New Jersey · Nonprofit
flok Health FKA NATIONAL PKU NEWS
flok Health FKA NATIONAL PKU NEWS (New Jersey) receives grants from 15 organizations whose IRS filings report $4,377,620 to it, the largest being VANGUARD CHARITABLE ENDOWMENT PROGRAM ($2,301,229). 12 of them have funded it in more than one year, and 79% of the money arrives through donor-advised or pass-through sponsors rather than from an institution directly.
- Revenue FY2024
- $1.8M
- Funders on record
- 15
- Grants received
- $4.4M
- Net assets
- $1.3M
What flok Health FKA NATIONAL PKU NEWS does
Mission
flok Health (the Organization), formerly National PKU News, is a nonprofit 501(c)(3) organization supporting individuals and families affected by inherited disorders of protein metabolism, including Phenylketonuria (PKU), Classical Homocystinuria (HCU), Maple Syrup Urine Disease (MSUD), Tyrosinemia, Organic Acidemias, and Urea Cycle Disorders (UCDs). These rare genetic conditions disrupt the bodys ability to process protein, which can lead to serious neurological and physical harmincluding developmental delays, seizures, coma, and deathif not carefully managed through lifelong treatment.
As stated on its FY2024 Form 990.
Programs
Daily Care: To improve everyday life with a low-protein disorder, flok Health develops and maintains tools and resources that support dietary management and health tracking: flok App: Publicly released in November 2024, the flok mobile app integrates dietary tracking, symptom and activity journaling, and biometric data collection for people managing flok conditions. It is designed to support individuals and their care teams in making informed decisions about health and nutrition. Cook for Love: A culinary education platform offering free, low-protein recipes and meal planning guidance. The website continues to serve over 13,000 registered users and remains a critical daily care resource. Pocket Books: The Organization publishes and distributes printed guides listing protein and amino acid values for common foods, tailored to individuals with specific metabolic conditions. These materials are widely used by families and clinicians to support medical nutrition therapy.
$737,748 spent61% of program spendingCommunity: flok Health fosters connection and belonging through direct community engagement, including the planning and hosting of camps and retreats for children, adults, and families affected by low-protein metabolic conditions. These events offer safe, supportive environments to build relationships, share lived experiences, and practice key skills related to dietary care. Community programs are designed to empower individuals and strengthen a network of mutual support that spans generations and geographies.
$419,880 spent35% of program spendingResearch: While flok Health did not conduct original research in 2024, the organization focused significant effort on preparing the infrastructure, partnerships, and regulatory pathways to enable future community-led studies. This includes developing features within the flok app to capture real-world data, establishing ethical review processes, and convening stakeholders to shape a research agenda grounded in patient priorities. The ultimate goal is to fuel a natural history of these rare conditions and accelerate the development of better treatments and improved standards of care.
$48,754 spent4% of program spending
The 3 programs described on its FY2024 Form 990, listed largest first by expense. Program spending in total: $1,206,382.
The organization over time
Each line starts at 100 in 2017, so what you read is the shape rather than the size: 150 means half as much again as 2017, 50 means half. The number beside each label in the key is where it ended.
Balance sheet
Total assets and total liabilities at each year end, in dollars. The largest one-year move in total assets was 2021 to 2022, from $697k to $1.3M (+82%).
How it's funded, over time
Each bar is one year's revenue split into where it came from, and every bar is the same height — these are shares, not amounts, so a year that raised twice as much looks the same size. Hover a bar for the split.
Government-grant reliance: 2017 0% · 2018 0% · 2019 0% · 2020 0% · 2021 4%. Grants only. Government contracts and fees sit inside program revenue.
Surplus & reserves
Operating surplus or deficit each year, and months of liquidity in hand. 1 of the last 8 reported years ran a deficit.
reserve
Leadership and staff
The officers, directors, trustees and key employees listed on each return. Joined and no longer listed compare each filing with the year before, matching people by surname and first initial; a year after a gap, or a roster under three people, has no comparison.
Who funds it, year by year
2018 → 2023: the base broadened from 1 funder to 7 funders, grant income rose $50 → $237k.
7 of 15 of your funders are donor-advised or pass-through sponsors (tagged DAF) — 79% of grant dollars received. That money is really individual donors directing a sponsor; the institutions to cultivate are the non-DAF funders.
From the IRS filings of flok Health FKA NATIONAL PKU NEWS’s funders (the co-funder graph). Association, not causation. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How concentrated its funding is
flok Health FKA NATIONAL PKU NEWS leans on a few funders — its largest provides 53% of grant income and the top three 81%; half comes from just 1 funder.
the vertical line marks half of all grant income — 1 funder to its left
90% of the income these shares are computed over arrives through pass-through sponsors or from payers whose filings do not say what kind of payment it is. Concentration is still measured over all of it, because the money is real; what it does not support is a claim about how many institutions have chosen to fund flok Health FKA NATIONAL PKU NEWS.
Largest funder’s share by year: 2018 100% · 2019 63% · 2020 53% · 2021 65% · 2022 87% · 2023 63% — diversifying over time.
“Effective funders” = inverse Herfindahl index (1 / Σ shareᵢ²) — the number of equal-sized funders that would give the same concentration. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How long its funders stay
20% of flok Health FKA NATIONAL PKU NEWS's funders are still giving 3 years after their first grant; 80% give in more than one year at all.
Share of funders still giving k years after their first recorded grant, pooled across every acquisition cohort. A funder counts as retained in a year only if it made a grant that year. Measured to FY2023, the last fiscal year that has finished arriving — a funder cannot be counted as lapsed in a year most filers have not reached.
Where its funders are
79% of flok Health FKA NATIONAL PKU NEWS's grant income arrives through donor-advised or pass-through sponsors, whose addresses record where the money is held rather than where the donor is. Of the $909k that is directly attributable, 100% of it comes from funders outside New Jersey, across 7 states.
In-state vs out-of-state, by year
Funder states come from each funder’s own filing. $3.5M arriving through sponsors registered in 7 states is excluded from the map and the split above: a sponsor holds money on a donor’s behalf, so its registered address would place those dollars somewhere no donor need ever have been. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
Organizations like flok Health FKA NATIONAL PKU NEWS
Organizations whose mission and program text most resemble this one, by semantic similarity over every organization in the US filings — the closest peers, and often the clearest route to shared or prospective funders.
In New Jersey
Nationally
Read directly from this organization’s own Form 990, as neutral context.
Where the money goes
87% of spending goes to programs.
Governance
Public support
79%
Share of support from the public (Schedule A) — the basis for its public-charity status.
Footprint & structure
Files a return copy in 28 states
Screen this organization
A dated, signed PDF of the compliance screen for flok Health FKA NATIONAL PKU NEWS: IRS status (Business Master File, Publication 78, auto-revocation), the OFAC sanctions lists, the Internal Revenue Bulletin, and California registration, with the Rev. Proc. 2018-32 §8.01 reliance elements stated element by element. Generated from the current files at the moment you download it.
Screens are triage, not determinations; a source that cannot be read reports not screened, never clear. Screen this nonprofit · How the screen works · on the API as GET /api/screening/{ein}?format=pdf
Questions and answers
- Who funds flok Health FKA NATIONAL PKU NEWS?
- flok Health FKA NATIONAL PKU NEWS (New Jersey) receives grants from 15 organizations whose IRS filings report $4,377,620 to it, the largest being VANGUARD CHARITABLE ENDOWMENT PROGRAM ($2,301,229). 12 of them have funded it in more than one year, and 79% of the money arrives through donor-advised or pass-through sponsors rather than from an institution directly.
- How many funders does flok Health FKA NATIONAL PKU NEWS have?
- IRS filings report 15 organizations giving $4,377,620 in grants to flok Health FKA NATIONAL PKU NEWS, 12 of which have funded it in more than one year.
- Who is the largest funder of flok Health FKA NATIONAL PKU NEWS?
- VANGUARD CHARITABLE ENDOWMENT PROGRAM is the largest funder on record, with $2,301,229 in grants. The full list of funders is on this page.
- How can an organization like flok Health FKA NATIONAL PKU NEWS find more funders?
- Start with the funders already giving here, then look at the foundations that back similar organizations in New Jersey. The funding by cause and by state pages list the largest funders for a given area and how to approach them.
Play a game about who funds flok Health FKA NATIONAL PKU NEWS →
These figures are read directly from IRS Form 990 / 990-PF e-file XML: this organization’s own return for FY2024 (financials across 2017–2024), and the filings of 15 funders that report grants to it. “On record” means captured in the filings we have parsed — a funder that does not e-file, or whose grant detail is not itemized, will not appear. Filings run roughly 12–24 months behind. Trends on this page end at FY2023, the last fiscal year that has finished arriving; later years are shown and marked, and move no figure. Data on this page was exported October 22, 2026. What this page cannot tell you · view filing