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Pennsylvania · Nonprofit

THE FAMILIESCN2A FOUNDATION INC

THE FAMILIESCN2A FOUNDATION INC (Pennsylvania) receives grants from 24 organizations whose IRS filings report $5,899,662 to it, the largest being CAM Foundation for Young Minds ($2,000,000). 12 of them have funded it in more than one year.

Revenue FY2024
$3.1M
Funders on record
24
Grants received
$5.9M
Net assets
$3.5M
12/24 repeat funderspeak grant-dependency 98%
01What it does

What The Familiescn2a Foundation Inc does

Mission

The familiescn2a's mission is to improve lives of those affected by scn2a related disorders through research, public awareness, family support and patient advocacy.

As stated on its FY2024 Form 990.

Programs

  1. Providing advanced research towards early detection, treatments, and a cure for scn2a disorders.

    $1,568,517 spentof which $1,135,458 as grants
    77% of program spending
  2. The summer seminar is a family-focused gathering, where families come together and learn about scn2a-related topics and treatments, as well as share experiences.

    $460,265 spent$113,331 earned by the program
    23% of program spending

The 2 programs described on its FY2025 Form 990, listed largest first by expense. Program spending in total: $2,028,782.

02The organization over time

The organization over time

Each line starts at 100 in 2017, so what you read is the shape rather than the size: 150 means half as much again as 2017, 50 means half. The number beside each label in the key is where it ended. The shaded band is where the middle 50% of its peers' revenue would sit, given their growth.

100 = 20172017 Revenue 100 ($127k) Expenses 100 ($43k) Net assets 100 ($152k)2018 Revenue 116 ($147k) Expenses 259 ($111k) Net assets 124 ($189k)2019 Revenue 678 ($860k) Expenses 1038 ($444k) Net assets 396 ($604k)2020 Revenue 478 ($605k) Expenses 1023 ($438k) Net assets 506 ($772k)2021 Revenue 666 ($844k) Expenses 1118 ($479k) Net assets 746 ($1.1M)2022 Revenue 1173 ($1.5M) Expenses 2314 ($991k) Net assets 1071 ($1.6M)2023 Revenue 1468 ($1.9M) Expenses 3442 ($1.5M) Net assets 1333 ($2.0M)2024 Revenue 2432 ($3.1M) Expenses 3779 ($1.6M) Net assets 2323 ($3.5M)
'17'18'19'20'21'22'23'24
Revenue (2432)Expenses (3779)Net assets (2323)Peer revenue range

Balance sheet

Total assets and total liabilities at each year end, in dollars. The largest one-year move in total assets was 2023 to 2024, from $2.2M to $3.6M (+68%).

$152k
$189k
$634k
$827k
$1.2M
$1.8M
$2.2M
$3.6M
'17'18'19'20'21'22'23'24
Total assetsTotal liabilities

How it's funded, over time

Each bar is one year's revenue split into where it came from, and every bar is the same height — these are shares, not amounts, so a year that raised twice as much looks the same size. Hover a bar for the split.

2017
2018
2019
2020
2021
2022
2023
2024
ContributionsProgram revenueInvestmentOther

Government-grant reliance: 2021 4%. Grants only. Government contracts and fees sit inside program revenue.

97% of THE FAMILIESCN2A FOUNDATION INC’s revenue is contributions — more reliant on donations than three-quarters of its peers (51% for the typical peer).

This organization
Typical peer · 8,611 orgs

Surplus & reserves

Operating surplus or deficit each year, and months of liquidity in hand. 0 of the last 8 reported years ran a deficit.

$84k
’17
$36k
’18
$416k
’19
$167k
’20
$365k
’21
$496k
’22
$387k
’23
$1.5M
’24
7.6
months of
reserve

Leadership and staff

The officers, directors, trustees and key employees listed on each return. Joined and no longer listed compare each filing with the year before, matching people by surname and first initial; a year after a gap, or a roster under three people, has no comparison.

Board chair

Jennifer Burke

Chair

As listed on its FY2025 Form 990.

The chief executive listed changed between the FY2019 and FY2020, and between the FY2021 and FY2022 filings.

201920202021202220232024
Listed111212121111
Joined·+3+0+2+1+1
No longer listed·20221
03Who funds it

Who funds it, year by year

2019 → 2023: the base broadened from 1 funder to 12 funders, grant income rose $5k → $1.2M.

7 of 24 of your funders are donor-advised or pass-through sponsors (tagged DAF) — 15% of grant dollars received. That money is really individual donors directing a sponsor; the institutions to cultivate are the non-DAF funders.

From the IRS filings of THE FAMILIESCN2A FOUNDATION INC’s funders (the co-funder graph). Association, not causation. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.

How concentrated its funding is

THE FAMILIESCN2A FOUNDATION INC leans on a few funders — its largest provides 34% of grant income and the top three 82%; half comes from just 2 funders.

the vertical line marks half of all grant income — 2 funders to its left

34%
largest funder
82%
top three
~4
effective funders

Largest funder’s share by year: 2019 100% · 2020 48% · 2021 73% · 2022 62% · 2023 61% — diversifying over time.

“Effective funders” = inverse Herfindahl index (1 / Σ shareᵢ²) — the number of equal-sized funders that would give the same concentration. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.

How long its funders stay

50% of THE FAMILIESCN2A FOUNDATION INC's funders are still giving 3 years after their first grant; 50% give in more than one year at all.

first grant+1y+2y+3y

Share of funders still giving k years after their first recorded grant, pooled across every acquisition cohort. A funder counts as retained in a year only if it made a grant that year. Measured to FY2023, the last fiscal year that has finished arriving — a funder cannot be counted as lapsed in a year most filers have not reached.

Where its funders are

THE FAMILIESCN2A FOUNDATION INC draws 100% of its grant income from funders outside Pennsylvania, across 10 states in all.

IL
NY
PA
MO
MD
DE
KS
NC
DC
TX

In-state vs out-of-state, by year

’19
’20
’21
’22
’23
Pennsylvania out of state home

Funder states come from each funder’s own filing. $891k arriving through sponsors registered in 6 states is excluded from the map and the split above: a sponsor holds money on a donor’s behalf, so its registered address would place those dollars somewhere no donor need ever have been. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.

04Its place in the field

Against its field

THE FAMILIESCN2A FOUNDATION INC runs a healthier operating margin than three-quarters of the 8,121 health nonprofits its size.

Operating margin48% · top quartile
Months of reserve7.6mo · above the median
Revenue growth (annualized)58% · top quartile

this organization peer median middle 50% of peers· 8,121 health nonprofits $1M–$10M, FY2024

Organizations like THE FAMILIESCN2A FOUNDATION INC

Organizations whose mission and program text most resemble this one, by semantic similarity over every organization in the US filings — the closest peers, and often the clearest route to shared or prospective funders.

In Pennsylvania

Nationally

05Profile & governance

Read directly from this organization’s own Form 990, as neutral context.

Where the money goes

89% of spending goes to programs.

Program 89%Management 4%Fundraising 6%

Governance

10
board members
90%
independent
✓Conflict-of-interest policy–Whistleblower policy✓Document retention✓Board reviewed the 990✓Audited financials

Public support

36%

Share of support from the public (Schedule A) — the basis for its public-charity status.

Footprint & structure

Files a return copy in 3 states

MA
PA
CA

Screen this organization

A dated, signed PDF of the compliance screen for THE FAMILIESCN2A FOUNDATION INC: IRS status (Business Master File, Publication 78, auto-revocation), the OFAC sanctions lists, the Internal Revenue Bulletin, and California registration, with the Rev. Proc. 2018-32 §8.01 reliance elements stated element by element. Generated from the current files at the moment you download it.

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Screens are triage, not determinations; a source that cannot be read reports not screened, never clear. Screen this nonprofit · How the screen works · on the API as GET /api/screening/{ein}?format=pdf

Questions and answers

Who funds THE FAMILIESCN2A FOUNDATION INC?
THE FAMILIESCN2A FOUNDATION INC (Pennsylvania) receives grants from 24 organizations whose IRS filings report $5,899,662 to it, the largest being CAM Foundation for Young Minds ($2,000,000). 12 of them have funded it in more than one year.
How many funders does THE FAMILIESCN2A FOUNDATION INC have?
IRS filings report 24 organizations giving $5,899,662 in grants to THE FAMILIESCN2A FOUNDATION INC, 12 of which have funded it in more than one year.
Who is the largest funder of THE FAMILIESCN2A FOUNDATION INC?
CAM Foundation for Young Minds is the largest funder on record, with $2,000,000 in grants. The full list of funders is on this page.
How can an organization like THE FAMILIESCN2A FOUNDATION INC find more funders?
Start with the funders already giving here, then look at the foundations that back similar organizations in Pennsylvania. The funding by cause and by state pages list the largest funders for a given area and how to approach them.

These figures are read directly from IRS Form 990 / 990-PF e-file XML: this organization’s own return for FY2024 (financials across 2017–2024), and the filings of 24 funders that report grants to it. “On record” means captured in the filings we have parsed — a funder that does not e-file, or whose grant detail is not itemized, will not appear. Filings run roughly 12–24 months behind. Trends on this page end at FY2023, the last fiscal year that has finished arriving; later years are shown and marked, and move no figure. Data on this page was exported October 14, 2026. What this page cannot tell you · view filing