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New Jersey · Nonprofit

CHILDREN'S CARDIOMYOPATHY FOUNDATION INC

CHILDREN'S CARDIOMYOPATHY FOUNDATION INC (New Jersey) receives grants from 19 organizations whose IRS filings report $596,933 to it, the largest being SCOTT RICHARDS NORTH STAR CHARITABLE FOUNDATION DBA SCOTT RICHARDS NORTH STAR ($191,590). 14 of them have funded it in more than one year.

Revenue FY2025
$996k
Funders on record
19
Grants received
$597k
Net assets
$3.3M
14/19 repeat funderspeak grant-dependency 18%
01What it does

What Children's Cardiomyopathy Foundation Inc does

Mission

To accelerate the search for a cure by stimulating and supporting promising research on pediatric cardiomyopathy, by educating and assisting physicians and patients on the complexities of the disease, and by increasing awareness and advocacy on behalf of affected children and their families.

As stated on its FY2025 Form 990.

Programs

  1. Support innovative research relevant to the cause, diagnosis and/or treatment of pediatric cardiomyopathy through research grant awards and research collaborations with the national cardiomyopathy registry.

    $121,350 spent
    24% of program spending
  2. Heighten awareness of pediatric cardiomyopathy among the general public, patient and medical community and develop accessible educational materials to meet their needs.

    $119,221 spent
    23% of program spending
  3. Offer support services, resources and networking opportunities to help families with affected children cope with the challenges of living with pediatric cardiomyopathy.

    $143,051 spent
    28% of program spending
  4. Generate widespread awareness of the disease among government, medical and lay communities to promote increased focus and funding on research.

    $124,549 spent
    25% of program spending

The 4 programs described on its FY2025 Form 990, listed largest first by expense. Program spending in total: $508,171.

02The organization over time

The organization over time

Each line starts at 100 in 2017, so what you read is the shape rather than the size: 150 means half as much again as 2017, 50 means half. The number beside each label in the key is where it ended. The shaded band is where the middle 50% of its peers' revenue would sit, given their growth.

100 = 20172017 Revenue 100 ($806k) Expenses 100 ($794k) Net assets 100 ($2.4M)2018 Revenue 110 ($889k) Expenses 83 ($659k) Net assets 99 ($2.4M)2019 Revenue 116 ($938k) Expenses 117 ($928k) Net assets 104 ($2.5M)2020 Revenue 73 ($591k) Expenses 113 ($895k) Net assets 101 ($2.4M)2021 Revenue 110 ($890k) Expenses 106 ($841k) Net assets 116 ($2.8M)2022 Revenue 80 ($646k) Expenses 96 ($759k) Net assets 97 ($2.3M)2023 Revenue 91 ($736k) Expenses 70 ($555k) Net assets 108 ($2.6M)2024 Revenue 88 ($709k) Expenses 80 ($633k) Net assets 118 ($2.9M)2025 Revenue 124 ($996k) Expenses 90 ($715k) Net assets 136 ($3.3M)
'17'18'19'20'21'22'23'24'25
Revenue (124)Expenses (90)Net assets (136)Peer revenue range

Balance sheet

Total assets and total liabilities at each year end, in dollars. The largest one-year move in total assets was 2021 to 2022, from $3.0M to $2.5M (−16%).

$2.4M
$2.4M
$2.5M
$2.6M
$3.0M
$2.5M
$2.6M
$2.9M
$3.3M
'17'18'19'20'21'22'23'24'25
Total assetsTotal liabilities

How it's funded, over time

Each bar is one year's revenue split into where it came from, and every bar is the same height — these are shares, not amounts, so a year that raised twice as much looks the same size. Hover a bar for the split.

2017
2018
2019
2020
2021
2022
2023
2024
2025
ContributionsProgram revenueInvestmentOther

Government-grant reliance: 2021 17%. Grants only. Government contracts and fees sit inside program revenue.

94% of CHILDREN'S CARDIOMYOPATHY FOUNDATION INC’s revenue is contributions — more donation-reliant than the typical peer (82% for the typical peer).

This organization
Typical peer · 14,893 orgs

Surplus & reserves

Operating surplus or deficit each year, and months of liquidity in hand. 2 of the last 9 reported years ran a deficit.

$12k
’17
$230k
’18
$10k
’19
−$304k
’20
$49k
’21
−$113k
’22
$181k
’23
$76k
’24
$282k
’25
7.9
months of
reserve

Leadership and staff

The officers, directors, trustees and key employees listed on each return. Joined and no longer listed compare each filing with the year before, matching people by surname and first initial; a year after a gap, or a roster under three people, has no comparison.

The chief executive listed changed between the FY2021 and FY2022 filings.

'17'18'19'20'21'22'23'24'25
Listed777775478
Joined·+0+0+0+0+2+0+5+1
No longer listed·00004120
03Who funds it

Who funds it, year by year

2017 → 2023: the base broadened from 1 funder to 10 funders, grant income rose $4k → $47k.

6 of 19 of your funders are donor-advised or pass-through sponsors (tagged DAF) — 46% of grant dollars received. That money is really individual donors directing a sponsor; the institutions to cultivate are the non-DAF funders.

From the IRS filings of CHILDREN'S CARDIOMYOPATHY FOUNDATION INC’s funders (the co-funder graph). Association, not causation. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.

How concentrated its funding is

CHILDREN'S CARDIOMYOPATHY FOUNDATION INC leans on a few funders — its largest provides 32% of grant income and the top three 67%; half comes from just 2 funders.

the vertical line marks half of all grant income — 2 funders to its left

60% of the income these shares are computed over arrives through pass-through sponsors or from payers whose filings do not say what kind of payment it is. Concentration is still measured over all of it, because the money is real; what it does not support is a claim about how many institutions have chosen to fund CHILDREN'S CARDIOMYOPATHY FOUNDATION INC.

32%
largest funder
67%
top three
~5
effective funders

Largest funder’s share by year: 2017 100% · 2018 40% · 2019 45% · 2020 51% · 2021 69% · 2022 51% · 2023 33% — diversifying over time.

“Effective funders” = inverse Herfindahl index (1 / Σ shareᵢ²) — the number of equal-sized funders that would give the same concentration. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.

How long its funders stay

50% of CHILDREN'S CARDIOMYOPATHY FOUNDATION INC's funders are still giving 3 years after their first grant; 74% give in more than one year at all.

first grant+1y+2y+3y+4y+5y

Share of funders still giving k years after their first recorded grant, pooled across every acquisition cohort. A funder counts as retained in a year only if it made a grant that year. Measured to FY2023, the last fiscal year that has finished arriving — a funder cannot be counted as lapsed in a year most filers have not reached.

Where its funders are

CHILDREN'S CARDIOMYOPATHY FOUNDATION INC draws 97% of its grant income from funders outside New Jersey, across 8 states in all.

MN
IL
WI
NY
MA
IN
NJ
DC

In-state vs out-of-state, by year

’17
’18
’19
’20
’21
’22
’23
New Jersey out of state home

Funder states come from each funder’s own filing. $277k arriving through sponsors registered in 5 states is excluded from the map and the split above: a sponsor holds money on a donor’s behalf, so its registered address would place those dollars somewhere no donor need ever have been. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.

04Its place in the field

Against its field

CHILDREN'S CARDIOMYOPATHY FOUNDATION INC runs a healthier operating margin than three-quarters of the 7,883 health nonprofits its size.

Operating margin28% · top quartile
Months of reserve7.9mo · above the median
Revenue growth (annualized)3% · below the median

this organization peer median middle 50% of peers· 7,883 health nonprofits $100k–$1M, FY2025

Organizations like CHILDREN'S CARDIOMYOPATHY FOUNDATION INC

Organizations whose mission and program text most resemble this one, by semantic similarity over every organization in the US filings — the closest peers, and often the clearest route to shared or prospective funders.

In New Jersey

Nationally

05Profile & governance

Read directly from this organization’s own Form 990, as neutral context.

Where the money goes

71% of spending goes to programs.

Program 71%Management 16%Fundraising 13%

Governance

7
board members
86%
independent
✓Conflict-of-interest policy✓Whistleblower policy✓Document retention–Board reviewed the 990✓Audited financials

Public support

86%

Share of support from the public (Schedule A) — the basis for its public-charity status.

Footprint & structure

Files a return copy in 2 states

NY
NJ

Part of a family of 1 related entity

  • Research Foundation for Suny Ub · exempt

Screen this organization

A dated, signed PDF of the compliance screen for CHILDREN'S CARDIOMYOPATHY FOUNDATION INC: IRS status (Business Master File, Publication 78, auto-revocation), the OFAC sanctions lists, the Internal Revenue Bulletin, and California registration, with the Rev. Proc. 2018-32 §8.01 reliance elements stated element by element. Generated from the current files at the moment you download it.

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Screens are triage, not determinations; a source that cannot be read reports not screened, never clear. Screen this nonprofit · How the screen works · on the API as GET /api/screening/{ein}?format=pdf

Questions and answers

Who funds CHILDREN'S CARDIOMYOPATHY FOUNDATION INC?
CHILDREN'S CARDIOMYOPATHY FOUNDATION INC (New Jersey) receives grants from 19 organizations whose IRS filings report $596,933 to it, the largest being SCOTT RICHARDS NORTH STAR CHARITABLE FOUNDATION DBA SCOTT RICHARDS NORTH STAR ($191,590). 14 of them have funded it in more than one year.
How many funders does CHILDREN'S CARDIOMYOPATHY FOUNDATION INC have?
IRS filings report 19 organizations giving $596,933 in grants to CHILDREN'S CARDIOMYOPATHY FOUNDATION INC, 14 of which have funded it in more than one year.
Who is the largest funder of CHILDREN'S CARDIOMYOPATHY FOUNDATION INC?
SCOTT RICHARDS NORTH STAR CHARITABLE FOUNDATION DBA SCOTT RICHARDS NORTH STAR is the largest funder on record, with $191,590 in grants. The full list of funders is on this page.
How can an organization like CHILDREN'S CARDIOMYOPATHY FOUNDATION INC find more funders?
Start with the funders already giving here, then look at the foundations that back similar organizations in New Jersey. The funding by cause and by state pages list the largest funders for a given area and how to approach them.

These figures are read directly from IRS Form 990 / 990-PF e-file XML: this organization’s own return for FY2025 (financials across 2017–2025), and the filings of 19 funders that report grants to it. “On record” means captured in the filings we have parsed — a funder that does not e-file, or whose grant detail is not itemized, will not appear. Filings run roughly 12–24 months behind. Trends on this page end at FY2023, the last fiscal year that has finished arriving; later years are shown and marked, and move no figure. Data on this page was exported October 14, 2026. What this page cannot tell you · view filing