New York · Nonprofit
NATIONAL BLEEDING DISORDERS FOUNDATION
NATIONAL BLEEDING DISORDERS FOUNDATION (New York) receives grants from 75 organizations whose IRS filings report $8,649,461 to it, the largest being The Hemophilia Alliance Group Purchasing Organization ($5,231,217). 35 of them have funded it in more than one year.
- Revenue FY2024
- $17M
- Funders on record
- 75
- Grants received
- $8.6M
- Net assets
- $27M
What National Bleeding Disorders Foundation does
Mission
The National Bleeding Disorders Foundation (formerly the national hemophilia foundation) is dedicated to finding cures for inheritable blood and bleeding disorders and to addressing and preventing the complications of these disorders through research, education, and advocacy enabling people and families to thrive.
As stated on its FY2024 Form 990.
Programs
Health education and trainingnbdf expanded its health coaching project, own your path, for men and women with hemophilia or von willebrand disease (vwd). The program aims to improve treatment adherence. Nbdf also continues to distribute all of its educational publications for those living with inheritable bleeding disorders, from masac for you new publications on diagnosis, treatment and care for women and girls, to nbdf's new thrive campaign showcasing 6 easy steps to living healthy with a bleeding disorder. In 2024, nbdf distributed 30,777 publications.the primary goals of the National Bleeding Disorders Foundation's (nbdf's) victory for women and better you know programs are: 1) improve the awareness of symptoms of bleeding disorders in women to increase diagnosis long term; and 2) to provide affected women with education and support. In 2024 nbdf reached out to 26 community partners to share about signs and symptoms of bleeding disorders. In addition, close to 2,000 women took the better you know risk assessment tool, 76% had symptoms of a bleeding disorder, and over 7,600 visited victoryforwomen.org.steps for living (sfl) is a multimedia educational program designed to…
$5,500,113 spentof which $182,269 as grants$324,571 earned by the program38% of program spendingCommunity services nbdf's public policy department works to advocate for policies that promote health, safety, rights and access to care for people with inheritable blood disorders by educating federal and state lawmakers, other government agencies and officials, as well as industry and allied health education and training organizations. Two key areas of focus are payer and consumer education, and self-advocacy.the public policy department provides training, tools, and hands-on support to consumers to help them become effective self-advocates.through the state-based advocacy program, nbdf awards grants to chapters, competitively, to support their advocacy efforts. Successful grant recipients are required to attend several virtual or in-person training events annually, hold regular advocacy committee meetings, include nbdf staff in state advocacy events, provide a midyear progress report, collect, submit specified program metrics quarterly, host a stakeholder planning meeting and submit a final report at year's end. This program is named the state based advocacy coalition (sbac) program. Grants are issued on an annual basis, with chapters applying each december. All chapters are…
$4,191,067 spentof which $284,173 as grants29% of program spendingResearchnational research blueprint (nrb): a communitywide project to redefine the way research in the bleeding disorders community was launched in 2019. The goals of the national research blueprint (nrb) are: (1) develop a multidisciplinary integrated research enterprise centered in a network of both specialty and community-based care; driven by patients with inherited bleeding disorders (pwibd) as lived experience experts (lees); embedded in the principles of social justice; to steadily advance the standard of care for pwibds through impactful basic, translational, clinical, health outcomes, and implementation research, advocacy and education; (2) expand the national research infrastructure to support the envisioned research enterprise through facilitation collaboration and inclusion, and (3) reinvigorate a sustainable workforce across comprehensive care and scientific disciplines that incorporates the lee perspective to advance health through the seamless integration of care and research as well as active community engagement to foster a research culture. In 2024, nbdf convened key stakeholders in a nrb summit to present the framework as defined by all working groups. As a…
$3,320,289 spentof which $593,161 as grants23% of program spendingChapter services nbdf's chapter services department provides community support by helping its 52 member chapters offer education, training, resources and referrals to affected members of the bleeding disorders community in the areas that each chapter serves. Chapter services offers the member chapters financial support in the form of grants and covers some travel expenses to support education and advocacy meetings. Department staff members coach chapter leaders on how to create, execute and evaluate programs and services designed for their affected constituents as well as ongoing coaching and support on financial sustainability, processes and procedures for best nonprofit practice. In 2024, chapter services offered 23 educational webinar series sessions, held one 4-day in-person national leadership seminar offering training, and offered a full "chapter training track" at nbdf's annual bleeding disorders conference. These education offerings focus on diversification of funding strategies, health equity and inclusion, board development and building. Additionally, the unite for bleeding disorders walk (peer-to-peer fundraising campaign), overseen and provided by the chapter services…
$1,608,296 spentof which $78,717 as grants11% of program spending
The 4 programs described on its FY2024 Form 990, listed largest first by expense. Program spending in total: $14,619,765.
The organization over time
Each line starts at 100 in 2017, so what you read is the shape rather than the size: 150 means half as much again as 2017, 50 means half. The number beside each label in the key is where it ended.
Balance sheet
Total assets and total liabilities at each year end, in dollars. The largest one-year move in total assets was 2021 to 2022, from $47M to $38M (−19%).
How it's funded, over time
Each bar is one year's revenue split into where it came from, and every bar is the same height — these are shares, not amounts, so a year that raised twice as much looks the same size. Hover a bar for the split.
Government-grant reliance: 2017 3% · 2018 3% · 2019 2% · 2020 3% · 2021 7% · 2022 11% · 2023 3% · 2024 3%. Grants only. Government contracts and fees sit inside program revenue.
Surplus & reserves
Operating surplus or deficit each year, and months of liquidity in hand. 3 of the last 8 reported years ran a deficit.
reserve
Leadership and staff
The officers, directors, trustees and key employees listed on each return. Joined and no longer listed compare each filing with the year before, matching people by surname and first initial; a year after a gap, or a roster under three people, has no comparison.
Board chair
Ryan Griffith
Chair
As listed on its FY2024 Form 990.
The chief executive listed changed between the FY2019 and FY2020 filings.
Who funds it, year by year
2017 → 2023: the base broadened from 14 funders to 30 funders, grant income rose $548k → $1.4M.
10 of 75 of your funders are donor-advised or pass-through sponsors (tagged DAF) — 14% of grant dollars received. That money is really individual donors directing a sponsor; the institutions to cultivate are the non-DAF funders.
From the IRS filings of NATIONAL BLEEDING DISORDERS FOUNDATION’s funders (the co-funder graph). Top 30 of 75 funders by total. Association, not causation. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How concentrated its funding is
NATIONAL BLEEDING DISORDERS FOUNDATION leans on a few funders — its largest provides 60% of grant income and the top three 77%; half comes from just 1 funder.
the vertical line marks half of all grant income — 1 funder to its left
96% of the income these shares are computed over arrives through pass-through sponsors or from payers whose filings do not say what kind of payment it is. Concentration is still measured over all of it, because the money is real; what it does not support is a claim about how many institutions have chosen to fund NATIONAL BLEEDING DISORDERS FOUNDATION.
Largest funder’s share by year: 2017 64% · 2018 84% · 2019 74% · 2020 48% · 2021 65% · 2022 54% · 2023 57% — diversifying over time.
“Effective funders” = inverse Herfindahl index (1 / Σ shareᵢ²) — the number of equal-sized funders that would give the same concentration. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How long its funders stay
40% of NATIONAL BLEEDING DISORDERS FOUNDATION's funders are still giving 3 years after their first grant; 47% give in more than one year at all.
Share of funders still giving k years after their first recorded grant, pooled across every acquisition cohort. A funder counts as retained in a year only if it made a grant that year. Measured to FY2023, the last fiscal year that has finished arriving — a funder cannot be counted as lapsed in a year most filers have not reached.
Where its funders are
NATIONAL BLEEDING DISORDERS FOUNDATION draws 98% of its grant income from funders outside New York, across 25 states in all.
In-state vs out-of-state, by year
Funder states come from each funder’s own filing. $1.2M arriving through sponsors registered in 10 states is excluded from the map and the split above: a sponsor holds money on a donor’s behalf, so its registered address would place those dollars somewhere no donor need ever have been. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
Government funding NATIONAL BLEEDING DISORDERS FOUNDATION receives
Grants and contracts to this organization from federal (USASpending) and state checkbooks, reconciled to its EIN. $4.3M on record.
- Department of Health and Human Services$4.3M
Federal grants vs contracts are distinguished; state line items keep their reported category. Matched by name + geography (the BMF), so coverage is partial and precision-first.
Organizations like NATIONAL BLEEDING DISORDERS FOUNDATION
Organizations whose mission and program text most resemble this one, by semantic similarity over every organization in the US filings — the closest peers, and often the clearest route to shared or prospective funders.
In New York
Nationally
Read directly from this organization’s own Form 990, as neutral context.
Where the money goes
74% of spending goes to programs.
Governance
Public support
46%
Share of support from the public (Schedule A) — the basis for its public-charity status.
Footprint & structure
Files a return copy in 36 states
Part of a family of 1 related entity
- National Bleeding Disorders Foundation Venture Fund LLC · disregarded
Screen this organization
A dated, signed PDF of the compliance screen for NATIONAL BLEEDING DISORDERS FOUNDATION: IRS status (Business Master File, Publication 78, auto-revocation), the OFAC sanctions lists, the Internal Revenue Bulletin, and California registration, with the Rev. Proc. 2018-32 §8.01 reliance elements stated element by element. Generated from the current files at the moment you download it.
Screens are triage, not determinations; a source that cannot be read reports not screened, never clear. Screen this nonprofit · How the screen works · on the API as GET /api/screening/{ein}?format=pdf
Questions and answers
- Who funds NATIONAL BLEEDING DISORDERS FOUNDATION?
- NATIONAL BLEEDING DISORDERS FOUNDATION (New York) receives grants from 75 organizations whose IRS filings report $8,649,461 to it, the largest being The Hemophilia Alliance Group Purchasing Organization ($5,231,217). 35 of them have funded it in more than one year.
- How many funders does NATIONAL BLEEDING DISORDERS FOUNDATION have?
- IRS filings report 75 organizations giving $8,649,461 in grants to NATIONAL BLEEDING DISORDERS FOUNDATION, 35 of which have funded it in more than one year.
- Who is the largest funder of NATIONAL BLEEDING DISORDERS FOUNDATION?
- The Hemophilia Alliance Group Purchasing Organization is the largest funder on record, with $5,231,217 in grants. The full list of funders is on this page.
- How can an organization like NATIONAL BLEEDING DISORDERS FOUNDATION find more funders?
- Start with the funders already giving here, then look at the foundations that back similar organizations in New York. The funding by cause and by state pages list the largest funders for a given area and how to approach them.
These figures are read directly from IRS Form 990 / 990-PF e-file XML: this organization’s own return for FY2024 (financials across 2017–2024), and the filings of 75 funders that report grants to it. “On record” means captured in the filings we have parsed — a funder that does not e-file, or whose grant detail is not itemized, will not appear. Filings run roughly 12–24 months behind. Trends on this page end at FY2023, the last fiscal year that has finished arriving; later years are shown and marked, and move no figure. Data on this page was exported October 14, 2026. What this page cannot tell you · view filing