Virginia · Nonprofit
ANGIOMA ALLIANCE DBA ALLIANCE TO CURE CAVERNOUS MALFORMATIONS
ANGIOMA ALLIANCE DBA ALLIANCE TO CURE CAVERNOUS MALFORMATIONS (Virginia) receives grants from 38 organizations whose IRS filings report $2,950,944 to it, the largest being FIDELITY INVESTMENTS CHARITABLE GIFT FUND ($949,501). 17 of them have funded it in more than one year, and 80% of the money arrives through donor-advised or pass-through sponsors rather than from an institution directly.
- Revenue FY2025
- $1.4M
- Funders on record
- 38
- Grants received
- $3.0M
- Net assets
- $1.1M
What Angioma Alliance Dba Alliance to Cure Cavernous Malformations does
Mission
The mission of angioma alliance is to drive a cure for cavernous malformation and improves lives for all affected.
As stated on its FY2025 Form 990.
Programs
Facilitate and participate in cavernous malformation research to achieve a complete understanding of the disease and facilitate clinical drug trials and other treatment improvements.
$508,904 spent52% of program spendingEstablish a network of clinical research centers in preparation for clinical drug trials and to facilitate consistent treatment.
$399,510 spent40% of program spendingProvide disease and resource information to educate and improve the lives of people affected by cavernous malformations, caregivers, health professionals, researchers, policymakers, the media, and the general public.to foster and promote a caring community to provide support.
$78,155 spent8% of program spending
The 3 programs described on its FY2024 Form 990, listed largest first by expense. Program spending in total: $986,569.
The organization over time
Each line starts at 100 in 2017, so what you read is the shape rather than the size: 150 means half as much again as 2017, 50 means half. The number beside each label in the key is where it ended. The shaded band is where the middle 50% of its peers' revenue would sit, given their growth.
Balance sheet
Total assets and total liabilities at each year end, in dollars. The largest one-year move in total assets was 2020 to 2021, from $559k to $912k (+63%).
How it's funded, over time
Each bar is one year's revenue split into where it came from, and every bar is the same height — these are shares, not amounts, so a year that raised twice as much looks the same size. Hover a bar for the split.
Government-grant reliance: 2021 11% · 2023 1%. Grants only. Government contracts and fees sit inside program revenue.
97% of ANGIOMA ALLIANCE DBA ALLIANCE TO CURE CAVERNOUS MALFORMATIONS’s revenue is contributions — more reliant on donations than three-quarters of its peers (51% for the typical peer).
Surplus & reserves
Operating surplus or deficit each year, and months of liquidity in hand. 2 of the last 9 reported years ran a deficit.
reserve
Leadership and staff
The officers, directors, trustees and key employees listed on each return. Joined and no longer listed compare each filing with the year before, matching people by surname and first initial; a year after a gap, or a roster under three people, has no comparison.
Chief executive
Cornelia Lee Psyd
CEO
Board chair
David Borland
Chair
As listed on its FY2025 Form 990.
Who funds it, year by year
2017 → 2023: the base broadened from 7 funders to 18 funders, grant income rose $126k → $594k.
15 of 38 of your funders are donor-advised or pass-through sponsors (tagged DAF) — 80% of grant dollars received. That money is really individual donors directing a sponsor; the institutions to cultivate are the non-DAF funders.
From the IRS filings of ANGIOMA ALLIANCE DBA ALLIANCE TO CURE CAVERNOUS MALFORMATIONS’s funders (the co-funder graph). Top 30 of 38 funders by total. Association, not causation. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How concentrated its funding is
ANGIOMA ALLIANCE DBA ALLIANCE TO CURE CAVERNOUS MALFORMATIONS leans on a few funders — its largest provides 32% of grant income and the top three 63%; half comes from just 2 funders.
the vertical line marks half of all grant income — 2 funders to its left
85% of the income these shares are computed over arrives through pass-through sponsors or from payers whose filings do not say what kind of payment it is. Concentration is still measured over all of it, because the money is real; what it does not support is a claim about how many institutions have chosen to fund ANGIOMA ALLIANCE DBA ALLIANCE TO CURE CAVERNOUS MALFORMATIONS.
Largest funder’s share by year: 2017 32% · 2018 46% · 2019 81% · 2020 45% · 2021 72% · 2022 42% · 2023 34% — growing more concentrated.
“Effective funders” = inverse Herfindahl index (1 / Σ shareᵢ²) — the number of equal-sized funders that would give the same concentration. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How long its funders stay
24% of ANGIOMA ALLIANCE DBA ALLIANCE TO CURE CAVERNOUS MALFORMATIONS's funders are still giving 3 years after their first grant; 45% give in more than one year at all.
Share of funders still giving k years after their first recorded grant, pooled across every acquisition cohort. A funder counts as retained in a year only if it made a grant that year. Measured to FY2023, the last fiscal year that has finished arriving — a funder cannot be counted as lapsed in a year most filers have not reached.
Where its funders are
80% of ANGIOMA ALLIANCE DBA ALLIANCE TO CURE CAVERNOUS MALFORMATIONS's grant income arrives through donor-advised or pass-through sponsors, whose addresses record where the money is held rather than where the donor is. Of the $596k that is directly attributable, 98% of it comes from funders outside Virginia, across 12 states.
In-state vs out-of-state, by year
Funder states come from each funder’s own filing. $2.4M arriving through sponsors registered in 12 states is excluded from the map and the split above: a sponsor holds money on a donor’s behalf, so its registered address would place those dollars somewhere no donor need ever have been. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
Against its field
ANGIOMA ALLIANCE DBA ALLIANCE TO CURE CAVERNOUS MALFORMATIONS runs a healthier operating margin than half of the 4,665 health nonprofits its size.
this organization peer median middle 50% of peers· 4,665 health nonprofits $1M–$10M, FY2025
Organizations like ANGIOMA ALLIANCE DBA ALLIANCE TO CURE CAVERNOUS MALFORMATIONS
Organizations whose mission and program text most resemble this one, by semantic similarity over every organization in the US filings — the closest peers, and often the clearest route to shared or prospective funders.
In Virginia
Nationally
Read directly from this organization’s own Form 990, as neutral context.
Where the money goes
76% of spending goes to programs.
Governance
Public support
88%
Share of support from the public (Schedule A) — the basis for its public-charity status.
Footprint & structure
Files a return copy in 14 states
Screen this organization
A dated, signed PDF of the compliance screen for ANGIOMA ALLIANCE DBA ALLIANCE TO CURE CAVERNOUS MALFORMATIONS: IRS status (Business Master File, Publication 78, auto-revocation), the OFAC sanctions lists, the Internal Revenue Bulletin, and California registration, with the Rev. Proc. 2018-32 §8.01 reliance elements stated element by element. Generated from the current files at the moment you download it.
Screens are triage, not determinations; a source that cannot be read reports not screened, never clear. Screen this nonprofit · How the screen works · on the API as GET /api/screening/{ein}?format=pdf
Questions and answers
- Who funds ANGIOMA ALLIANCE DBA ALLIANCE TO CURE CAVERNOUS MALFORMATIONS?
- ANGIOMA ALLIANCE DBA ALLIANCE TO CURE CAVERNOUS MALFORMATIONS (Virginia) receives grants from 38 organizations whose IRS filings report $2,950,944 to it, the largest being FIDELITY INVESTMENTS CHARITABLE GIFT FUND ($949,501). 17 of them have funded it in more than one year, and 80% of the money arrives through donor-advised or pass-through sponsors rather than from an institution directly.
- How many funders does ANGIOMA ALLIANCE DBA ALLIANCE TO CURE CAVERNOUS MALFORMATIONS have?
- IRS filings report 38 organizations giving $2,950,944 in grants to ANGIOMA ALLIANCE DBA ALLIANCE TO CURE CAVERNOUS MALFORMATIONS, 17 of which have funded it in more than one year.
- Who is the largest funder of ANGIOMA ALLIANCE DBA ALLIANCE TO CURE CAVERNOUS MALFORMATIONS?
- FIDELITY INVESTMENTS CHARITABLE GIFT FUND is the largest funder on record, with $949,501 in grants. The full list of funders is on this page.
- How can an organization like ANGIOMA ALLIANCE DBA ALLIANCE TO CURE CAVERNOUS MALFORMATIONS find more funders?
- Start with the funders already giving here, then look at the foundations that back similar organizations in Virginia. The funding by cause and by state pages list the largest funders for a given area and how to approach them.
Play a game about who funds Angioma Alliance Dba Alliance to Cure Cavernous Malformations →
These figures are read directly from IRS Form 990 / 990-PF e-file XML: this organization’s own return for FY2025 (financials across 2017–2025), and the filings of 38 funders that report grants to it. “On record” means captured in the filings we have parsed — a funder that does not e-file, or whose grant detail is not itemized, will not appear. Filings run roughly 12–24 months behind. Trends on this page end at FY2023, the last fiscal year that has finished arriving; later years are shown and marked, and move no figure. Data on this page was exported October 14, 2026. What this page cannot tell you · view filing