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Missouri · Nonprofit

PKD Foundation

PKD Foundation (Missouri) receives grants from 188 organizations whose IRS filings report $11,825,435 to it, the largest being DONOR ADVISED CHARITABLE GIVING INC ($1,891,191). 102 of them have funded it in more than one year, and 66% of the money arrives through donor-advised or pass-through sponsors rather than from an institution directly.

Revenue FY2025
$11M
Funders on record
188
Grants received
$12M
Net assets
$36M
102/188 repeat funderspeak grant-dependency 12%
01What it does

What PKD Foundation does

Mission

We give hope. We fund research, advocate for patients, and build a community for all impacted by pkd.

As stated on its FY2025 Form 990.

Programs

  1. Research - see schedule o

    $4,751,680 spentof which $3,060,000 as grants
    65% of program spending
  2. Awareness and advocacy - see schedule o

    $1,551,994 spent
    21% of program spending
  3. Education and support - see schedule o

    $951,944 spent
    13% of program spending

The 3 programs described on its FY2024 Form 990, listed largest first by expense. Program spending in total: $7,255,618.

02The organization over time

The organization over time

Each line starts at 100 in 2017, so what you read is the shape rather than the size: 150 means half as much again as 2017, 50 means half. The number beside each label in the key is where it ended.

100 = 20172017 Revenue 100 ($5.8M) Expenses 100 ($6.1M) Net assets 100 ($4.7M)2018 Revenue 224 ($13M) Expenses 126 ($7.7M) Net assets 213 ($10M)2019 Revenue 117 ($6.8M) Expenses 133 ($8.2M) Net assets 186 ($8.8M)2020 Revenue 279 ($16M) Expenses 118 ($7.2M) Net assets 377 ($18M)2021 Revenue 155 ($9.0M) Expenses 111 ($6.8M) Net assets 478 ($23M)2022 Revenue 319 ($18M) Expenses 120 ($7.4M) Net assets 647 ($30M)2023 Revenue 178 ($10M) Expenses 148 ($9.1M) Net assets 688 ($32M)2024 Revenue 152 ($8.8M) Expenses 158 ($9.6M) Net assets 715 ($34M)2025 Revenue 190 ($11M) Expenses 161 ($9.9M) Net assets 767 ($36M)
'17'18'19'20'21'22'23'24'25
Revenue (190)Expenses (161)Net assets (767)

Balance sheet

Total assets and total liabilities at each year end, in dollars. The largest one-year move in total assets was 2019 to 2020, from $11M to $21M (+97%).

$5.2M
$11M
$11M
$21M
$26M
$31M
$33M
$35M
$37M
'17'18'19'20'21'22'23'24'25
Total assetsTotal liabilities

How it's funded, over time

Each bar is one year's revenue split into where it came from, and every bar is the same height — these are shares, not amounts, so a year that raised twice as much looks the same size. Hover a bar for the split.

2017
2018
2019
2020
2021
2022
2023
2024
2025
ContributionsProgram revenueInvestmentOther

Government-grant reliance: 2021 4% · 2022 3%. Grants only. Government contracts and fees sit inside program revenue.

Surplus & reserves

Operating surplus or deficit each year, and months of liquidity in hand. 3 of the last 9 reported years ran a deficit.

−$332k
’17
$5.2M
’18
−$1.4M
’19
$8.9M
’20
$2.1M
’21
$11M
’22
$1.2M
’23
−$826k
’24
$1.1M
’25
11
months of
reserve

Leadership and staff

The officers, directors, trustees and key employees listed on each return. Joined and no longer listed compare each filing with the year before, matching people by surname and first initial; a year after a gap, or a roster under three people, has no comparison.

Chief executive

Susan Bushnell

President & CEO

Board chair

Navin Manglani

Director, chair

As listed on its FY2025 Form 990.

The chief executive listed changed between the FY2018 and FY2019, and between the FY2019 and FY2020, and between the FY2020 and FY2021 filings.

'17'18'19'20'21'22'23'24'25
Listed222223222217212121
Joined·+4+22+22+22+3+7+10+3
No longer listed·421232283103
03Who funds it

Who funds it, year by year

2017 → 2023: the base broadened from 48 funders to 69 funders, grant income rose $576k → $1.2M.

36 of 188 of your funders are donor-advised or pass-through sponsors (tagged DAF) — 66% of grant dollars received. That money is really individual donors directing a sponsor; the institutions to cultivate are the non-DAF funders.

From the IRS filings of PKD Foundation’s funders (the co-funder graph). Top 30 of 188 funders by total. Association, not causation. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.

How concentrated its funding is

PKD Foundation has a broad base — no single funder exceeds 16% of grant income, and it takes 5 funders to reach half.

the vertical line marks half of all grant income — 5 funders to its left

70% of the income these shares are computed over arrives through pass-through sponsors or from payers whose filings do not say what kind of payment it is. Concentration is still measured over all of it, because the money is real; what it does not support is a claim about how many institutions have chosen to fund PKD Foundation.

16%
largest funder
37%
top three
~15
effective funders

Largest funder’s share by year: 2017 13% · 2018 42% · 2019 16% · 2020 15% · 2021 18% · 2022 46% · 2023 20% — growing more concentrated.

“Effective funders” = inverse Herfindahl index (1 / Σ shareᵢ²) — the number of equal-sized funders that would give the same concentration. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.

How long its funders stay

38% of PKD Foundation's funders are still giving 3 years after their first grant; 54% give in more than one year at all.

first grant+1y+2y+3y+4y+5y+6y

Share of funders still giving k years after their first recorded grant, pooled across every acquisition cohort. A funder counts as retained in a year only if it made a grant that year. Measured to FY2023, the last fiscal year that has finished arriving — a funder cannot be counted as lapsed in a year most filers have not reached.

Where its funders are

66% of PKD Foundation's grant income arrives through donor-advised or pass-through sponsors, whose addresses record where the money is held rather than where the donor is. Of the $4.0M that is directly attributable, 97% of it comes from funders outside Missouri, across 34 states.

WA
MT
MN
IL
WI
MI
NY
MA
OR
NV
IA
IN
OH
PA
NJ
CT
RI
CA
UT
CO
NE
MO
VA
DE
NM
KS
TN
NC
DC
LA
AL
GA
TX
FL

In-state vs out-of-state, by year

’17
’18
’19
’20
’21
’22
’23
Missouri out of state home

Funder states come from each funder’s own filing. $7.8M arriving through sponsors registered in 22 states is excluded from the map and the split above: a sponsor holds money on a donor’s behalf, so its registered address would place those dollars somewhere no donor need ever have been. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.

04Its place in the field

Organizations like PKD Foundation

Organizations whose mission and program text most resemble this one, by semantic similarity over every organization in the US filings — the closest peers, and often the clearest route to shared or prospective funders.

In Missouri

Nationally

05Profile & governance

Read directly from this organization’s own Form 990, as neutral context.

Where the money goes

73% of spending goes to programs.

Program 73%Management 17%Fundraising 9%

Governance

14
board members
93%
independent
✓Conflict-of-interest policy✓Whistleblower policy✓Document retention✓Board reviewed the 990✓Audited financials

Public support

81%

Share of support from the public (Schedule A) — the basis for its public-charity status.

Footprint & structure

Files a return copy in 36 states

AK
ME
NH
WA
ND
MN
IL
WI
MI
NY
MA
OR
OH
PA
NJ
CT
RI
CA
UT
CO
KY
WV
VA
MD
NM
KS
AR
TN
NC
SC
HI
OK
MS
AL
GA
FL

Screen this organization

A dated, signed PDF of the compliance screen for PKD Foundation: IRS status (Business Master File, Publication 78, auto-revocation), the OFAC sanctions lists, the Internal Revenue Bulletin, and California registration, with the Rev. Proc. 2018-32 §8.01 reliance elements stated element by element. Generated from the current files at the moment you download it.

A paid feature, included from the $75 plan up. Sign in to download.

Screens are triage, not determinations; a source that cannot be read reports not screened, never clear. Screen this nonprofit · How the screen works · on the API as GET /api/screening/{ein}?format=pdf

Questions and answers

Who funds PKD Foundation?
PKD Foundation (Missouri) receives grants from 188 organizations whose IRS filings report $11,825,435 to it, the largest being DONOR ADVISED CHARITABLE GIVING INC ($1,891,191). 102 of them have funded it in more than one year, and 66% of the money arrives through donor-advised or pass-through sponsors rather than from an institution directly.
How many funders does PKD Foundation have?
IRS filings report 188 organizations giving $11,825,435 in grants to PKD Foundation, 102 of which have funded it in more than one year.
Who is the largest funder of PKD Foundation?
DONOR ADVISED CHARITABLE GIVING INC is the largest funder on record, with $1,891,191 in grants. The full list of funders is on this page.
How can an organization like PKD Foundation find more funders?
Start with the funders already giving here, then look at the foundations that back similar organizations in Missouri. The funding by cause and by state pages list the largest funders for a given area and how to approach them.

These figures are read directly from IRS Form 990 / 990-PF e-file XML: this organization’s own return for FY2025 (financials across 2017–2025), and the filings of 188 funders that report grants to it. “On record” means captured in the filings we have parsed — a funder that does not e-file, or whose grant detail is not itemized, will not appear. Filings run roughly 12–24 months behind. Trends on this page end at FY2023, the last fiscal year that has finished arriving; later years are shown and marked, and move no figure. Data on this page was exported October 22, 2026. What this page cannot tell you · view filing