Maryland · Nonprofit
IMMUNE DEFICIENCY FOUNDATION
IMMUNE DEFICIENCY FOUNDATION (Maryland) receives grants from 79 organizations whose IRS filings report $1,389,403 to it, the largest being CENCORA IMPACT FOUNDATION ($166,600). 39 of them have funded it in more than one year.
- Revenue FY2024
- $10M
- Funders on record
- 79
- Grants received
- $1.4M
- Net assets
- $17M
What Immune Deficiency Foundation does
Mission
The Immune Deficiency Foundation improves the diagnosis, treatment, and quality of life for every person affected by primary immunodeficiency. We foster a community that is connected, engaged, and empowered through advocacy, education, and research.
As stated on its FY2024 Form 990.
Programs
Immune Deficiency Foundation provided educational programs and services for patients and families living with primary immunodeficiencies (pi). In 2025, approximately 34,030 individuals were provided with education and support through publications, webinars, videos and podcast episodes, get connected group meetings, and teen and young adult activities. There were 2 million website visitors, over 480,000 views on youtube and 2,600 compromised documentary screening requests. Since the launch, more than 14,000 people have utilized the immune system self-assessment tool on our website.
$2,949,291 spentof which $355,206 as grants50% of program spendingThe pi community relies on individual assistance including but not limited to answering insurance questions, locating a specialist in their area, finding treatment information, and learning more about their diagnosis. Our patient advocacy specialists provided answers to over 2,200 questions from individuals seeking education, information, and assistance. The organization also works at the federal and state levels to educate lawmakers and the public about issues such as vaccine access and insurance coverage challenges, that impact those who are immunocompromised. A strong volunteer grassroots advocacy network, including health access advocate volunteers, inform policymakers about issues affecting those with pi. In 2025, there were more than 3,650 letters and messages sent to legislators and executive officials to ensure that people with pi can live healthy and productive lives with excellent treatment options and access to the most appropriate healthcare available.
$1,555,717 spent27% of program spendingTo improve the diagnosis, treatment, and quality of life of those affected by pi, there are several initiatives to provide resources directly to the medical community, including attending fourteen medical conferences, providing information, education and resources to over 14,000 healthcare professionals, and administering a consulting immunologist program that allows clinicians to consult with an expert clinical immunologist to obtain valuable diagnostic, treatment, and disease management information. In 2025 we launched an accredited continuing medical education (cme) program to equip healthcare professionals with education and strategies for early pi detection, personalized care and overcoming access barriers. Because medical research is a priority, the research grant program funded four research grants for pi related research in 2025, totaling over 200,000.
$1,363,676 spentof which $254,139 as grants$38,600 earned by the program23% of program spending
The 3 programs described on its FY2025 Form 990, listed largest first by expense. Program spending in total: $5,868,684.
The organization over time
Each line starts at 100 in 2017, so what you read is the shape rather than the size: 150 means half as much again as 2017, 50 means half. The number beside each label in the key is where it ended. The shaded band is where the middle 50% of its peers' revenue would sit, given their growth.
Balance sheet
Total assets and total liabilities at each year end, in dollars. The largest one-year move in total assets was 2022 to 2023, from $15M to $17M (+19%).
How it's funded, over time
Each bar is one year's revenue split into where it came from, and every bar is the same height — these are shares, not amounts, so a year that raised twice as much looks the same size. Hover a bar for the split.
Government-grant reliance: 2017 15% · 2018 18% · 2019 20% · 2020 19% · 2021 27% · 2022 11% · 2023 4% · 2024 0%. Grants only. Government contracts and fees sit inside program revenue.
94% of IMMUNE DEFICIENCY FOUNDATION’s revenue is contributions — more reliant on donations than three-quarters of its peers (7% for the typical peer).
Surplus & reserves
Operating surplus or deficit each year, and months of liquidity in hand. 2 of the last 8 reported years ran a deficit.
reserve
Leadership and staff
The officers, directors, trustees and key employees listed on each return. Joined and no longer listed compare each filing with the year before, matching people by surname and first initial; a year after a gap, or a roster under three people, has no comparison.
Who funds it, year by year
2017 → 2023: the base broadened from 19 funders to 33 funders, grant income fell $271k → $234k.
13 of 79 of your funders are donor-advised or pass-through sponsors (tagged DAF) — 44% of grant dollars received. That money is really individual donors directing a sponsor; the institutions to cultivate are the non-DAF funders.
From the IRS filings of IMMUNE DEFICIENCY FOUNDATION’s funders (the co-funder graph). Top 30 of 79 funders by total. Association, not causation. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How concentrated its funding is
IMMUNE DEFICIENCY FOUNDATION has a broad base — no single funder exceeds 12% of grant income, and it takes 6 funders to reach half.
the vertical line marks half of all grant income — 6 funders to its left
66% of the income these shares are computed over arrives through pass-through sponsors or from payers whose filings do not say what kind of payment it is. Concentration is still measured over all of it, because the money is real; what it does not support is a claim about how many institutions have chosen to fund IMMUNE DEFICIENCY FOUNDATION.
Largest funder’s share by year: 2017 62% · 2018 31% · 2019 26% · 2020 17% · 2021 18% · 2022 15% · 2023 25% — diversifying over time.
“Effective funders” = inverse Herfindahl index (1 / Σ shareᵢ²) — the number of equal-sized funders that would give the same concentration. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How long its funders stay
44% of IMMUNE DEFICIENCY FOUNDATION's funders are still giving 3 years after their first grant; 49% give in more than one year at all.
Share of funders still giving k years after their first recorded grant, pooled across every acquisition cohort. A funder counts as retained in a year only if it made a grant that year. Measured to FY2023, the last fiscal year that has finished arriving — a funder cannot be counted as lapsed in a year most filers have not reached.
Where its funders are
IMMUNE DEFICIENCY FOUNDATION draws 94% of its grant income from funders outside Maryland, across 24 states in all.
In-state vs out-of-state, by year
Funder states come from each funder’s own filing. $615k arriving through sponsors registered in 11 states is excluded from the map and the split above: a sponsor holds money on a donor’s behalf, so its registered address would place those dollars somewhere no donor need ever have been. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
Against its field
IMMUNE DEFICIENCY FOUNDATION holds deeper cash reserves than three-quarters of the 4,580 health nonprofits its size.
this organization peer median middle 50% of peers· 4,580 health nonprofits $10M–$100M, FY2024
Government funding IMMUNE DEFICIENCY FOUNDATION receives
Grants and contracts to this organization from federal (USASpending) and state checkbooks, reconciled to its EIN. $8.9M on record.
- Department of Health and Human Services$8.9M
Federal grants vs contracts are distinguished; state line items keep their reported category. Matched by name + geography (the BMF), so coverage is partial and precision-first.
Organizations like IMMUNE DEFICIENCY FOUNDATION
Organizations whose mission and program text most resemble this one, by semantic similarity over every organization in the US filings — the closest peers, and often the clearest route to shared or prospective funders.
In Maryland
Nationally
Read directly from this organization’s own Form 990, as neutral context.
Where the money goes
74% of spending goes to programs.
Governance
Public support
54%
Share of support from the public (Schedule A) — the basis for its public-charity status.
Footprint & structure
Files a return copy in 38 states
Screen this organization
A dated, signed PDF of the compliance screen for IMMUNE DEFICIENCY FOUNDATION: IRS status (Business Master File, Publication 78, auto-revocation), the OFAC sanctions lists, the Internal Revenue Bulletin, and California registration, with the Rev. Proc. 2018-32 §8.01 reliance elements stated element by element. Generated from the current files at the moment you download it.
Screens are triage, not determinations; a source that cannot be read reports not screened, never clear. Screen this nonprofit · How the screen works · on the API as GET /api/screening/{ein}?format=pdf
Questions and answers
- Who funds IMMUNE DEFICIENCY FOUNDATION?
- IMMUNE DEFICIENCY FOUNDATION (Maryland) receives grants from 79 organizations whose IRS filings report $1,389,403 to it, the largest being CENCORA IMPACT FOUNDATION ($166,600). 39 of them have funded it in more than one year.
- How many funders does IMMUNE DEFICIENCY FOUNDATION have?
- IRS filings report 79 organizations giving $1,389,403 in grants to IMMUNE DEFICIENCY FOUNDATION, 39 of which have funded it in more than one year.
- Who is the largest funder of IMMUNE DEFICIENCY FOUNDATION?
- CENCORA IMPACT FOUNDATION is the largest funder on record, with $166,600 in grants. The full list of funders is on this page.
- How can an organization like IMMUNE DEFICIENCY FOUNDATION find more funders?
- Start with the funders already giving here, then look at the foundations that back similar organizations in Maryland. The funding by cause and by state pages list the largest funders for a given area and how to approach them.
These figures are read directly from IRS Form 990 / 990-PF e-file XML: this organization’s own return for FY2024 (financials across 2017–2024), and the filings of 79 funders that report grants to it. “On record” means captured in the filings we have parsed — a funder that does not e-file, or whose grant detail is not itemized, will not appear. Filings run roughly 12–24 months behind. Trends on this page end at FY2023, the last fiscal year that has finished arriving; later years are shown and marked, and move no figure. Data on this page was exported October 22, 2026. What this page cannot tell you · view filing