How much did GLOBAL GENES grant in FY2024?

GLOBAL GENES reported 7 grants totaling $175,264 in its FY2024 IRS filing.

GLOBAL GENES

Foundation Dossiers Mostly funded, not a grantmaker — see who funds it →

· Public charity

GLOBAL GENES

GLOBAL GENES strives to connect, empower and inspire the rare disease community.

$175k

Granted FY2024

Grants

Communities

$9k

Largest

01What you fund

0175% classified

What you funded, over time

Every grant clustered by its grantee’s IRS cause code (NTEE), by year — across FY2017–2024.

Health$1.2MPhilanthropy$157kHuman Services$40kEducation$35kInternational$33kYouth Development$25kCommunity Improvement$10kOther$506k

02beneath the categories

Past the labels — and the year it shifted

Beneath the NTEE codes, this is what the grant descriptions actually say.

…and in their own words, year by year

2018

festival childrenpatient impact

2019

patient impactlevelpediatric epilepsydiagnosiscare

2020

coceducationsickle celllives affectedcystic fibrosisclinicalflok

2021

equity impactfair impacthealth equity

2022

sarcoidosisgandeducationmakephelan-mcdermid syndromecongenital hyperinsulinismfibrous dysplasia

2023

mental healthcmtcollaborativeidentifyimpacted hnrnphhnrnph mutationsmarfan

Words distinctive to each year’s grant purposes (TF-IDF) · event-driven terms in cyan.

03FY2024 · 7 grants

Where the money goes

Your grants by size, and where they go.

$9,000

Median grant

States reached

$1.5M

Total assets

Largest grants

NATIONAL FOUNDATION FOR ECTODERMAL DYSPLASIAS$9,000
PEDIATRIC BRAIN TUMOR FOUNDATION$9,000
THE ALLO HOPE FOUNDATION$9,000
LHON COLLECTIVE$9,000
THE SUMAIRA FOUNDATION$9,000
OXALOSIS & HYPEROXALURIA FOUNDATION$9,000
CURE JM FOUNDATION$6,750

02The need

Do your dollars go where the need is?

Each grant placed by the hardship in its grantee’s ZIP, then read against the area’s typical level.

show:

Your human-services grants (FY19–20, $40k) land where the poverty rate runs at 10% — the area typically sits at 10%. 38% of those dollars reach neighborhoods with above-average need. Your grants skew toward lower-need ZIPs.

grant to an above-average-need area below average· circle size = grant amount

Matched: human-services grants are those whose grantee’s IRS cause code is Human Services. Placed by people below the poverty line in the grantee’s ZIP, averaged from the tracts in that ZIP; grantee ZIP can differ from where services are delivered.

US grants placed by each grantee’s ZIP, which can differ from where services are actually delivered. Need from public data — U.S. Census/ACS, CDC PLACES, Eviction Lab, USDA, United Way ALICE — shown as context about the area, never attributed to your giving.

03Your edge

repeat funding

Who you back again

Which organizations you funded more than once, and which you funded a single time. Each grantee is matched to its own filings.

33%of every dollar goes to organizations you’ve funded before.

$658k · 22 repeat orgs$1.4M to everyone else

And the relationships you keep tend to grow: grantees you re-up on have seen median revenue of +64% since the first grant, against +49% for the ones you funded once.

22 repeat relationships — 0 still active in FY2024, 22 since wound down; 7 grantees were first funded in FY2024 (too recent to call).

How the two cohorts compare

Re-uppedFunded once

Organizations

Total granted

$658k

$1.3M

Median revenue growth · since first grant

+64%

+49%

Still filing today

95%

85%

New vs renewed · share of each year

In FY2024, 0% of grant dollars renewed an existing relationship; $61k went to new ones.

RenewedFirst-time

Where new relationships form · theme of each grantee’s first grant

HealthPhilanthropyHuman ServicesInternationalEducationYouth DevelopmentOther

First-time = a grantee’s first year in your filing window; renewed = funded in an earlier year too. As a portfolio matures the renewed share naturally climbs — once funded, an org stays “renewable” — so the signal is the years that buck it (a new-grantee intake wave). The earliest year is left-censored: relationships that predate the data read as “new.” Theme is the grantee’s IRS cause.

Backed again, and grew

NP
National PKU News
3× · 2019–2021 · $48k · revenue +637%
TT
Team Telomere
4× · 2019–2023 · $47k · revenue +154%
AS
ANGELMAN SYNDROME FOUNDATION
3× · 2020–2023 · $43k · revenue +85%

Funded once

RX
Rare X
one grant, 2019 · $118k
GP
GLOBAL PEDIATRIC MDS INITIATIVE
one grant, 2021 · $58k · 97% of their budget
OF
Organization for Rare Disease
one grant, 2019 · $38k

Repeat = funded in two or more distinct years; growth and survival are read from each grantee’s own subsequent IRS filings.

04Your field

The map has a center of gravity: the average direction from the rest of the sector toward the organizations the foundation funds — the shape of its giving. Scoring every nonprofit along that direction surfaces the ones that look most like the portfolio. These are the closest matchesthat aren’t grantees — a resemblance in what they say they do, not a recommendation.

Cure KCNH1 Foundation

Our mission is to urgently improve the lives of individuals and families affected by KCNH1-Related Disorders by accelerating research toward the development of effective treatments and a cure building connections within the KCNH1 patient…

Health

Cadasil Association

The mission of CureCADASIL is to raise awareness of CADASIL, ensuring it will be universally recognized and understood by the medical community, enabling patients to be correctly diagnosed. We are dedicated to helping all touched by…

Health

PACS1 Syndrome Research Foundation

Health

Dysimmune Diseases Foundation

Health

KCNMA1 Channelopathy International Advocacy Foundation

Kfiaf is a patient advocacy group providing education about the rare disease kcnma1 linked channelopathy to families and healthcare workers, as well as helping to promote and facilitate research in this area. we communicate through…

Health

CACNA1A Foundation

To find specific treatment options and a cure for CACNA1A patients. (See Schedule O for full mission)

Health

Cure Rare Disease Inc

Our mission is to enable and finance the development of life-saving genetic medicines for ultra-rare patient populations previously deemed too rare to treat. to realize this, our unique ecosystems facilitates collaboration between…

Health

Rare Crossroads Inc

Fund research for the discovery and development of treatments for patients with a rare or underserved disorder

Health

Rare Trait Hope Fund

The mission and primary exepmt purpose is to facilitate research, raise funds and support development of treatments for Aspartylglucosaminuria (AGU); to be the resource for doctors, scientists and families world-wide; to increase awareness…

Health

Noonan Syndrome Foundation

The mission of the Noonan Syndrome Foundation is to support, educate and advocate for those diagnosed with Noonan's Syndrome by supporting research for the development of effective treatments, and ultimately, a cure for the syndrome.…

Health

SMC1A Foundation

SMC1A Foundation is a Non-Profit Organization with the vision to bring awareness, accelerate research, and find a cure for SMC1A, and ultimately transform the lives of those affected. Our goal is to raise funds for research. 100 percent of…

Health

1J Foundation

Cmt 1j is a newly identified subtype of cmt, caused by an itpr3 gene mutation. this neuromuscular disease causes widely variable symptoms ranging from mild walking difficulties to significant mobility and respiratory impairments. the 1j…

Health

For reference, the grantee most central to the portfolio’s shape is Angelman Syndrome Foundation Inc and the most unlike its peers is Global Impact. Resemblance is measured on each organization’s own IRS 990 mission text; it reflects how work is described, not its quality or impact.

For each theme you fund, this compares how the sector’s money is shifting with how your own giving is shifting.

the sector your giving your giving is ahead of the sector the sector’s ahead of you· dot size = how much the theme matters to each side

Ordered by the change in your giving — leaning in on top, pulling back at the bottom. The bar between the two dots is how out of step you are with the sector. Hover any row for detail.

Sector change and giving change are each shown relative to their own range, growing (right) or shrinking (left); both normalized, so inflation isn’t mistaken for growth.

Your grantees are a median of 16 years old; the field is 16. You back the younger end — and your money leans older still.

The field is 22% startups (under 5 years old) — 0% of your grantees by number, and just 0% of your money.

Closures · last 5 years

The orgs you fund almost never close — 0.8% lost their exemption, against 11% of the field you don’t fund.

orgs you fund

0.8%1/125

the rest of the field

11%

206,163/1,819,440

Age = years since IRS exemption (a founding proxy). “Closed” = auto-revocation for 3 years of non-filing — a floor on closure, not proof, and bigger established orgs lapse least. Association, not causation.

05the grantee network

112 grantees, every filing reconciled, 2017–2025.

Each one resolved to its own IRS returns and tracked year by year — your grant beside their revenue.

Load-bearing (≥25% of a budget)

Early backer (in before they grew)

110/112

Grantees still filing

84/112

Grew since you first funded

Where your money sits — by cause, then by grantee

Health$1,208,330Other$506,449Philanthropy$156,664Human Services$40,000Education$35,000International$33,000Youth Development$25,000Community Improvement$10,000

Each org by its size and your share of it — top-left is where you’re load-bearing

Go grantee by grantee — a decade per org, and how each moved after you funded them

A decade per grantee — revenue shaded, your grants as bars, all rows on one timeline.

The grantmakers whose grantees overlap with yours far more than size alone predicts. Each orbits closer the stronger the alignment; the arcs between them show where they also fund each other. Here it reads as a tightly interlocked camp — most of these funders back each other's grantees too.

The Simons Foundation IncNY21.6× affinity8 shared granteesties to 7 of 11Hover any node to trace its alignments.Compare side by side →

Open a dossier: The Simons Foundation Inc · AbbVie Foundation · Child Neurology Education and Research Foundation · Silicon Valley Community Foundation · American Express Foundation · Shell USA Company Foundation · Hemophilia Federation of America · The Hemophilia Alliance Group Purchasing · National Bleeding Disorders Foundation · The Hemophilia Alliance Foundation · Paypal Charitable Giving Fund · Lamb Weston Charitable Foundation

Affinity is a Gamma-Poisson posterior co-funding rate, re-centered on the typical rate, so thin evidence shrinks toward no signal. A research starting point: overlap is association, not proof of shared intent.

Government reliance of your grantees

Every dot is one organisation GLOBAL GENES funds. Left–right is the share of its income from government; up–down is the share from you. Bigger dots raise more. Filter to federal, a single department, or state — and drag the year to watch it move.

2024

’20’21’22’23’24

no gov moneyreceives it· size = income

27get no government money at all

0rely on government for over half their income

⤢ axis zoomed · 0–90%

typical government reliance, FY20–24

Government income is each org’s traced federal awards (USASpending — grants and contracts) plus state payments (open checkbooks) as a share of its total revenue (IRS Form 990); the self-reported government-grant line (990 line 1e) is carried for cross-check. An association, not a claim that your grant caused the public funding. Coverage is precision-first — a floor, not a census; state records exist for 9 states, so a grantee outside them shows no state figure (dimmed) rather than a false zero. Federal award amounts are obligations, which can span years, so a single-year share is indicative. 990 filings lag 12–24 months.

05Through Plinth

Through Plinth

Your grantmaking, live and operational

This dossier was generated cold from public filings. In Plinth it’s a working system — every applicant assessed and every grant monitored. Here’s a taste, run on one of your grantees: GLOBAL PEDIATRIC MDS INITIATIVE.

Agentic due diligence · confidence × risk

Financial management

insufficient risk

Limited financial data in public filings.

Track record & reputation

high risk

2 years of Form 990 filings, no recent filing.

Legal standing

medium risk

US 501(c)(3); EIN 831865441 on file with current IRS Form 990 filings.

Governance

Live in Plinth

Board composition & governance documents — verified live in Plinth from the applicant.

Compliance & sanctions

Live in Plinth

OFAC / UN sanctions screening — run live in Plinth at assessment.

Program capacity

Live in Plinth

Staffing, M&E and activity alignment — assessed live in Plinth from submitted proposals.

Live · Plinth’s real DD engine

Run the actual assessment on GLOBAL PEDIATRIC MDS INITIATIVE, cold from public data.

Generated live from public IRS filings + open web sources by Plinth’s agentic engine. Shown as an illustration of the product, not a formal assessment.

Post-award monitoring · continuous checks

Awaiting reportFinancial stability— Runway not derivable from filings.
FlagSustained operations— No recent filing on record.
WatchReliance on your funding— Your grants peaked at 97% of their budget — load-bearing; a dependency Plinth would track.
Awaiting reportEvidence of delivery— Plinth collects the grantee's own monitoring reports post-award.

What you see here is static and public. In Plinth it’s operational — the full six-pillar framework on every applicant (with their own documents + live registry and sanctions checks), monitoring dashboards on every award, custom board reports, and eligibility routing for intake.

Agentic due diligenceMonitoring dashboardsCustom board reportsEligibility routing

Preview generated from this grantee’s public IRS filings and independent reporting. Pillars marked “live in Plinth” require the applicant’s submitted documents. Shown as illustration, not a formal assessment.

Warm introductions · Powered by PlinthPro

How do I get to Global Genes?

Find your warmest path to Global Genes through people who sit on both boards. Search for your organization and Plinth traces the introduction across shared trustees and officers.

Every link is a documented governance overlap in public IRS 990 filings — not a personal network — and each hop carries its own confidence tier. Low-confidence or distant paths are held back rather than guessed.

GLOBAL GENES

What you funded, over time

Past the labels — and the year it shifted

Where the money goes

Do your dollars go where the need is?

Who you back again

Backed again, and grew

Funded once

112 grantees, every filing reconciled, 2017–2025.

Government reliance of your grantees

Your grantmaking, live and operational

How do I get to Global Genes?

More from the funding graph

GLOBAL GENES

What you funded, over time

Past the labels — and the year it shifted

Where the money goes

Do your dollars go where the need is?

Who you back again

Backed again, and grew

Funded once

112 grantees, every filing reconciled, 2017–2025.

Government reliance of your grantees

Your grantmaking, live and operational

How do I get to Global Genes?

More from the funding graph