Arizona · Nonprofit
ARIZONA HEMOPHILIA ASSOCIATION INC
ARIZONA HEMOPHILIA ASSOCIATION INC (Arizona) receives grants from 14 organizations whose IRS filings report $618,616 to it, the largest being Phoenix Children's Hospital ($486,000). 9 of them have funded it in more than one year.
- Revenue FY2025
- $1.4M
- Funders on record
- 14
- Grants received
- $619k
- Net assets
- $1.1M
What Arizona Hemophilia Association Inc does
Mission
The aha is dedicated to enhancing the quality of life for those living with chronic bleeding disorders while advocating for a cure.
As stated on its FY2025 Form 990.
Programs
Community education - promote community awareness through various conferences and other media: 1. Annual statewide educational symposium - brings together those with bleeding disorders and their families from across the state to provide education to help them better manage this chronic condition. 2. Conducted an advocacy summit conference to promote awareness within the bleeding disorder community and the general public. 3. Conducted an hispanic heritage day with the hispanic population affected by bleeding disorders to educate and support their unique struggles in their native language. 4. Conducted two (now) conferences (national educational conference for individuals and families who are living with vonwillebrands).
$751,661 spent$3,888 earned by the program64% of program spendingCommunity support programs - provide education and support group meetings including: 1. Quarterly meetings for the community as a whole that include education, pharmaceutical information, and time for interaction. 2. Educational meetings that included: a. Learning to disclose your bleeding disorder in a safe way. B. Understanding insurance and options available to our community. C. How to interact with legislators to promote insurance reform. D. Nutrition and exercise - how to improve quality of life. E. Mental health - how to improve quality of life. F. Educational meetings for spanish-speaking community. G. On-going program for at-risk youth. 3. Youth camps:
$299,494 spent26% of program spendingFamily assistance - provide emergency and temporary financial assistance to hemophilia patients and their families. Lifeline- provides assistance for medical bills, insurance premiums and cobra payment assistance for the community.
$111,073 spentof which $14,395 as grants10% of program spendingHealth center - ongoing costs related to the managment of medical records and patient accounts. The program was discontinued in september 2021 and the buidling was subsequently sold.
$4,742 spent0% of program spending
The 4 programs described on its FY2024 Form 990, listed largest first by expense. Program spending in total: $1,166,970.
The organization over time
Each line starts at 100 in 2017, so what you read is the shape rather than the size: 150 means half as much again as 2017, 50 means half. The number beside each label in the key is where it ended. The shaded band is where the middle 50% of its peers' revenue would sit, given their growth.
Balance sheet
Total assets and total liabilities at each year end, in dollars. The largest one-year move in total assets was 2021 to 2022, from $2.4M to $1.9M (−20%).
How it's funded, over time
Each bar is one year's revenue split into where it came from, and every bar is the same height — these are shares, not amounts, so a year that raised twice as much looks the same size. Hover a bar for the split.
Government-grant reliance: 2021 12% · 2022 18% · 2025 4%. Grants only. Government contracts and fees sit inside program revenue.
95% of ARIZONA HEMOPHILIA ASSOCIATION INC’s revenue is contributions — more reliant on donations than three-quarters of its peers (51% for the typical peer).
Surplus & reserves
Operating surplus or deficit each year, and months of liquidity in hand. 3 of the last 8 reported years ran a deficit.
reserve
Leadership and staff
The officers, directors, trustees and key employees listed on each return. Joined and no longer listed compare each filing with the year before, matching people by surname and first initial; a year after a gap, or a roster under three people, has no comparison.
Chief executive
Leigh Goldstein
Executive director
Board chair
Ellen Owens-Karcsay
Chair
As listed on its FY2025 Form 990.
Who funds it, year by year
2017 → 2023: the base broadened from 3 funders to 4 funders, grant income fell $160k → $2k.
3 of 14 of your funders are donor-advised or pass-through sponsors (tagged DAF) — 4% of grant dollars received. That money is really individual donors directing a sponsor; the institutions to cultivate are the non-DAF funders.
From the IRS filings of ARIZONA HEMOPHILIA ASSOCIATION INC’s funders (the co-funder graph). Top 13 of 14 funders by total. Association, not causation. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How concentrated its funding is
ARIZONA HEMOPHILIA ASSOCIATION INC leans on a few funders — its largest provides 79% of grant income and the top three 88%; half comes from just 1 funder.
the vertical line marks half of all grant income — 1 funder to its left
95% of the income these shares are computed over arrives through pass-through sponsors or from payers whose filings do not say what kind of payment it is. Concentration is still measured over all of it, because the money is real; what it does not support is a claim about how many institutions have chosen to fund ARIZONA HEMOPHILIA ASSOCIATION INC.
Largest funder’s share by year: 2017 94% · 2018 99% · 2019 92% · 2020 27% · 2021 29% · 2022 70% · 2023 57% — diversifying over time.
“Effective funders” = inverse Herfindahl index (1 / Σ shareᵢ²) — the number of equal-sized funders that would give the same concentration. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How long its funders stay
50% of ARIZONA HEMOPHILIA ASSOCIATION INC's funders are still giving 3 years after their first grant; 64% give in more than one year at all.
Share of funders still giving k years after their first recorded grant, pooled across every acquisition cohort. A funder counts as retained in a year only if it made a grant that year. Measured to FY2023, the last fiscal year that has finished arriving — a funder cannot be counted as lapsed in a year most filers have not reached.
Where its funders are
81% of ARIZONA HEMOPHILIA ASSOCIATION INC's grant income comes from Arizona funders.
In-state vs out-of-state, by year
Funder states come from each funder’s own filing. $22k arriving through sponsors registered in 3 states is excluded from the map and the split above: a sponsor holds money on a donor’s behalf, so its registered address would place those dollars somewhere no donor need ever have been. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
Against its field
ARIZONA HEMOPHILIA ASSOCIATION INC holds deeper cash reserves than three-quarters of the 4,665 health nonprofits its size.
this organization peer median middle 50% of peers· 4,665 health nonprofits $1M–$10M, FY2025
Organizations like ARIZONA HEMOPHILIA ASSOCIATION INC
Organizations whose mission and program text most resemble this one, by semantic similarity over every organization in the US filings — the closest peers, and often the clearest route to shared or prospective funders.
In Arizona
Nationally
Read directly from this organization’s own Form 990, as neutral context.
Where the money goes
82% of spending goes to programs.
Governance
Public support
42%
Share of support from the public (Schedule A) — the basis for its public-charity status.
Footprint & structure
Part of a family of 1 related entity
- Az Bleeding Disorders Health · disregarded
Screen this organization
A dated, signed PDF of the compliance screen for ARIZONA HEMOPHILIA ASSOCIATION INC: IRS status (Business Master File, Publication 78, auto-revocation), the OFAC sanctions lists, the Internal Revenue Bulletin, and California registration, with the Rev. Proc. 2018-32 §8.01 reliance elements stated element by element. Generated from the current files at the moment you download it.
Screens are triage, not determinations; a source that cannot be read reports not screened, never clear. Screen this nonprofit · How the screen works · on the API as GET /api/screening/{ein}?format=pdf
Questions and answers
- Who funds ARIZONA HEMOPHILIA ASSOCIATION INC?
- ARIZONA HEMOPHILIA ASSOCIATION INC (Arizona) receives grants from 14 organizations whose IRS filings report $618,616 to it, the largest being Phoenix Children's Hospital ($486,000). 9 of them have funded it in more than one year.
- How many funders does ARIZONA HEMOPHILIA ASSOCIATION INC have?
- IRS filings report 14 organizations giving $618,616 in grants to ARIZONA HEMOPHILIA ASSOCIATION INC, 9 of which have funded it in more than one year.
- Who is the largest funder of ARIZONA HEMOPHILIA ASSOCIATION INC?
- Phoenix Children's Hospital is the largest funder on record, with $486,000 in grants. The full list of funders is on this page.
- How can an organization like ARIZONA HEMOPHILIA ASSOCIATION INC find more funders?
- Start with the funders already giving here, then look at the foundations that back similar organizations in Arizona. The funding by cause and by state pages list the largest funders for a given area and how to approach them.
Play a game about who funds Arizona Hemophilia Association →
These figures are read directly from IRS Form 990 / 990-PF e-file XML: this organization’s own return for FY2025 (financials across 2017–2025), and the filings of 14 funders that report grants to it. “On record” means captured in the filings we have parsed — a funder that does not e-file, or whose grant detail is not itemized, will not appear. Filings run roughly 12–24 months behind. Trends on this page end at FY2023, the last fiscal year that has finished arriving; later years are shown and marked, and move no figure. Data on this page was exported October 14, 2026. What this page cannot tell you · view filing