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Maryland · Nonprofit

United Hemophilia Foundation

United Hemophilia Foundation (Maryland) receives grants from 6 organizations whose IRS filings report $132,667 to it, the largest being Colburn-Keenan Foundation Inc ($64,000). 4 of them have funded it in more than one year.

Revenue FY2025
$187k
Funders on record
6
Grants received
$133k
Net assets
$23k
4/6 repeat funderspeak grant-dependency 18%
01What it does

What United Hemophilia Foundation does

Mission

To provide education awareness and advocacy to people with hemophilia and other rare bleeding disorders in order to enhance their health, wellness, and overall quality of life.

As stated on its FY2025 Form 990.

Programs

  1. Not described on the e-filed return.

    $0 spent
    0% of program spending
  2. United Hemophilia Foundations Major Programs include a Family Education Conference Weekend, a Legislative Advocacy Meeting, a Winter Education Meeting and Holiday Festival; as well as an Educational Program and Patient Services for Men, Women and Children who have Hemophilia and other Rare Bleeding Disorders.

    $146,006 spent
    100% of program spending

The 2 programs described on its FY2025 Form 990, listed largest first by expense. Program spending in total: $146,006.

02The organization over time

The organization over time

Each line starts at 100 in 2017, so what you read is the shape rather than the size: 150 means half as much again as 2017, 50 means half. The number beside each label in the key is where it ended. The shaded band is where the middle 50% of its peers' revenue would sit, given their growth.

100 = 20172017 Revenue 100 ($58k) Expenses 100 ($38k) Net assets 100 ($21k)2020 Revenue 354 ($205k) Expenses 479 ($184k) Net assets 369 ($76k)2021 Revenue 421 ($244k) Expenses 545 ($209k) Net assets 539 ($112k)2022 Revenue 419 ($243k) Expenses 823 ($315k) Net assets 190 ($39k)2023 Revenue 347 ($201k) Expenses 611 ($234k) Net assets 31 ($6k)2024 Revenue 231 ($134k) Expenses 365 ($140k) Net assets 3 ($604)2025 Revenue 323 ($187k) Expenses 431 ($165k) Net assets 110 ($23k)
2017202020212022202320242025
Revenue (323)Expenses (431)Net assets (110)Peer revenue range

Balance sheet

Total assets and total liabilities at each year end, in dollars. The largest one-year move in total assets was 2021 to 2022, from $112k to $39k (−65%).

$21k
$92k
$112k
$39k
$6k
$604
$23k
2017202020212022202320242025
Total assetsTotal liabilities

How it's funded, over time

Each bar is one year's revenue split into where it came from, and every bar is the same height — these are shares, not amounts, so a year that raised twice as much looks the same size. Hover a bar for the split.

2017
2020
2021
2022
2023
2024
2025
ContributionsProgram revenueInvestmentOther

97% of United Hemophilia Foundation’s revenue is contributions — more donation-reliant than the typical peer (82% for the typical peer).

This organization
Typical peer · 14,893 orgs

Surplus & reserves

Operating surplus or deficit each year, and months of liquidity in hand. 3 of the last 7 reported years ran a deficit.

$20k
’17
$22k
’20
$35k
’21
−$72k
’22
−$33k
’23
−$6k
’24
$22k
’25
1.7
months of
reserve

Leadership and staff

The officers, directors, trustees and key employees listed on each return. Joined and no longer listed compare each filing with the year before, matching people by surname and first initial; a year after a gap, or a roster under three people, has no comparison.

202020212022202320242025
Listed666665
Joined·+0+0+0+0+0
No longer listed·00001
03Who funds it

Who funds it, year by year

2018 → 2023: the base broadened from 2 funders to 4 funders, grant income rose $20k → $33k.

1 of 6 of your funders are donor-advised or pass-through sponsors (tagged DAF) — 0% of grant dollars received. That money is really individual donors directing a sponsor; the institutions to cultivate are the non-DAF funders.

From the IRS filings of United Hemophilia Foundation’s funders (the co-funder graph). Association, not causation. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.

How concentrated its funding is

United Hemophilia Foundation leans on a few funders — its largest provides 48% of grant income and the top three 89%; half comes from just 2 funders.

the vertical line marks half of all grant income — 2 funders to its left

52% of the income these shares are computed over arrives through pass-through sponsors or from payers whose filings do not say what kind of payment it is. Concentration is still measured over all of it, because the money is real; what it does not support is a claim about how many institutions have chosen to fund United Hemophilia Foundation.

48%
largest funder
89%
top three
~3
effective funders

Largest funder’s share by year: 2018 60% · 2019 100% · 2020 32% · 2021 100% · 2022 53% · 2023 47% — diversifying over time.

“Effective funders” = inverse Herfindahl index (1 / Σ shareᵢ²) — the number of equal-sized funders that would give the same concentration. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.

Where its funders are

United Hemophilia Foundation draws 100% of its grant income from funders outside Maryland, across 4 states in all.

NY
CT
DC
FL

In-state vs out-of-state, by year

’18
’19
’20
’21
’22
’23
Maryland out of state home

Funder states come from each funder’s own filing. $167 arriving through sponsors registered in 1 state is excluded from the map and the split above: a sponsor holds money on a donor’s behalf, so its registered address would place those dollars somewhere no donor need ever have been. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.

04Its place in the field

Against its field

United Hemophilia Foundation runs a healthier operating margin than half of the 7,883 health nonprofits its size.

Operating margin12% · above the median
Months of reserve1.7mo · bottom quartile
Revenue growth (annualized)16% · above the median

this organization peer median middle 50% of peers· 7,883 health nonprofits $100k–$1M, FY2025

Organizations like United Hemophilia Foundation

Organizations whose mission and program text most resemble this one, by semantic similarity over every organization in the US filings — the closest peers, and often the clearest route to shared or prospective funders.

In Maryland

Nationally

05Profile & governance

Read directly from this organization’s own Form 990, as neutral context.

Where the money goes

88% of spending goes to programs.

Program 88%Management 12%Fundraising 0%

Governance

4
board members
100%
independent
–Conflict-of-interest policy–Whistleblower policy–Document retention✓Board reviewed the 990–Audited financials

Public support

100%

Share of support from the public (Schedule A) — the basis for its public-charity status.

Footprint & structure

Files a return copy in 2 states

MD
GA

Screen this organization

A dated, signed PDF of the compliance screen for United Hemophilia Foundation: IRS status (Business Master File, Publication 78, auto-revocation), the OFAC sanctions lists, the Internal Revenue Bulletin, and California registration, with the Rev. Proc. 2018-32 §8.01 reliance elements stated element by element. Generated from the current files at the moment you download it.

A paid feature, included from the $75 plan up. Sign in to download.

Screens are triage, not determinations; a source that cannot be read reports not screened, never clear. Screen this nonprofit · How the screen works · on the API as GET /api/screening/{ein}?format=pdf

Questions and answers

Who funds United Hemophilia Foundation?
United Hemophilia Foundation (Maryland) receives grants from 6 organizations whose IRS filings report $132,667 to it, the largest being Colburn-Keenan Foundation Inc ($64,000). 4 of them have funded it in more than one year.
How many funders does United Hemophilia Foundation have?
IRS filings report 6 organizations giving $132,667 in grants to United Hemophilia Foundation, 4 of which have funded it in more than one year.
Who is the largest funder of United Hemophilia Foundation?
Colburn-Keenan Foundation Inc is the largest funder on record, with $64,000 in grants. The full list of funders is on this page.
How can an organization like United Hemophilia Foundation find more funders?
Start with the funders already giving here, then look at the foundations that back similar organizations in Maryland. The funding by cause and by state pages list the largest funders for a given area and how to approach them.

Play a game about who funds United Hemophilia →

These figures are read directly from IRS Form 990 / 990-PF e-file XML: this organization’s own return for FY2025 (financials across 2017–2025), and the filings of 6 funders that report grants to it. “On record” means captured in the filings we have parsed — a funder that does not e-file, or whose grant detail is not itemized, will not appear. Filings run roughly 12–24 months behind. Trends on this page end at FY2023, the last fiscal year that has finished arriving; later years are shown and marked, and move no figure. Data on this page was exported October 14, 2026. What this page cannot tell you · view filing