Illinois · Nonprofit
Bleeding Disorders Alliance Illinois
Bleeding Disorders Alliance Illinois (Illinois) receives grants from 18 organizations whose IRS filings report $303,597 to it, the largest being NATIONAL BLEEDING DISORDERS FOUNDATION ($114,176). 11 of them have funded it in more than one year.
- Revenue FY2024
- $252k
- Funders on record
- 18
- Grants received
- $304k
- Net assets
- $92k
What Bleeding Disorders Alliance Illinois does
Mission
Our mission is to improve the quality of life for the inherited bleeding disorders community by supporting individuals and their families with unbiased information and resources that help all affected live healthy and active lives. Whether through financial assistance, education, events, or advocacy, BDAI stives to support the bleeding communities of Illinois.
As stated on its FY2024 Form 990.
Programs
Advocacy - efforts designed to give a voice to the bleeding disorders community on a variety of issues such as insurance, healthcare, product safety, access to quality care, etc.
$245,420 spent82% of program spendingEducation Services - efforts designed to provide information and educate persons with bleeding disorders, family members, caregivers, health care providers and the public about the nature of these disorders, current treatment and management to reduce complications and improve quality of life. Efforts include social networking, newsletters, and educational programs, workshops and meetings.
$42,895 spent14% of program spendingSummer Camp - The organization conducts an annual summer camp for youths withhemophilia and related diseases.
$9,244 spent3% of program spending
The 3 programs described on its FY2024 Form 990, listed largest first by expense. Program spending in total: $297,559.
The organization over time
Each line starts at 100 in 2017, so what you read is the shape rather than the size: 150 means half as much again as 2017, 50 means half. The number beside each label in the key is where it ended. The shaded band is where the middle 50% of its peers' revenue would sit, given their growth.
Balance sheet
Total assets and total liabilities at each year end, in dollars. The largest one-year move in total assets was 2021 to 2022, from $1.2M to $855k (−31%).
How it's funded, over time
Each bar is one year's revenue split into where it came from, and every bar is the same height — these are shares, not amounts, so a year that raised twice as much looks the same size. Hover a bar for the split.
Government-grant reliance: 2021 11%. Grants only. Government contracts and fees sit inside program revenue.
60% of Bleeding Disorders Alliance Illinois’s revenue is contributions — about as donation-reliant as the typical peer (82% for the typical peer).
Surplus & reserves
Operating surplus or deficit each year, and months of liquidity in hand. 5 of the last 8 reported years ran a deficit.
reserve
Leadership and staff
The officers, directors, trustees and key employees listed on each return. Joined and no longer listed compare each filing with the year before, matching people by surname and first initial; a year after a gap, or a roster under three people, has no comparison.
The chief executive listed changed between the FY2022 and FY2023, and between the FY2023 and FY2024 filings.
Who funds it, year by year
2017 → 2023: the base broadened from 4 funders to 7 funders, grant income fell $43k → $41k.
2 of 18 of your funders are donor-advised or pass-through sponsors (tagged DAF) — 4% of grant dollars received. That money is really individual donors directing a sponsor; the institutions to cultivate are the non-DAF funders.
From the IRS filings of Bleeding Disorders Alliance Illinois’s funders (the co-funder graph). Top 17 of 18 funders by total. Association, not causation. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How concentrated its funding is
Bleeding Disorders Alliance Illinois leans on a few funders — its largest provides 38% of grant income and the top three 74%; half comes from just 2 funders.
the vertical line marks half of all grant income — 2 funders to its left
80% of the income these shares are computed over arrives through pass-through sponsors or from payers whose filings do not say what kind of payment it is. Concentration is still measured over all of it, because the money is real; what it does not support is a claim about how many institutions have chosen to fund Bleeding Disorders Alliance Illinois.
Largest funder’s share by year: 2017 97% · 2018 49% · 2019 37% · 2020 33% · 2021 38% · 2022 28% · 2023 32% — diversifying over time.
“Effective funders” = inverse Herfindahl index (1 / Σ shareᵢ²) — the number of equal-sized funders that would give the same concentration. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How long its funders stay
50% of Bleeding Disorders Alliance Illinois's funders are still giving 3 years after their first grant; 61% give in more than one year at all.
Share of funders still giving k years after their first recorded grant, pooled across every acquisition cohort. A funder counts as retained in a year only if it made a grant that year. Measured to FY2023, the last fiscal year that has finished arriving — a funder cannot be counted as lapsed in a year most filers have not reached.
Where its funders are
Bleeding Disorders Alliance Illinois draws 82% of its grant income from funders outside Illinois, across 7 states in all.
In-state vs out-of-state, by year
Funder states come from each funder’s own filing. $12k arriving through sponsors registered in 2 states is excluded from the map and the split above: a sponsor holds money on a donor’s behalf, so its registered address would place those dollars somewhere no donor need ever have been. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
Against its field
Bleeding Disorders Alliance Illinois's revenue fell 45% between 2017 and 2024.
this organization peer median middle 50% of peers· 13,754 health nonprofits $100k–$1M, FY2024
Organizations like Bleeding Disorders Alliance Illinois
Organizations whose mission and program text most resemble this one, by semantic similarity over every organization in the US filings — the closest peers, and often the clearest route to shared or prospective funders.
In Illinois
Nationally
Read directly from this organization’s own Form 990, as neutral context.
Where the money goes
77% of spending goes to programs.
Governance
Public support
100%
Share of support from the public (Schedule A) — the basis for its public-charity status.
Footprint & structure
Files a return copy in 1 state
Screen this organization
A dated, signed PDF of the compliance screen for Bleeding Disorders Alliance Illinois: IRS status (Business Master File, Publication 78, auto-revocation), the OFAC sanctions lists, the Internal Revenue Bulletin, and California registration, with the Rev. Proc. 2018-32 §8.01 reliance elements stated element by element. Generated from the current files at the moment you download it.
Screens are triage, not determinations; a source that cannot be read reports not screened, never clear. Screen this nonprofit · How the screen works · on the API as GET /api/screening/{ein}?format=pdf
Questions and answers
- Who funds Bleeding Disorders Alliance Illinois?
- Bleeding Disorders Alliance Illinois (Illinois) receives grants from 18 organizations whose IRS filings report $303,597 to it, the largest being NATIONAL BLEEDING DISORDERS FOUNDATION ($114,176). 11 of them have funded it in more than one year.
- How many funders does Bleeding Disorders Alliance Illinois have?
- IRS filings report 18 organizations giving $303,597 in grants to Bleeding Disorders Alliance Illinois, 11 of which have funded it in more than one year.
- Who is the largest funder of Bleeding Disorders Alliance Illinois?
- NATIONAL BLEEDING DISORDERS FOUNDATION is the largest funder on record, with $114,176 in grants. The full list of funders is on this page.
- How can an organization like Bleeding Disorders Alliance Illinois find more funders?
- Start with the funders already giving here, then look at the foundations that back similar organizations in Illinois. The funding by cause and by state pages list the largest funders for a given area and how to approach them.
Play a game about who funds Bleeding Disorders Alliance Illinois →
These figures are read directly from IRS Form 990 / 990-PF e-file XML: this organization’s own return for FY2024 (financials across 2017–2024), and the filings of 18 funders that report grants to it. “On record” means captured in the filings we have parsed — a funder that does not e-file, or whose grant detail is not itemized, will not appear. Filings run roughly 12–24 months behind. Trends on this page end at FY2023, the last fiscal year that has finished arriving; later years are shown and marked, and move no figure. Data on this page was exported October 14, 2026. What this page cannot tell you · view filing