Washington, D.C. · Public charity
Global Genes
GLOBAL GENES' mission is to drive change through the support of rare disease patients and families while equipping advocacy leaders with important tools, resources, mentoring, and connections to further advance awareness, education, and research.
- $175k
- Granted FY2024(still arriving)
- 7
- Itemized grants FY2024
- 22
- Organizations funded FY2023
- 64%
- First-time grantees FY2023
- Itemized, FY2024
- $61k
- The rest is grants the schedule does not break out
- Median grant, FY2024
- $9,000
- Largest grant, FY2024
- $9,000
- Organizations funded a year
- 10 to 34
- FY2017 to FY2023
- States reached, FY2024
- 7
- Total assets, FY2024
- $1.5M
How open it is to new grantees
In FY2023, 64% of the organizations Global Genes funded were first-time grantees, receiving 56% of its grant dollars.
New vs renewed · share of each year
In FY2023, 44% of grant dollars renewed an existing relationship; $134k went to new ones.
Where new relationships form · theme of each grantee’s first grant
How this is measured
The numbers by year
| Fiscal year | Organizations funded | To those organizations | First-time grantees |
|---|---|---|---|
| FY2024still arriving | 7 | $61k | 100% |
| FY2023 | 22 | $241k | 64% |
| FY2022 | 19 | $221k | 53% |
| FY2021 | 17 | $251k | 65% |
| FY2020 | 34 | $450k | 85% |
| FY2019 | 30 | $462k | 87% |
| FY2018 | 17 | $233k | 100% |
| FY2017 | 10 | $85k | n/a |
What it funded, over time
Every grant placed by its stated purpose and the recipient’s mission, by year, FY2017 to 2024.
Where its grants go
Grant dollars by states, across the years we hold.
Which US states its grants reach
Top grantees
Largest recipients by total granted, FY2017 to FY2024, and the share of each one’s budget the grants supplied at peak.
| Grantee | Total granted | Years | Share of their budget |
|---|---|---|---|
| Rare-X | $118,018 | 1 | n/a |
| Global Pediatric Mds Initiative Inc | $58,000 | 1 | 97% |
| flok Health FKA NATIONAL PKU NEWS | $48,000 | 3 | 9% |
| Team Telomere Inc | $47,100 | 4 | 3% |
| Koolen-de Vries Syndrome FND | $42,554 | 2 | n/a |
| Angelman Syndrome Foundation Inc | $42,500 | 3 | 1% |
| Brain Recovery Project | $39,200 | 3 | 8% |
| Helping Hands for Gand Inc | $37,985 | 2 | 19% |
| Organization for Rare Disease | $37,500 | 1 | n/a |
| Global Foundation for Peroxisomal Disorders | $35,500 | 3 | 3% |
Show all 124 grantees
Where it is load-bearing
Global Genes supplied at least a quarter of the budget for 5 of its grantees at some point. The chart plots its 99 largest grantees; load-bearing ones sit top left.
Tap a dot to name the grantee.
How this is measured
Co-funders
Grantmakers whose grantees overlap with this funder’s far more than size alone predicts. Closer means stronger alignment; arcs show where they also fund each other. Here they form a tightly interlocked group: most of these funders back each other's grantees too.
Open a dossier: Silicon Valley Community Foundation · The Simons Foundation Inc · AbbVie Foundation · Child Neurology Education and Research Foundation · American Express Foundation · The Pfizer Foundation Inc · The Lazard Charitable Foundation · Global Impact · Shell USA Company Foundation · McKesson Foundation Inc · Paypal Charitable Giving Fund · Hemophilia Federation of America
How this is measured
About Global Genes
- How much does Global Genes give?
- Global Genes reported 7 itemized grants totaling $60,750, out of $175,264 in total grant expense reported on the return in its FY2024 IRS filing. It funded between 10 and 34 organizations a year over FY2017 to FY2023.
- What does Global Genes fund?
- By grant dollars over FY2017 to FY2024, its largest causes are Health (98%), Human Services (1%), Youth Development (1%).
- Who are Global Genes's largest grantees?
- By total granted over FY2017 to FY2024: Rare-X ($118k), Global Pediatric Mds Initiative Inc ($58k), flok Health FKA NATIONAL PKU NEWS ($48k).
- Does Global Genes fund new organizations?
- In FY2023, 64% of the organizations it funded were first-time grantees.
- Which funders back the same organizations as Global Genes?
- Its strongest co-funders, measured against what their size predicts, include Silicon Valley Community Foundation, The Simons Foundation Inc, AbbVie Foundation.
- Where is Global Genes based?
- Global Genes is based in DC.
Play a game based on Global Genes’ filings →