New York · Nonprofit
MARY M GOOLEY HEMOPHILIA CENTER INC
MARY M GOOLEY HEMOPHILIA CENTER INC (New York) receives grants from 10 organizations whose IRS filings report $224,162 to it, the largest being AMERICAN THROMBOSIS AND HEMOSTASIS NETWORK INC ($76,526). 6 of them have funded it in more than one year.
- Revenue FY2024
- $29M
- Funders on record
- 10
- Grants received
- $224k
- Net assets
- $33M
What Mary M Gooley Hemophilia Center Inc does
Mission
To provide education, treatment, research, advocacy and supportive programs to improve the lives of people affected by bleeding disorders and iron overload.
As stated on its FY2024 Form 990.
Programs
The center has approximately 366 bleeding disorder patients on its active caseload. In 2024, 231 unique patients with hemophilia, von willebrand disease and other rare clotting deficiencies were evaluated and treated. 66 patients with moderate and severe hemophilia attend specialized comprehensive care clinics at least once each year, receiving consultation from an onsite hematologist, nurse coordinator, social worker, physical therapist, orthopedic surgeon and dentist. The center has an on-site specialty pharmacy that provides clotting factor to 52 hemophilia patients via our home infusion program.
$20,420,756 spent$26,981,763 earned by the program98% of program spendingThe center provides specialized evaluation and care for patients with hereditary hemochromatosis and iron overload. Typically, patients with these conditions receive regular therapeutic phlebotomies to diminish excess iron stored in their bodies, diminishing risk of permanent organ damage. The center serves approximately 213 hemochromatosis/iod patients.
$314,047 spent$34,767 earned by the program2% of program spendingThe center has been actively involved in research and clinical trials in an effort to cultivate advances in hemophilia, von willebrand disease and hemochromatosis. In 2024, the center participated in 2 open research studies addressing a wide range of clinical areas and outcomes. In addition, the center works closely with the center for disease control (cdc) and the american thrombosis and hemostasis network (athn) registries, collecting data as part of a national effort to better understand and care for rare bleeding disorders.
$72,743 spent0% of program spendingRevenues and expenses for national hemophilia foundation chapter activities.
$81,858 spent0% of program spending
The 4 programs described on its FY2024 Form 990, listed largest first by expense. Program spending in total: $20,889,404.
The organization over time
Each line starts at 100 in 2017, so what you read is the shape rather than the size: 150 means half as much again as 2017, 50 means half. The number beside each label in the key is where it ended.
Balance sheet
Total assets and total liabilities at each year end, in dollars. The largest one-year move in total assets was 2023 to 2024, from $29M to $36M (+25%).
How it's funded, over time
Each bar is one year's revenue split into where it came from, and every bar is the same height — these are shares, not amounts, so a year that raised twice as much looks the same size. Hover a bar for the split.
Surplus & reserves
Operating surplus or deficit each year, and months of liquidity in hand. 0 of the last 8 reported years ran a deficit.
reserve
Leadership and staff
The officers, directors, trustees and key employees listed on each return. Joined and no longer listed compare each filing with the year before, matching people by surname and first initial; a year after a gap, or a roster under three people, has no comparison.
Chief executive
Thomas Wilmarth
President & CEO
Board chair
Andrew Park
Chairperson
As listed on its FY2024 Form 990.
The chief executive listed changed between the FY2017 and FY2018 filings.
Who funds it, year by year
2017 → 2023: the base broadened from 2 funders to 3 funders, grant income rose $15k → $15k.
2 of 10 of your funders are donor-advised or pass-through sponsors (tagged DAF) — 23% of grant dollars received. That money is really individual donors directing a sponsor; the institutions to cultivate are the non-DAF funders.
From the IRS filings of MARY M GOOLEY HEMOPHILIA CENTER INC’s funders (the co-funder graph). Association, not causation. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How concentrated its funding is
MARY M GOOLEY HEMOPHILIA CENTER INC leans on a few funders — its largest provides 34% of grant income and the top three 81%; half comes from just 2 funders.
the vertical line marks half of all grant income — 2 funders to its left
88% of the income these shares are computed over arrives through pass-through sponsors or from payers whose filings do not say what kind of payment it is. Concentration is still measured over all of it, because the money is real; what it does not support is a claim about how many institutions have chosen to fund MARY M GOOLEY HEMOPHILIA CENTER INC.
Largest funder’s share by year: 2017 66% · 2018 52% · 2019 41% · 2020 49% · 2021 63% · 2022 48% · 2023 54% — diversifying over time.
“Effective funders” = inverse Herfindahl index (1 / Σ shareᵢ²) — the number of equal-sized funders that would give the same concentration. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How long its funders stay
43% of MARY M GOOLEY HEMOPHILIA CENTER INC's funders are still giving 3 years after their first grant; 60% give in more than one year at all.
Share of funders still giving k years after their first recorded grant, pooled across every acquisition cohort. A funder counts as retained in a year only if it made a grant that year. Measured to FY2023, the last fiscal year that has finished arriving — a funder cannot be counted as lapsed in a year most filers have not reached.
Where its funders are
MARY M GOOLEY HEMOPHILIA CENTER INC draws 85% of its grant income from funders outside New York, across 4 states in all.
In-state vs out-of-state, by year
Funder states come from each funder’s own filing. $52k arriving through sponsors registered in 2 states is excluded from the map and the split above: a sponsor holds money on a donor’s behalf, so its registered address would place those dollars somewhere no donor need ever have been. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
Organizations like MARY M GOOLEY HEMOPHILIA CENTER INC
Organizations whose mission and program text most resemble this one, by semantic similarity over every organization in the US filings — the closest peers, and often the clearest route to shared or prospective funders.
In New York
Nationally
Read directly from this organization’s own Form 990, as neutral context.
Where the money goes
97% of spending goes to programs.
Governance
Public support
99%
Share of support from the public (Schedule A) — the basis for its public-charity status.
Footprint & structure
Files a return copy in 1 state
Screen this organization
A dated, signed PDF of the compliance screen for MARY M GOOLEY HEMOPHILIA CENTER INC: IRS status (Business Master File, Publication 78, auto-revocation), the OFAC sanctions lists, the Internal Revenue Bulletin, and California registration, with the Rev. Proc. 2018-32 §8.01 reliance elements stated element by element. Generated from the current files at the moment you download it.
Screens are triage, not determinations; a source that cannot be read reports not screened, never clear. Screen this nonprofit · How the screen works · on the API as GET /api/screening/{ein}?format=pdf
Questions and answers
- Who funds MARY M GOOLEY HEMOPHILIA CENTER INC?
- MARY M GOOLEY HEMOPHILIA CENTER INC (New York) receives grants from 10 organizations whose IRS filings report $224,162 to it, the largest being AMERICAN THROMBOSIS AND HEMOSTASIS NETWORK INC ($76,526). 6 of them have funded it in more than one year.
- How many funders does MARY M GOOLEY HEMOPHILIA CENTER INC have?
- IRS filings report 10 organizations giving $224,162 in grants to MARY M GOOLEY HEMOPHILIA CENTER INC, 6 of which have funded it in more than one year.
- Who is the largest funder of MARY M GOOLEY HEMOPHILIA CENTER INC?
- AMERICAN THROMBOSIS AND HEMOSTASIS NETWORK INC is the largest funder on record, with $76,526 in grants. The full list of funders is on this page.
- How can an organization like MARY M GOOLEY HEMOPHILIA CENTER INC find more funders?
- Start with the funders already giving here, then look at the foundations that back similar organizations in New York. The funding by cause and by state pages list the largest funders for a given area and how to approach them.
Play a game about who funds Mary M Gooley Hemophilia Center →
These figures are read directly from IRS Form 990 / 990-PF e-file XML: this organization’s own return for FY2024 (financials across 2017–2024), and the filings of 10 funders that report grants to it. “On record” means captured in the filings we have parsed — a funder that does not e-file, or whose grant detail is not itemized, will not appear. Filings run roughly 12–24 months behind. Trends on this page end at FY2023, the last fiscal year that has finished arriving; later years are shown and marked, and move no figure. Data on this page was exported October 14, 2026. What this page cannot tell you · view filing