· Public charity
The Hemophilia Alliance Foundation
THE HEMOPHILIA ALLIANCE FOUNDATION is dedicated to receiving and administering funds to enable eligible organizations in the inherited bleeding and thrombotic disorders community to build capacity in order to achieve their mission and to support direct consumer financial assistance programs.
What it funded, over time
Every grant placed by its stated purpose and the recipient’s mission, by year, FY2017 to 2024.
Where the money goes
Grants by size, and the largest recipients.
How this is measured
By grant size · FY2024
- Under $10k48 grants · $381k
- $10k–50k25 grants · $424k
| Recipient | Amount |
|---|---|
| HEMOPHILIA FOUNDATION OF MICHIGAN | $34,000 |
| HEMOPHILIA ASSOCIATION OF THE CAPITAL AREA | $24,000 |
| BLEEDING DISORDERS ASSOCIATION OF SOUTH CAROLINA | $24,000 |
| HEMOPHILIA FOUNDATION OF SOUTHERN CALIFORNIA | $24,000 |
| NORTHERN OHIO HEMOPHILIA FOUNDATION | $24,000 |
| HEMOPHILIA ASSOCIATION OF SAN DIEGO COUNTY | $24,000 |
| WEST VIRGINIA CHAPTER OF THE NATIONAL HEMOPHILIA FOUNDATION | $24,000 |
| BLEEDING DISORDERS FOUNDATION OF NORTH CAROLINA | $24,000 |
| GREAT LAKES HEMOPHILIA FOUNDATION | $18,000 |
| NEVADA CHAPTER OF THE NATIONAL HEMOPHILIA FND | $16,000 |
| NATIONAL HEMOPHILIA FOUNDATION-NEBRASKA CHAPTER | $16,000 |
| HEMOPHILIA ASSOCIATION OF NEW JERSEY | $16,000 |
| CASCADE FOUNDATION OF SOUTHERN ARIZONA | $16,000 |
| HAWAII CHAPTER OF THE NATIONAL HEMOPHILIA FOUNDATION | $16,000 |
| PACIFIC NORTHWEST BLEEDING DISORDERS | $16,000 |
Does the money reach high-need areas?
Each grant placed by the hardship in its grantee’s ZIP, against the area’s typical level.
Its human-services grants (FY17–24, $435k) land where the poverty rate runs at 9%, against an area that typically sits at 10%. 29% of those dollars go to grantees based in above-average-need neighborhoods. Its grants skew toward lower-need ZIPs.
How this is measured
Which US states its grants reach
How this is measured
Who it funds again
Organizations funded in more than one year, against those funded once.
93 repeat relationships: 65 still active in FY2024, 28 since wound down; 3 grantees were first funded in FY2024 (too recent to call).
How the two cohorts compare
Organizations
Total granted
Median revenue growth · since first grant
Still filing today
New vs renewed · share of each year
In FY2024, 97% of grant dollars renewed an existing relationship; $24k went to new ones.
Where new relationships form · theme of each grantee’s first grant
How this is measured
Backed again, and grew
- HFHemophilia Foundation of Michigan8× · 2017–2024 · $211k · revenue +42%
- HFHEMOPHILIA FOUNDATION OF SOUTHERN CALIFORNIA8× · 2017–2024 · $201k · revenue +43%
- BDBLEEDING DISORDERS FOUNDATION OF NORTH CAROLINA7× · 2018–2024 · $164k · revenue +61%
Funded once
- UHUTAH HEMOPHILIA FOUNDATIONgraduatedone grant, 2020 · $10k · revenue +60%
- SCSisters & Caregivers Bleeding Disorder Network Incone grant, 2020 · $10k · revenue -14%
OREGON HEALTH & SCIENCE UNIVERSITY FOUNDATIONgraduatedone grant, 2023 · $10k · revenue +100%
How this is measured
Repeat means funded in two or more distinct years. Growth and survival are read from each grantee’s own subsequent IRS filings.
Closest unfunded matches
The nonprofits that most resemble its grantees but are not funded by it, scored along the direction from the rest of the field toward the portfolio. A resemblance in what they say they do, not a recommendation.
The hemophilia alliance foundation is dedicated to receiving and administering funds to enable eligible organizations in the inherited bleeding and thrombotic disorders community to build capacity in order to achieve their mission and to…
The american thrombosis and hemostasis network (athn) is a nonprofit organization dedicated to improving the lives of people affected by bleeding and clotting disorders. we're using technology to secure data, advance knowledge, transform…
The hemophilia alliance provides member hemophilia treatment centers with resources and services to sustain the comprehensive care model for individuals with bleeding and clotting disorders.
The washington center for bleeding disorders is dedicated to assuring optimal health for people with bleeding disorders through comprehensive care, education, and research.
To provide expert comprehensive multidisciplinary care to patients with hemophilia and other bleeding and clotting disorders.
Auto-immune hepatitis association was formed to help support auto-immune hepatitis wellness and provide hope through disease education and giving our patients research opportunities. we want to ensure that all patients, no matter what…
The establishment and operation of a center for the promotion of education and research concerning clotting disorders, the distribution of blood derivatives and synthetic hemostatic agents to persons with clotting disorders on a discounted…
The primary purpose of the organization is to provide comprehensive clinical care to persons affected by inherited blood disorders and to administer programs supported by federal grants awarded by the department of health and human…
To advance and disseminate the science and practice of hepatology, and to promote liver health and quality patient care.
Help and support patients with hemophilia and their relatives by doing seminars, programs and activities to inform and educate them in health, social and emotional areas
How this is measured
101 grantees tracked through their own filings, 2017–2025.
Each grant beside the grantee’s revenue from every source, year by year.
How this is measured
Counted here: distinct organizations funded across 2017 to 2025, not grant rows in a single year, so this will not match the grant count on the cover. 101 of the 125 grantees resolved in that span have returns of their own we could reconcile.
Each grantee is resolved to its own IRS returns. Association, dated; never a causal claim.
Where the money sits, by cause and then by grantee
Each grantee by its size and the funder’s share of it; top left is load-bearing
Grantee by grantee: a decade per organization, before and after funding
A decade per grantee: revenue shaded, grants as bars, all rows on one timeline.
- Who funds NATIONAL BLEEDING DISORDERS FOUNDATION ↗
- Who funds Hemophilia Foundation of Michigan ↗
- Who funds HEMOPHILIA FOUNDATION OF SOUTHERN CALIFORNIA ↗
- Who funds HEMOPHILIA FEDERATION OF AMERICA ↗
- Who funds BLEEDING DISORDERS FOUNDATION OF NORTH CAROLINA ↗
- Who funds GREAT LAKES HEMOPHILIA FOUNDATION INC ↗
- Who funds Bleeding Disorders Association of South Carolina ↗
- Who funds THE CENTER FOR COMPREHENSIVE CARE AND DIAGNOSIS OF INHERITED BLOOD DISORDERS ↗
- Who funds NEW ENGLAND HEMOPHILIA ASSOCIATION INC ↗
- Who funds GREATER OHIO BLEEDING DISORDERS FOUNDATION ↗
- Who funds PACIFIC NORTHWEST BLEEDING DISORDERS ↗
- Who funds TRI-STATE BLEEDING DISORDER FOUNDATION ↗
- Who funds HEMOPHILIA ALLIANCE OF MAINE INC ↗
- Who funds Foundation for Women and Girls with Blood Disorders ↗
- Who funds HEMOPHILIA ASSOCIATION OF THE CAPITAL AREA ↗
- Who funds ROCKY MOUNTAIN HEMOPHILIA AND BLEEDING DISORDER ASSOCIATION ↗
- Who funds Florida Bleeding Disorders Association Inc ↗
- Who funds Alaska Hemophilia Association ↗
- Who funds CHES FOUNDATION INC ↗
- Who funds WESTERN PENNSYLVANIA BLEEDING DISORDERS FOUNDATION ↗
- Who funds HEMOPHILIA FOUNDATION OF GREATER FLORIDA INC ↗
- Who funds Kentucky Hemophilia Foundation Inc ↗
- Who funds THE HEMOPHILIA ASSOC OF SAN DIEGO COUNTY ↗
- Who funds LOUISIANA HEMOPHILIA FOUNDATION ↗
- Who funds The Coalition for Hemophilia B Inc ↗
- Who funds VIRGINIA BLEEDING DISORDERS FOUNDATION ↗
- Who funds Hemophilia Foundation of MD Inc ↗
- Who funds Orlando Health Inc ↗
- Who funds NORTHERN CALIFORNIA BLEEDING DISORDERS FOUNDATION FORMERLY HEMOPHILIA FOUNDTN ↗
- Who funds The Bleeding Disorder Foundation of Washington ↗
- Who funds UPPER MIDWEST BLEEDING DISORDERS ALLIANC ↗
- Who funds HEMOPHILIA OF INDIANA INC ↗
- Who funds Bleeding Disorders Alliance Illinois ↗
- Who funds NEW YORK CITY HEMOPHILIA CHAPTER INC ↗
- Who funds VERSITI WISCONSIN INC ↗
- Who funds Hemophilia of Georgia Inc ↗
- Who funds SOUTHWESTERN OHIO HEMOPHILIA FOUNDATION ↗
- Who funds MARY M GOOLEY HEMOPHILIA CENTER INC ↗
Co-funders
Grantmakers whose grantees overlap with this funder’s far more than size alone predicts. Closer means stronger alignment; arcs show where they also fund each other. Here they form a tightly interlocked group: most of these funders back each other's grantees too.
Open a dossier: National Bleeding Disorders Foundation · The Hemophilia Alliance Group Purchasing Organization · Colburn-Keenan Foundation Inc · Hemophilia Federation of America · American Thrombosis and Hemostasis Network Inc · Pharmaceutical Research and Manufacturers of America · Cascade Hemophilia Consortium · Great Lakes Hemophilia Foundation Inc · Hemophilia of Georgia Inc · Child's Play · Indiana Hemophilia & Thrombosis Center Inc · Positudes Inc Dba the Alliance Pharmacy
How this is measured
How much its grantees rely on government
Each dot is one organization The Hemophilia Alliance Foundation funds: left to right is the share of its income from government, bottom to top the share from The Hemophilia Alliance Foundation. Bigger dots raise more.
- Oregon Health & Science University Foundation: 1% of income from government
- Orlando Health Inc: 0% of income from government
- St Joseph's Hospital Inc: 0% of income from government
How this is measured
Warm introductions · Powered by PlinthPlus
How do I get to The Hemophilia Alliance Foundation?
Find your warmest path to The Hemophilia Alliance Foundation through trustees and officers whose names appear on both boards. Search for your organization and Plinth traces the shortest route it can evidence.
Each link is a name appearing on two organizations’ public IRS 990 filings, matched on that name and, where the filings support it, on location. A same-state match has geographic support, which is a second matching feature rather than confirmation that the two are one person; a cross-state one is the likeliest to be two people who share a name. Every hop shows its tier, low-confidence and distant paths are held back rather than guessed, and it is worth confirming the person before you use the introduction.
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