North Carolina · Nonprofit
BLEEDING DISORDERS FOUNDATION OF NORTH CAROLINA
BLEEDING DISORDERS FOUNDATION OF NORTH CAROLINA (North Carolina) receives grants from 14 organizations whose IRS filings report $417,643 to it, the largest being THE HEMOPHILIA ALLIANCE FOUNDATION ($164,000). 9 of them have funded it in more than one year.
- Revenue FY2025
- $751k
- Funders on record
- 14
- Grants received
- $418k
- Net assets
- $1.4M
What Bleeding Disorders Foundation of North Carolina does
Mission
Dedicated to improving the quality of life of persons affected by bleeding disorders through advocacy, education, promotion of research and delivery of supportive programs and services.
As stated on its FY2025 Form 990.
Programs
Bleeding disorders foundation of nc provides education to help people with bleeding disorders avoid debilitating complications and live longer, more active and healthier lives; conducts advocacy initiatives at local and national levels to help ensure access to medical care and equitable insurance reimbursement for all; builds awareness of bleedng disorders and promotes early diagnosis; advocates and creates awareness for blood safety and helps to fund and promote research toward better treatments and cures.
$472,724 spent$496,805 earned by the program89% of program spendingBleeding disorders foundation of nc publishes a quarterly newsletter, the concentrate, that is distributed to members, the medical community and other interested parties. Information in the newsletter contains articles on relevant topics to the bleeding disorders community, updates on programs and services and highlights of community members. Based on information received from the membership, the newsletter is their primary source of information. In addition to the newsletter, bleeding disorders foundation of nc publishes flyers with information about upcoming programs and services.
$9,772 spent2% of program spendingThe bleeding disorders foundation of nc financial assistance program is part of the organization's continuing effort to improve the quality of life of individuals and families affected by bleeding disorders. This program provides funds to eligible individuals and families who need assistance with expenses incurred in the care, treatment or prevention of a bleeding disorder, and/or basic living expenses.
$51,296 spentof which $51,296 as grants10% of program spending
The 3 programs described on its FY2024 Form 990, listed largest first by expense. Program spending in total: $533,792.
The organization over time
Each line starts at 100 in 2017, so what you read is the shape rather than the size: 150 means half as much again as 2017, 50 means half. The number beside each label in the key is where it ended. The shaded band is where the middle 50% of its peers' revenue would sit, given their growth.
Balance sheet
Total assets and total liabilities at each year end, in dollars. The largest one-year move in total assets was 2020 to 2021, from $705k to $933k (+32%).
How it's funded, over time
Each bar is one year's revenue split into where it came from, and every bar is the same height — these are shares, not amounts, so a year that raised twice as much looks the same size. Hover a bar for the split.
Government-grant reliance: 2023 10%. Grants only. Government contracts and fees sit inside program revenue.
79% of BLEEDING DISORDERS FOUNDATION OF NORTH CAROLINA’s revenue is contributions — about as donation-reliant as the typical peer (91% for the typical peer).
Surplus & reserves
Operating surplus or deficit each year, and months of liquidity in hand. 0 of the last 8 reported years ran a deficit.
reserve
Leadership and staff
The officers, directors, trustees and key employees listed on each return. Joined and no longer listed compare each filing with the year before, matching people by surname and first initial; a year after a gap, or a roster under three people, has no comparison.
Chief executive
Charlene Cowell
Executive director
As listed on its FY2025 Form 990.
Who funds it, year by year
2018 → 2023: the base broadened from 3 funders to 7 funders, grant income rose $44k → $70k.
5 of 14 of your funders are donor-advised or pass-through sponsors (tagged DAF) — 30% of grant dollars received. That money is really individual donors directing a sponsor; the institutions to cultivate are the non-DAF funders.
From the IRS filings of BLEEDING DISORDERS FOUNDATION OF NORTH CAROLINA’s funders (the co-funder graph). Association, not causation. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How concentrated its funding is
BLEEDING DISORDERS FOUNDATION OF NORTH CAROLINA leans on a few funders — its largest provides 39% of grant income and the top three 72%; half comes from just 2 funders.
the vertical line marks half of all grant income — 2 funders to its left
91% of the income these shares are computed over arrives through pass-through sponsors or from payers whose filings do not say what kind of payment it is. Concentration is still measured over all of it, because the money is real; what it does not support is a claim about how many institutions have chosen to fund BLEEDING DISORDERS FOUNDATION OF NORTH CAROLINA.
Largest funder’s share by year: 2018 57% · 2019 76% · 2020 32% · 2021 77% · 2022 35% · 2023 57% — broadly stable.
“Effective funders” = inverse Herfindahl index (1 / Σ shareᵢ²) — the number of equal-sized funders that would give the same concentration. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How long its funders stay
50% of BLEEDING DISORDERS FOUNDATION OF NORTH CAROLINA's funders are still giving 3 years after their first grant; 64% give in more than one year at all.
Share of funders still giving k years after their first recorded grant, pooled across every acquisition cohort. A funder counts as retained in a year only if it made a grant that year. Measured to FY2023, the last fiscal year that has finished arriving — a funder cannot be counted as lapsed in a year most filers have not reached.
Where its funders are
BLEEDING DISORDERS FOUNDATION OF NORTH CAROLINA draws 100% of its grant income from funders outside North Carolina, across 6 states in all.
In-state vs out-of-state, by year
Funder states come from each funder’s own filing. $124k arriving through sponsors registered in 5 states is excluded from the map and the split above: a sponsor holds money on a donor’s behalf, so its registered address would place those dollars somewhere no donor need ever have been. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
Against its field
BLEEDING DISORDERS FOUNDATION OF NORTH CAROLINA runs a healthier operating margin than three-quarters of the 13,062 human services nonprofits its size.
this organization peer median middle 50% of peers· 13,062 human services nonprofits $100k–$1M, FY2025
Organizations like BLEEDING DISORDERS FOUNDATION OF NORTH CAROLINA
Organizations whose mission and program text most resemble this one, by semantic similarity over every organization in the US filings — the closest peers, and often the clearest route to shared or prospective funders.
In North Carolina
Nationally
Read directly from this organization’s own Form 990, as neutral context.
Where the money goes
90% of spending goes to programs.
Governance
Public support
91%
Share of support from the public (Schedule A) — the basis for its public-charity status.
Screen this organization
A dated, signed PDF of the compliance screen for BLEEDING DISORDERS FOUNDATION OF NORTH CAROLINA: IRS status (Business Master File, Publication 78, auto-revocation), the OFAC sanctions lists, the Internal Revenue Bulletin, and California registration, with the Rev. Proc. 2018-32 §8.01 reliance elements stated element by element. Generated from the current files at the moment you download it.
Screens are triage, not determinations; a source that cannot be read reports not screened, never clear. Screen this nonprofit · How the screen works · on the API as GET /api/screening/{ein}?format=pdf
Questions and answers
- Who funds BLEEDING DISORDERS FOUNDATION OF NORTH CAROLINA?
- BLEEDING DISORDERS FOUNDATION OF NORTH CAROLINA (North Carolina) receives grants from 14 organizations whose IRS filings report $417,643 to it, the largest being THE HEMOPHILIA ALLIANCE FOUNDATION ($164,000). 9 of them have funded it in more than one year.
- How many funders does BLEEDING DISORDERS FOUNDATION OF NORTH CAROLINA have?
- IRS filings report 14 organizations giving $417,643 in grants to BLEEDING DISORDERS FOUNDATION OF NORTH CAROLINA, 9 of which have funded it in more than one year.
- Who is the largest funder of BLEEDING DISORDERS FOUNDATION OF NORTH CAROLINA?
- THE HEMOPHILIA ALLIANCE FOUNDATION is the largest funder on record, with $164,000 in grants. The full list of funders is on this page.
- How can an organization like BLEEDING DISORDERS FOUNDATION OF NORTH CAROLINA find more funders?
- Start with the funders already giving here, then look at the foundations that back similar organizations in North Carolina. The funding by cause and by state pages list the largest funders for a given area and how to approach them.
Play a game about who funds Bleeding Disorders Foundation of North Carolina →
These figures are read directly from IRS Form 990 / 990-PF e-file XML: this organization’s own return for FY2025 (financials across 2017–2025), and the filings of 14 funders that report grants to it. “On record” means captured in the filings we have parsed — a funder that does not e-file, or whose grant detail is not itemized, will not appear. Filings run roughly 12–24 months behind. Trends on this page end at FY2023, the last fiscal year that has finished arriving; later years are shown and marked, and move no figure. Data on this page was exported October 14, 2026. What this page cannot tell you · view filing