state government agencies.
$21,827 spent7% of program spendingDiversity & inclusion program - the hcc focuses on increasing access to health care for underserved communities as well as providing increased education and health literacy for underserved communities.
$12,900 spent4% of program spending
The 5 programs described on its FY2024 Form 990, listed largest first by expense. Program spending in total: $309,869.
The organization over time
Each line starts at 100 in 2017, so what you read is the shape rather than the size: 150 means half as much again as 2017, 50 means half. The number beside each label in the key is where it ended. The shaded band is where the middle 50% of its peers' revenue would sit, given their growth.
Balance sheet
Total assets and total liabilities at each year end, in dollars. The largest one-year move in total assets was 2021 to 2022, from $450k to $336k (−25%).
How it's funded, over time
Each bar is one year's revenue split into where it came from, and every bar is the same height — these are shares, not amounts, so a year that raised twice as much looks the same size. Hover a bar for the split.
95% of BLEEDING DISORDERS COUNCIL OF CALIFORNIA formerly HEMOPHILIA COUNCIL OF CALIF’s revenue is contributions — more donation-reliant than the typical peer (82% for the typical peer).
Surplus & reserves
Operating surplus or deficit each year, and months of liquidity in hand. 3 of the last 8 reported years ran a deficit.
reserve
Leadership and staff
The officers, directors, trustees and key employees listed on each return. Joined and no longer listed compare each filing with the year before, matching people by surname and first initial; a year after a gap, or a roster under three people, has no comparison.
Who funds it, year by year
2017 → 2023: the base broadened from 3 funders to 6 funders, grant income fell $56k → $51k.
1 of 9 of your funders are donor-advised or pass-through sponsors (tagged DAF) — 0% of grant dollars received. That money is really individual donors directing a sponsor; the institutions to cultivate are the non-DAF funders.
From the IRS filings of BLEEDING DISORDERS COUNCIL OF CALIFORNIA formerly HEMOPHILIA COUNCIL OF CALIF’s funders (the co-funder graph). Association, not causation. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How concentrated its funding is
BLEEDING DISORDERS COUNCIL OF CALIFORNIA formerly HEMOPHILIA COUNCIL OF CALIF leans on a few funders — its largest provides 40% of grant income and the top three 72%; half comes from just 2 funders.
the vertical line marks half of all grant income — 2 funders to its left
89% of the income these shares are computed over arrives through pass-through sponsors or from payers whose filings do not say what kind of payment it is. Concentration is still measured over all of it, because the money is real; what it does not support is a claim about how many institutions have chosen to fund BLEEDING DISORDERS COUNCIL OF CALIFORNIA formerly HEMOPHILIA COUNCIL OF CALIF.
Largest funder’s share by year: 2017 46% · 2018 41% · 2019 48% · 2020 85% · 2021 61% · 2022 46% · 2023 29% — diversifying over time.
“Effective funders” = inverse Herfindahl index (1 / Σ shareᵢ²) — the number of equal-sized funders that would give the same concentration. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How long its funders stay
33% of BLEEDING DISORDERS COUNCIL OF CALIFORNIA formerly HEMOPHILIA COUNCIL OF CALIF's funders are still giving 3 years after their first grant; 78% give in more than one year at all.
Share of funders still giving k years after their first recorded grant, pooled across every acquisition cohort. A funder counts as retained in a year only if it made a grant that year. Measured to FY2023, the last fiscal year that has finished arriving — a funder cannot be counted as lapsed in a year most filers have not reached.
Where its funders are
BLEEDING DISORDERS COUNCIL OF CALIFORNIA formerly HEMOPHILIA COUNCIL OF CALIF draws 96% of its grant income from funders outside California, across 6 states in all.
In-state vs out-of-state, by year
Funder states come from each funder’s own filing. $338 arriving through sponsors registered in 1 state is excluded from the map and the split above: a sponsor holds money on a donor’s behalf, so its registered address would place those dollars somewhere no donor need ever have been. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
Against its field
BLEEDING DISORDERS COUNCIL OF CALIFORNIA formerly HEMOPHILIA COUNCIL OF CALIF is better cushioned than half of the 13,754 health nonprofits its size.
this organization peer median middle 50% of peers· 13,754 health nonprofits $100k–$1M, FY2024
Organizations like BLEEDING DISORDERS COUNCIL OF CALIFORNIA formerly HEMOPHILIA COUNCIL OF CALIF
Organizations whose mission and program text most resemble this one, by semantic similarity over every organization in the US filings — the closest peers, and often the clearest route to shared or prospective funders.
In California
Nationally
Read directly from this organization’s own Form 990, as neutral context.
Where the money goes
85% of spending goes to programs.
Governance
Public support
60%
Share of support from the public (Schedule A) — the basis for its public-charity status.
Footprint & structure
Files a return copy in 1 state
Screen this organization
A dated, signed PDF of the compliance screen for BLEEDING DISORDERS COUNCIL OF CALIFORNIA formerly HEMOPHILIA COUNCIL OF CALIF: IRS status (Business Master File, Publication 78, auto-revocation), the OFAC sanctions lists, the Internal Revenue Bulletin, and California registration, with the Rev. Proc. 2018-32 §8.01 reliance elements stated element by element. Generated from the current files at the moment you download it.
Screens are triage, not determinations; a source that cannot be read reports not screened, never clear. Screen this nonprofit · How the screen works · on the API as GET /api/screening/{ein}?format=pdf
Questions and answers
- Who funds BLEEDING DISORDERS COUNCIL OF CALIFORNIA formerly HEMOPHILIA COUNCIL OF CALIF?
- BLEEDING DISORDERS COUNCIL OF CALIFORNIA formerly HEMOPHILIA COUNCIL OF CALIF (California) receives grants from 9 organizations whose IRS filings report $288,207 to it, the largest being NATIONAL BLEEDING DISORDERS FOUNDATION ($116,500). 7 of them have funded it in more than one year.
- How many funders does BLEEDING DISORDERS COUNCIL OF CALIFORNIA formerly HEMOPHILIA COUNCIL OF CALIF have?
- IRS filings report 9 organizations giving $288,207 in grants to BLEEDING DISORDERS COUNCIL OF CALIFORNIA formerly HEMOPHILIA COUNCIL OF CALIF, 7 of which have funded it in more than one year.
- Who is the largest funder of BLEEDING DISORDERS COUNCIL OF CALIFORNIA formerly HEMOPHILIA COUNCIL OF CALIF?
- NATIONAL BLEEDING DISORDERS FOUNDATION is the largest funder on record, with $116,500 in grants. The full list of funders is on this page.
- How can an organization like BLEEDING DISORDERS COUNCIL OF CALIFORNIA formerly HEMOPHILIA COUNCIL OF CALIF find more funders?
- Start with the funders already giving here, then look at the foundations that back similar organizations in California. The funding by cause and by state pages list the largest funders for a given area and how to approach them.
These figures are read directly from IRS Form 990 / 990-PF e-file XML: this organization’s own return for FY2024 (financials across 2017–2024), and the filings of 9 funders that report grants to it. “On record” means captured in the filings we have parsed — a funder that does not e-file, or whose grant detail is not itemized, will not appear. Filings run roughly 12–24 months behind. Trends on this page end at FY2023, the last fiscal year that has finished arriving; later years are shown and marked, and move no figure. Data on this page was exported October 14, 2026. What this page cannot tell you · view filing