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North Dakota · Nonprofit

Bleeding Disorders Alliance of North Dakota

Bleeding Disorders Alliance of North Dakota (North Dakota) receives grants from 5 organizations whose IRS filings report $166,853 to it, the largest being NATIONAL BLEEDING DISORDERS FOUNDATION ($99,875). 2 of them have funded it in more than one year.

Revenue FY2024
$128k
Funders on record
5
Grants received
$167k
Net assets
$116k
2/5 repeat funderspeak grant-dependency 24%
01What it does

What Bleeding Disorders Alliance of North Dakota does

Mission

Educate those with bleeding disorders.

As stated on its FY2024 Form 990-EZ.

Program

  1. Education Programs were provided to educate patients on how to live a healthy and productive life with a bleeding disorder. There were 16 education events which were a mix of virtual and in-person. We had a total of about 362 individuals attend the education events. Topics included: self-infusion support, World Hemophilia Day education, bleeding disorder awareness, self-advocacy, gene therapy, hemostasis & the clotting cascade, joint health, cross-country skiing clinic, golf clinic, mom's support group, women's empowerment, hemophilia education, and von Willebrand disease education. Education programs also serve as emotional support services. Families are able to connect with each other dealing with the same bleeding disorder issues. Connections like these are valuable and important to the patients. The Bleeding Disorders Alliance of North Dakota was able to provide $500 in total for grocery cards, $500 in total for gas cards, and assist 12 individuals with financial assistance totaling $4,000. The Bleeding Disorders Alliance of North Dakota was able to cover the cost for 8 patients to attend Camp Not-A-Clot totaling $7,636.

    $50,530 spentof which $12,636 as grants
    100% of program spending

The program described on its FY2024 Form 990-EZ. Program spending in total: $50,530.

02The organization over time

The organization over time

Each line starts at 100 in 2019, so what you read is the shape rather than the size: 150 means half as much again as 2019, 50 means half. The number beside each label in the key is where it ended. The shaded band is where the middle 50% of its peers' revenue would sit, given their growth.

100 = 20192019 Revenue 100 ($147k) Expenses 100 ($104k) Net assets 100 ($64k)2020 Revenue 75 ($110k) Expenses 80 ($84k) Net assets 142 ($91k)2021 Revenue 77 ($113k) Expenses 83 ($86k) Net assets 184 ($118k)2022 Revenue 60 ($89k) Expenses 79 ($83k) Net assets 193 ($124k)2023 Revenue 58 ($85k) Expenses 86 ($89k) Net assets 186 ($120k)2024 Revenue 87 ($128k) Expenses 126 ($131k) Net assets 181 ($116k)
201920202021202220232024
Revenue (87)Expenses (126)Net assets (181)Peer revenue range

Balance sheet

Total assets and total liabilities at each year end, in dollars. The largest one-year move in total assets was 2019 to 2020, from $64k to $91k (+42%).

$64k
$91k
$118k
$124k
$120k
$117k
201920202021202220232024
Total assetsTotal liabilities

How it's funded, over time

Each bar is one year's revenue split into where it came from, and every bar is the same height — these are shares, not amounts, so a year that raised twice as much looks the same size. Hover a bar for the split.

2019
2020
2021
2022
2023
2024
ContributionsProgram revenueInvestmentOther

44% of Bleeding Disorders Alliance of North Dakota’s revenue is contributions — about as donation-reliant as the typical peer (82% for the typical peer).

This organization
Typical peer · 14,893 orgs

Surplus & reserves

Operating surplus or deficit each year, and months of liquidity in hand. 2 of the last 6 reported years ran a deficit.

$43k
’19
$27k
’20
$27k
’21
$6k
’22
−$4k
’23
−$3k
’24

Leadership and staff

Chief executive

Emily Ouellette

Executive Director

As listed on its FY2024 Form 990-EZ.

03Who funds it

Who funds it, year by year

2017 → 2023: the base broadened from 1 funder to 2 funders, grant income fell $79k → $13k.

From the IRS filings of Bleeding Disorders Alliance of North Dakota’s funders (the co-funder graph). Association, not causation. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.

How concentrated its funding is

Bleeding Disorders Alliance of North Dakota leans on a few funders — its largest provides 60% of grant income and the top three 95%; half comes from just 1 funder.

the vertical line marks half of all grant income — 1 funder to its left

100% of the income these shares are computed over arrives through pass-through sponsors or from payers whose filings do not say what kind of payment it is. Concentration is still measured over all of it, because the money is real; what it does not support is a claim about how many institutions have chosen to fund Bleeding Disorders Alliance of North Dakota.

60%
largest funder
95%
top three
~2
effective funders

Largest funder’s share by year: 2017 100% · 2019 97% · 2020 41% · 2021 100% · 2022 65% · 2023 58% — diversifying over time.

“Effective funders” = inverse Herfindahl index (1 / Σ shareᵢ²) — the number of equal-sized funders that would give the same concentration. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.

Where its funders are

Bleeding Disorders Alliance of North Dakota draws 100% of its grant income from funders outside North Dakota, across 4 states in all.

ND
NY
DC
FL

In-state vs out-of-state, by year

’17
’19
’20
’21
’22
’23
North Dakota out of state home

Funder states come from each funder’s own filing. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.

04Its place in the field

Against its field

Bleeding Disorders Alliance of North Dakota receives grants from 5 organizations whose IRS filings report $167k to it.

Operating margin−3% · below the median
Revenue growth (annualized)−3% · bottom quartile

this organization peer median middle 50% of peers· 13,754 health nonprofits $100k–$1M, FY2024

Organizations like Bleeding Disorders Alliance of North Dakota

Organizations whose mission and program text most resemble this one, by semantic similarity over every organization in the US filings — the closest peers, and often the clearest route to shared or prospective funders.

In North Dakota

Nationally

05Profile & governance

Read directly from this organization’s own Form 990, as neutral context.

Public support

95%

Share of support from the public (Schedule A) — the basis for its public-charity status.

Screen this organization

A dated, signed PDF of the compliance screen for Bleeding Disorders Alliance of North Dakota: IRS status (Business Master File, Publication 78, auto-revocation), the OFAC sanctions lists, the Internal Revenue Bulletin, and California registration, with the Rev. Proc. 2018-32 §8.01 reliance elements stated element by element. Generated from the current files at the moment you download it.

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Screens are triage, not determinations; a source that cannot be read reports not screened, never clear. Screen this nonprofit · How the screen works · on the API as GET /api/screening/{ein}?format=pdf

Questions and answers

Who funds Bleeding Disorders Alliance of North Dakota?
Bleeding Disorders Alliance of North Dakota (North Dakota) receives grants from 5 organizations whose IRS filings report $166,853 to it, the largest being NATIONAL BLEEDING DISORDERS FOUNDATION ($99,875). 2 of them have funded it in more than one year.
How many funders does Bleeding Disorders Alliance of North Dakota have?
IRS filings report 5 organizations giving $166,853 in grants to Bleeding Disorders Alliance of North Dakota, 2 of which have funded it in more than one year.
Who is the largest funder of Bleeding Disorders Alliance of North Dakota?
NATIONAL BLEEDING DISORDERS FOUNDATION is the largest funder on record, with $99,875 in grants. The full list of funders is on this page.
How can an organization like Bleeding Disorders Alliance of North Dakota find more funders?
Start with the funders already giving here, then look at the foundations that back similar organizations in North Dakota. The funding by cause and by state pages list the largest funders for a given area and how to approach them.

Play a game about who funds Bleeding Disorders Alliance of North Dakota →

These figures are read directly from IRS Form 990 / 990-PF e-file XML: this organization’s own return for FY2024 (financials across 2019–2024), and the filings of 5 funders that report grants to it. “On record” means captured in the filings we have parsed — a funder that does not e-file, or whose grant detail is not itemized, will not appear. Filings run roughly 12–24 months behind. Trends on this page end at FY2023, the last fiscal year that has finished arriving; later years are shown and marked, and move no figure. Data on this page was exported October 14, 2026. What this page cannot tell you · view filing