Skip to content

Kentucky · Nonprofit

Kentucky Hemophilia Foundation Inc

Kentucky Hemophilia Foundation Inc (Kentucky) receives grants from 9 organizations whose IRS filings report $596,319 to it, the largest being KOSAIR CHARITIES COMMITTEE INC ($450,240). 4 of them have funded it in more than one year.

Revenue FY2025
$252k
Funders on record
9
Grants received
$596k
Net assets
$619k
4/9 repeat funderspeak grant-dependency 58%
01What it does

What Kentucky Hemophilia Foundation Inc does

Mission

The Kentucky Hemophilia Foundation assists individuals with hemophilia and similar bleeding disorders through education, advocacy, and support services and by promoting research for a cure.

As stated on its FY2025 Form 990.

Programs

  1. Advocacy Day is an annual event at the state capitol to educate legislators about the needs and concerns of Kentucky's bleeding disorders community and emphasize the need for patient assistance programs and the importance of access to health care.

    $280 spent
    0% of program spending
  2. The annual Family Information and Support Day at the Louisville Zoo provides an opportunity for families affected by bleeding disorders to obtain cutting edge information about available factor products and ancillary services and have an opportunity to meet and get acquainted with other families for support.

    $8,610 spent
    4% of program spending
  3. Summer camp is a five day educational and recreational program for children and teens with bleeding disorders. The philosophy of our summer camp program is to empower campers to be healthy and active youngsters "just like any other kids" while learning to manage their bleeding disorder or learn about their sibling's bleeding disorder. The mission of the summer camp is to improve knowledge, attitudes, and behavorial skills of children with hemophilia or a similar bleeding disorder as well as accompanying siblings who do not have a bleeding disorder for developing a healthy, risk-reduced lifestyle. The goals of the summer camp program are to: 1. combine life skills education with outdoor adventure and fun for the development of self-esteem, confidence, team-building, and leadership skills through age and gender appropriate activities; 2. promote physical emotional, and mental wellness; 3. advocate risk-reducing behavior for optimal child development and prevention of complications for each child with a bleeding disorder.

    $20,966 spent
    11% of program spending
  4. Expenses: 44,334 The Annual Education Meeting and Summer Family Event is our largest yearly education event, which features several nationally known speakers who address topics pertinent to the bleeding disorders community in the realm of research advances, new and future treatment options as well as overall well-being. The Year-End Community Event provides an opportunity for families affected by bleeding disorders to obtain cutting edge information about available factor products and ancillary services and have an opportunity to meet and get acquainted with other families for support. Expenses: 123,508 Support Services include emergency financial assistance, Medic Alert emblems, bicycle helmets, post-secondary education scholarships, sponsorships for attending conferences, educational seminars, web site, newsletter, other support services, and allocation of overhead to programs.

    $167,842 spent$938 earned by the program
    85% of program spending

The 4 programs described on its FY2024 Form 990, listed largest first by expense. Program spending in total: $197,698.

02The organization over time

The organization over time

Each line starts at 100 in 2017, so what you read is the shape rather than the size: 150 means half as much again as 2017, 50 means half. The number beside each label in the key is where it ended.

100 = 20172017 Revenue 100 ($375k) Expenses 100 ($256k) Net assets 100 ($383k)2018 Revenue 85 ($319k) Expenses 107 ($274k) Net assets 112 ($428k)2019 Revenue 85 ($321k) Expenses 112 ($288k) Net assets 120 ($460k)2020 Revenue 67 ($252k) Expenses 102 ($263k) Net assets 118 ($450k)2021 Revenue 79 ($295k) Expenses 82 ($211k) Net assets 140 ($534k)2022 Revenue 65 ($244k) Expenses 83 ($212k) Net assets 150 ($575k)2023 Revenue 76 ($285k) Expenses 103 ($263k) Net assets 156 ($597k)2024 Revenue 69 ($258k) Expenses 95 ($244k) Net assets 160 ($612k)2025 Revenue 67 ($252k) Expenses 95 ($245k) Net assets 162 ($619k)
'17'18'19'20'21'22'23'24'25
Revenue (67)Expenses (95)Net assets (162)

Balance sheet

Total assets and total liabilities at each year end, in dollars. The largest one-year move in total assets was 2020 to 2021, from $545k to $617k (+13%).

$449k
$496k
$528k
$545k
$617k
$647k
$649k
$664k
$672k
'17'18'19'20'21'22'23'24'25
Total assetsTotal liabilities

How it's funded, over time

Each bar is one year's revenue split into where it came from, and every bar is the same height — these are shares, not amounts, so a year that raised twice as much looks the same size. Hover a bar for the split.

2017
2018
2019
2020
2021
2022
2023
2024
2025
ContributionsProgram revenueInvestmentOther

Government-grant reliance: 2023 15%. Grants only. Government contracts and fees sit inside program revenue.

Surplus & reserves

Operating surplus or deficit each year, and months of liquidity in hand. 1 of the last 9 reported years ran a deficit.

$119k
’17
$45k
’18
$33k
’19
−$10k
’20
$84k
’21
$32k
’22
$22k
’23
$15k
’24
$7k
’25
27
months of
reserve

Leadership and staff

The officers, directors, trustees and key employees listed on each return. Joined and no longer listed compare each filing with the year before, matching people by surname and first initial; a year after a gap, or a roster under three people, has no comparison.

Chief executive

Ursela Kamala

Executive Director

As listed on its FY2025 Form 990.

'17'18'19'20'21'22'23'24'25
Listed10111412121110108
Joined·+2+3+2+0+3+1+1+1
No longer listed·10404213
03Who funds it

Who funds it, year by year

2017 → 2023: the base broadened from 2 funders to 4 funders, grant income rose $14k → $99k.

2 of 9 of your funders are donor-advised or pass-through sponsors (tagged DAF) — 1% of grant dollars received. That money is really individual donors directing a sponsor; the institutions to cultivate are the non-DAF funders.

From the IRS filings of Kentucky Hemophilia Foundation Inc’s funders (the co-funder graph). Association, not causation. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.

How concentrated its funding is

Kentucky Hemophilia Foundation Inc leans on a few funders — its largest provides 76% of grant income and the top three 96%; half comes from just 1 funder.

the vertical line marks half of all grant income — 1 funder to its left

100% of the income these shares are computed over arrives through pass-through sponsors or from payers whose filings do not say what kind of payment it is. Concentration is still measured over all of it, because the money is real; what it does not support is a claim about how many institutions have chosen to fund Kentucky Hemophilia Foundation Inc.

76%
largest funder
96%
top three
~2
effective funders

Largest funder’s share by year: 2017 57% · 2018 57% · 2019 54% · 2020 69% · 2021 71% · 2022 82% · 2023 86% — growing more concentrated.

“Effective funders” = inverse Herfindahl index (1 / Σ shareᵢ²) — the number of equal-sized funders that would give the same concentration. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.

How long its funders stay

50% of Kentucky Hemophilia Foundation Inc's funders are still giving 3 years after their first grant; 44% give in more than one year at all.

first grant+1y+2y+3y

Share of funders still giving k years after their first recorded grant, pooled across every acquisition cohort. A funder counts as retained in a year only if it made a grant that year. Measured to FY2023, the last fiscal year that has finished arriving — a funder cannot be counted as lapsed in a year most filers have not reached.

Where its funders are

85% of Kentucky Hemophilia Foundation Inc's grant income comes from Kentucky funders.

NY
CT
KY
FL

In-state vs out-of-state, by year

’17
’18
’19
’20
’21
’22
’23
Kentucky out of state home

Funder states come from each funder’s own filing. $6k arriving through sponsors registered in 2 states is excluded from the map and the split above: a sponsor holds money on a donor’s behalf, so its registered address would place those dollars somewhere no donor need ever have been. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.

04Its place in the field

Organizations like Kentucky Hemophilia Foundation Inc

Organizations whose mission and program text most resemble this one, by semantic similarity over every organization in the US filings — the closest peers, and often the clearest route to shared or prospective funders.

In Kentucky

Nationally

05Profile & governance

Read directly from this organization’s own Form 990, as neutral context.

Where the money goes

81% of spending goes to programs.

Program 81%Management 13%Fundraising 6%

Governance

7
board members
100%
independent
✓Conflict-of-interest policy✓Whistleblower policy✓Document retention✓Board reviewed the 990✓Audited financials

Public support

73%

Share of support from the public (Schedule A) — the basis for its public-charity status.

Footprint & structure

Files a return copy in 1 state

KY

Screen this organization

A dated, signed PDF of the compliance screen for Kentucky Hemophilia Foundation Inc: IRS status (Business Master File, Publication 78, auto-revocation), the OFAC sanctions lists, the Internal Revenue Bulletin, and California registration, with the Rev. Proc. 2018-32 §8.01 reliance elements stated element by element. Generated from the current files at the moment you download it.

A paid feature, included from the $75 plan up. Sign in to download.

Screens are triage, not determinations; a source that cannot be read reports not screened, never clear. Screen this nonprofit · How the screen works · on the API as GET /api/screening/{ein}?format=pdf

Questions and answers

Who funds Kentucky Hemophilia Foundation Inc?
Kentucky Hemophilia Foundation Inc (Kentucky) receives grants from 9 organizations whose IRS filings report $596,319 to it, the largest being KOSAIR CHARITIES COMMITTEE INC ($450,240). 4 of them have funded it in more than one year.
How many funders does Kentucky Hemophilia Foundation Inc have?
IRS filings report 9 organizations giving $596,319 in grants to Kentucky Hemophilia Foundation Inc, 4 of which have funded it in more than one year.
Who is the largest funder of Kentucky Hemophilia Foundation Inc?
KOSAIR CHARITIES COMMITTEE INC is the largest funder on record, with $450,240 in grants. The full list of funders is on this page.
How can an organization like Kentucky Hemophilia Foundation Inc find more funders?
Start with the funders already giving here, then look at the foundations that back similar organizations in Kentucky. The funding by cause and by state pages list the largest funders for a given area and how to approach them.

Play a game about who funds Kentucky Hemophilia →

These figures are read directly from IRS Form 990 / 990-PF e-file XML: this organization’s own return for FY2025 (financials across 2017–2025), and the filings of 9 funders that report grants to it. “On record” means captured in the filings we have parsed — a funder that does not e-file, or whose grant detail is not itemized, will not appear. Filings run roughly 12–24 months behind. Trends on this page end at FY2023, the last fiscal year that has finished arriving; later years are shown and marked, and move no figure. Data on this page was exported October 14, 2026. What this page cannot tell you · view filing