Washington, D.C. · Nonprofit
HEMOPHILIA FEDERATION OF AMERICA
HEMOPHILIA FEDERATION OF AMERICA (Washington, D.C.) receives grants from 9 organizations whose IRS filings report $659,051 to it, the largest being Colburn-Keenan Foundation Inc ($258,000). 5 of them have funded it in more than one year.
- Revenue FY2024
- $4.5M
- Funders on record
- 9
- Grants received
- $659k
- Net assets
- $6.3M
What Hemophilia Federation of America does
Mission
Hemophilia Federation of America is a national nonprofit organization that assists, educates, and advocates for the bleeding disorders community.
As stated on its FY2024 Form 990.
Programs
Symposium conference - a national annual community-certification educational conference event that draws hundreds of patients and their families.this conference is a place where community members come together to share information, learn about new advancement, and build a network of support.
$999,591 spentof which $64,162 as grants$3,339,176 earned by the program34% of program spendingOutreach - helps individuals with bleeding disorders and their caregivers learn how to become advocates on their own behalf through in-person and online training, tool kits, and web resources. Education and tools are provided to participate in monitoring, learning to self-advocate, and educating about federal and state public policies that impact the lives of people living with bleedidng disorders. Social and print media are actively utilized to extend outreach efforts and bring community together. Four programs are included in outreach: blood brotherhood, blood sisterhood, hfa families, and outreach education.
$593,853 spentof which $36,000 as grants20% of program spendingOther activities - provides educational and artistic scholarships to members of the bleeding disorders community, a resource guide for the consumers, and maintains a website with information about the organization's programs and services. The organization also publishes a quarterly newsletter called "dateline federation". In addition, the organization covers the cost of attendance to meetings of the department of health and human services, the blood products advisory committee of the fda, and the advisory committee on blood safety and availability, and participation in conferences at the invitation of the center for disease control.
$522,688 spentof which $16,000 as grants18% of program spendingGears for good charity bike ride - encourages people with bleeding disorders to live healthy, active lifestyles. Gears for good is a charity bike ride offered to raise funds for the helping hands program. Riders enjoy meeting new people and building stronger friendships along the way while raising funds for this important cause.
$357,420 spentof which $2,535 as grants12% of program spendingHfa research - a community centered, community focused, and community driven program aimed at improving the lives of bleeding disorders community members. Research topics are identified by the community population and focused on patient/community data. Data is collected nationally online as well as locally through hfa's 50-plus member organizations across the country.
$304,007 spentof which $9,500 as grants$5,198 earned by the program10% of program spendingHelping hands - designed to establish a rapid, non-invasive source of relief for emergency situations for individuals and families in the bleeding disorders community. Each application is given careful consideration as to the personal circumstances, while ensuring a minimum invasion of privacy for community members. The program also assists individuals with the costs of medically necessary items and durable medical equipment.
$188,915 spentof which $47,238 as grants6% of program spending
The 6 programs described on its FY2024 Form 990, listed largest first by expense. Program spending in total: $2,966,474.
The organization over time
Each line starts at 100 in 2017, so what you read is the shape rather than the size: 150 means half as much again as 2017, 50 means half. The number beside each label in the key is where it ended. The shaded band is where the middle 50% of its peers' revenue would sit, given their growth.
Balance sheet
Total assets and total liabilities at each year end, in dollars. The largest one-year move in total assets was 2021 to 2022, from $9.0M to $6.7M (−26%).
How it's funded, over time
Each bar is one year's revenue split into where it came from, and every bar is the same height — these are shares, not amounts, so a year that raised twice as much looks the same size. Hover a bar for the split.
Government-grant reliance: 2017 10% · 2018 8% · 2019 11% · 2022 6% · 2023 4% · 2024 9%. Grants only. Government contracts and fees sit inside program revenue.
17% of HEMOPHILIA FEDERATION OF AMERICA’s revenue is contributions — about as donation-reliant as the typical peer (51% for the typical peer).
Surplus & reserves
Operating surplus or deficit each year, and months of liquidity in hand. 2 of the last 8 reported years ran a deficit.
reserve
Leadership and staff
The officers, directors, trustees and key employees listed on each return. Joined and no longer listed compare each filing with the year before, matching people by surname and first initial; a year after a gap, or a roster under three people, has no comparison.
Chief executive
Daniel Kelsey
President and CEO
Board chair
Lucas Runion
Chair
As listed on its FY2024 Form 990.
The chief executive listed changed between the FY2017 and FY2018 filings.
Who funds it, year by year
2017 → 2023: the base broadened from 3 funders to 6 funders, grant income rose $63k → $100k.
2 of 9 of your funders are donor-advised or pass-through sponsors (tagged DAF) — 1% of grant dollars received. That money is really individual donors directing a sponsor; the institutions to cultivate are the non-DAF funders.
From the IRS filings of HEMOPHILIA FEDERATION OF AMERICA’s funders (the co-funder graph). Association, not causation. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How concentrated its funding is
HEMOPHILIA FEDERATION OF AMERICA leans on a few funders — its largest provides 39% of grant income and the top three 81%; half comes from just 2 funders.
the vertical line marks half of all grant income — 2 funders to its left
45% of the income these shares are computed over arrives through pass-through sponsors or from payers whose filings do not say what kind of payment it is. Concentration is still measured over all of it, because the money is real; what it does not support is a claim about how many institutions have chosen to fund HEMOPHILIA FEDERATION OF AMERICA.
Largest funder’s share by year: 2017 56% · 2018 65% · 2019 75% · 2020 59% · 2021 37% · 2022 80% · 2023 50% — diversifying over time.
“Effective funders” = inverse Herfindahl index (1 / Σ shareᵢ²) — the number of equal-sized funders that would give the same concentration. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How long its funders stay
50% of HEMOPHILIA FEDERATION OF AMERICA's funders are still giving 3 years after their first grant; 56% give in more than one year at all.
Share of funders still giving k years after their first recorded grant, pooled across every acquisition cohort. A funder counts as retained in a year only if it made a grant that year. Measured to FY2023, the last fiscal year that has finished arriving — a funder cannot be counted as lapsed in a year most filers have not reached.
Where its funders are
HEMOPHILIA FEDERATION OF AMERICA draws 100% of its grant income from funders outside Washington, D.C., across 5 states in all.
In-state vs out-of-state, by year
Funder states come from each funder’s own filing. $8k arriving through sponsors registered in 2 states is excluded from the map and the split above: a sponsor holds money on a donor’s behalf, so its registered address would place those dollars somewhere no donor need ever have been. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
Against its field
HEMOPHILIA FEDERATION OF AMERICA runs a healthier operating margin than half of the 8,121 health nonprofits its size.
this organization peer median middle 50% of peers· 8,121 health nonprofits $1M–$10M, FY2024
Government funding HEMOPHILIA FEDERATION OF AMERICA receives
Grants and contracts to this organization from federal (USASpending) and state checkbooks, reconciled to its EIN. $2.9M on record.
- Department of Health and Human Services$2.9M
Federal grants vs contracts are distinguished; state line items keep their reported category. Matched by name + geography (the BMF), so coverage is partial and precision-first.
Organizations like HEMOPHILIA FEDERATION OF AMERICA
Organizations whose mission and program text most resemble this one, by semantic similarity over every organization in the US filings — the closest peers, and often the clearest route to shared or prospective funders.
In Washington, D.C.
Nationally
Read directly from this organization’s own Form 990, as neutral context.
Where the money goes
74% of spending goes to programs.
Governance
Public support
69%
Share of support from the public (Schedule A) — the basis for its public-charity status.
Footprint & structure
Files a return copy in 28 states
Screen this organization
A dated, signed PDF of the compliance screen for HEMOPHILIA FEDERATION OF AMERICA: IRS status (Business Master File, Publication 78, auto-revocation), the OFAC sanctions lists, the Internal Revenue Bulletin, and California registration, with the Rev. Proc. 2018-32 §8.01 reliance elements stated element by element. Generated from the current files at the moment you download it.
Screens are triage, not determinations; a source that cannot be read reports not screened, never clear. Screen this nonprofit · How the screen works · on the API as GET /api/screening/{ein}?format=pdf
Questions and answers
- Who funds HEMOPHILIA FEDERATION OF AMERICA?
- HEMOPHILIA FEDERATION OF AMERICA (Washington, D.C.) receives grants from 9 organizations whose IRS filings report $659,051 to it, the largest being Colburn-Keenan Foundation Inc ($258,000). 5 of them have funded it in more than one year.
- How many funders does HEMOPHILIA FEDERATION OF AMERICA have?
- IRS filings report 9 organizations giving $659,051 in grants to HEMOPHILIA FEDERATION OF AMERICA, 5 of which have funded it in more than one year.
- Who is the largest funder of HEMOPHILIA FEDERATION OF AMERICA?
- Colburn-Keenan Foundation Inc is the largest funder on record, with $258,000 in grants. The full list of funders is on this page.
- How can an organization like HEMOPHILIA FEDERATION OF AMERICA find more funders?
- Start with the funders already giving here, then look at the foundations that back similar organizations in Washington, D.C.. The funding by cause and by state pages list the largest funders for a given area and how to approach them.
These figures are read directly from IRS Form 990 / 990-PF e-file XML: this organization’s own return for FY2024 (financials across 2017–2024), and the filings of 9 funders that report grants to it. “On record” means captured in the filings we have parsed — a funder that does not e-file, or whose grant detail is not itemized, will not appear. Filings run roughly 12–24 months behind. Trends on this page end at FY2023, the last fiscal year that has finished arriving; later years are shown and marked, and move no figure. Data on this page was exported October 14, 2026. What this page cannot tell you · view filing