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Massachusetts · Nonprofit

ALD CONNECT INC

ALD CONNECT INC (Massachusetts) receives grants from 20 organizations whose IRS filings report $1,288,884 to it, the largest being Silicon Valley Community Foundation ($800,000). 7 of them have funded it in more than one year, and 71% of the money arrives through donor-advised or pass-through sponsors rather than from an institution directly.

Revenue FY2024
$574k
Funders on record
20
Grants received
$1.3M
Net assets
$1.2M
7/20 repeat funderspeak grant-dependency 42%
01What it does

What Ald Connect Inc does

Mission

To improve health outcomes for individuals with x-linked adrenoleukodystrophy (ald) by raising awareness, empowering patients, and accelerating the translation

As stated on its FY2024 Form 990.

Program

  1. Ald connect improves health outcomes for individuals and families affected by adrenoleukodystrophy (ald) through community engagement, research, education, patient support, and advocacy. The organization provides educational programs, webinars, community calls, peer mentoring, financial assistance, and patient resources; supports research through grantmaking, the emerging investigator program, and the collaborative research network; convenes patients, caregivers, physicians, researchers, and industry stakeholders through the annual meeting and patient learning academy and other collaborative initiatives; and advances awareness, advocacy, and data-driven projects to improve diagnosis, care, treatment, and quality of life for individuals affected by ald.

    $583,392 spentof which $216,188 as grants$962,007 earned by the program
    100% of program spending

The program described on its FY2025 Form 990. Program spending in total: $583,392.

02The organization over time

The organization over time

Each line starts at 100 in 2017, so what you read is the shape rather than the size: 150 means half as much again as 2017, 50 means half. The number beside each label in the key is where it ended. The shaded band is where the middle 50% of its peers' revenue would sit, given their growth.

100 = 20172017 Revenue 100 ($107k) Expenses 100 ($107k) Net assets 100 ($149k)2018 Revenue 152 ($163k) Expenses 104 ($111k) Net assets 135 ($202k)2019 Revenue 447 ($480k) Expenses 143 ($153k) Net assets 354 ($529k)2020 Revenue 316 ($340k) Expenses 118 ($126k) Net assets 497 ($742k)2021 Revenue 429 ($461k) Expenses 172 ($184k) Net assets 682 ($1.0M)2022 Revenue 352 ($378k) Expenses 454 ($486k) Net assets 610 ($912k)2023 Revenue 385 ($413k) Expenses 287 ($307k) Net assets 682 ($1.0M)2024 Revenue 535 ($574k) Expenses 331 ($354k) Net assets 827 ($1.2M)
'17'18'19'20'21'22'23'24
Revenue (535)Expenses (331)Net assets (827)Peer revenue range

Balance sheet

Total assets and total liabilities at each year end, in dollars. The largest one-year move in total assets was 2018 to 2019, from $206k to $538k (+161%).

$153k
$206k
$538k
$753k
$1.0M
$934k
$1.0M
$1.3M
'17'18'19'20'21'22'23'24
Total assetsTotal liabilities

How it's funded, over time

Each bar is one year's revenue split into where it came from, and every bar is the same height — these are shares, not amounts, so a year that raised twice as much looks the same size. Hover a bar for the split.

2017
2018
2019
2020
2021
2022
2023
2024
ContributionsProgram revenueInvestmentOther

100% of ALD CONNECT INC’s revenue is contributions — more reliant on donations than three-quarters of its peers (82% for the typical peer).

This organization
Typical peer · 14,893 orgs

Surplus & reserves

Operating surplus or deficit each year, and months of liquidity in hand. 1 of the last 8 reported years ran a deficit.

$429
’17
$52k
’18
$327k
’19
$213k
’20
$277k
’21
−$108k
’22
$106k
’23
$221k
’24
25
months of
reserve

Leadership and staff

The officers, directors, trustees and key employees listed on each return. Joined and no longer listed compare each filing with the year before, matching people by surname and first initial; a year after a gap, or a roster under three people, has no comparison.

Chief executive

Kelly Miettunen

Executive director

As listed on its FY2025 Form 990.

'17'18'19'20'21'22'23'24
Listed1212151515151414
Joined·+0+4+0+0+1+0+0
No longer listed·0100110
03Who funds it

Who funds it, year by year

2017 → 2023: the base broadened from 1 funder to 5 funders, grant income rose $10k → $173k.

9 of 20 of your funders are donor-advised or pass-through sponsors (tagged DAF) — 71% of grant dollars received. That money is really individual donors directing a sponsor; the institutions to cultivate are the non-DAF funders.

From the IRS filings of ALD CONNECT INC’s funders (the co-funder graph). Association, not causation. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.

How concentrated its funding is

ALD CONNECT INC leans on a few funders — its largest provides 62% of grant income and the top three 85%; half comes from just 1 funder.

the vertical line marks half of all grant income — 1 funder to its left

72% of the income these shares are computed over arrives through pass-through sponsors or from payers whose filings do not say what kind of payment it is. Concentration is still measured over all of it, because the money is real; what it does not support is a claim about how many institutions have chosen to fund ALD CONNECT INC.

62%
largest funder
85%
top three
~2
effective funders

Largest funder’s share by year: 2017 100% · 2018 100% · 2019 47% · 2020 35% · 2021 67% · 2022 80% · 2023 87% — diversifying over time.

“Effective funders” = inverse Herfindahl index (1 / Σ shareᵢ²) — the number of equal-sized funders that would give the same concentration. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.

How long its funders stay

33% of ALD CONNECT INC's funders are still giving 3 years after their first grant; 35% give in more than one year at all.

first grant+1y+2y+3y+4y

Share of funders still giving k years after their first recorded grant, pooled across every acquisition cohort. A funder counts as retained in a year only if it made a grant that year. Measured to FY2023, the last fiscal year that has finished arriving — a funder cannot be counted as lapsed in a year most filers have not reached.

Where its funders are

71% of ALD CONNECT INC's grant income arrives through donor-advised or pass-through sponsors, whose addresses record where the money is held rather than where the donor is. Of the $378k that is directly attributable, 100% of it comes from funders outside Massachusetts, across 6 states.

IL
NY
NJ
CA
TN
DC

In-state vs out-of-state, by year

’17
’18
’19
’20
’21
’22
’23
Massachusetts out of state home

Funder states come from each funder’s own filing. $911k arriving through sponsors registered in 8 states is excluded from the map and the split above: a sponsor holds money on a donor’s behalf, so its registered address would place those dollars somewhere no donor need ever have been. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.

04Its place in the field

Against its field

ALD CONNECT INC runs a healthier operating margin than three-quarters of the 13,754 health nonprofits its size.

Operating margin38% · top quartile
Months of reserve25.1mo · top quartile
Revenue growth (annualized)27% · top quartile

this organization peer median middle 50% of peers· 13,754 health nonprofits $100k–$1M, FY2024

Organizations like ALD CONNECT INC

Organizations whose mission and program text most resemble this one, by semantic similarity over every organization in the US filings — the closest peers, and often the clearest route to shared or prospective funders.

In Massachusetts

Nationally

05Profile & governance

Read directly from this organization’s own Form 990, as neutral context.

Where the money goes

64% of spending goes to programs.

Program 64%Management 29%Fundraising 7%

Governance

14
board members
100%
independent
✓Conflict-of-interest policy✓Whistleblower policy✓Document retention✓Board reviewed the 990–Audited financials

Public support

100%

Share of support from the public (Schedule A) — the basis for its public-charity status.

Footprint & structure

Files a return copy in 33 states

AK
ME
NH
WA
MN
IL
MI
NY
MA
OR
NV
OH
PA
NJ
CT
RI
CA
UT
CO
KY
WV
VA
MD
NM
KS
AR
TN
SC
HI
OK
MS
AL
FL

Screen this organization

A dated, signed PDF of the compliance screen for ALD CONNECT INC: IRS status (Business Master File, Publication 78, auto-revocation), the OFAC sanctions lists, the Internal Revenue Bulletin, and California registration, with the Rev. Proc. 2018-32 §8.01 reliance elements stated element by element. Generated from the current files at the moment you download it.

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Screens are triage, not determinations; a source that cannot be read reports not screened, never clear. Screen this nonprofit · How the screen works · on the API as GET /api/screening/{ein}?format=pdf

Questions and answers

Who funds ALD CONNECT INC?
ALD CONNECT INC (Massachusetts) receives grants from 20 organizations whose IRS filings report $1,288,884 to it, the largest being Silicon Valley Community Foundation ($800,000). 7 of them have funded it in more than one year, and 71% of the money arrives through donor-advised or pass-through sponsors rather than from an institution directly.
How many funders does ALD CONNECT INC have?
IRS filings report 20 organizations giving $1,288,884 in grants to ALD CONNECT INC, 7 of which have funded it in more than one year.
Who is the largest funder of ALD CONNECT INC?
Silicon Valley Community Foundation is the largest funder on record, with $800,000 in grants. The full list of funders is on this page.
How can an organization like ALD CONNECT INC find more funders?
Start with the funders already giving here, then look at the foundations that back similar organizations in Massachusetts. The funding by cause and by state pages list the largest funders for a given area and how to approach them.

These figures are read directly from IRS Form 990 / 990-PF e-file XML: this organization’s own return for FY2024 (financials across 2017–2024), and the filings of 20 funders that report grants to it. “On record” means captured in the filings we have parsed — a funder that does not e-file, or whose grant detail is not itemized, will not appear. Filings run roughly 12–24 months behind. Trends on this page end at FY2023, the last fiscal year that has finished arriving; later years are shown and marked, and move no figure. Data on this page was exported October 14, 2026. What this page cannot tell you · view filing