Massachusetts · Nonprofit
NATIONAL SCLERODERMA FOUNDATION INC
NATIONAL SCLERODERMA FOUNDATION INC (Massachusetts) receives grants from 154 organizations whose IRS filings report $4,355,254 to it, the largest being SCLERODERMA FOUNDATION OF GREATER CHICAGO ($1,835,713). 69 of them have funded it in more than one year.
- Revenue FY2025
- $6.6M
- Funders on record
- 154
- Grants received
- $4.4M
- Net assets
- $8.3M
What National Scleroderma Foundation Inc does
Mission
The national scleroderma foundation's mission is to advance medical research, promote disease awareness, and provide support and education to people with scleroderma, their families and support networks.
As stated on its FY2025 Form 990.
Programs
A relentless force in finding a cure and improving the lives of people affected by scleroderma, the national scleroderma foundation advances medical research, promotes disease awareness, and provides support and education to people with scleroderma, their families and support networks. Supported by a network of thousands of individuals across the united states, the foundation is the leading nonprofit funder of peer-reviewed research to discover the cause, understand the mechanisms, and overcome scleroderma forever. Support: the foundation serves people living with scleroderma, as well as their caregivers and family members by providing access to support groups. In the wake of the pandemic, the foundation pivoted from in-person to virtual community support, allowing members of the scleroderma community to connect no matter where they were in the country. This also allowed for the creation of more targeted, topical support groups such as one for men, which make up just 20% of the population impacted by scleroderma, and bipoc, as well as young adults. Education: the foundation provides education about how to live better with scleroderma for those affected by the disease, as well as…
$2,737,760 spent64% of program spendingResearch: in fy 2025, the foundation made a commitment of $1.2 million to fund research. This funding aims to stimulate and support investigations into better understanding the mechanisms that cause the disease, how to prevent and accurately diagnosis and treat the disease, and ultimately find a cure for scleroderma. Each award is $200,000 spread over multiple years. In fy 2025, four awards were two-year established investigator awards, and two awards were three-year new investigator awards. New investigator awards are intended to help emerging scientists gather sufficient data to demonstrate the value of their area of investigation and attract larger funding from other sources. The foundation's peer reviewed research grants program prioritizes scientific merit and is administered by the foundation's research committee. This committee, composed of scleroderma experts from across the country, makes funding recommendations to the board of directors annually after a rigorous peer review process.the peer-review research committee is composed of highly respected scientific experts who review, critique, and rank all applications based on the national institutes of health's ranking…
$1,545,164 spentof which $1,199,988 as grants36% of program spending
The 2 programs described on its FY2024 Form 990, listed largest first by expense. Program spending in total: $4,282,924.
The organization over time
Each line starts at 100 in 2017, so what you read is the shape rather than the size: 150 means half as much again as 2017, 50 means half. The number beside each label in the key is where it ended. The shaded band is where the middle 50% of its peers' revenue would sit, given their growth.
Balance sheet
Total assets and total liabilities at each year end, in dollars. The largest one-year move in total assets was 2021 to 2022, from $13M to $11M (−15%).
How it's funded, over time
Each bar is one year's revenue split into where it came from, and every bar is the same height — these are shares, not amounts, so a year that raised twice as much looks the same size. Hover a bar for the split.
Government-grant reliance: 2021 12% · 2022 5%. Grants only. Government contracts and fees sit inside program revenue.
84% of NATIONAL SCLERODERMA FOUNDATION INC’s revenue is contributions — more donation-reliant than the typical peer (51% for the typical peer).
Surplus & reserves
Operating surplus or deficit each year, and months of liquidity in hand. 8 of the last 9 reported years ran a deficit.
reserve
Leadership and staff
The officers, directors, trustees and key employees listed on each return. Joined and no longer listed compare each filing with the year before, matching people by surname and first initial; a year after a gap, or a roster under three people, has no comparison.
Chief executive
Mary J Wheatley
CEO
Board chair
Kevin Boyanowski
Chair
As listed on its FY2025 Form 990.
Who funds it, year by year
2017 → 2023: the base broadened from 28 funders to 57 funders, grant income fell $1.4M → $525k.
23 of 154 of your funders are donor-advised or pass-through sponsors (tagged DAF) — 25% of grant dollars received. That money is really individual donors directing a sponsor; the institutions to cultivate are the non-DAF funders.
Left out of every figure on this page: $200k from one payer (the payer shares this organization's board, largest Scleroderma Foundation of the Delaware Valley). These are real filings, and they are not money NATIONAL SCLERODERMA FOUNDATION INC raised.
From the IRS filings of NATIONAL SCLERODERMA FOUNDATION INC’s funders (the co-funder graph). Top 30 of 154 funders by total. Association, not causation. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How concentrated its funding is
NATIONAL SCLERODERMA FOUNDATION INC leans on a few funders — its largest provides 42% of grant income and the top three 54%; half comes from just 3 funders.
the vertical line marks half of all grant income — 3 funders to its left
81% of the income these shares are computed over arrives through pass-through sponsors or from payers whose filings do not say what kind of payment it is. Concentration is still measured over all of it, because the money is real; what it does not support is a claim about how many institutions have chosen to fund NATIONAL SCLERODERMA FOUNDATION INC.
Largest funder’s share by year: 2017 80% · 2018 53% · 2019 50% · 2020 27% · 2021 24% · 2022 23% · 2023 34% — diversifying over time.
“Effective funders” = inverse Herfindahl index (1 / Σ shareᵢ²) — the number of equal-sized funders that would give the same concentration. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How long its funders stay
41% of NATIONAL SCLERODERMA FOUNDATION INC's funders are still giving 3 years after their first grant; 45% give in more than one year at all.
Share of funders still giving k years after their first recorded grant, pooled across every acquisition cohort. A funder counts as retained in a year only if it made a grant that year. Measured to FY2023, the last fiscal year that has finished arriving — a funder cannot be counted as lapsed in a year most filers have not reached.
Where its funders are
NATIONAL SCLERODERMA FOUNDATION INC draws 91% of its grant income from funders outside Massachusetts, across 30 states in all.
In-state vs out-of-state, by year
Funder states come from each funder’s own filing. $1.1M arriving through sponsors registered in 15 states is excluded from the map and the split above: a sponsor holds money on a donor’s behalf, so its registered address would place those dollars somewhere no donor need ever have been. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
Against its field
NATIONAL SCLERODERMA FOUNDATION INC's revenue grew 28% between 2017 and 2025.
this organization peer median middle 50% of peers· 5,002 health nonprofits $1M–$10M, FY2025
Organizations like NATIONAL SCLERODERMA FOUNDATION INC
Organizations whose mission and program text most resemble this one, by semantic similarity over every organization in the US filings — the closest peers, and often the clearest route to shared or prospective funders.
In Massachusetts
Nationally
Read directly from this organization’s own Form 990, as neutral context.
Where the money goes
63% of spending goes to programs.
Governance
Public support
85%
Share of support from the public (Schedule A) — the basis for its public-charity status.
Footprint & structure
Files a return copy in 37 states
Screen this organization
A dated, signed PDF of the compliance screen for NATIONAL SCLERODERMA FOUNDATION INC: IRS status (Business Master File, Publication 78, auto-revocation), the OFAC sanctions lists, the Internal Revenue Bulletin, and California registration, with the Rev. Proc. 2018-32 §8.01 reliance elements stated element by element. Generated from the current files at the moment you download it.
Screens are triage, not determinations; a source that cannot be read reports not screened, never clear. Screen this nonprofit · How the screen works · on the API as GET /api/screening/{ein}?format=pdf
Questions and answers
- Who funds NATIONAL SCLERODERMA FOUNDATION INC?
- NATIONAL SCLERODERMA FOUNDATION INC (Massachusetts) receives grants from 154 organizations whose IRS filings report $4,355,254 to it, the largest being SCLERODERMA FOUNDATION OF GREATER CHICAGO ($1,835,713). 69 of them have funded it in more than one year.
- How many funders does NATIONAL SCLERODERMA FOUNDATION INC have?
- IRS filings report 154 organizations giving $4,355,254 in grants to NATIONAL SCLERODERMA FOUNDATION INC, 69 of which have funded it in more than one year.
- Who is the largest funder of NATIONAL SCLERODERMA FOUNDATION INC?
- SCLERODERMA FOUNDATION OF GREATER CHICAGO is the largest funder on record, with $1,835,713 in grants. The full list of funders is on this page.
- How can an organization like NATIONAL SCLERODERMA FOUNDATION INC find more funders?
- Start with the funders already giving here, then look at the foundations that back similar organizations in Massachusetts. The funding by cause and by state pages list the largest funders for a given area and how to approach them.
These figures are read directly from IRS Form 990 / 990-PF e-file XML: this organization’s own return for FY2025 (financials across 2017–2025), and the filings of 154 funders that report grants to it. “On record” means captured in the filings we have parsed — a funder that does not e-file, or whose grant detail is not itemized, will not appear. Filings run roughly 12–24 months behind. Trends on this page end at FY2023, the last fiscal year that has finished arriving; later years are shown and marked, and move no figure. Data on this page was exported October 22, 2026. What this page cannot tell you · view filing