California · Nonprofit
Necrotizing Enterocolitis (NEC) Society
Necrotizing Enterocolitis (NEC) Society (California) receives grants from 18 organizations whose IRS filings report $1,146,609 to it, the largest being Silicon Valley Community Foundation ($1,015,000). 7 of them have funded it in more than one year, and 95% of the money arrives through donor-advised or pass-through sponsors rather than from an institution directly.
- Revenue FY2025
- $494k
- Funders on record
- 18
- Grants received
- $1.1M
- Net assets
- $795k
What Necrotizing Enterocolitis (NEC) Society does
Mission
The NEC Society is a Clinician-Family collaborative organization specifically focused on the understanding, prevention and treatment of necrotizing enterocolitis.
As stated on its FY2025 Form 990.
Programs
In 2025, the NEC Society distributed nearly 1000 resources to families and NICUs across the United States, presented the worlds largest conference on necrotizing enterocolitis, the NEC Symposium, which attracted nearly 250 participants, built and launched new resources for NICU families in partnership with the Childrens Hospitals Neonatal Consortium, spoke at educational conferences every month across the US and around the globe, and launched the NEC Glossary to empower our community with information to understand necrotizing enterocolitis.
$310,558 spent$11,682 earned by the program67% of program spendingIn 2025, the NEC Society helped the NEC Biorepository increase enrollment to 1,139 babies, launched the NEC Registry, expanded the NEC Research Incubator to 200 participants and hosted research roundtables, presented at the Pediatric Academic Socieities Meeting, contributed to several research publications and projects, and funded three research awards to attract and support clinicians and scientists studying NEC.
$149,592 spentof which $15,000 as grants32% of program spendingIn 2025, the NEC Society participated in the NICU Parent Networks Advocacy Day in Washington DC, the March of Dimes Advocacy Summit also in DC, continued engagement with the FDA to push for better treatment options for babies at risk of and affected by NEC, passed NEC Awareness Day Resolutions in New Jersey and South Carolina, held 22 awareness events across the US during Mays NEC Awareness Month, and launched our first-ever YOLO Run for a world without NEC to inspire more people to get involved in the NEC Societys work for babies and families.
$5,969 spent1% of program spending
The 3 programs described on its FY2025 Form 990, listed largest first by expense. Program spending in total: $466,119.
The organization over time
Each line starts at 100 in 2018, so what you read is the shape rather than the size: 150 means half as much again as 2018, 50 means half. The number beside each label in the key is where it ended. The shaded band is where the middle 50% of its peers' revenue would sit, given their growth.
Balance sheet
Total assets and total liabilities at each year end, in dollars. The largest one-year move in total assets was 2019 to 2020, from $187k to $695k (+273%).
How it's funded, over time
Each bar is one year's revenue split into where it came from, and every bar is the same height — these are shares, not amounts, so a year that raised twice as much looks the same size. Hover a bar for the split.
87% of Necrotizing Enterocolitis (NEC) Society’s revenue is contributions — more donation-reliant than the typical peer (82% for the typical peer).
Surplus & reserves
Operating surplus or deficit each year, and months of liquidity in hand. 4 of the last 8 reported years ran a deficit.
reserve
Leadership and staff
The officers, directors, trustees and key employees listed on each return. Joined and no longer listed compare each filing with the year before, matching people by surname and first initial; a year after a gap, or a roster under three people, has no comparison.
Chief executive
Jennifer Canvasser
Executive Director
Board chair
Rebecca Meuninck
Chair
As listed on its FY2025 Form 990.
Who funds it, year by year
2019 → 2023: the base broadened from 1 funder to 8 funders, grant income rose $5k → $58k.
5 of 18 of your funders are donor-advised or pass-through sponsors (tagged DAF) — 95% of grant dollars received. That money is really individual donors directing a sponsor; the institutions to cultivate are the non-DAF funders.
From the IRS filings of Necrotizing Enterocolitis (NEC) Society’s funders (the co-funder graph). Association, not causation. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How concentrated its funding is
Necrotizing Enterocolitis (NEC) Society leans on a few funders — its largest provides 89% of grant income and the top three 94%; half comes from just 1 funder.
the vertical line marks half of all grant income — 1 funder to its left
96% of the income these shares are computed over arrives through pass-through sponsors or from payers whose filings do not say what kind of payment it is. Concentration is still measured over all of it, because the money is real; what it does not support is a claim about how many institutions have chosen to fund Necrotizing Enterocolitis (NEC) Society.
Largest funder’s share by year: 2019 100% · 2020 98% · 2021 90% · 2022 98% · 2023 28% — diversifying over time.
“Effective funders” = inverse Herfindahl index (1 / Σ shareᵢ²) — the number of equal-sized funders that would give the same concentration. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How long its funders stay
25% of Necrotizing Enterocolitis (NEC) Society's funders are still giving 3 years after their first grant; 39% give in more than one year at all.
Share of funders still giving k years after their first recorded grant, pooled across every acquisition cohort. A funder counts as retained in a year only if it made a grant that year. Measured to FY2023, the last fiscal year that has finished arriving — a funder cannot be counted as lapsed in a year most filers have not reached.
Where its funders are
95% of Necrotizing Enterocolitis (NEC) Society's grant income arrives through donor-advised or pass-through sponsors, whose addresses record where the money is held rather than where the donor is. Of the $59k that is directly attributable, 73% of it comes from funders outside California, across 8 states.
In-state vs out-of-state, by year
Funder states come from each funder’s own filing. $1.1M arriving through sponsors registered in 5 states is excluded from the map and the split above: a sponsor holds money on a donor’s behalf, so its registered address would place those dollars somewhere no donor need ever have been. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
Against its field
Necrotizing Enterocolitis (NEC) Society holds deeper cash reserves than three-quarters of the 7,883 health nonprofits its size.
this organization peer median middle 50% of peers· 7,883 health nonprofits $100k–$1M, FY2025
Organizations like Necrotizing Enterocolitis (NEC) Society
Organizations whose mission and program text most resemble this one, by semantic similarity over every organization in the US filings — the closest peers, and often the clearest route to shared or prospective funders.
In California
Nationally
Read directly from this organization’s own Form 990, as neutral context.
Where the money goes
74% of spending goes to programs.
Governance
Public support
92%
Share of support from the public (Schedule A) — the basis for its public-charity status.
Footprint & structure
Files a return copy in 1 state
Screen this organization
A dated, signed PDF of the compliance screen for Necrotizing Enterocolitis (NEC) Society: IRS status (Business Master File, Publication 78, auto-revocation), the OFAC sanctions lists, the Internal Revenue Bulletin, and California registration, with the Rev. Proc. 2018-32 §8.01 reliance elements stated element by element. Generated from the current files at the moment you download it.
Screens are triage, not determinations; a source that cannot be read reports not screened, never clear. Screen this nonprofit · How the screen works · on the API as GET /api/screening/{ein}?format=pdf
Questions and answers
- Who funds Necrotizing Enterocolitis (NEC) Society?
- Necrotizing Enterocolitis (NEC) Society (California) receives grants from 18 organizations whose IRS filings report $1,146,609 to it, the largest being Silicon Valley Community Foundation ($1,015,000). 7 of them have funded it in more than one year, and 95% of the money arrives through donor-advised or pass-through sponsors rather than from an institution directly.
- How many funders does Necrotizing Enterocolitis (NEC) Society have?
- IRS filings report 18 organizations giving $1,146,609 in grants to Necrotizing Enterocolitis (NEC) Society, 7 of which have funded it in more than one year.
- Who is the largest funder of Necrotizing Enterocolitis (NEC) Society?
- Silicon Valley Community Foundation is the largest funder on record, with $1,015,000 in grants. The full list of funders is on this page.
- How can an organization like Necrotizing Enterocolitis (NEC) Society find more funders?
- Start with the funders already giving here, then look at the foundations that back similar organizations in California. The funding by cause and by state pages list the largest funders for a given area and how to approach them.
These figures are read directly from IRS Form 990 / 990-PF e-file XML: this organization’s own return for FY2025 (financials across 2018–2025), and the filings of 18 funders that report grants to it. “On record” means captured in the filings we have parsed — a funder that does not e-file, or whose grant detail is not itemized, will not appear. Filings run roughly 12–24 months behind. Trends on this page end at FY2023, the last fiscal year that has finished arriving; later years are shown and marked, and move no figure. Data on this page was exported October 14, 2026. What this page cannot tell you · view filing