Wisconsin · Nonprofit
GREAT LAKES HEMOPHILIA FOUNDATION INC
GREAT LAKES HEMOPHILIA FOUNDATION INC (Wisconsin) receives grants from 17 organizations whose IRS filings report $4,438,352 to it, the largest being AMERICAN THROMBOSIS AND HEMOSTASIS NETWORK INC ($2,999,162). 12 of them have funded it in more than one year.
- Revenue FY2025
- $1.7M
- Funders on record
- 17
- Grants received
- $4.4M
- Net assets
- $2.6M
What Great Lakes Hemophilia Foundation Inc does
Mission
To educate, support and advocate for the bleeding disorders community of wisconsin.
As stated on its FY2025 Form 990.
Programs
Patient care: great lakes hemophilia foundation as a regional core center advances the comprehensive care for people with bleeding disorders through its participation in an integrated regional network of hemophilia treatment centers through a grant from hrsa. The design of the hemophilia treatment care network provides patients with access to multiple health disciplines, each of which has specific expertise in bleeding disorders care. This care model has been one of the most successfully managed public health programs in the united states. The substantial socioeconomic benefits of comprehensive services for the hemophilia bleeding disorder population are well documented and include decreased hospital in-patient-days, lower cost of care, and decreased health care resource utilization.
$575,548 spentof which $244,443 as grants53% of program spendingCommunity services and professional education and training:great lakes hemophilia foundation supports a comprehensive network of health professionals, and patients and their families in providing public education about bleeding disorders. Health care professionals - through the federal grant supported regional network - educate teachers, coaches, emergency room personnel, dentists, and other healthcare professionals and individuals who provide support to individuals with bleeding disorders to ensure safe and healthy outcomes for their patients.great lakes hemophilia foundation is committed to assessing regional training needs and providing training opportunities in its role as the regional core center. As the regional core center, staff provide technical assistance to hemophilia treatment center staff through training using a variety of techniques. New personnel training is carried out: 1) by staff mentorship; 2) through on-the-job training by other team members during team meetings and clinic using a defined set of demonstrated skills and knowledge; 3) at professional meetings; 4) at national training programs like the partners in bleeding disorders opportunities program; 5)…
$223,784 spentof which $124,344 as grants$20,150 earned by the program20% of program spendingResearch/surveillance: great lakes hemophilia foundation supports the systematic coordinated assessment and recording of health outcomes of individuals with bleeding disorders in a nationally uniform database. Great lakes hemophilia foundation is a sub grantee of the american thrombosis and hemostasis network (athn) for the cdc community counts project. This surveillance database monitors the health of the bleeding disorders population with the goal of optimized quality of life for those affected by bleeding disorders.
$168,956 spentof which $111,287 as grants15% of program spendingPatient education and services:great lakes hemophilia foundation provides a variety of opportunities for individuals with bleeding disorders. The wisconsin bleeding disorders conference and youth programs like camp klotty pine provide individuals with bleeding disorders an opportunity to network with others living with a bleeding disorder. Camp scholarships are provided to youth. At camp, they are among other kids with bleeding disorders and often learn to treat therefore gaining independence. Educational scholarships are made available to assist individuals with bleeding disorders to gain meaningful education about their disorder or life skills which in turn leads to job skills that will allow them to gain employment with health insurance benefits.individuals with challenging financial situations may apply for emergency financial assistance through great lakes hemophilia foundation. Many individuals with bleeding disorders live at or just above the federal poverty levels. Great lakes hemophilia foundation provides assistance to ensure individuals with bleeding disorders can retain health insurance coverage by temporarily assisting with insurance premiums. In addition, funds are…
$127,105 spentof which $127,105 as grants12% of program spending
The 4 programs described on its FY2024 Form 990, listed largest first by expense. Program spending in total: $1,095,393.
The organization over time
Each line starts at 100 in 2017, so what you read is the shape rather than the size: 150 means half as much again as 2017, 50 means half. The number beside each label in the key is where it ended.
Balance sheet
Total assets and total liabilities at each year end, in dollars. The largest one-year move in total assets was 2023 to 2024, from $2.5M to $3.1M (+24%).
How it's funded, over time
Each bar is one year's revenue split into where it came from, and every bar is the same height — these are shares, not amounts, so a year that raised twice as much looks the same size. Hover a bar for the split.
Government-grant reliance: 2017 58% · 2018 55% · 2019 56% · 2020 62% · 2021 65% · 2022 62% · 2023 60% · 2024 58% · 2025 55%. Grants only. Government contracts and fees sit inside program revenue.
Surplus & reserves
Operating surplus or deficit each year, and months of liquidity in hand. 2 of the last 9 reported years ran a deficit.
reserve
Leadership and staff
The officers, directors, trustees and key employees listed on each return. Joined and no longer listed compare each filing with the year before, matching people by surname and first initial; a year after a gap, or a roster under three people, has no comparison.
Chief executive
Danielle Leitner Baxter
Executive director
As listed on its FY2025 Form 990.
Who funds it, year by year
2017 → 2023: the base broadened from 6 funders to 9 funders, grant income rose $506k → $533k.
2 of 17 of your funders are donor-advised or pass-through sponsors (tagged DAF) — 0% of grant dollars received. That money is really individual donors directing a sponsor; the institutions to cultivate are the non-DAF funders.
From the IRS filings of GREAT LAKES HEMOPHILIA FOUNDATION INC’s funders (the co-funder graph). Association, not causation. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How concentrated its funding is
GREAT LAKES HEMOPHILIA FOUNDATION INC leans on a few funders — its largest provides 68% of grant income and the top three 92%; half comes from just 1 funder.
the vertical line marks half of all grant income — 1 funder to its left
92% of the income these shares are computed over arrives through pass-through sponsors or from payers whose filings do not say what kind of payment it is. Concentration is still measured over all of it, because the money is real; what it does not support is a claim about how many institutions have chosen to fund GREAT LAKES HEMOPHILIA FOUNDATION INC.
Largest funder’s share by year: 2017 74% · 2018 89% · 2019 73% · 2020 66% · 2021 66% · 2022 68% · 2023 60% — diversifying over time.
“Effective funders” = inverse Herfindahl index (1 / Σ shareᵢ²) — the number of equal-sized funders that would give the same concentration. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How long its funders stay
71% of GREAT LAKES HEMOPHILIA FOUNDATION INC's funders are still giving 3 years after their first grant; 71% give in more than one year at all.
Share of funders still giving k years after their first recorded grant, pooled across every acquisition cohort. A funder counts as retained in a year only if it made a grant that year. Measured to FY2023, the last fiscal year that has finished arriving — a funder cannot be counted as lapsed in a year most filers have not reached.
Where its funders are
GREAT LAKES HEMOPHILIA FOUNDATION INC draws 75% of its grant income from funders outside Wisconsin, across 7 states in all.
In-state vs out-of-state, by year
Funder states come from each funder’s own filing. $6k arriving through sponsors registered in 2 states is excluded from the map and the split above: a sponsor holds money on a donor’s behalf, so its registered address would place those dollars somewhere no donor need ever have been. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
Government funding GREAT LAKES HEMOPHILIA FOUNDATION INC receives
Grants and contracts to this organization from federal (USASpending) and state checkbooks, reconciled to its EIN. $5.0M on record.
- Department of Health and Human Services$5.0M
Federal grants vs contracts are distinguished; state line items keep their reported category. Matched by name + geography (the BMF), so coverage is partial and precision-first.
Organizations like GREAT LAKES HEMOPHILIA FOUNDATION INC
Organizations whose mission and program text most resemble this one, by semantic similarity over every organization in the US filings — the closest peers, and often the clearest route to shared or prospective funders.
In Wisconsin
Nationally
Read directly from this organization’s own Form 990, as neutral context.
Where the money goes
74% of spending goes to programs.
Governance
Public support
95%
Share of support from the public (Schedule A) — the basis for its public-charity status.
Footprint & structure
Files a return copy in 1 state
Screen this organization
A dated, signed PDF of the compliance screen for GREAT LAKES HEMOPHILIA FOUNDATION INC: IRS status (Business Master File, Publication 78, auto-revocation), the OFAC sanctions lists, the Internal Revenue Bulletin, and California registration, with the Rev. Proc. 2018-32 §8.01 reliance elements stated element by element. Generated from the current files at the moment you download it.
Screens are triage, not determinations; a source that cannot be read reports not screened, never clear. Screen this nonprofit · How the screen works · on the API as GET /api/screening/{ein}?format=pdf
Questions and answers
- Who funds GREAT LAKES HEMOPHILIA FOUNDATION INC?
- GREAT LAKES HEMOPHILIA FOUNDATION INC (Wisconsin) receives grants from 17 organizations whose IRS filings report $4,438,352 to it, the largest being AMERICAN THROMBOSIS AND HEMOSTASIS NETWORK INC ($2,999,162). 12 of them have funded it in more than one year.
- How many funders does GREAT LAKES HEMOPHILIA FOUNDATION INC have?
- IRS filings report 17 organizations giving $4,438,352 in grants to GREAT LAKES HEMOPHILIA FOUNDATION INC, 12 of which have funded it in more than one year.
- Who is the largest funder of GREAT LAKES HEMOPHILIA FOUNDATION INC?
- AMERICAN THROMBOSIS AND HEMOSTASIS NETWORK INC is the largest funder on record, with $2,999,162 in grants. The full list of funders is on this page.
- How can an organization like GREAT LAKES HEMOPHILIA FOUNDATION INC find more funders?
- Start with the funders already giving here, then look at the foundations that back similar organizations in Wisconsin. The funding by cause and by state pages list the largest funders for a given area and how to approach them.
These figures are read directly from IRS Form 990 / 990-PF e-file XML: this organization’s own return for FY2025 (financials across 2017–2025), and the filings of 17 funders that report grants to it. “On record” means captured in the filings we have parsed — a funder that does not e-file, or whose grant detail is not itemized, will not appear. Filings run roughly 12–24 months behind. Trends on this page end at FY2023, the last fiscal year that has finished arriving; later years are shown and marked, and move no figure. Data on this page was exported October 14, 2026. What this page cannot tell you · view filing