· Public charity
National Bleeding Disorders Foundation
The NATIONAL BLEEDING DISORDERS FOUNDATION (formerly the national hemophilia foundation) is dedicated to finding cures for inheritable blood and bleeding disorders and to addressing and preventing the complications of these disorders through research, education, and advocacy enabling people and families to thrive.
What you funded, over time
Every grant placed by its stated purpose and the recipient’s mission, by year — across FY2017–2024.
Where the money goes
Your grants by size, and where they go.
The 23 grants below total $838,500 — the rows itemised in this filing. The $1,138,320 headline is the total grant expense reported on the return, so the remaining $299,820 is giving the schedule does not break out: grants under the $5,000 itemisation floor, grants to individuals, and grants reported on other schedules. Every figure below describes the itemised rows only.
By grant size · FY2024
- Under $10k5 grants · $34k
- $10k–50k12 grants · $167k
- $50k–250k6 grants · $638k
| Recipient | Amount |
|---|---|
| UNIVERSITY OF NORTH CAROLINA AT CHAPEL HILL | $200,000 |
| BETH ISRAEL DEACONESS MEDICAL CENTER | $104,000 |
| THE BOARD OF TRUSTEES OF THE LELAND STANFORD JUNIOR UNIVERSITY | $104,000 |
| WORLD FEDERATION OF HEMOPHILIA USA | $90,000 |
| BRIGHAM AND WOMEN'S HOSPITAL | $70,000 |
| EMORY UNIVERSITY | $70,000 |
| ASOCIACION PUERTORRIQUENA DE HEMOFILIA | $18,000 |
| UNIVERSITY OF FLORIDA | $15,000 |
| MAINE HEALTH | $15,000 |
| INTERMOUNTAIN HEALTHCARE FOUNDATION INC | $15,000 |
| HEMOPHILIA FOUNDATION OF MICHIGAN | $14,000 |
| BLEEDING DISORDER ASSOCIATION OF SC | $14,000 |
| WESTERN PENNSYLVANIA BLEEDING DISORDERS | $13,500 |
| GREAT LAKES HEMOPHILIA FOUNDATION | $13,500 |
| PACIFIC NORTHWEST BLEEDING DISORDERS | $12,500 |
Do your dollars go where the need is?
Each grant placed by the hardship in its grantee’s ZIP, then read against the area’s typical level.
Your human-services grants (FY17–24, $317k) land where the poverty rate runs at 9%, against an area that typically sits at 10%. 8% of those dollars go to grantees based in above-average-need neighborhoods. Your grants skew toward lower-need ZIPs.
Matched: human-services grants are those whose grantee’s IRS cause code is Human Services. Placed by people below the poverty linein the grantee’s ZIP, averaged from the tracts in that ZIP; grantee ZIP can differ from where services are delivered.
Which US states your grants reach
US grants placed by each grantee’s ZIP, which can differ from where services are actually delivered. Need from public data — U.S. Census/ACS, CDC PLACES, Eviction Lab, USDA — shown as context about the area, never attributed to your giving.
Who you back again
Which organizations you funded more than once, and which you funded a single time. Each grantee is matched to its own filings.
And the relationships you keep tend to grow: grantees you re-up on have seen median revenue of +36% since the first grant, against +15% for the ones you funded once.
52 repeat relationships — 19 still active in FY2024, 33 since wound down; 3 grantees were first funded in FY2024 (too recent to call).
How the two cohorts compare
Organizations
Total granted
Median revenue growth · since first grant
Still filing today
New vs renewed · share of each year
In FY2024, 84% of grant dollars renewed an existing relationship; $120k went to new ones.
Where new relationships form · theme of each grantee’s first grant
First-time = a grantee’s first year in your filing window; renewed = funded in an earlier year too. As a portfolio matures the renewed share naturally climbs — once funded, an org stays “renewable” — so the signal is the years that buck it (a new-grantee intake wave). The earliest year is left-censored: relationships that predate the data read as “new.” Theme is the grantee’s IRS cause.
Backed again, and grew
- EUEmory University6× · 2017–2024 · $1.1M · revenue +80%
- TCTHE CHILDREN'S HOSPITAL OF PHILADELPHIA4× · 2017–2022 · $576k · revenue +88%
- TMTHE MEDICAL COLLEGE OF WISCONSIN INC3× · 2017–2020 · $484k · revenue +54%
Funded once
- ATAMERICAN THROMBOSIS AND HEMOSTASIS NETWORK INCone grant, 2020 · $250k · revenue +25%
- TMTexas Medical Center Central Heating and Cooling Services Corporationone grant, 2020 · $208k · revenue +22%
THE CLEVELAND CLINIC FOUNDATIONone grant, 2021 · $208k · revenue +20%
Repeat = funded in two or more distinct years; growth and survival are read from each grantee’s own subsequent IRS filings.
The map has a center of gravity: the average direction from the rest of the sector toward the organizations the foundation funds — the shape of its giving. Scoring every nonprofit along that direction surfaces the ones that look most like the portfolio. These are the closest matchesthat aren’t grantees — a resemblance in what they say they do, not a recommendation.
The national bleeding disorders foundation (formerly the national hemophilia foundation) is dedicated to finding cures for inheritable blood and bleeding disorders and to addressing and preventing the complications of these disorders…
The hemophilia alliance foundation is dedicated to receiving and administering funds to enable eligible organizations in the inherited bleeding and thrombotic disorders community to build capacity in order to achieve their mission and to…
The washington center for bleeding disorders is dedicated to assuring optimal health for people with bleeding disorders through comprehensive care, education, and research.
Bleeding disorders of kentucky (bdoky) is dedicated to improving the quality of life for individuals with inheritable bleeding disorders through education, engagement, and support.
The hemophilia alliance provides member hemophilia treatment centers with resources and services to sustain the comprehensive care model for individuals with bleeding and clotting disorders.
Western new york bloodcare, inc. provides specialized diagnostic and health maintenance services to individuals with hemophilia and other genetic bleeding and clotting disorders that require lifelong medical management. for people affected…
Hemophilia of georgia exists so that people in georgia affected by bleeding disorders live as normally and productively as possible.
To provide expert comprehensive multidisciplinary care to patients with hemophilia and other bleeding and clotting disorders.
For reference, the grantee most central to the portfolio’s shape is New England Hemophilia Association Inc and the most unlike its peers is Hemophilia Association of New Jersey. Resemblance is measured on each organization’s own IRS 990 mission text; it reflects how work is described, not its quality or impact.
For each theme you fund, this compares how the sector’s money is shifting with how your own giving is shifting.
Sector change and giving change are each shown relative to their own range, growing (right) or shrinking (left); both normalized, so inflation isn’t mistaken for growth.
Your grantees are a median of 29 years old; the field is 16. You back the established end — and your money leans older still.
The field is 22% startups (under 5 years old) — 2% of your grantees by number, and just 0% of your money.
The orgs you fund almost never close — 2% lost their exemption, against 13% of the field you don’t fund.
Age = years since IRS exemption (a founding proxy). “Closed” = auto-revocation for 3 years of non-filing — a floor on closure, not proof, and bigger established orgs lapse least. Association, not causation.
87 grantees tracked through their own filings, 2017–2025.
Each one resolved to its own IRS returns and tracked year by year — your grant beside their revenue from every source. Association, dated; never a causal claim.
Counted here: distinct organizations you funded across 2017–2025, not grant rows in a single year — so this will not match the grant count on the cover. 87 of the 103 grantees resolved in that span have returns of their own we could reconcile; the rest are funded organizations whose filings we could not track year by year.
Where your money sits — by cause, then by grantee
Each org by its size and your share of it — top-left is where you’re load-bearing
Go grantee by grantee — a decade per org, and how each moved after you funded them
A decade per grantee — revenue shaded, your grants as bars, all rows on one timeline.
- Who funds Emory University ↗
- Who funds THE CHILDREN'S HOSPITAL OF PHILADELPHIA ↗
- Who funds THE MEDICAL COLLEGE OF WISCONSIN INC ↗
- Who funds BLOODWORKS ↗
- Who funds Children's Hospital Corporation ↗
- Who funds Baylor College of Medicine ↗
- Who funds AMERICAN THROMBOSIS AND HEMOSTASIS NETWORK INC ↗
- Who funds UNIVERSITY OF DENVER ↗
- Who funds THE BOARD OF TRUSTEES OF THE LELAND STANFORD JUNIOR UNIVERSITY ↗
- Who funds Texas Medical Center Central Heating and Cooling Services Corporation ↗
- Who funds THE CLEVELAND CLINIC FOUNDATION ↗
- Who funds NEW ENGLAND HEMOPHILIA ASSOCIATION INC ↗
- Who funds BETH ISRAEL DEACONESS MEDICAL CENTER INC ↗
- Who funds VIRGINIA BLEEDING DISORDERS FOUNDATION ↗
- Who funds Bleeding Disorders Association of South Carolina ↗
- Who funds BLEEDING DISORDERS COUNCIL OF CALIFORNIA formerly HEMOPHILIA COUNCIL OF CALIF ↗
- Who funds Bleeding Disorders Alliance Illinois ↗
- Who funds Hemophilia Foundation of Michigan ↗
- Who funds ASOCIACION PUERTORRIQUENA DE HEMOFILIA INC ↗
- Who funds FOUNDATION FOR WESTERN WASHINGTON UNIVERSITY AND ALUMNI ↗
- Who funds UNIVERSITY OF PITTSBURGH ↗
- Who funds INDIANA HEMOPHILIA & THROMBOSIS CENTER INC ↗
- Who funds Bleeding Disorders Alliance of North Dakota ↗
- Who funds WESTERN PENNSYLVANIA BLEEDING DISORDERS FOUNDATION ↗
- Who funds TEXAS CENTRAL HEMOPHILIA ASSOCIATION INC ↗
- Who funds WORLD FEDERATION OF HEMOPHILIA USA ↗
- Who funds GREAT LAKES HEMOPHILIA FOUNDATION INC ↗
- Who funds THE SCRIPPS RESEARCH INSTITUTE ↗
- Who funds OKLAHOMA HEMOPHILIA FOUNDATION INC ↗
- Who funds PACIFIC NORTHWEST BLEEDING DISORDERS ↗
- Who funds CENTRAL CALIFORNIA BLEEDING DISORDERS FOUNDATION ↗
The grantmakers whose grantees overlap with yours far more than size alone predicts. Each orbits closer the stronger the alignment; the arcs between them show where they also fund each other. Here it reads as a tightly interlocked camp — most of these funders back each other's grantees too.
Open a dossier: The Hemophilia Alliance Foundation · The Hemophilia Alliance Group Purchasing Organization · Colburn-Keenan Foundation Inc · Hemophilia Federation of America · Pharmaceutical Research and Manufacturers of America · American Thrombosis and Hemostasis Network Inc · Cascade Hemophilia Consortium · FAMOHIO Inc · Indiana Hemophilia & Thrombosis Center Inc · Hemophilia of Georgia Inc · Global Impact · Positudes Inc Dba the Alliance Pharmacy
Affinity is a Gamma-Poisson posterior co-funding rate, re-centered on the typical rate, so thin evidence shrinks toward no signal. A research starting point: overlap is association, not proof of shared intent.
Government reliance of your grantees
Every dot is one organization National Bleeding Disorders Foundation funds. Left–right is the share of its income from government; up–down is the share from you. Bigger dots raise more. Filter to federal or a single department — and drag the year to watch it move.
- University of Delaware — 30% of income from government
- Children's Hospital Corporation — 10% of income from government
- Beth Israel Deaconess Medical Center Inc — 6% of income from government
- Orlando Health Inc — 0% of income from government
Government income is each org’s traced federal awards (USASpending — grants and contracts) plus state payments (open checkbooks) as a share of its total revenue (IRS Form 990); the self-reported government-grant line (990 line 1e) is carried for cross-check: a grantee that reports government grants we could not trace to a source is left off the chart rather than shown as receiving none. An association, not a claim that your grant caused the public funding. Coverage is precision-first — a floor, not a census; state records exist for 9 states, so a grantee outside them shows no state figure (dimmed) rather than a false zero. Federal award amounts are obligations, which can span years, so a single-year share is indicative. 990 filings lag 12–24 months.