California · Nonprofit
LHON COLLECTIVE
LHON COLLECTIVE (California) receives grants from 6 organizations whose IRS filings report $69,060 to it, the largest being JEWISH COMMUNAL FUND ($20,000). 2 of them have funded it in more than one year, and 65% of the money arrives through donor-advised or pass-through sponsors rather than from an institution directly.
- Revenue FY2025
- $336k
- Funders on record
- 6
- Grants received
- $69k
- Net assets
- $260k
What Lhon Collective does
Mission
To accelerate progress toward a cure for leber hereditary optic neuropathy (lhon) while improving the lives of people living with lhon.
As stated on its FY2025 Form 990.
Programs
Lhon Collective worked with the milken foundation sparc to create an ongoing research in progress seminar series for researchers to discuss new and innovative scientific approaches to this rare disease and hear presentations from colleagues in the field to expand the working knowledge and collaborations for future scientific collaborations. Lhon and sparc also facilitated a research resource working group (rrwg) for a group of lhon researchers to collaborate on an evaluation of current, accessible scientific in vivo, in vitro and in silico models for use in the research for lhon and identify what models need to be developed for further scientific progression for this rare disease.
$127,677 spentof which $125,000 as grants71% of program spendingLhon Collective hosted an lhon conference as a part of the overall patient conference held with the united mitochondrial disease foundation. This brought 150 lhon community members together to learn about the most recent science for lhon, create community and build skills and independence for those newly vision impaired from lhon. 33% of those who attended the conference were lhon vision impaired, 33% were spouses or significant others, and the last 33% of the attendees included researchers, clinicians, bio pharma, and family and friends of those who have experienced lhon vision loss. Lhon Collective also built awareness through collaboration with other vision disorder communities to represent a joint vision consortium presence at the association of research in vision and ophthalmology (arvo) conference.
$40,140 spentof which $34,843 as grants22% of program spendingIn partnership with carlisi creative, Lhon Collective developed audio-described, accessible educational video materials to scientifically explain lhon. These materials disseminate information to the community at large, including funders, the patient community and their family and friends, and to other clinician researchers to better understand opportunities for scientific advancement for the rare disease of lhon.
$7,181 spentof which $7,030 as grants4% of program spendingLhon Collective pursued investment in scientific progress for lhon by co-funding a young investigator working in the sadun lab at the university of california, los angeles (ucla) with the international foundation of optic nerve disorders (ifond). The investigator focuses on the rare disease of lhon. The collective also established a formal relationship with combinedbrain for an lhon-specific biorepository.
$5,663 spentof which $5,000 as grants3% of program spending
The 4 programs described on its FY2025 Form 990, listed largest first by expense. Program spending in total: $180,661.
The organization over time
Each line starts at 100 in 2023, so what you read is the shape rather than the size: 150 means half as much again as 2023, 50 means half. The number beside each label in the key is where it ended. The shaded band is where the middle 50% of its peers' revenue would sit, given their growth.
Balance sheet
Total assets and total liabilities at each year end, in dollars. The largest one-year move in total assets was 2024 to 2025, from $117k to $260k (+122%).
How it's funded, over time
Each bar is one year's revenue split into where it came from, and every bar is the same height — these are shares, not amounts, so a year that raised twice as much looks the same size. Hover a bar for the split.
104% of LHON COLLECTIVE’s revenue is contributions — more reliant on donations than three-quarters of its peers (82% for the typical peer).
Surplus & reserves
Operating surplus or deficit each year, and months of liquidity in hand. 0 of the last 3 reported years ran a deficit.
reserve
Leadership and staff
The officers, directors, trustees and key employees listed on each return. Joined and no longer listed compare each filing with the year before, matching people by surname and first initial; a year after a gap, or a roster under three people, has no comparison.
Chief executive
Malinda Marsh
CEO
As listed on its FY2025 Form 990.
Who funds it, year by year
Grant support over time, funder by funder — shade shows the grant size each year.
3 of 6 of your funders are donor-advised or pass-through sponsors (tagged DAF) — 65% of grant dollars received. That money is really individual donors directing a sponsor; the institutions to cultivate are the non-DAF funders.
From the IRS filings of LHON COLLECTIVE’s funders (the co-funder graph). Association, not causation. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How concentrated its funding is
LHON COLLECTIVE leans on a few funders — its largest provides 29% of grant income and the top three 72%; half comes from just 2 funders.
the vertical line marks half of all grant income — 2 funders to its left
78% of the income these shares are computed over arrives through pass-through sponsors or from payers whose filings do not say what kind of payment it is. Concentration is still measured over all of it, because the money is real; what it does not support is a claim about how many institutions have chosen to fund LHON COLLECTIVE.
“Effective funders” = inverse Herfindahl index (1 / Σ shareᵢ²) — the number of equal-sized funders that would give the same concentration. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
Where its funders are
65% of LHON COLLECTIVE's grant income arrives through donor-advised or pass-through sponsors, whose addresses record where the money is held rather than where the donor is. Of the $24k that is directly attributable, 100% of it comes from funders outside California, across 3 states.
Funder states come from each funder’s own filing. $45k arriving through sponsors registered in 3 states is excluded from the map and the split above: a sponsor holds money on a donor’s behalf, so its registered address would place those dollars somewhere no donor need ever have been. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
Against its field
LHON COLLECTIVE runs a healthier operating margin than three-quarters of the 7,883 health nonprofits its size.
this organization peer median middle 50% of peers· 7,883 health nonprofits $100k–$1M, FY2025
Organizations like LHON COLLECTIVE
Organizations whose mission and program text most resemble this one, by semantic similarity over every organization in the US filings — the closest peers, and often the clearest route to shared or prospective funders.
In California
Nationally
Read directly from this organization’s own Form 990, as neutral context.
Where the money goes
100% of spending goes to programs.
Governance
Footprint & structure
Files a return copy in 1 state
Screen this organization
A dated, signed PDF of the compliance screen for LHON COLLECTIVE: IRS status (Business Master File, Publication 78, auto-revocation), the OFAC sanctions lists, the Internal Revenue Bulletin, and California registration, with the Rev. Proc. 2018-32 §8.01 reliance elements stated element by element. Generated from the current files at the moment you download it.
Screens are triage, not determinations; a source that cannot be read reports not screened, never clear. Screen this nonprofit · How the screen works · on the API as GET /api/screening/{ein}?format=pdf
Questions and answers
- Who funds LHON COLLECTIVE?
- LHON COLLECTIVE (California) receives grants from 6 organizations whose IRS filings report $69,060 to it, the largest being JEWISH COMMUNAL FUND ($20,000). 2 of them have funded it in more than one year, and 65% of the money arrives through donor-advised or pass-through sponsors rather than from an institution directly.
- How many funders does LHON COLLECTIVE have?
- IRS filings report 6 organizations giving $69,060 in grants to LHON COLLECTIVE, 2 of which have funded it in more than one year.
- Who is the largest funder of LHON COLLECTIVE?
- JEWISH COMMUNAL FUND is the largest funder on record, with $20,000 in grants. The full list of funders is on this page.
- How can an organization like LHON COLLECTIVE find more funders?
- Start with the funders already giving here, then look at the foundations that back similar organizations in California. The funding by cause and by state pages list the largest funders for a given area and how to approach them.
These figures are read directly from IRS Form 990 / 990-PF e-file XML: this organization’s own return for FY2025 (financials across 2023–2025), and the filings of 6 funders that report grants to it. “On record” means captured in the filings we have parsed — a funder that does not e-file, or whose grant detail is not itemized, will not appear. Filings run roughly 12–24 months behind. Trends on this page end at FY2023, the last fiscal year that has finished arriving; later years are shown and marked, and move no figure. Data on this page was exported October 14, 2026. What this page cannot tell you · view filing