Kansas · Nonprofit
Turner Syndrome Global Alliance
Turner Syndrome Global Alliance (Kansas) receives grants from 5 organizations whose IRS filings report $32,144 to it, the largest being Global Impact ($20,220). 3 of them have funded it in more than one year, and 65% of the money arrives through donor-advised or pass-through sponsors rather than from an institution directly.
- Revenue FY2025
- $2k
- Funders on record
- 5
- Grants received
- $32k
- Net assets
- $27k
What Turner Syndrome Global Alliance does
Mission
The mission, duty and purpose of the Turner Syndrome Global Alliance, Inc. is to connect science, resources, and funding to the Turner Syndrome community.
As stated on its FY2025 Form 990-EZ.
Programs
TSGA continues to focus on funding research on Turner syndrome through the InsighTS Registry research. This is a collaborative project with a shared IRB working with clinic directors from multiple childrens hospitals across the country. In 2025, TSGA actively supported the recruitment of additional registry sites as well as shared patient friendly information to support patient recruitment. By the end of 2025, over 800 participants from 14 hospitals nationwide were enrolled, with additional hospitals onboarding to join the Registry. This year, the Registry has been highlighted in research abstracts and presented at professional conferences, and the Registry data is supporting multiple research initiatives. Results will be able to be quickly translated to care through the TSGA network of clinics, which TSGA continues to grow. In addition, TSGA funded summer research interns to support the InsighTS Registry with data confirmation and entry. Finally, TSGA supported an application to the NIH Rare Diseases Clinical Research Network (RDCRN) which was funded in the fall of 2025. This is an exciting collaborative effort that will change the future of care for all individuals with Turner…
$17,600 spent98% of program spendingTSGA collaborates with a network of more than 40 Turner syndrome clinics and serves as a resource for information on developing clinic services. We also help clinicians connect with other specialists in their field who are working with girls and women with Turner syndrome and develop multi-institutional collaborations.
TSGA maintains an active social media presence on Facebook that shares evidence-based information and resources to girls, women, and families living with Turner syndrome. This information has helped to dispel many of the preconceived notions of what life is like for those with Turner syndrome, providing hope to many families. We also maintain a website as a resource for information, especially for families with a new diagnosis.
$324 spent2% of program spending
The 3 programs described on its FY2025 Form 990-EZ. Program spending in total: $17,924.
The organization over time
Each line starts at 100 in 2019, so what you read is the shape rather than the size: 150 means half as much again as 2019, 50 means half. The number beside each label in the key is where it ended. The shaded band is where the middle 50% of its peers' revenue would sit, given their growth.
Balance sheet
Total assets at each year end, in dollars. The largest one-year move in total assets was 2021 to 2022, from $65k to $43k (−34%).
How it's funded, over time
Each bar is one year's revenue split into where it came from, and every bar is the same height — these are shares, not amounts, so a year that raised twice as much looks the same size. Hover a bar for the split.
100% of Turner Syndrome Global Alliance’s revenue is contributions — more donation-reliant than the typical peer (100% for the typical peer).
Surplus & reserves
Operating surplus or deficit each year, and months of liquidity in hand. 5 of the last 7 reported years ran a deficit.
Who funds it, year by year
2017 → 2023: the base held at 1 funder, grant income rose $25 → $204.
2 of 5 of your funders are donor-advised or pass-through sponsors (tagged DAF) — 65% of grant dollars received. That money is really individual donors directing a sponsor; the institutions to cultivate are the non-DAF funders.
From the IRS filings of Turner Syndrome Global Alliance’s funders (the co-funder graph). Association, not causation. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How concentrated its funding is
Turner Syndrome Global Alliance leans on a few funders — its largest provides 63% of grant income and the top three 97%; half comes from just 1 funder.
the vertical line marks half of all grant income — 1 funder to its left
97% of the income these shares are computed over arrives through pass-through sponsors or from payers whose filings do not say what kind of payment it is. Concentration is still measured over all of it, because the money is real; what it does not support is a claim about how many institutions have chosen to fund Turner Syndrome Global Alliance.
Largest funder’s share by year: 2017 100% · 2018 100% · 2019 54% · 2020 74% · 2021 71% · 2022 85% · 2023 100% — broadly stable.
“Effective funders” = inverse Herfindahl index (1 / Σ shareᵢ²) — the number of equal-sized funders that would give the same concentration. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
Where its funders are
65% of Turner Syndrome Global Alliance's grant income arrives through donor-advised or pass-through sponsors, whose addresses record where the money is held rather than where the donor is. Of the $11k that is directly attributable, 100% of it comes from funders outside Kansas, across 2 states.
In-state vs out-of-state, by year
Funder states come from each funder’s own filing. $21k arriving through sponsors registered in 2 states is excluded from the map and the split above: a sponsor holds money on a donor’s behalf, so its registered address would place those dollars somewhere no donor need ever have been. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
Against its field
Turner Syndrome Global Alliance's revenue fell 98% between 2019 and 2025.
this organization peer median middle 50% of peers· 6,360 health nonprofits under $100k, FY2025
Organizations like Turner Syndrome Global Alliance
Organizations whose mission and program text most resemble this one, by semantic similarity over every organization in the US filings — the closest peers, and often the clearest route to shared or prospective funders.
In Kansas
Nationally
Read directly from this organization’s own Form 990, as neutral context.
Public support
100%
Share of support from the public (Schedule A) — the basis for its public-charity status.
Screen this organization
A dated, signed PDF of the compliance screen for Turner Syndrome Global Alliance: IRS status (Business Master File, Publication 78, auto-revocation), the OFAC sanctions lists, the Internal Revenue Bulletin, and California registration, with the Rev. Proc. 2018-32 §8.01 reliance elements stated element by element. Generated from the current files at the moment you download it.
Screens are triage, not determinations; a source that cannot be read reports not screened, never clear. Screen this nonprofit · How the screen works · on the API as GET /api/screening/{ein}?format=pdf
Questions and answers
- Who funds Turner Syndrome Global Alliance?
- Turner Syndrome Global Alliance (Kansas) receives grants from 5 organizations whose IRS filings report $32,144 to it, the largest being Global Impact ($20,220). 3 of them have funded it in more than one year, and 65% of the money arrives through donor-advised or pass-through sponsors rather than from an institution directly.
- How many funders does Turner Syndrome Global Alliance have?
- IRS filings report 5 organizations giving $32,144 in grants to Turner Syndrome Global Alliance, 3 of which have funded it in more than one year.
- Who is the largest funder of Turner Syndrome Global Alliance?
- Global Impact is the largest funder on record, with $20,220 in grants. The full list of funders is on this page.
- How can an organization like Turner Syndrome Global Alliance find more funders?
- Start with the funders already giving here, then look at the foundations that back similar organizations in Kansas. The funding by cause and by state pages list the largest funders for a given area and how to approach them.
Play a game about who funds Turner Syndrome Global Alliance →
These figures are read directly from IRS Form 990 / 990-PF e-file XML: this organization’s own return for FY2025 (financials across 2019–2025), and the filings of 5 funders that report grants to it. “On record” means captured in the filings we have parsed — a funder that does not e-file, or whose grant detail is not itemized, will not appear. Filings run roughly 12–24 months behind. Trends on this page end at FY2023, the last fiscal year that has finished arriving; later years are shown and marked, and move no figure. Data on this page was exported October 14, 2026. What this page cannot tell you · view filing