California · Nonprofit
CYSTIC FIBROSIS RESEARCH INSTITUTE
CYSTIC FIBROSIS RESEARCH INSTITUTE (California) receives grants from 48 organizations whose IRS filings report $1,744,745 to it, the largest being DONOR ADVISED CHARITABLE GIVING INC ($247,753). 31 of them have funded it in more than one year, and 70% of the money arrives through donor-advised or pass-through sponsors rather than from an institution directly.
- Revenue FY2024
- $2.1M
- Funders on record
- 48
- Grants received
- $1.7M
- Net assets
- $4.2M
What Cystic Fibrosis Research Institute does
Mission
To fund cystic fibrosis research, provide educational and personal support, and to spread awareness of cystic fibrosis, a life-threatening genetic disease.
As stated on its FY2024 Form 990.
Programs
To fund cystic fibrosis research, provide education and personal support, and to spread awareness of cystic fibrosis, a life threatening genetic disease.
$1,093,090 spentof which $528,720 as grants$13,707 earned by the program81% of program spendingConference (need description)
$252,751 spent19% of program spending
The 2 programs described on its FY2024 Form 990, listed largest first by expense. Program spending in total: $1,345,841.
The organization over time
Each line starts at 100 in 2017, so what you read is the shape rather than the size: 150 means half as much again as 2017, 50 means half. The number beside each label in the key is where it ended. The shaded band is where the middle 50% of its peers' revenue would sit, given their growth.
Balance sheet
Total assets and total liabilities at each year end, in dollars. The largest one-year move in total assets was 2022 to 2023, from $3.2M to $3.7M (+17%).
How it's funded, over time
Each bar is one year's revenue split into where it came from, and every bar is the same height — these are shares, not amounts, so a year that raised twice as much looks the same size. Hover a bar for the split.
Government-grant reliance: 2024 4%. Grants only. Government contracts and fees sit inside program revenue.
93% of CYSTIC FIBROSIS RESEARCH INSTITUTE’s revenue is contributions — more reliant on donations than three-quarters of its peers (51% for the typical peer).
Surplus & reserves
Operating surplus or deficit each year, and months of liquidity in hand. 1 of the last 8 reported years ran a deficit.
reserve
Leadership and staff
The officers, directors, trustees and key employees listed on each return. Joined and no longer listed compare each filing with the year before, matching people by surname and first initial; a year after a gap, or a roster under three people, has no comparison.
Chief executive
Siri Vaeth
Executive director
As listed on its FY2024 Form 990.
Who funds it, year by year
2017 → 2023: the base broadened from 15 funders to 18 funders, grant income rose $209k → $215k.
14 of 48 of your funders are donor-advised or pass-through sponsors (tagged DAF) — 70% of grant dollars received. That money is really individual donors directing a sponsor; the institutions to cultivate are the non-DAF funders.
From the IRS filings of CYSTIC FIBROSIS RESEARCH INSTITUTE’s funders (the co-funder graph). Top 30 of 48 funders by total. Association, not causation. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How concentrated its funding is
CYSTIC FIBROSIS RESEARCH INSTITUTE has a broad base — no single funder exceeds 14% of grant income, and it takes 5 funders to reach half.
the vertical line marks half of all grant income — 5 funders to its left
83% of the income these shares are computed over arrives through pass-through sponsors or from payers whose filings do not say what kind of payment it is. Concentration is still measured over all of it, because the money is real; what it does not support is a claim about how many institutions have chosen to fund CYSTIC FIBROSIS RESEARCH INSTITUTE.
Largest funder’s share by year: 2017 33% · 2018 22% · 2019 18% · 2020 21% · 2021 50% · 2022 15% · 2023 19% — diversifying over time.
“Effective funders” = inverse Herfindahl index (1 / Σ shareᵢ²) — the number of equal-sized funders that would give the same concentration. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How long its funders stay
43% of CYSTIC FIBROSIS RESEARCH INSTITUTE's funders are still giving 3 years after their first grant; 65% give in more than one year at all.
Share of funders still giving k years after their first recorded grant, pooled across every acquisition cohort. A funder counts as retained in a year only if it made a grant that year. Measured to FY2023, the last fiscal year that has finished arriving — a funder cannot be counted as lapsed in a year most filers have not reached.
Where its funders are
70% of CYSTIC FIBROSIS RESEARCH INSTITUTE's grant income arrives through donor-advised or pass-through sponsors, whose addresses record where the money is held rather than where the donor is. Of the $532k that is directly attributable, 64% of it comes from funders outside California, across 12 states.
In-state vs out-of-state, by year
Funder states come from each funder’s own filing. $1.2M arriving through sponsors registered in 10 states is excluded from the map and the split above: a sponsor holds money on a donor’s behalf, so its registered address would place those dollars somewhere no donor need ever have been. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
Against its field
CYSTIC FIBROSIS RESEARCH INSTITUTE runs a healthier operating margin than three-quarters of the 8,126 health nonprofits its size.
this organization peer median middle 50% of peers· 8,126 health nonprofits $1M–$10M, FY2024
Organizations like CYSTIC FIBROSIS RESEARCH INSTITUTE
Organizations whose mission and program text most resemble this one, by semantic similarity over every organization in the US filings — the closest peers, and often the clearest route to shared or prospective funders.
In California
Nationally
Read directly from this organization’s own Form 990, as neutral context.
Where the money goes
84% of spending goes to programs.
Governance
Public support
62%
Share of support from the public (Schedule A) — the basis for its public-charity status.
Footprint & structure
Files a return copy in 1 state
Screen this organization
A dated, signed PDF of the compliance screen for CYSTIC FIBROSIS RESEARCH INSTITUTE: IRS status (Business Master File, Publication 78, auto-revocation), the OFAC sanctions lists, the Internal Revenue Bulletin, and California registration, with the Rev. Proc. 2018-32 §8.01 reliance elements stated element by element. Generated from the current files at the moment you download it.
Screens are triage, not determinations; a source that cannot be read reports not screened, never clear. Screen this nonprofit · How the screen works · on the API as GET /api/screening/{ein}?format=pdf
Questions and answers
- Who funds CYSTIC FIBROSIS RESEARCH INSTITUTE?
- CYSTIC FIBROSIS RESEARCH INSTITUTE (California) receives grants from 48 organizations whose IRS filings report $1,744,745 to it, the largest being DONOR ADVISED CHARITABLE GIVING INC ($247,753). 31 of them have funded it in more than one year, and 70% of the money arrives through donor-advised or pass-through sponsors rather than from an institution directly.
- How many funders does CYSTIC FIBROSIS RESEARCH INSTITUTE have?
- IRS filings report 48 organizations giving $1,744,745 in grants to CYSTIC FIBROSIS RESEARCH INSTITUTE, 31 of which have funded it in more than one year.
- Who is the largest funder of CYSTIC FIBROSIS RESEARCH INSTITUTE?
- DONOR ADVISED CHARITABLE GIVING INC is the largest funder on record, with $247,753 in grants. The full list of funders is on this page.
- How can an organization like CYSTIC FIBROSIS RESEARCH INSTITUTE find more funders?
- Start with the funders already giving here, then look at the foundations that back similar organizations in California. The funding by cause and by state pages list the largest funders for a given area and how to approach them.
These figures are read directly from IRS Form 990 / 990-PF e-file XML: this organization’s own return for FY2024 (financials across 2017–2024), and the filings of 48 funders that report grants to it. “On record” means captured in the filings we have parsed — a funder that does not e-file, or whose grant detail is not itemized, will not appear. Filings run roughly 12–24 months behind. Trends on this page end at FY2023, the last fiscal year that has finished arriving; later years are shown and marked, and move no figure. Data on this page was exported October 22, 2026. What this page cannot tell you · view filing