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Foundation DossiersMostly funded, not a grantmaker — see who funds it →
Plinth

· Public charity

Global Genes

GLOBAL GENES' mission is to drive change through the support of rare disease patients and families while equipping advocacy leaders with important tools, resources, mentoring, and connections to further advance awareness, education, and research.

$175k
Granted FY2024still arriving
7
Grants FY2024still arriving
7
States reached
$9k
Largest
01What you fundRead
02The needRead
03Your edgeRead
04Your fieldRead
01What you fund
01100% classified

What you funded, over time

Every grant placed by its stated purpose and the recipient’s mission, by year — across FY2017–2024.

Health$2.0MHuman Services$23kYouth Development$11kAnimals$8kPhilanthropy$5k
02FY2024 · 7 grants

Where the money goes

Your grants by size, and where they go.

The 7 grants below total $60,750 — the rows itemised in this filing. The $175,264 headline is the total grant expense reported on the return, so the remaining $114,514 is giving the schedule does not break out: grants under the $5,000 itemisation floor, grants to individuals, and grants reported on other schedules. Every figure below describes the itemised rows only.

$9,000
Median grant
7
States reached
$1.5M
Total assets
Largest grants
RecipientAmount
PEDIATRIC BRAIN TUMOR FOUNDATION$9,000
THE ALLO HOPE FOUNDATION$9,000
LHON COLLECTIVE$9,000
THE SUMAIRA FOUNDATION$9,000
OXALOSIS & HYPEROXALURIA FOUNDATION$9,000
NATIONAL FOUNDATION FOR ECTODERMAL DYSPLASIAS$9,000
CURE JM FOUNDATION$6,750
02The need
03

Do your dollars go where the need is?

Each grant placed by the hardship in its grantee’s ZIP, then read against the area’s typical level.

show:

Your human-services grants (FY19–20, $40k) land where the poverty rate runs at 10%, against an area that typically sits at 10%. 38% of those dollars go to grantees based in above-average-need neighborhoods. Your grants skew toward lower-need ZIPs.

area typical 10%Angel Aid Cares: $10k → 7%The Myositis Assoc: $15k → 9%FACTOR-H: $15k → 14%0%20%40%50%more need →
grant to an above-average-need area below average· circle size = grant amount

Matched: human-services grants are those whose grantee’s IRS cause code is Human Services. Placed by people below the poverty linein the grantee’s ZIP, averaged from the tracts in that ZIP; grantee ZIP can differ from where services are delivered.

Which US states your grants reach

AK
ME
WA
ID
MN
IL
WI
MI
NY
MA
OR
NV
OH
PA
NJ
CT
CA
CO
MO
KY
VA
MD
DE
AZ
NM
KS
TN
NC
SC
OK
LA
AL
GA
TX
FL

US grants placed by each grantee’s ZIP, which can differ from where services are actually delivered. Need from public data — U.S. Census/ACS, CDC PLACES, Eviction Lab, USDA — shown as context about the area, never attributed to your giving.

03Your edge
repeat funding

Who you back again

Which organizations you funded more than once, and which you funded a single time. Each grantee is matched to its own filings.

33%of every dollar goes to organizations you’ve funded before.
$658k · 22 repeat orgs$1.3M to everyone else

And the relationships you keep tend to grow: grantees you re-up on have seen median revenue of +46% since the first grant, against +32% for the ones you funded once.

22 repeat relationships — 0 still active in FY2024, 22 since wound down; 7 grantees were first funded in FY2024 (too recent to call).

How the two cohorts compare

Re-uppedFunded once

Organizations

22
95

Total granted

$658k
$1.3M

Median revenue growth · since first grant

+46%
+32%

Still filing today

95%
87%

New vs renewed · share of each year

In FY2024, 0% of grant dollars renewed an existing relationship; $61k went to new ones.

50%100%’17’18’19’20’21’22’23’24
RenewedFirst-time

Where new relationships form · theme of each grantee’s first grant

’17’18’19’20’21’22’23’24
HealthPhilanthropyHuman ServicesEducationYouth DevelopmentCommunity ImprovementOther

First-time = a grantee’s first year in your filing window; renewed = funded in an earlier year too. As a portfolio matures the renewed share naturally climbs — once funded, an org stays “renewable” — so the signal is the years that buck it (a new-grantee intake wave). The earliest year is left-censored: relationships that predate the data read as “new.” Theme is the grantee’s IRS cause.

Backed again, and grew

  • FH
    flok Health FKA NATIONAL PKU NEWS
    3× · 2019–2021 · $48k · revenue +448%
  • TT
    Team Telomere Inc
    4× · 2019–2023 · $47k · revenue +154%
  • AS
    ANGELMAN SYNDROME FOUNDATION INC
    3× · 2020–2023 · $43k · revenue +110%

Funded once

  • R
    RARE-X
    one grant, 2019 · $118k
  • GP
    GLOBAL PEDIATRIC MDS INITIATIVE INC
    one grant, 2021 · $58k · 97% of their budget
  • OF
    Organization for Rare Disease
    one grant, 2019 · $38k

Repeat = funded in two or more distinct years; growth and survival are read from each grantee’s own subsequent IRS filings.

04Your field

The map has a center of gravity: the average direction from the rest of the sector toward the organizations the foundation funds — the shape of its giving. Scoring every nonprofit along that direction surfaces the ones that look most like the portfolio. These are the closest matchesthat aren’t grantees — a resemblance in what they say they do, not a recommendation.

1
Cure ADSSL1

To find cure for adssl1 and offer hope and provide a brighter future to children affected with adenylosuccinate lyase (adsl) deficiency

Health
2
Cure Rare Foundation

Cure Rare Foundation, established in Spring 2022, is a nonprofit organization devoted to funding the research and development of treatments and cures for rare genetic diseases. In the United States, diseases are considered rare when a…

Health
3
KCNMA1 Channelopathy International Advocacy Foundation

Kfiaf is a patient advocacy group providing education about the rare disease kcnma1 linked channelopathy to families and healthcare workers, as well as helping to promote and facilitate research in this area. we communicate through…

Health
4
Cystic Fibrosis Foundation

To cure cf and provide all people with cf the opportunity to lead long, fulfilling lives by funding research and drug development, partnering with the cf community, and advancing high-quality, specialized care.

Health
5
CACNA1A Foundation

To find specific treatment options and a cure for CACNA1A patients. (See Schedule O for full mission)

Health
6
Mld Foundation

MLD Foundation works with families, researchers, regulators, industry, and policy-makers to improve the quality of life for those with MLD including standards of clinical care and clinical research excellence, develop and implement newborn…

Health
7
Dysimmune Diseases Foundation
Health
8
Mila's Miracle Foundation

The mission of mila's miracle foundation is to find and fund paths to a cure for batten and other life-threatening neurological disorders. families in this community have been pivotal in raising the necessary funds and awareness. together,…

Health
9
Rare Genomics Institute Inc

Support undiagnosed and rare disease patients and famil

Health
10
ADCY5 Org Inc

ADCY5.org supports the following groups: families affected by the ADCY5 gene variant rare disease, clinicians treating patients, and researchers pursuing treatments. We achieve our goals through collaboration, or funding efforts. We look…

Health
11
SMC1A Foundation

SMC1A Foundation is a Non-Profit Organization with the vision to bring awareness, accelerate research, and find a cure for SMC1A, and ultimately transform the lives of those affected. Our goal is to raise funds for research. 100 percent of…

Health
12
Cadasil Association

The mission of curecadasil is to raise awareness of cadasil, ensuring it will be universally recognized and understood by the medical community, enabling patients to be correctly diagnosed. we are dedicated to helping all touched by…

Health

For reference, the grantee most central to the portfolio’s shape is Angelman Syndrome Foundation Inc and the most unlike its peers is Asociacion Puertorriquena De Hemofilia Inc. Resemblance is measured on each organization’s own IRS 990 mission text; it reflects how work is described, not its quality or impact.

For each theme you fund, this compares how the sector’s money is shifting with how your own giving is shifting.

← shrinkinggrowing →↓ leaning in → pulling backsteadyCancer Support ServicesYouth Sports ProgramsChristian Youth CampsChristian Missionary Organi…Health Access Advocacy and …Community Foundations
the sector your giving your giving is ahead of the sector the sector’s ahead of you· dot size = how much the theme matters to each side
Ordered by the change in your giving — leaning in on top, pulling back at the bottom. The bar between the two dots is how out of step you are with the sector. Hover any row for detail.

Sector change and giving change are each shown relative to their own range, growing (right) or shrinking (left); both normalized, so inflation isn’t mistaken for growth.

Your grantees are a median of 16 years old; the field is 16. You back the younger end — and your money leans older still.

THE FIELDby orgYOUR GRANTEESby number22%0%<5yr14%32%5–10yr19%25%10–20yr16%27%20–35yr13%14%35–55yr16%2%55yr+
THE FIELDby orgYOUR MONEYby value22%0%<5yr14%30%5–10yr19%26%10–20yr16%32%20–35yr13%11%35–55yr16%2%55yr+

The field is 22% startups (under 5 years old) — 0% of your grantees by number, and just 0% of your money.

Closures · last 5 years

The orgs you fund almost never close — 0.8% lost their exemption, against 13% of the field you don’t fund.

orgs you fund
0.8%1/125
the rest of the field
13%
240,395/1,819,440

Age = years since IRS exemption (a founding proxy). “Closed” = auto-revocation for 3 years of non-filing — a floor on closure, not proof, and bigger established orgs lapse least. Association, not causation.

04the grantee network

114 grantees tracked through their own filings, 2017–2026.

Each one resolved to its own IRS returns and tracked year by year — your grant beside their revenue from every source. Association, dated; never a causal claim.

Counted here: distinct organizations you funded across 2017–2026, not grant rows in a single year — so this will not match the grant count on the cover. 114 of the 125 grantees resolved in that span have returns of their own we could reconcile; the rest are funded organizations whose filings we could not track year by year.

5
Load-bearing (≥25% of a budget)
39
Early backer (in before they grew)
112/114
Grantees still filing
76/114
Grew since you first funded

Where your money sits — by cause, then by grantee

GLOBAL PEDIATRIC MDS INITIATIVE INC — $58,000 · HealthTeam Telomere Inc — $47,100 · HealthANGELMAN SYNDROME FOUNDATION INC — $42,500 · Health+80 more — $1,082,059 · Health+80 moreRARE-X — $118,018 · OtherRARE-Xflok Health FKA NATIONAL PKU NEWS — $48,000 · Otherflok Health FKA NATIONAL PK…Koolen-de Vries Syndrome FND — $42,554 · OtherKoolen-de Vries Syndrome FN…Organization for Rare Disease — $37,500 · OtherOrganization for Rare Disea…Sickle Cell Disease Association of America Inc — $20,000 · OtherTHE MARFAN FOUNDATION INC — $20,000 · OtherHEMOPHILIA FOUNDATION OF SOUTHERN CALIFORNIA — $20,000 · OtherMIRACLE FOR JADE FIGHT FOR LIFE FOUNDATION — $20,000 · Other+17 more — $159,048 · Other+17 moreHELPING HANDS FOR GAND INC — $37,985 · PhilanthropyFOUNDATION FOR SARCOIDOSIS RESEARCH — $34,500 · PhilanthropyBREATHESTRONG CF INC — $20,000 · PhilanthropyBEAUTIFUL YOU MRKH FOUNDATION — $15,000 · PhilanthropyCureGrin Foundation — $15,000 · PhilanthropyThe LAM Foundation — $15,000 · PhilanthropyNEW ENGLAND HEMOPHILIA ASSOCIATION INC — $14,179 · Philanthropy+1 more — $5,000 · PhilanthropyThe Myositis Association — $15,000 · Human ServicesFACTOR H — $15,000 · Human ServicesRAREGIVERS INC — $10,000 · Human ServicesCARDIO-FACIO-CUTANEOUS INTERNATIONAL — $30,000 · EducationMISSION CURE INC — $5,000 · EducationAKARI FOUNDATION — $23,000 · InternationalGlobal Impact — $10,000 · InternationalOUR ODYSSEY INC — $25,000 · Youth DevelopmentSTONE SOUP GROUP — $10,000 · Community Improvement
Health$1,229,659Other$485,120Philanthropy$156,664Human Services$40,000Education$35,000International$33,000Youth Development$25,000Community Improvement$10,000

Each org by its size and your share of it — top-left is where you’re load-bearing

25%50%75%100%$100k$1.0M$10M$100Mgrantee revenue →↑ your share of their budgetGLOBAL PEDIATRIC MDS INITIATIVE INC — $58,000 over 1y, 97% of budgetflok Health FKA NATIONAL PKU NEWS — $48,000 over 3y, 9.1% of budgetTeam Telomere Inc — $47,100 over 4y, 3.1% of budgetANGELMAN SYNDROME FOUNDATION INC — $42,500 over 3y, 1.1% of budgetBRAIN RECOVERY PROJECT — $39,200 over 3y, 8.3% of budgetHELPING HANDS FOR GAND INC — $37,985 over 2y, 19% of budgetGLOBAL FOUNDATION FOR PEROXISOMAL DISORDERS — $35,500 over 3y, 3.5% of budgetFOUNDATION FOR SARCOIDOSIS RESEARCH — $34,500 over 3y, 0.6% of budgetANGIOMA ALLIANCE DBA ALLIANCE TO CURE CAVERNOUS MALFORMATIONS — $34,400 over 3y, 2.4% of budgetCARDIO-FACIO-CUTANEOUS INTERNATIONAL — $30,000 over 3y, 7.1% of budgetPHELAN MCDERMID SYNDROME FOUNDATION — $29,000 over 2y, 1.6% of budgetCONGENITAL HYPERINSULINISM INTERNATIONAL — $26,137 over 2y, 3.2% of budgetCYSTIC FIBROSIS RESEARCH INSTITUTE — $25,000 over 2y, 0.9% of budgetProgressive Familial Intrahepatic Cholestasis — $25,000 over 2y, 7.7% of budgetCOALITION FOR USHER SYNDROME RESEARCH — $25,000 over 2y, 6.0% of budgetOUR ODYSSEY INC — $25,000 over 2y, 26% of budgetAKARI FOUNDATION — $23,000 over 1y, 21% of budgetSATB2 Gene Foundation Inc — $22,500 over 2y, 11% of budgetSouth Central Pennsylvania Sickle Cell Council — $20,000 over 1y, 6.7% of budgetBREATHESTRONG CF INC — $20,000 over 1y, 8.1% of budgetTHE FAMILIESCN2A FOUNDATION INC — $20,000 over 1y, 3.3% of budgetSickle Cell Disease Association of America Inc — $20,000 over 1y, 0.3% of budgetIllinois Spina Bifida Association — $20,000 over 1y, 8.6% of budgetTHE MARFAN FOUNDATION INC — $20,000 over 2y, 0.2% of budgetMITOACTION INC — $20,000 over 1y, 2.3% of budgetRIDE FOR LIFE INC — $20,000 over 1y, 5.4% of budgetHEMOPHILIA FOUNDATION OF SOUTHERN CALIFORNIA — $20,000 over 1y, 1.9% of budgetALAGILLE SYNDROME ALLIANCE — $16,998 over 1y, 10% of budgetKIF1AORG INC — $16,240 over 1y, 10% of budgetTHE FIBROUS DYSPLASIA FOUNDATION — $15,200 over 2y, 4.1% of budgetFIGHTING FOR KAIDEN FOUNDATION INC — $15,000 over 1y, 10% of budgetThe Myositis Association — $15,000 over 1y, 1.5% of budgetADRENAL INSUFFICIENCY UNITED — $15,000 over 1y, 19% of budgetXLH NETWORK INC — $15,000 over 1y, 6.8% of budgetBEAUTIFUL YOU MRKH FOUNDATION — $15,000 over 1y, 35% of budgetSickle Cell Texas Marc Thomas Foundation — $15,000 over 1y, 2.1% of budgetBleeding Disorders Alliance Illinois — $15,000 over 1y, 3.3% of budgetGRIN2B FOUNDATION — $15,000 over 1y, 14% of budgetFACTOR H — $15,000 over 1y, 4.2% of budgetVHL ALLIANCE INC — $15,000 over 1y, 1.9% of budgetCOMBINEDBRAIN INC — $15,000 over 1y, 2.0% of budgetWILLIAM E PROUDFORD SICKLE CELL FUND INC — $15,000 over 1y, 12% of budgetALPORT SYNDROME FOUNDATION INC — $15,000 over 1y, 2.3% of budgetUPLIFTING ATHLETES INC — $15,000 over 1y, 1.7% of budgetCureGrin Foundation — $15,000 over 1y, 2.4% of budgetTHE TENNESSEE PKU FOUNDATION — $15,000 over 1y, 28% of budgetLYMPHANGIOMATOSIS & GORHAMS DISEASE ALLIANCE INC — $15,000 over 1y, 12% of budgetCloves Syndrome Community — $15,000 over 1y, 4.4% of budget
Go grantee by grantee — a decade per org, and how each moved after you funded them

A decade per grantee — revenue shaded, your grants as bars, all rows on one timeline.

The grantmakers whose grantees overlap with yours far more than size alone predicts. Each orbits closer the stronger the alignment; the arcs between them show where they also fund each other. Here it reads as a tightly interlocked camp — most of these funders back each other's grantees too.

Silicon Valley Commun…The Simons Foundation…AbbVie FoundationChild Neurology Educa…American Express Foun…The Pfizer Foundation…The Lazard Charitable…Global ImpactShell USA Company Fou…McKesson Foundation I…Paypal Charitable Giv…Hemophilia Federation…
Silicon Valley Community FoundationCA21.7× affinity29 shared granteesties to 11 of 11Hover any node to trace its alignments.Compare side by side →

Open a dossier: Silicon Valley Community Foundation · The Simons Foundation Inc · AbbVie Foundation · Child Neurology Education and Research Foundation · American Express Foundation · The Pfizer Foundation Inc · The Lazard Charitable Foundation · Global Impact · Shell USA Company Foundation · McKesson Foundation Inc · Paypal Charitable Giving Fund · Hemophilia Federation of America

Affinity is a Gamma-Poisson posterior co-funding rate, re-centered on the typical rate, so thin evidence shrinks toward no signal. A research starting point: overlap is association, not proof of shared intent.

Government reliance of your grantees

Every dot is one organization Global Genes funds. Left–right is the share of its income from government; up–down is the share from you. Bigger dots raise more. Filter to federal, a single department, or state — and drag the year to watch it move.

2024
’20’21’22’23’24’25
no gov · 240%6%25%56%100%your share of their income ↑0%23%45%68%90%share of the org’s income from government →median 1%
  • Ch Neurology Foundation Inc — 1% of income from government
  • Raymond a Wood Foundation Inc — 0% of income from government
no gov moneyreceives it· size = income
24get no government money at all
8report government grants on their 990 we could not trace to a source (not plotted)
0rely on government for over half their income
⤢ axis zoomed · 0–90%
typical government reliance, FY20–25

Government income is each org’s traced federal awards (USASpending — grants and contracts) plus state payments (open checkbooks) as a share of its total revenue (IRS Form 990); the self-reported government-grant line (990 line 1e) is carried for cross-check: a grantee that reports government grants we could not trace to a source is left off the chart rather than shown as receiving none. An association, not a claim that your grant caused the public funding. Coverage is precision-first — a floor, not a census; state records exist for 9 states, so a grantee outside them shows no state figure (dimmed) rather than a false zero. Federal award amounts are obligations, which can span years, so a single-year share is indicative. 990 filings lag 12–24 months.

On method. Every financial figure here is read directly from IRS e-file XML — your own 990/990-PF and the multi-year returns of the 125 grantees we resolved across every year we hold, several hundred filings in all (a different count from the grant rows on the cover, which are one fiscal year)— each linked to its source. Grantee achievements and outcomes are each organization’s own program-service reporting (Form 990, Part III); we read these as association with sustained funding — the foundation is one of several forces — suppress low-confidence name matches rather than guess, and say so where a figure rests on a single grant or filing. Not everything on this page is a filed figure, and the difference matters. Filed is what you reported on your return. Official is another government record about an organization, such as a federal award or a charity register, joined by name where no shared identifier exists. Resolved is an identity we worked out where the filing named a recipient without an EIN, kept only above a measured confidence threshold. Computed is arithmetic over those, like themes, portfolio clusters and co-funder strength. Context is a statistic about a place rather than about an organization, which is what the need overlay is: it describes the area a grantee’s address sits in, not where its work lands. Inferred is drawn by a model from text, like the partnerships read out of public news and organization websites. Each is labeled where it appears. How we build these →

Generated from your IRS Form 990 e-file return for fiscal year 2024, released 2024. Filings run roughly 12–24 months behind; figures are dated accordingly.

Source object · view filing

More from the funding graph

The unnamed billions
grants reported with no recipient in the public record
The regranting layer
51% of grant dollars land in the regranting layer
The DAF merry-go-round
$9.7B circulates between donor-advised funds
The camps
funders cluster by geography, not ideology
By state
where grant money is based, and what stays home
State money flows
the interactive map of money crossing state lines