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Maryland · Nonprofit

NATIONAL GAUCHER FOUNDATION INC

NATIONAL GAUCHER FOUNDATION INC (Maryland) receives grants from 12 organizations whose IRS filings report $110,979 to it, the largest being DONOR ADVISED CHARITABLE GIVING INC ($49,650). 5 of them have funded it in more than one year, and 57% of the money arrives through donor-advised or pass-through sponsors rather than from an institution directly.

Revenue FY2025
$316k
Funders on record
12
Grants received
$111k
Net assets
$824k
5/12 repeat funderspeak grant-dependency 4%
01What it does

What National Gaucher Foundation Inc does

Mission

Raise funds to promote education and awareness; meet ever-increasing needs of individuals with gaucher disease and their families.

As stated on its FY2025 Form 990.

Program

  1. Education and awareness initiatives throughout the u.s. The program includes a website with expansive content that is regularly updated, monthly blog posts on gaucher disease from medical thought leaders, monthly e-newsletters, human interest stories in film, digital and written materials,an annual educational symposium for patients and physicians, a carrier screening program as well as services to patients (with information, support,and resources) to help them achieve and maintain their optimal health.

    $197,014 spent
    100% of program spending

The program described on its FY2025 Form 990. Program spending in total: $197,014.

02The organization over time

The organization over time

Each line starts at 100 in 2017, so what you read is the shape rather than the size: 150 means half as much again as 2017, 50 means half. The number beside each label in the key is where it ended. The shaded band is where the middle 50% of its peers' revenue would sit, given their growth.

100 = 20172017 Revenue 100 ($5.4M) Expenses 100 ($4.0M) Net assets 100 ($1.8M)2018 Revenue 103 ($5.6M) Expenses 87 ($3.5M) Net assets 220 ($3.9M)2019 Revenue 34 ($1.8M) Expenses 99 ($3.9M) Net assets 100 ($1.8M)2020 Revenue 61 ($3.3M) Expenses 84 ($3.3M) Net assets 97 ($1.7M)2021 Revenue 42 ($2.2M) Expenses 63 ($2.5M) Net assets 81 ($1.4M)2022 Revenue 21 ($1.2M) Expenses 43 ($1.7M) Net assets 50 ($885k)2023 Revenue 9 ($464k) Expenses 17 ($667k) Net assets 39 ($682k)2024 Revenue 7 ($392k) Expenses 7 ($274k) Net assets 45 ($800k)2025 Revenue 6 ($316k) Expenses 7 ($292k) Net assets 47 ($824k)
'17'18'19'20'21'22'23'24'25
Revenue (6)Expenses (7)Net assets (47)Peer revenue range

Balance sheet

Total assets and total liabilities at each year end, in dollars. The largest one-year move in total assets was 2017 to 2018, from $1.8M to $3.9M (+120%).

$1.8M
$3.9M
$1.8M
$1.8M
$1.4M
$935k
$684k
$801k
$825k
'17'18'19'20'21'22'23'24'25
Total assetsTotal liabilities

How it's funded, over time

Each bar is one year's revenue split into where it came from, and every bar is the same height — these are shares, not amounts, so a year that raised twice as much looks the same size. Hover a bar for the split.

2017
2018
2019
2020
2021
2022
2023
2024
2025
ContributionsProgram revenueInvestmentOther

Government-grant reliance: 2021 3%. Grants only. Government contracts and fees sit inside program revenue.

92% of NATIONAL GAUCHER FOUNDATION INC’s revenue is contributions — more donation-reliant than the typical peer (83% for the typical peer).

This organization
Typical peer · 14,932 orgs

Surplus & reserves

Operating surplus or deficit each year, and months of liquidity in hand. 5 of the last 9 reported years ran a deficit.

$1.4M
’17
$2.1M
’18
−$2.1M
’19
−$65k
’20
−$277k
’21
−$537k
’22
−$203k
’23
$118k
’24
$24k
’25
34
months of
reserve

Leadership and staff

The officers, directors, trustees and key employees listed on each return. Joined and no longer listed compare each filing with the year before, matching people by surname and first initial; a year after a gap, or a roster under three people, has no comparison.

'17'18'19'20'21'22'23'24'25
Listed444444332
Joined·+0+0+0+0+0+2+0·
No longer listed·0000030·
03Who funds it

Who funds it, year by year

2017 → 2023: the base broadened from 2 funders to 5 funders, grant income rose $8k → $18k.

4 of 12 of your funders are donor-advised or pass-through sponsors (tagged DAF) — 57% of grant dollars received. That money is really individual donors directing a sponsor; the institutions to cultivate are the non-DAF funders.

From the IRS filings of NATIONAL GAUCHER FOUNDATION INC’s funders (the co-funder graph). Association, not causation. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.

How concentrated its funding is

NATIONAL GAUCHER FOUNDATION INC leans on a few funders — its largest provides 45% of grant income and the top three 75%; half comes from just 2 funders.

the vertical line marks half of all grant income — 2 funders to its left

66% of the income these shares are computed over arrives through pass-through sponsors or from payers whose filings do not say what kind of payment it is. Concentration is still measured over all of it, because the money is real; what it does not support is a claim about how many institutions have chosen to fund NATIONAL GAUCHER FOUNDATION INC.

45%
largest funder
75%
top three
~4
effective funders

Largest funder’s share by year: 2017 80% · 2018 67% · 2019 95% · 2020 92% · 2021 84% · 2022 42% · 2023 61% — diversifying over time.

“Effective funders” = inverse Herfindahl index (1 / Σ shareᵢ²) — the number of equal-sized funders that would give the same concentration. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.

How long its funders stay

29% of NATIONAL GAUCHER FOUNDATION INC's funders are still giving 3 years after their first grant; 42% give in more than one year at all.

first grant+1y+2y+3y+4y

Share of funders still giving k years after their first recorded grant, pooled across every acquisition cohort. A funder counts as retained in a year only if it made a grant that year. Measured to FY2023, the last fiscal year that has finished arriving — a funder cannot be counted as lapsed in a year most filers have not reached.

Where its funders are

57% of NATIONAL GAUCHER FOUNDATION INC's grant income arrives through donor-advised or pass-through sponsors, whose addresses record where the money is held rather than where the donor is. Of the $47k that is directly attributable, 98% of it comes from funders outside Maryland, across 8 states.

ID
MN
IL
NY
MD
NC
DC
FL

In-state vs out-of-state, by year

’17
’18
’19
’20
’21
’22
’23
Maryland out of state home

Funder states come from each funder’s own filing. $64k arriving through sponsors registered in 4 states is excluded from the map and the split above: a sponsor holds money on a donor’s behalf, so its registered address would place those dollars somewhere no donor need ever have been. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.

04Its place in the field

Against its field

NATIONAL GAUCHER FOUNDATION INC holds deeper cash reserves than three-quarters of the 8,464 health nonprofits its size.

Operating margin8% · above the median
Months of reserve33.8mo · top quartile
Revenue growth (annualized)−30% · bottom quartile

this organization peer median middle 50% of peers· 8,464 health nonprofits $100k–$1M, FY2025

Organizations like NATIONAL GAUCHER FOUNDATION INC

Organizations whose mission and program text most resemble this one, by semantic similarity over every organization in the US filings — the closest peers, and often the clearest route to shared or prospective funders.

In Maryland

Nationally

05Profile & governance

Read directly from this organization’s own Form 990, as neutral context.

Where the money goes

67% of spending goes to programs.

Program 67%Management 29%Fundraising 3%

Governance

3
board members
100%
independent
✓Conflict-of-interest policy✓Whistleblower policy✓Document retention✓Board reviewed the 990–Audited financials

Public support

17%

Share of support from the public (Schedule A) — the basis for its public-charity status.

Footprint & structure

Files a return copy in 1 state

MD

Screen this organization

A dated, signed PDF of the compliance screen for NATIONAL GAUCHER FOUNDATION INC: IRS status (Business Master File, Publication 78, auto-revocation), the OFAC sanctions lists, the Internal Revenue Bulletin, and California registration, with the Rev. Proc. 2018-32 §8.01 reliance elements stated element by element. Generated from the current files at the moment you download it.

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Screens are triage, not determinations; a source that cannot be read reports not screened, never clear. Screen this nonprofit · How the screen works · on the API as GET /api/screening/{ein}?format=pdf

Questions and answers

Who funds NATIONAL GAUCHER FOUNDATION INC?
NATIONAL GAUCHER FOUNDATION INC (Maryland) receives grants from 12 organizations whose IRS filings report $110,979 to it, the largest being DONOR ADVISED CHARITABLE GIVING INC ($49,650). 5 of them have funded it in more than one year, and 57% of the money arrives through donor-advised or pass-through sponsors rather than from an institution directly.
How many funders does NATIONAL GAUCHER FOUNDATION INC have?
IRS filings report 12 organizations giving $110,979 in grants to NATIONAL GAUCHER FOUNDATION INC, 5 of which have funded it in more than one year.
Who is the largest funder of NATIONAL GAUCHER FOUNDATION INC?
DONOR ADVISED CHARITABLE GIVING INC is the largest funder on record, with $49,650 in grants. The full list of funders is on this page.
How can an organization like NATIONAL GAUCHER FOUNDATION INC find more funders?
Start with the funders already giving here, then look at the foundations that back similar organizations in Maryland. The funding by cause and by state pages list the largest funders for a given area and how to approach them.

These figures are read directly from IRS Form 990 / 990-PF e-file XML: this organization’s own return for FY2025 (financials across 2017–2025), and the filings of 12 funders that report grants to it. “On record” means captured in the filings we have parsed — a funder that does not e-file, or whose grant detail is not itemized, will not appear. Filings run roughly 12–24 months behind. Trends on this page end at FY2023, the last fiscal year that has finished arriving; later years are shown and marked, and move no figure. Data on this page was exported October 22, 2026. What this page cannot tell you · view filing