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Utah · Nonprofit

UTAH HEMOPHILIA FOUNDATION

UTAH HEMOPHILIA FOUNDATION (Utah) receives grants from 15 organizations whose IRS filings report $347,321 to it, the largest being Global Impact ($183,416). 9 of them have funded it in more than one year, and 73% of the money arrives through donor-advised or pass-through sponsors rather than from an institution directly.

Revenue FY2024
$410k
Funders on record
15
Grants received
$347k
Net assets
$1.1M
9/15 repeat funderspeak grant-dependency 34%
01What it does

What Utah Hemophilia Foundation does

Mission

Providing education and support services for individuals and families with bleeding disorders and empowering them to live healthier and more self- sufficient lives.

As stated on its FY2024 Form 990.

Programs

  1. Community education: camp valor - 48 campers attended. For the children in utah's bleeding disorders community, camp valor represents the foundation for effective life-long management of a bleeding disorder. It is at this camp that children first learn to self-infuse. Campers, also, learn the basics of self-care required for the treatment and management of their disease state. Because of the severity of the condition from which they suffer, children with hemophilia seldom have the opportunity to enjoy many of the same physical activities that their unaffected peers do. Camp valor, allows children with bleeding disorders to spend time outdoors, recreating under the constant care and supervision of a full complement of medical professionals. For most of these children, it is the only time that they can just be kids. Everybody's here - 120 people attended. A program that brings together the uhf, industry partners, the hemophilia treatment center staff, and the bleeding disorders community. It is an evening of networking, information, and peer support. Informational exhibits are provided by pharmaceutical manufacturers and home care companies, which disseminate the latest information…

    $343,801 spent
    100% of program spending
  2. Financial assistance programs: lifeline - a fund through which individuals with bleeding disorders can receive financial assistance with high insurance premiums, cobra payments, and out of pocket medical expenses associated with the diagnosis and treatment of bleeding disorder. 10 people were served through this program. Holiday assistance (sub for santa) - 7 families were served. Families within the bleeding disorders community may need some extra financial assistance to support their family through the holiday season. The uhf partnered with a local business to provide food, clothing and toys for families determined to be most in need.

The 2 programs described on its FY2024 Form 990, listed largest first by expense. Program spending in total: $343,801.

02The organization over time

The organization over time

Each line starts at 100 in 2017, so what you read is the shape rather than the size: 150 means half as much again as 2017, 50 means half. The number beside each label in the key is where it ended. The shaded band is where the middle 50% of its peers' revenue would sit, given their growth.

100 = 20172017 Revenue 100 ($370k) Expenses 100 ($347k) Net assets 100 ($627k)2018 Revenue 109 ($402k) Expenses 94 ($325k) Net assets 112 ($703k)2019 Revenue 101 ($375k) Expenses 80 ($277k) Net assets 129 ($810k)2020 Revenue 69 ($256k) Expenses 88 ($305k) Net assets 121 ($761k)2021 Revenue 99 ($368k) Expenses 74 ($258k) Net assets 139 ($871k)2022 Revenue 95 ($350k) Expenses 81 ($280k) Net assets 150 ($940k)2023 Revenue 133 ($493k) Expenses 92 ($319k) Net assets 178 ($1.1M)2024 Revenue 111 ($410k) Expenses 110 ($381k) Net assets 182 ($1.1M)
'17'18'19'20'21'22'23'24
Revenue (111)Expenses (110)Net assets (182)Peer revenue range

Balance sheet

Total assets and total liabilities at each year end, in dollars. The largest one-year move in total assets was 2022 to 2023, from $940k to $1.1M (+18%).

$634k
$712k
$810k
$789k
$871k
$940k
$1.1M
$1.1M
'17'18'19'20'21'22'23'24
Total assetsTotal liabilities

How it's funded, over time

Each bar is one year's revenue split into where it came from, and every bar is the same height — these are shares, not amounts, so a year that raised twice as much looks the same size. Hover a bar for the split.

2017
2018
2019
2020
2021
2022
2023
2024
ContributionsProgram revenueInvestmentOther

Government-grant reliance: 2017 30% · 2018 33% · 2019 37% · 2020 88% · 2021 29% · 2022 13% · 2023 21% · 2024 17%. Grants only. Government contracts and fees sit inside program revenue.

91% of UTAH HEMOPHILIA FOUNDATION’s revenue is contributions — more donation-reliant than the typical peer (82% for the typical peer).

This organization
Typical peer · 14,893 orgs

Surplus & reserves

Operating surplus or deficit each year, and months of liquidity in hand. 1 of the last 8 reported years ran a deficit.

$23k
’17
$78k
’18
$98k
’19
−$49k
’20
$109k
’21
$70k
’22
$174k
’23
$29k
’24
36
months of
reserve

Leadership and staff

The officers, directors, trustees and key employees listed on each return. Joined and no longer listed compare each filing with the year before, matching people by surname and first initial; a year after a gap, or a roster under three people, has no comparison.

'17'18'19'20'21'22'23'24
Listed1110131115141515
Joined·+2+4+0+6+2+1+3
No longer listed·3122303
03Who funds it

Who funds it, year by year

2017 → 2023: the base broadened from 2 funders to 5 funders, grant income rose $13k → $27k.

3 of 15 of your funders are donor-advised or pass-through sponsors (tagged DAF) — 73% of grant dollars received. That money is really individual donors directing a sponsor; the institutions to cultivate are the non-DAF funders.

From the IRS filings of UTAH HEMOPHILIA FOUNDATION’s funders (the co-funder graph). Top 14 of 15 funders by total. Association, not causation. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.

How concentrated its funding is

UTAH HEMOPHILIA FOUNDATION leans on a few funders — its largest provides 53% of grant income and the top three 79%; half comes from just 1 funder.

the vertical line marks half of all grant income — 1 funder to its left

86% of the income these shares are computed over arrives through pass-through sponsors or from payers whose filings do not say what kind of payment it is. Concentration is still measured over all of it, because the money is real; what it does not support is a claim about how many institutions have chosen to fund UTAH HEMOPHILIA FOUNDATION.

53%
largest funder
79%
top three
~3
effective funders

Largest funder’s share by year: 2017 80% · 2018 100% · 2019 83% · 2020 55% · 2021 62% · 2022 69% · 2023 38% — diversifying over time.

“Effective funders” = inverse Herfindahl index (1 / Σ shareᵢ²) — the number of equal-sized funders that would give the same concentration. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.

How long its funders stay

50% of UTAH HEMOPHILIA FOUNDATION's funders are still giving 3 years after their first grant; 60% give in more than one year at all.

first grant+1y+2y+3y

Share of funders still giving k years after their first recorded grant, pooled across every acquisition cohort. A funder counts as retained in a year only if it made a grant that year. Measured to FY2023, the last fiscal year that has finished arriving — a funder cannot be counted as lapsed in a year most filers have not reached.

Where its funders are

73% of UTAH HEMOPHILIA FOUNDATION's grant income arrives through donor-advised or pass-through sponsors, whose addresses record where the money is held rather than where the donor is. Of the $92k that is directly attributable, 51% of it comes from funders outside Utah, across 6 states.

NY
CT
UT
MO
DC
FL

In-state vs out-of-state, by year

’17
’19
’20
’21
’22
’23
Utah out of state home

Funder states come from each funder’s own filing. $255k arriving through sponsors registered in 3 states is excluded from the map and the split above: a sponsor holds money on a donor’s behalf, so its registered address would place those dollars somewhere no donor need ever have been. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.

04Its place in the field

Against its field

UTAH HEMOPHILIA FOUNDATION holds deeper cash reserves than three-quarters of the 13,754 health nonprofits its size.

Operating margin7% · above the median
Months of reserve36.0mo · top quartile
Revenue growth (annualized)1% · below the median

this organization peer median middle 50% of peers· 13,754 health nonprofits $100k–$1M, FY2024

Organizations like UTAH HEMOPHILIA FOUNDATION

Organizations whose mission and program text most resemble this one, by semantic similarity over every organization in the US filings — the closest peers, and often the clearest route to shared or prospective funders.

In Utah

Nationally

05Profile & governance

Read directly from this organization’s own Form 990, as neutral context.

Where the money goes

90% of spending goes to programs.

Program 90%Management 5%Fundraising 4%

Governance

15
board members
100%
independent
✓Conflict-of-interest policy–Whistleblower policy–Document retention✓Board reviewed the 990–Audited financials

Public support

57%

Share of support from the public (Schedule A) — the basis for its public-charity status.

Footprint & structure

Files a return copy in 1 state

UT

Screen this organization

A dated, signed PDF of the compliance screen for UTAH HEMOPHILIA FOUNDATION: IRS status (Business Master File, Publication 78, auto-revocation), the OFAC sanctions lists, the Internal Revenue Bulletin, and California registration, with the Rev. Proc. 2018-32 §8.01 reliance elements stated element by element. Generated from the current files at the moment you download it.

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Screens are triage, not determinations; a source that cannot be read reports not screened, never clear. Screen this nonprofit · How the screen works · on the API as GET /api/screening/{ein}?format=pdf

Questions and answers

Who funds UTAH HEMOPHILIA FOUNDATION?
UTAH HEMOPHILIA FOUNDATION (Utah) receives grants from 15 organizations whose IRS filings report $347,321 to it, the largest being Global Impact ($183,416). 9 of them have funded it in more than one year, and 73% of the money arrives through donor-advised or pass-through sponsors rather than from an institution directly.
How many funders does UTAH HEMOPHILIA FOUNDATION have?
IRS filings report 15 organizations giving $347,321 in grants to UTAH HEMOPHILIA FOUNDATION, 9 of which have funded it in more than one year.
Who is the largest funder of UTAH HEMOPHILIA FOUNDATION?
Global Impact is the largest funder on record, with $183,416 in grants. The full list of funders is on this page.
How can an organization like UTAH HEMOPHILIA FOUNDATION find more funders?
Start with the funders already giving here, then look at the foundations that back similar organizations in Utah. The funding by cause and by state pages list the largest funders for a given area and how to approach them.

Play a game about who funds Utah Hemophilia →

These figures are read directly from IRS Form 990 / 990-PF e-file XML: this organization’s own return for FY2024 (financials across 2017–2024), and the filings of 15 funders that report grants to it. “On record” means captured in the filings we have parsed — a funder that does not e-file, or whose grant detail is not itemized, will not appear. Filings run roughly 12–24 months behind. Trends on this page end at FY2023, the last fiscal year that has finished arriving; later years are shown and marked, and move no figure. Data on this page was exported October 14, 2026. What this page cannot tell you · view filing