Massachusetts · Nonprofit
NEW ENGLAND HEMOPHILIA ASSOCIATION INC
NEW ENGLAND HEMOPHILIA ASSOCIATION INC (Massachusetts) receives grants from 38 organizations whose IRS filings report $994,584 to it, the largest being NATIONAL BLEEDING DISORDERS FOUNDATION ($185,725). 20 of them have funded it in more than one year.
- Revenue FY2024
- $1.6M
- Funders on record
- 38
- Grants received
- $995k
- Net assets
- $1.9M
What New England Hemophilia Association Inc does
Mission
To improve the quality of life for individuals with bleeding disorders and their families through education, advocacy, and support.
As stated on its FY2024 Form 990.
Programs
Education services - efforts designed to provide information and educate persons with bleeding discorders, family members, health care providers and the public about the nature of these disorders, current treatment and management to reduce complications and improve quality of life.
$1,041,873 spent$56,485 earned by the program73% of program spendingSupport services - efforts designed to decrease the stigma and isolation of persons with bleeding disorders, provide emotional support and build peer support networks and a sense of community.
$135,491 spent9% of program spendingAdvocacy - efforts designed to give a voice to the bleeding disorders community on a variety of issues such as insurance, product safety, access to quality care, etc.
$257,690 spent18% of program spending
The 3 programs described on its FY2024 Form 990, listed largest first by expense. Program spending in total: $1,435,054.
The organization over time
Each line starts at 100 in 2017, so what you read is the shape rather than the size: 150 means half as much again as 2017, 50 means half. The number beside each label in the key is where it ended. The shaded band is where the middle 50% of its peers' revenue would sit, given their growth.
Balance sheet
Total assets and total liabilities at each year end, in dollars. The largest one-year move in total assets was 2022 to 2023, from $1.5M to $2.0M (+32%).
How it's funded, over time
Each bar is one year's revenue split into where it came from, and every bar is the same height — these are shares, not amounts, so a year that raised twice as much looks the same size. Hover a bar for the split.
Government-grant reliance: 2020 5%. Grants only. Government contracts and fees sit inside program revenue.
97% of NEW ENGLAND HEMOPHILIA ASSOCIATION INC’s revenue is contributions — more donation-reliant than the typical peer (82% for the typical peer).
Surplus & reserves
Operating surplus or deficit each year, and months of liquidity in hand. 1 of the last 8 reported years ran a deficit.
reserve
Leadership and staff
The officers, directors, trustees and key employees listed on each return. Joined and no longer listed compare each filing with the year before, matching people by surname and first initial; a year after a gap, or a roster under three people, has no comparison.
Chief executive
Richard Pezzillo
Executive director
As listed on its FY2024 Form 990.
Who funds it, year by year
2017 → 2023: the base broadened from 6 funders to 18 funders, grant income rose $117k → $229k.
8 of 38 of your funders are donor-advised or pass-through sponsors (tagged DAF) — 28% of grant dollars received. That money is really individual donors directing a sponsor; the institutions to cultivate are the non-DAF funders.
From the IRS filings of NEW ENGLAND HEMOPHILIA ASSOCIATION INC’s funders (the co-funder graph). Top 30 of 38 funders by total. Association, not causation. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How concentrated its funding is
NEW ENGLAND HEMOPHILIA ASSOCIATION INC has a broad base — no single funder exceeds 19% of grant income, and it takes 4 funders to reach half.
the vertical line marks half of all grant income — 4 funders to its left
82% of the income these shares are computed over arrives through pass-through sponsors or from payers whose filings do not say what kind of payment it is. Concentration is still measured over all of it, because the money is real; what it does not support is a claim about how many institutions have chosen to fund NEW ENGLAND HEMOPHILIA ASSOCIATION INC.
Largest funder’s share by year: 2017 58% · 2018 44% · 2019 28% · 2020 19% · 2021 35% · 2022 23% · 2023 22% — diversifying over time.
“Effective funders” = inverse Herfindahl index (1 / Σ shareᵢ²) — the number of equal-sized funders that would give the same concentration. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How long its funders stay
44% of NEW ENGLAND HEMOPHILIA ASSOCIATION INC's funders are still giving 3 years after their first grant; 53% give in more than one year at all.
Share of funders still giving k years after their first recorded grant, pooled across every acquisition cohort. A funder counts as retained in a year only if it made a grant that year. Measured to FY2023, the last fiscal year that has finished arriving — a funder cannot be counted as lapsed in a year most filers have not reached.
Where its funders are
NEW ENGLAND HEMOPHILIA ASSOCIATION INC draws 95% of its grant income from funders outside Massachusetts, across 12 states in all.
In-state vs out-of-state, by year
Funder states come from each funder’s own filing. $281k arriving through sponsors registered in 7 states is excluded from the map and the split above: a sponsor holds money on a donor’s behalf, so its registered address would place those dollars somewhere no donor need ever have been. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
Against its field
NEW ENGLAND HEMOPHILIA ASSOCIATION INC's funding base is broadening — from 6 funders to 18 as grant income climbed.
this organization peer median middle 50% of peers· 2,910 philanthropy nonprofits $1M–$10M, FY2024
Organizations like NEW ENGLAND HEMOPHILIA ASSOCIATION INC
Organizations whose mission and program text most resemble this one, by semantic similarity over every organization in the US filings — the closest peers, and often the clearest route to shared or prospective funders.
In Massachusetts
Nationally
Read directly from this organization’s own Form 990, as neutral context.
Where the money goes
85% of spending goes to programs.
Governance
Public support
72%
Share of support from the public (Schedule A) — the basis for its public-charity status.
Footprint & structure
Files a return copy in 6 states
Screen this organization
A dated, signed PDF of the compliance screen for NEW ENGLAND HEMOPHILIA ASSOCIATION INC: IRS status (Business Master File, Publication 78, auto-revocation), the OFAC sanctions lists, the Internal Revenue Bulletin, and California registration, with the Rev. Proc. 2018-32 §8.01 reliance elements stated element by element. Generated from the current files at the moment you download it.
Screens are triage, not determinations; a source that cannot be read reports not screened, never clear. Screen this nonprofit · How the screen works · on the API as GET /api/screening/{ein}?format=pdf
Questions and answers
- Who funds NEW ENGLAND HEMOPHILIA ASSOCIATION INC?
- NEW ENGLAND HEMOPHILIA ASSOCIATION INC (Massachusetts) receives grants from 38 organizations whose IRS filings report $994,584 to it, the largest being NATIONAL BLEEDING DISORDERS FOUNDATION ($185,725). 20 of them have funded it in more than one year.
- How many funders does NEW ENGLAND HEMOPHILIA ASSOCIATION INC have?
- IRS filings report 38 organizations giving $994,584 in grants to NEW ENGLAND HEMOPHILIA ASSOCIATION INC, 20 of which have funded it in more than one year.
- Who is the largest funder of NEW ENGLAND HEMOPHILIA ASSOCIATION INC?
- NATIONAL BLEEDING DISORDERS FOUNDATION is the largest funder on record, with $185,725 in grants. The full list of funders is on this page.
- How can an organization like NEW ENGLAND HEMOPHILIA ASSOCIATION INC find more funders?
- Start with the funders already giving here, then look at the foundations that back similar organizations in Massachusetts. The funding by cause and by state pages list the largest funders for a given area and how to approach them.
Play a game about who funds New England Hemophilia Association →
These figures are read directly from IRS Form 990 / 990-PF e-file XML: this organization’s own return for FY2024 (financials across 2017–2024), and the filings of 38 funders that report grants to it. “On record” means captured in the filings we have parsed — a funder that does not e-file, or whose grant detail is not itemized, will not appear. Filings run roughly 12–24 months behind. Trends on this page end at FY2023, the last fiscal year that has finished arriving; later years are shown and marked, and move no figure. Data on this page was exported October 22, 2026. What this page cannot tell you · view filing