Oklahoma · Nonprofit
GLOBAL FOUNDATION FOR PEROXISOMAL DISORDERS
GLOBAL FOUNDATION FOR PEROXISOMAL DISORDERS (Oklahoma) receives grants from 27 organizations whose IRS filings report $798,994 to it, the largest being NETWORK FOR GOOD ($268,669). 13 of them have funded it in more than one year, and 63% of the money arrives through donor-advised or pass-through sponsors rather than from an institution directly.
- Revenue FY2024
- $723k
- Funders on record
- 27
- Grants received
- $799k
- Net assets
- $176k
What Global Foundation for Peroxisomal Disorders does
Mission
The mission of the Global Foundation for Peroxisomal Disorders is to improve the lives of individuals with peroxisomal disorders by funding research, championing scientific collaboration, and empowering families and professionals through educational programs and support services.
As stated on its FY2024 Form 990.
Programs
Family and scientific conferencethe 2024 family and scientific conference was held in washington, d.c., where the gfpd hosted the fda for an externally-led patient-focused drug development (el-pfdd) meeting. The meeting was attended by 281 individuals, including 35 diagnosed patients, 82 primary caregivers, and other advocates and professionals. This meeting was the focal point of the conference and underscored the need for better treatments that address the broad symptoms and impacts of peroxisomal disorders. A final voice of the patient report will be published in 2025 as an analysis of the el-pfdd meeting. The conference also provided families with medical and research updates from our medical and scientific advisory board (msab), as well as one-on-one professional pop-ins with many of the msab members.
$617,916 spent$24,152 earned by the program67% of program spendingResearch and medicinethe gfpd continues to maintain and grow a strong committee of physicians and scientists as part of our msab. These individuals currently comprise researchers, clinicians, and experts from north america and europe who treat and assist peroxisomal patients through clinical medicine and research. Primary research partners include mcgill university, baylor college of medicine, university of southern california, university of amsterdam, the kennedy krieger institute, and montclair state university. Additionally, the gfpd has clinical advisors from a number of children's hospitals throughout north america. To further gfpd awareness and networking, representatives held meetings with the national organization for rare disorders, global genes, the american college of medical genetics, the notre dame rare disease symposium, the world orphan drug congress, and the american association for the study of liver disease.
$275,789 spentof which $92,768 as grants30% of program spendingWebinar and virtual event seriesthe gfpd is the premier resource for information, clinical direction, treatment guidelines, networking, medical linkage, and online learning for patients, families, caregivers, clinicians, physicians, and scientific professionals with a range of familiarity and expertise in peroxisomal disorders and their co-morbidities. One of the gfpd's flagship programs is its webinar and virtual event series. This program provides year-round events for patients, families, and professionals. The program is offered at no cost to patients, families, and caregivers, and provides crucial support, education, advocacy tools, and resources. The virtual environment enables more flexibility in scheduling, recording, and disseminating information to patients, families, and caregivers, which increases access to our community. The gfpd webinar and virtual event series provides opportunities for consistent and direct engagement with the community we serve, and shapes our strategy for improving webinars, other family programs, and research collaborations. In october, a first-time event proved the perfect example of the impact of virtual webinars and events. A "relax and…
$34,098 spent4% of program spending
The 3 programs described on its FY2024 Form 990, listed largest first by expense. Program spending in total: $927,803.
The organization over time
Each line starts at 100 in 2017, so what you read is the shape rather than the size: 150 means half as much again as 2017, 50 means half. The number beside each label in the key is where it ended. The shaded band is where the middle 50% of its peers' revenue would sit, given their growth.
Balance sheet
Total assets and total liabilities at each year end, in dollars. The largest one-year move in total assets was 2023 to 2024, from $680k to $254k (−63%).
How it's funded, over time
Each bar is one year's revenue split into where it came from, and every bar is the same height — these are shares, not amounts, so a year that raised twice as much looks the same size. Hover a bar for the split.
Government-grant reliance: 2017 0% · 2018 0% · 2019 0% · 2021 2%. Grants only. Government contracts and fees sit inside program revenue.
93% of GLOBAL FOUNDATION FOR PEROXISOMAL DISORDERS’s revenue is contributions — more donation-reliant than the typical peer (82% for the typical peer).
Surplus & reserves
Operating surplus or deficit each year, and months of liquidity in hand. 5 of the last 8 reported years ran a deficit.
reserve
Leadership and staff
The officers, directors, trustees and key employees listed on each return. Joined and no longer listed compare each filing with the year before, matching people by surname and first initial; a year after a gap, or a roster under three people, has no comparison.
Board chair
Chris Ostertag
Chair
As listed on its FY2024 Form 990.
The chief executive listed changed between the FY2020 and FY2021 filings.
Who funds it, year by year
2017 → 2023: the base broadened from 4 funders to 9 funders, grant income rose $38k → $161k.
11 of 27 of your funders are donor-advised or pass-through sponsors (tagged DAF) — 63% of grant dollars received. That money is really individual donors directing a sponsor; the institutions to cultivate are the non-DAF funders.
From the IRS filings of GLOBAL FOUNDATION FOR PEROXISOMAL DISORDERS’s funders (the co-funder graph). Association, not causation. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How concentrated its funding is
GLOBAL FOUNDATION FOR PEROXISOMAL DISORDERS leans on a few funders — its largest provides 34% of grant income and the top three 64%; half comes from just 2 funders.
the vertical line marks half of all grant income — 2 funders to its left
93% of the income these shares are computed over arrives through pass-through sponsors or from payers whose filings do not say what kind of payment it is. Concentration is still measured over all of it, because the money is real; what it does not support is a claim about how many institutions have chosen to fund GLOBAL FOUNDATION FOR PEROXISOMAL DISORDERS.
Largest funder’s share by year: 2017 49% · 2018 69% · 2019 40% · 2020 63% · 2021 41% · 2022 53% · 2023 32% — diversifying over time.
“Effective funders” = inverse Herfindahl index (1 / Σ shareᵢ²) — the number of equal-sized funders that would give the same concentration. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How long its funders stay
38% of GLOBAL FOUNDATION FOR PEROXISOMAL DISORDERS's funders are still giving 3 years after their first grant; 48% give in more than one year at all.
Share of funders still giving k years after their first recorded grant, pooled across every acquisition cohort. A funder counts as retained in a year only if it made a grant that year. Measured to FY2023, the last fiscal year that has finished arriving — a funder cannot be counted as lapsed in a year most filers have not reached.
Where its funders are
63% of GLOBAL FOUNDATION FOR PEROXISOMAL DISORDERS's grant income arrives through donor-advised or pass-through sponsors, whose addresses record where the money is held rather than where the donor is. Of the $296k that is directly attributable, 100% of it comes from funders outside Oklahoma, across 11 states.
In-state vs out-of-state, by year
Funder states come from each funder’s own filing. $503k arriving through sponsors registered in 10 states is excluded from the map and the split above: a sponsor holds money on a donor’s behalf, so its registered address would place those dollars somewhere no donor need ever have been. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
Against its field
GLOBAL FOUNDATION FOR PEROXISOMAL DISORDERS has grown faster than half of the 13,754 health nonprofits its size.
this organization peer median middle 50% of peers· 13,754 health nonprofits $100k–$1M, FY2024
Organizations like GLOBAL FOUNDATION FOR PEROXISOMAL DISORDERS
Organizations whose mission and program text most resemble this one, by semantic similarity over every organization in the US filings — the closest peers, and often the clearest route to shared or prospective funders.
In Oklahoma
Nationally
Read directly from this organization’s own Form 990, as neutral context.
Where the money goes
78% of spending goes to programs.
Governance
Public support
86%
Share of support from the public (Schedule A) — the basis for its public-charity status.
Footprint & structure
Files a return copy in 35 states
Part of a family of 1 related entity
- Hues for Hope · exempt
Screen this organization
A dated, signed PDF of the compliance screen for GLOBAL FOUNDATION FOR PEROXISOMAL DISORDERS: IRS status (Business Master File, Publication 78, auto-revocation), the OFAC sanctions lists, the Internal Revenue Bulletin, and California registration, with the Rev. Proc. 2018-32 §8.01 reliance elements stated element by element. Generated from the current files at the moment you download it.
Screens are triage, not determinations; a source that cannot be read reports not screened, never clear. Screen this nonprofit · How the screen works · on the API as GET /api/screening/{ein}?format=pdf
Questions and answers
- Who funds GLOBAL FOUNDATION FOR PEROXISOMAL DISORDERS?
- GLOBAL FOUNDATION FOR PEROXISOMAL DISORDERS (Oklahoma) receives grants from 27 organizations whose IRS filings report $798,994 to it, the largest being NETWORK FOR GOOD ($268,669). 13 of them have funded it in more than one year, and 63% of the money arrives through donor-advised or pass-through sponsors rather than from an institution directly.
- How many funders does GLOBAL FOUNDATION FOR PEROXISOMAL DISORDERS have?
- IRS filings report 27 organizations giving $798,994 in grants to GLOBAL FOUNDATION FOR PEROXISOMAL DISORDERS, 13 of which have funded it in more than one year.
- Who is the largest funder of GLOBAL FOUNDATION FOR PEROXISOMAL DISORDERS?
- NETWORK FOR GOOD is the largest funder on record, with $268,669 in grants. The full list of funders is on this page.
- How can an organization like GLOBAL FOUNDATION FOR PEROXISOMAL DISORDERS find more funders?
- Start with the funders already giving here, then look at the foundations that back similar organizations in Oklahoma. The funding by cause and by state pages list the largest funders for a given area and how to approach them.
These figures are read directly from IRS Form 990 / 990-PF e-file XML: this organization’s own return for FY2024 (financials across 2017–2024), and the filings of 27 funders that report grants to it. “On record” means captured in the filings we have parsed — a funder that does not e-file, or whose grant detail is not itemized, will not appear. Filings run roughly 12–24 months behind. Trends on this page end at FY2023, the last fiscal year that has finished arriving; later years are shown and marked, and move no figure. Data on this page was exported October 14, 2026. What this page cannot tell you · view filing