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New York · Public charity

National Bleeding Disorders Foundation

The NATIONAL BLEEDING DISORDERS FOUNDATION (formerly the national hemophilia foundation) is dedicated to finding cures for inheritable blood and bleeding disorders and to addressing and preventing the complications of these disorders through research, education, and advocacy enabling people and families to thrive.

$1.1M
Granted FY2024(still arriving)
23
Itemized grants FY2024
24
Organizations funded FY2023
17%
First-time grantees FY2023
Read the full brief
Itemized, FY2024
$839k
The rest is grants the schedule does not break out
Median grant, FY2024
$14,000
Largest grant, FY2024
$200,000
Organizations funded a year
22 to 63
FY2017 to FY2023
States reached, FY2024
19
Total assets, FY2024
$31M

How open it is to new grantees

In FY2023, 17% of the organizations National Bleeding Disorders Foundation funded were first-time grantees, receiving 32% of its grant dollars.

New vs renewed · share of each year

In FY2023, 68% of grant dollars renewed an existing relationship; $163k went to new ones.

50%100%’18’19’20’21’22’23
RenewedFirst-time

Where new relationships form · theme of each grantee’s first grant

’18’19’20’21’22’23
HealthEducationHuman ServicesPhilanthropyOther
How this is measured
First-time means a grantee’s first year in the filing window; renewed means funded in an earlier year too. The renewed share climbs naturally as a portfolio matures, so the signal is a year that bucks it (a wave of new grantees). The earliest year is left-censored: relationships that predate the data read as new. Theme is the grantee’s IRS cause.
The numbers by year
Fiscal yearOrganizations fundedTo those organizationsFirst-time grantees
FY2024still arriving22$735k14%
FY202324$515k17%
FY202227$1.0M11%
FY202122$1.2M14%
FY202063$2.2M54%
FY201933$1.8M30%
FY201836$1.5M28%
FY201735$1.4Mn/a
100% classified

What it funded, over time

Every grant placed by its stated purpose and the recipient’s mission, by year, FY2017 to 2024.

Health$9.0MScience & Tech$615kEducation$498kEmployment$220kSocial Science$156kPublic Safety & Disaster$31kHuman Services$16kRecreation & Sports$14kOther$0

Where its grants go

Grant dollars by states, across the years we hold.

Which US states its grants reach

AK
ME
WA
ID
MT
ND
MN
IL
WI
MI
NY
MA
OR
NV
IA
IN
OH
PA
NJ
CT
CA
UT
CO
MO
KY
WV
VA
MD
DE
AZ
NM
AR
TN
NC
SC
OK
LA
GA
TX
FL

Top grantees

Largest recipients by total granted, FY2017 to FY2024, and the share of each one’s budget the grants supplied at peak.

GranteeTotal grantedYearsShare of their budget
Emory University$1,138,25660%
University of North Carolina at Chapel Hill$644,0004n/a
The Children's Hospital of Philadelphia$575,67440%
The Medical College of Wisconsin Inc$484,32830%
Bloodworks$432,51920%
Regents of the University of Michigan$425,0003n/a
Children's Hospital Corporation$395,39740%
Baylor College of Medicine$371,23130%
University of Washington$356,0002n/a
State University of Iowa$325,0004n/a
Show all 102 grantees
All grantees of National Bleeding Disorders Foundation by total granted
GranteeTotal grantedYearsShare of their budget
Emory University$1,138,25660%
University of North Carolina at Chapel Hill$644,0004n/a
The Children's Hospital of Philadelphia$575,67440%
The Medical College of Wisconsin Inc$484,32830%
Bloodworks$432,51920%
Regents of the University of Michigan$425,0003n/a
Children's Hospital Corporation$395,39740%
Baylor College of Medicine$371,23130%
University of Washington$356,0002n/a
State University of Iowa$325,0004n/a
American Thrombosis and Hemostasis Network Inc$249,70012%
University of Denver$214,28940%
Indiana University School of Medicine$210,0002n/a
Texas Medical Center Central Heating and Cooling Services Corporation$208,00010%
The Cleveland Clinic Foundation$208,00010%
University of Michigan Club of Ann Arbor$191,0001n/a
New England Hemophilia Association Inc$185,72587%
Beth Israel Deaconess Medical Center Inc$162,88630%
Regents of the University of California$160,0002n/a
Mass General Brigham Incorporated$155,0003n/a
Virginia Bleeding Disorders Foundation$153,90085%
Bleeding Disorders Association of South Carolina$130,75788%
BLEEDING DISORDERS COUNCIL OF CALIFORNIA formerly HEMOPHILIA COUNCIL OF CALIF$116,500811%
Bleeding Disorders Alliance Illinois$114,17679%
Hemophilia Foundation of Michigan$106,62571%
Asociacion Puertorriquena de Hemofilia Inc$104,290516%
University of Pittsburgh$104,00010%
Foundation for Western Washington University and Alumni$104,00011%
Indiana Hemophilia & Thrombosis Center Inc$100,00010%
Bleeding Disorders Alliance of North Dakota$99,87549%
Western Pennsylvania Bleeding Disorders Foundation$96,29066%
Texas Central Hemophilia Association Inc$94,38388%
World Federation of Hemophilia USA$90,00010%
Great Lakes Hemophilia Foundation Inc$84,97571%
Regents of the University of California at San Diego$84,0003n/a
The Scripps Research Institute$83,11520%
Oklahoma Hemophilia Foundation Inc$80,96567%
Pacific Northwest Bleeding Disorders$73,58863%
Central California Bleeding Disorders Foundation$68,000234%
Ct Hemophilia Society Inc$67,500244%
Greater Ohio Bleeding Disorders Foundation$65,05064%
Alaska Hemophilia Association$64,500217%
Bleeding Disorders Association of Northeastern Ny$60,135434%
Hemophilia Foundation of Arkansas$60,000141%
Wayne State University Foundation$60,00010%
Gateway Hemophilia Association$53,20055%
The Center for Medical Technology Policy Inc$50,00012%
Hemophilia Foundation of Southern California$49,85051%
Bleeding Disorders Foundation of North Carolina$43,10042%
New York City Hemophilia Chapter Inc$42,62542%
Eastern Pennsylvania Bleeding Disorders Foundation$39,55252%
Hemophilia Association of the Capital Area$37,87553%
Louisiana Hemophilia Foundation$35,10044%
The Hemophilia Assoc of San Diego County$32,00029%
Wayne State University$30,0001n/a
University of Florida$30,0002n/a
Northern California Bleeding Disorders Foundation Formerly Hemophilia Foundtn$27,22524%
Hemophilia of Iowa Inc$25,850311%
Florida Bleeding Disorders Association Inc$23,57532%
Western New York Bloodcare Foundation In$22,50020%
Duke University$21,00010%
Tri-State Bleeding Disorder Foundation$19,50017%
University of Delaware$17,50010%
Arizona Hemophilia Association Inc$17,50021%
Lone Star Bleeding Disorders Foundation$16,62923%
Pacific Northwest Bleeding Disorders$16,5001n/a
MaineHealth$15,00010%
University of Louisville Physicians Inc$15,00010%
Rady Children's Hospital San Diego$15,00010%
The Feinstein Institutes for Medical Research$15,00010%
Intermountain Healthcare Foundation Inc$15,00010%
Orlando Health Inc$15,00010%
Hemophilia Alliance of Maine Inc$14,50025%
West Virginia University Foundation Inc$14,45210%
Children's Healthcare of Atlanta Inc$13,50010%
Hemophilia Foundation of Greater Florida Inc$12,50012%
Wgu Corporation$12,00020%
University of Nevada Reno Foundation$11,3151n/a
University of Texas Health Science Center Houston$10,0001n/a
University of St Augustine$10,0001n/a
Doernbecher Children's Hospital Foundation$10,00010%
University of Arizona$10,0001n/a
Sangre De Oro Inc$9,5001n/a
Hemophilia of Indiana Inc$9,50011%
Northwest Ohio Hemophilia Foundation$9,500112%
Midwest Hemophilia Association$9,50015%
Rocky Mountain Hemophilia and Bleeding Disorder Association$9,50014%
Kentucky Hemophilia Foundation Inc$9,50014%
Hemophilia Foundation of MD Inc$7,50012%
Upper Midwest Bleeding Disorders Allianc$7,50013%
Tennessee Hemophilia & Bleeding Disorder Foundatio$7,50012%
Mary M Gooley Hemophilia Center Inc$7,50010%
Hemophilia Association of New York Inc$7,50010%
Sisters & Caregivers Bleeding Disorder Network Inc$7,5001n/a
The Bleeding Disorder Foundation of Washington$7,50011%
Snake River Hemophilia & Bleeding Disorders Association Inc$7,5001n/a
Southwestern Ohio Hemophilia Foundation$7,50014%
Utah Hemophilia Foundation$7,50013%
United Hemophilia Foundation$7,50014%
Hemophilia Association of New Jersey$7,50011%
Ssm Cardinal Glennon Children's Hospital$7,00010%
The University of Cincinnati Foundation$5,00010%

Where it is load-bearing

National Bleeding Disorders Foundation supplied at least a quarter of the budget for 4 of its grantees at some point. The chart plots its 83 largest grantees; load-bearing ones sit top left.

25%50%75%100%$1.0M$10M$100Mgrantee revenue →↑ funder's share of their budgetEmory University: $1,138,256 over 6y, 0.0% of budgetThe Children's Hospital of Philadelphia: $575,674 over 4y, 0.0% of budgetThe Medical College of Wisconsin Inc: $484,328 over 3y, 0.0% of budgetBloodworks: $432,519 over 2y, 0.1% of budgetChildren's Hospital Corporation: $395,397 over 4y, 0.0% of budgetBaylor College of Medicine: $371,231 over 3y, 0.0% of budgetAmerican Thrombosis and Hemostasis Network Inc: $249,700 over 1y, 1.9% of budgetUniversity of Denver: $214,289 over 4y, 0.0% of budgetTexas Medical Center Central Heating and Cooling Services Corporation: $208,000 over 1y, 0.3% of budgetThe Cleveland Clinic Foundation: $208,000 over 1y, 0.0% of budgetNew England Hemophilia Association Inc: $185,725 over 8y, 7.0% of budgetBeth Israel Deaconess Medical Center Inc: $162,886 over 3y, 0.0% of budgetVirginia Bleeding Disorders Foundation: $153,900 over 8y, 5.5% of budgetBleeding Disorders Association of South Carolina: $130,757 over 8y, 8.1% of budgetBLEEDING DISORDERS COUNCIL OF CALIFORNIA formerly HEMOPHILIA COUNCIL OF CALIF: $116,500 over 8y, 11% of budgetBleeding Disorders Alliance Illinois: $114,176 over 7y, 9.1% of budgetHemophilia Foundation of Michigan: $106,625 over 7y, 0.6% of budgetAsociacion Puertorriquena de Hemofilia Inc: $104,290 over 5y, 16% of budgetUniversity of Pittsburgh: $104,000 over 1y, 0.0% of budgetFoundation for Western Washington University and Alumni: $104,000 over 1y, 0.8% of budgetIndiana Hemophilia & Thrombosis Center Inc: $100,000 over 1y, 0.2% of budgetBleeding Disorders Alliance of North Dakota: $99,875 over 4y, 9.3% of budgetWestern Pennsylvania Bleeding Disorders Foundation: $96,290 over 6y, 6.1% of budgetTexas Central Hemophilia Association Inc: $94,383 over 8y, 8.0% of budgetWorld Federation of Hemophilia USA: $90,000 over 1y, 0.0% of budgetGreat Lakes Hemophilia Foundation Inc: $84,975 over 7y, 1.2% of budgetThe Scripps Research Institute: $83,115 over 2y, 0.0% of budgetOklahoma Hemophilia Foundation Inc: $80,965 over 6y, 6.8% of budgetPacific Northwest Bleeding Disorders: $73,588 over 6y, 3.3% of budgetCentral California Bleeding Disorders Foundation: $68,000 over 2y, 34% of budgetCt Hemophilia Society Inc: $67,500 over 2y, 44% of budgetGreater Ohio Bleeding Disorders Foundation: $65,050 over 6y, 3.6% of budgetAlaska Hemophilia Association: $64,500 over 2y, 17% of budgetBleeding Disorders Association of Northeastern Ny: $60,135 over 4y, 34% of budgetHemophilia Foundation of Arkansas: $60,000 over 1y, 41% of budgetWayne State University Foundation: $60,000 over 1y, 0.2% of budgetGateway Hemophilia Association: $53,200 over 5y, 5.4% of budgetThe Center for Medical Technology Policy Inc: $50,000 over 1y, 2.4% of budgetHemophilia Foundation of Southern California: $49,850 over 5y, 1.3% of budgetBleeding Disorders Foundation of North Carolina: $43,100 over 4y, 2.3% of budgetNew York City Hemophilia Chapter Inc: $42,625 over 4y, 2.2% of budgetEastern Pennsylvania Bleeding Disorders Foundation: $39,552 over 5y, 2.4% of budgetHemophilia Association of the Capital Area: $37,875 over 5y, 3.0% of budgetLouisiana Hemophilia Foundation: $35,100 over 4y, 3.7% of budgetThe Hemophilia Assoc of San Diego County: $32,000 over 2y, 9.1% of budgetNorthern California Bleeding Disorders Foundation Formerly Hemophilia Foundtn: $27,225 over 2y, 3.7% of budgetHemophilia of Iowa Inc: $25,850 over 3y, 11% of budgetFlorida Bleeding Disorders Association Inc: $23,575 over 3y, 2.5% of budget

Tap a dot to name the grantee.

How this is measured
Share of budget is the funder’s grant in a year over the grantee’s total revenue that year, at its highest across the years we hold; revenue is from all sources. Only grantees confirmed against their own filings, whose grants do not exceed their revenue, are plotted: the largest 83.

Nonprofits that may fit its grantmaking

Co-funders

Grantmakers whose grantees overlap with this funder’s far more than size alone predicts. Closer means stronger alignment; arcs show where they also fund each other. Here they form a tightly interlocked group: most of these funders back each other's grantees too.

The Hemophilia Alliance FoundationFL120.2× affinity55 shared granteesties to 11 of 11Hover any node to trace its alignments.Compare side by side →

Open a dossier: The Hemophilia Alliance Foundation · The Hemophilia Alliance Group Purchasing Organization · Colburn-Keenan Foundation Inc · Hemophilia Federation of America · Pharmaceutical Research and Manufacturers of America · American Thrombosis and Hemostasis Network Inc · Cascade Hemophilia Consortium · FAMOHIO Inc · Indiana Hemophilia & Thrombosis Center Inc · Hemophilia of Georgia Inc · Global Impact · Positudes Inc Dba the Alliance Pharmacy

How this is measured
Affinity is a Gamma-Poisson posterior co-funding rate, re-centered on the typical rate, so thin evidence shrinks toward no signal. Overlap is association, not proof of shared intent.

Compare National Bleeding Disorders Foundation with peer funders

About National Bleeding Disorders Foundation

How much does National Bleeding Disorders Foundation give?
National Bleeding Disorders Foundation reported 23 itemized grants totaling $838,500, out of $1,138,320 in total grant expense reported on the return in its FY2024 IRS filing. It funded between 22 and 63 organizations a year over FY2017 to FY2023.
What does National Bleeding Disorders Foundation fund?
By grant dollars over FY2017 to FY2024, its largest causes are Health (85%), Science & Tech (6%), Education (5%).
Who are National Bleeding Disorders Foundation's largest grantees?
By total granted over FY2017 to FY2024: Emory University ($1.1M), University of North Carolina at Chapel Hill ($644k), The Children's Hospital of Philadelphia ($576k).
Does National Bleeding Disorders Foundation fund new organizations?
In FY2023, 17% of the organizations it funded were first-time grantees.
Which funders back the same organizations as National Bleeding Disorders Foundation?
Its strongest co-funders, measured against what their size predicts, include The Hemophilia Alliance Foundation, The Hemophilia Alliance Group Purchasing Organization, Colburn-Keenan Foundation Inc.
Where is National Bleeding Disorders Foundation based?
National Bleeding Disorders Foundation is based in NY.

On method. Every financial figure here is read from IRS e-file XML, the funder’s own 990/990-PF, and from the multi-year returns of the 103 grantees we resolved, each linked to its source. Grantee outcomes are each organization’s own program-service reporting (Form 990, Part III), read as association with funding, never as caused by it. Low-confidence name matches are suppressed rather than guessed. How we build these →

How this is measured
Each figure carries one of six labels. Filed is what the funder reported on its return. Official is another government record about an organization, such as a federal award or a charity register, joined by name where no shared identifier exists. Resolved is an identity we worked out where the filing named a recipient without an EIN, kept only above a measured confidence threshold. Computed is arithmetic over those, like themes, portfolio clusters and co-funder strength. Context is a statistic about a place rather than about an organization, which is what the need overlay is: it describes the area a grantee’s address sits in, not where its work lands. Inferred is drawn by a model from text, like the partnerships read out of public news and organization websites. Each is labeled where it appears.

Generated from the IRS Form 990 e-file return for fiscal year 2024, released 2024. Filings run roughly 12 to 24 months behind; figures are dated accordingly.

Source object · view filing

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