Maine · Nonprofit
Cloves Syndrome Community
Cloves Syndrome Community (Maine) receives grants from 13 organizations whose IRS filings report $707,917 to it, the largest being Silicon Valley Community Foundation ($615,000). 6 of them have funded it in more than one year, and 93% of the money arrives through donor-advised or pass-through sponsors rather than from an institution directly.
- Revenue FY2025
- $130k
- Funders on record
- 13
- Grants received
- $708k
- Net assets
- $173k
What Cloves Syndrome Community does
Mission
CLOVES Syndrome Community supports, educates, empowers and improves the lives of those affected by CLOVES syndrome.
As stated on its FY2025 Form 990.
Program
Provide information and resources to educate others about CLOVES Syndrome; Foster and promote a supportive community; Build and sustain a broad base of funding sources to support our mission and goals; Utilize incoming funds to provide financial assistance to those impacted by CLOVES Syndrome; Participate in and promote CLOVES Syndrome research to assist in a complete understanding of the disease.
$82,247 spentof which $14,774 as grants$40,015 earned by the program100% of program spending
The program described on its FY2024 Form 990. Program spending in total: $82,247.
The organization over time
Each line starts at 100 in 2020, so what you read is the shape rather than the size: 150 means half as much again as 2020, 50 means half. The number beside each label in the key is where it ended.
Balance sheet
Total assets and total liabilities at each year end, in dollars. The largest one-year move in total assets was 2020 to 2021, from $276k to $449k (+63%).
How it's funded, over time
Each bar is one year's revenue split into where it came from, and every bar is the same height — these are shares, not amounts, so a year that raised twice as much looks the same size. Hover a bar for the split.
Surplus & reserves
Operating surplus or deficit each year, and months of liquidity in hand. 3 of the last 6 reported years ran a deficit.
reserve
Leadership and staff
The officers, directors, trustees and key employees listed on each return. Joined and no longer listed compare each filing with the year before, matching people by surname and first initial; a year after a gap, or a roster under three people, has no comparison.
Chief executive
Lauren Beauregard
Executive Director
Board chair
Sara Robertson
Chair
As listed on its FY2025 Form 990.
The chief executive listed changed between the FY2023 and FY2024 filings.
Who funds it, year by year
2018 → 2023: the base narrowed from 3 funders to 2 funders, grant income fell $29k → $777.
5 of 13 of your funders are donor-advised or pass-through sponsors (tagged DAF) — 93% of grant dollars received. That money is really individual donors directing a sponsor; the institutions to cultivate are the non-DAF funders.
From the IRS filings of Cloves Syndrome Community’s funders (the co-funder graph). Association, not causation. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How concentrated its funding is
Cloves Syndrome Community leans on a few funders — its largest provides 87% of grant income and the top three 94%; half comes from just 1 funder.
the vertical line marks half of all grant income — 1 funder to its left
98% of the income these shares are computed over arrives through pass-through sponsors or from payers whose filings do not say what kind of payment it is. Concentration is still measured over all of it, because the money is real; what it does not support is a claim about how many institutions have chosen to fund Cloves Syndrome Community.
Largest funder’s share by year: 2018 86% · 2020 95% · 2021 60% · 2022 99% · 2023 97% — growing more concentrated.
“Effective funders” = inverse Herfindahl index (1 / Σ shareᵢ²) — the number of equal-sized funders that would give the same concentration. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How long its funders stay
25% of Cloves Syndrome Community's funders are still giving 3 years after their first grant; 46% give in more than one year at all.
Share of funders still giving k years after their first recorded grant, pooled across every acquisition cohort. A funder counts as retained in a year only if it made a grant that year. Measured to FY2023, the last fiscal year that has finished arriving — a funder cannot be counted as lapsed in a year most filers have not reached.
Where its funders are
93% of Cloves Syndrome Community's grant income arrives through donor-advised or pass-through sponsors, whose addresses record where the money is held rather than where the donor is. Of the $52k that is directly attributable, 100% of it comes from funders outside Maine, across 7 states.
In-state vs out-of-state, by year
Funder states come from each funder’s own filing. $656k arriving through sponsors registered in 5 states is excluded from the map and the split above: a sponsor holds money on a donor’s behalf, so its registered address would place those dollars somewhere no donor need ever have been. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
Organizations like Cloves Syndrome Community
Organizations whose mission and program text most resemble this one, by semantic similarity over every organization in the US filings — the closest peers, and often the clearest route to shared or prospective funders.
In Maine
Nationally
Read directly from this organization’s own Form 990, as neutral context.
Where the money goes
69% of spending goes to programs.
Governance
Public support
100%
Share of support from the public (Schedule A) — the basis for its public-charity status.
Screen this organization
A dated, signed PDF of the compliance screen for Cloves Syndrome Community: IRS status (Business Master File, Publication 78, auto-revocation), the OFAC sanctions lists, the Internal Revenue Bulletin, and California registration, with the Rev. Proc. 2018-32 §8.01 reliance elements stated element by element. Generated from the current files at the moment you download it.
Screens are triage, not determinations; a source that cannot be read reports not screened, never clear. Screen this nonprofit · How the screen works · on the API as GET /api/screening/{ein}?format=pdf
Questions and answers
- Who funds Cloves Syndrome Community?
- Cloves Syndrome Community (Maine) receives grants from 13 organizations whose IRS filings report $707,917 to it, the largest being Silicon Valley Community Foundation ($615,000). 6 of them have funded it in more than one year, and 93% of the money arrives through donor-advised or pass-through sponsors rather than from an institution directly.
- How many funders does Cloves Syndrome Community have?
- IRS filings report 13 organizations giving $707,917 in grants to Cloves Syndrome Community, 6 of which have funded it in more than one year.
- Who is the largest funder of Cloves Syndrome Community?
- Silicon Valley Community Foundation is the largest funder on record, with $615,000 in grants. The full list of funders is on this page.
- How can an organization like Cloves Syndrome Community find more funders?
- Start with the funders already giving here, then look at the foundations that back similar organizations in Maine. The funding by cause and by state pages list the largest funders for a given area and how to approach them.
These figures are read directly from IRS Form 990 / 990-PF e-file XML: this organization’s own return for FY2025 (financials across 2020–2025), and the filings of 13 funders that report grants to it. “On record” means captured in the filings we have parsed — a funder that does not e-file, or whose grant detail is not itemized, will not appear. Filings run roughly 12–24 months behind. Trends on this page end at FY2023, the last fiscal year that has finished arriving; later years are shown and marked, and move no figure. Data on this page was exported October 14, 2026. What this page cannot tell you · view filing