California · Nonprofit
NORTHERN CALIFORNIA BLEEDING DISORDERS FOUNDATION FORMERLY HEMOPHILIA FOUNDTN
NORTHERN CALIFORNIA BLEEDING DISORDERS FOUNDATION FORMERLY HEMOPHILIA FOUNDTN (California) receives grants from 19 organizations whose IRS filings report $401,515 to it, the largest being AMERICAN ONLINE GIVING FOUNDATION INC ($111,412). 14 of them have funded it in more than one year.
- Revenue FY2024
- $553k
- Funders on record
- 19
- Grants received
- $402k
- Net assets
- $831k
What Northern California Bleeding Disorders Foundation Formerly Hemophilia Foundtn does
Mission
Norcalbdg is a donor-supported and volunteer-run organization serving the needs of people with hemophilia and related bleeding disorders and is dedicated to improving the lives and increasing the independence of individuals challenged by these disorders. Since 1959, hfnc has worked within the local community to provide: a network of support by connecting individuals and families affected by bleeding disorders, disorder-related education, recreational opportunities and financial and emotional support.
As stated on its FY2024 Form 990.
Programs
Annual summer camp-camp hemotion is an annual weeklong residential summer camp serving approximately 100 young people, ages 7-20, living with bleeding disorders. For many years, camp hemotion has served as ncbd's primary way to reach young people and provide them with the tools and skills they need to lead healthy, vibrant and, importantly, full lives.
$201,727 spentof which $5,000 as grants47% of program spendingSpring/winter family educational gatherings: the organization sponsors two annual gatherings to include an annual holiday gathering and a springfest allowing participants to share in a day of education and connection. The gatherings foster connections between the individuals with bleeding disorders, their families and their caregivers. Nclb actually hosts three holiday gatherings in the cities of oakland, modesto and fresno, california.
$134,818 spent31% of program spendingAnnual family camp-hosted by the taylor family foundation, family camp brings together approximately 40 families each year for a weekend of arts and crafts, family games, a campfire, a talent show, yoga, educational seminars and more. Family camp provides a unique opportunity to meet other families in the bleeding disorders community, learn from each other, and participate in fun activities in a harmonious and relaxing environment.
$42,259 spent10% of program spendingEducational outreach: ncbd strives to provides relevant information to the blood disorder community, donors and other interested parties about foundation activities, treatment advances and available resources, as well as current events and legislations. This is achieved thru sponsoring world hemophilia day, hosting educational dinners, and publishing a quarterly newsletter.
$23,765 spent5% of program spendingEmergency assistance program - ncbd provides cash grants annually to individuals living with bleeding disorders and experiencing a financial crisis. Grants range between $250 and $500 and cover basic life necessities such as rent, food and utilities.
$12,463 spent3% of program spendingWomen's/men's groups - designed to provide support to people facing the same or similar challenges relating to bleeding disorders through meetings, online forums,webinars, and other educational and recreational activities that are available throughout the year.
$11,951 spent3% of program spendingFamilia de sangre (fds) - an educational symposium for our spanish speaking families affected by bleeding disorders and is designed to bridge the cultural and linguistic gaps that exist among the spanish speaking bleeding disorders community and the general bleeding disorders community.
$6,048 spent1% of program spendingHemophilia council of california advocacy summit - an advocacy summit for key stakeholders (meeting participants include representatives from all manufacturers of hemophilia clotting factors, national specialty pharmacy providers, hemophilia treatment centers, psi, ppta and nhf and hfa). The purposes are:1) to discuss policy issues that may impact our community, and2) to develop priorities for a plan of action.
$607 spent0% of program spending
The 8 programs described on its FY2024 Form 990, listed largest first by expense. Program spending in total: $433,638.
The organization over time
Each line starts at 100 in 2017, so what you read is the shape rather than the size: 150 means half as much again as 2017, 50 means half. The number beside each label in the key is where it ended. The shaded band is where the middle 50% of its peers' revenue would sit, given their growth.
Balance sheet
Total assets and total liabilities at each year end, in dollars. The largest one-year move in total assets was 2020 to 2021, from $349k to $559k (+60%).
How it's funded, over time
Each bar is one year's revenue split into where it came from, and every bar is the same height — these are shares, not amounts, so a year that raised twice as much looks the same size. Hover a bar for the split.
Government-grant reliance: 2021 13% · 2022 14%. Grants only. Government contracts and fees sit inside program revenue.
68% of NORTHERN CALIFORNIA BLEEDING DISORDERS FOUNDATION FORMERLY HEMOPHILIA FOUNDTN’s revenue is contributions — about as donation-reliant as the typical peer (82% for the typical peer).
Surplus & reserves
Operating surplus or deficit each year, and months of liquidity in hand. 1 of the last 8 reported years ran a deficit.
reserve
Leadership and staff
The officers, directors, trustees and key employees listed on each return. Joined and no longer listed compare each filing with the year before, matching people by surname and first initial; a year after a gap, or a roster under three people, has no comparison.
Chief executive
April Steger
Executive director
As listed on its FY2024 Form 990.
Who funds it, year by year
2017 → 2023: the base broadened from 3 funders to 13 funders, grant income rose $27k → $116k.
6 of 19 of your funders are donor-advised or pass-through sponsors (tagged DAF) — 46% of grant dollars received. That money is really individual donors directing a sponsor; the institutions to cultivate are the non-DAF funders.
From the IRS filings of NORTHERN CALIFORNIA BLEEDING DISORDERS FOUNDATION FORMERLY HEMOPHILIA FOUNDTN’s funders (the co-funder graph). Top 17 of 19 funders by total. Association, not causation. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How concentrated its funding is
NORTHERN CALIFORNIA BLEEDING DISORDERS FOUNDATION FORMERLY HEMOPHILIA FOUNDTN has a broad base — no single funder exceeds 28% of grant income, and it takes 3 funders to reach half.
the vertical line marks half of all grant income — 3 funders to its left
85% of the income these shares are computed over arrives through pass-through sponsors or from payers whose filings do not say what kind of payment it is. Concentration is still measured over all of it, because the money is real; what it does not support is a claim about how many institutions have chosen to fund NORTHERN CALIFORNIA BLEEDING DISORDERS FOUNDATION FORMERLY HEMOPHILIA FOUNDTN.
Largest funder’s share by year: 2017 47% · 2018 71% · 2019 100% · 2020 52% · 2021 67% · 2022 47% · 2023 22% — diversifying over time.
“Effective funders” = inverse Herfindahl index (1 / Σ shareᵢ²) — the number of equal-sized funders that would give the same concentration. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How long its funders stay
33% of NORTHERN CALIFORNIA BLEEDING DISORDERS FOUNDATION FORMERLY HEMOPHILIA FOUNDTN's funders are still giving 3 years after their first grant; 74% give in more than one year at all.
Share of funders still giving k years after their first recorded grant, pooled across every acquisition cohort. A funder counts as retained in a year only if it made a grant that year. Measured to FY2023, the last fiscal year that has finished arriving — a funder cannot be counted as lapsed in a year most filers have not reached.
Where its funders are
NORTHERN CALIFORNIA BLEEDING DISORDERS FOUNDATION FORMERLY HEMOPHILIA FOUNDTN draws 89% of its grant income from funders outside California, across 7 states in all.
In-state vs out-of-state, by year
Funder states come from each funder’s own filing. $183k arriving through sponsors registered in 6 states is excluded from the map and the split above: a sponsor holds money on a donor’s behalf, so its registered address would place those dollars somewhere no donor need ever have been. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
Against its field
NORTHERN CALIFORNIA BLEEDING DISORDERS FOUNDATION FORMERLY HEMOPHILIA FOUNDTN holds deeper cash reserves than three-quarters of the 13,754 health nonprofits its size.
this organization peer median middle 50% of peers· 13,754 health nonprofits $100k–$1M, FY2024
Organizations like NORTHERN CALIFORNIA BLEEDING DISORDERS FOUNDATION FORMERLY HEMOPHILIA FOUNDTN
Organizations whose mission and program text most resemble this one, by semantic similarity over every organization in the US filings — the closest peers, and often the clearest route to shared or prospective funders.
In California
Nationally
Read directly from this organization’s own Form 990, as neutral context.
Where the money goes
80% of spending goes to programs.
Governance
Public support
62%
Share of support from the public (Schedule A) — the basis for its public-charity status.
Footprint & structure
Files a return copy in 1 state
Screen this organization
A dated, signed PDF of the compliance screen for NORTHERN CALIFORNIA BLEEDING DISORDERS FOUNDATION FORMERLY HEMOPHILIA FOUNDTN: IRS status (Business Master File, Publication 78, auto-revocation), the OFAC sanctions lists, the Internal Revenue Bulletin, and California registration, with the Rev. Proc. 2018-32 §8.01 reliance elements stated element by element. Generated from the current files at the moment you download it.
Screens are triage, not determinations; a source that cannot be read reports not screened, never clear. Screen this nonprofit · How the screen works · on the API as GET /api/screening/{ein}?format=pdf
Questions and answers
- Who funds NORTHERN CALIFORNIA BLEEDING DISORDERS FOUNDATION FORMERLY HEMOPHILIA FOUNDTN?
- NORTHERN CALIFORNIA BLEEDING DISORDERS FOUNDATION FORMERLY HEMOPHILIA FOUNDTN (California) receives grants from 19 organizations whose IRS filings report $401,515 to it, the largest being AMERICAN ONLINE GIVING FOUNDATION INC ($111,412). 14 of them have funded it in more than one year.
- How many funders does NORTHERN CALIFORNIA BLEEDING DISORDERS FOUNDATION FORMERLY HEMOPHILIA FOUNDTN have?
- IRS filings report 19 organizations giving $401,515 in grants to NORTHERN CALIFORNIA BLEEDING DISORDERS FOUNDATION FORMERLY HEMOPHILIA FOUNDTN, 14 of which have funded it in more than one year.
- Who is the largest funder of NORTHERN CALIFORNIA BLEEDING DISORDERS FOUNDATION FORMERLY HEMOPHILIA FOUNDTN?
- AMERICAN ONLINE GIVING FOUNDATION INC is the largest funder on record, with $111,412 in grants. The full list of funders is on this page.
- How can an organization like NORTHERN CALIFORNIA BLEEDING DISORDERS FOUNDATION FORMERLY HEMOPHILIA FOUNDTN find more funders?
- Start with the funders already giving here, then look at the foundations that back similar organizations in California. The funding by cause and by state pages list the largest funders for a given area and how to approach them.
These figures are read directly from IRS Form 990 / 990-PF e-file XML: this organization’s own return for FY2024 (financials across 2017–2024), and the filings of 19 funders that report grants to it. “On record” means captured in the filings we have parsed — a funder that does not e-file, or whose grant detail is not itemized, will not appear. Filings run roughly 12–24 months behind. Trends on this page end at FY2023, the last fiscal year that has finished arriving; later years are shown and marked, and move no figure. Data on this page was exported October 14, 2026. What this page cannot tell you · view filing