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Hemophilia Federation of America at a glanceMostly funded, not a grantmaker: see who funds it →

· Public charity

Hemophilia Federation of America

HEMOPHILIA FEDERATION OF AMERICA is a national nonprofit organization that assists, educates, and advocates for the bleeding disorders community.

$175k
Granted FY2024still arriving
3
Grants FY2024still arriving
3
States reached
$9k
Largest
01What it fundsRead
02The needRead
03Its granteesRead
04Its fieldRead
01What it funds
01100% classified

What it funded, over time

Every grant placed by its stated purpose and the recipient’s mission, by year, FY2022 to 2024.

Health$712kPublic Safety & Disaster$25kPhilanthropy$18kFood & Nutrition$12k
02FY2024 · 3 grants

Where the money goes

Grants by size, and the largest recipients.

How this is measured
The 3 grants below total $25,000, the rows itemized in this filing. The $175,435 headline is the total grant expense on the return; the other $150,435 is giving the schedule does not break out (grants under the $5,000 itemization floor, grants to individuals, grants on other schedules). Every figure below describes the itemized rows only.
$9,000
Median grant
3
States reached
$7.9M
Total assets
Largest grants
RecipientAmount
TENNESSEE HEMOPHILIA AND BLEEDING DISORDERS FOUNDATION$9,000
BLEEDING DISORDERS FOUNDATION OF NORTH CAROLINA$9,000
HEMOPHILIA FOUNDATION OF SOUTHERN CALIFORNIA$7,000
02The need
03

Does the money reach high-need areas?

Each grant placed by the hardship in its grantee’s ZIP, against the area’s typical level.

show:

Its human-services grants (FY22–24, $101k) land where the poverty rate runs at 9%, against an area that typically sits at 11%. 14% of those dollars go to grantees based in above-average-need neighborhoods. Its grants skew toward lower-need ZIPs.

area typical 11%WESTERN PA BLEEDING DISORDERS FOUNDATION: $16k → 10%LONE STAR BLEEDING DISORDERS FOUNDATION: $8k → 16%BLEEDING DISORDERS FOUNDATION OF NORTH CA: $10k → 8%VIRGINIA HEMOPHILIA FOUNDATION (V): $16k → 6%WESTERN PA BLEEDING DISORDERS FOUNDATION: $13k → 10%BLEEDING DISORDERS FOUNDATION OF NORTH CAROLINA: $10k → 8%BLOOD BOND BLEEDING DISORDERS NETWORK: $6k → 14%VIRGINIA HEMOPHILIA FOUNDATION: $13k → 6%BLEEDING DISORDERS FOUNDATION OF NORTH CAROLINA: $9k → 8%0%20%40%50%more need →
grant to an above-average-need area below average· circle size = grant amount
How this is measured
Matched: human-services grants are those whose grantee’s IRS cause code is Human Services. Placed by people below the poverty line in the grantee’s ZIP, averaged from the tracts in that ZIP.

Which US states its grants reach

ME
MT
ND
IL
WI
MI
NY
MA
OR
IA
OH
PA
NJ
CA
UT
MO
VA
MD
TN
NC
SC
DC
OK
LA
TX
FL
How this is measured
US grants placed by each grantee’s ZIP, which can differ from where services are delivered. Need from public data (U.S. Census/ACS, CDC PLACES, Eviction Lab, USDA), shown as context about the area, never attributed to the funder’s giving.
04

Where the work is directed

The same grants placed two ways: where each recipient sits, and where its stated purpose sends the money.

About 7% of Hemophilia Federation of America’s grant dollars are earmarked for a different county than the recipient’s own address.

Hemophilia Federation of Americalessmore of its giving
Placed by recipient address
How this is measured
Recipient view: each grant at its grantee’s ZIP, mapped to a county. Directed view: each grant at the county its stated purpose names, falling back to the recipient’s county when the purpose names no place; US grants only. A county shows only if it carries the top 95% of that view’s dollars. Purposes are read from the funder’s own 990 grant descriptions.
03Its grantees
repeat funding

Who it funds again

Organizations funded in more than one year, against those funded once.

84%of every dollar goes to organizations it has funded before.
$645k · 26 repeat orgs$122k to everyone else

Grantees it renews have grown median revenue +15% since the first grant, against +7% for those funded once.

26 repeat relationships: 3 still active in FY2024, 23 since wound down.

How the two cohorts compare

Re-uppedFunded once

Organizations

26
11

Total granted

$645k
$122k

Median revenue growth · since first grant

+15%
+7%

Still filing today

96%
100%

New vs renewed · share of each year

In FY2024, 100% of grant dollars renewed an existing relationship; $0 went to new ones.

50%100%’22’23’24
RenewedFirst-time

Where new relationships form · theme of each grantee’s first grant

’22’23’24
HealthHuman ServicesPhilanthropyHousing & ShelterOther
How this is measured
First-time means a grantee’s first year in the filing window; renewed means funded in an earlier year too. The renewed share climbs naturally as a portfolio matures, so the signal is a year that bucks it (a wave of new grantees). The earliest year is left-censored: relationships that predate the data read as new. Theme is the grantee’s IRS cause.

Backed again, and grew

  • TH
    TENNESSEE HEMOPHILIA & BLEEDING DISORDER FOUNDATIO
    3× · 2022–2024 · $36k · revenue +8%
  • NE
    NEW ENGLAND HEMOPHILIA ASSOCIATION INC
    2× · 2022–2023 · $34k · revenue +33%
  • HF
    HEMOPHILIA FOUNDATION OF SOUTHERN CALIFORNIA
    3× · 2022–2024 · $33k · revenue +20%

Funded once

  • MH
    MIDWEST HEMOPHILIA ASSOCIATIONgraduated
    one grant, 2022 · $16k · revenue +35%
  • HO
    HEMOPHILIA OF IOWA INCgraduated
    one grant, 2022 · $14k · revenue +160%
  • BD
    Bleeding Disorders Alliance of North Dakotagraduated
    one grant, 2022 · $14k · revenue +44%
How this is measured

Repeat means funded in two or more distinct years. Growth and survival are read from each grantee’s own subsequent IRS filings.

04Its field

Closest unfunded matches

The nonprofits that most resemble its grantees but are not funded by it, scored along the direction from the rest of the field toward the portfolio. A resemblance in what they say they do, not a recommendation.

1
The Coalition for Hemophilia B Inc
Health
2
The Hemophilia Alliance Foundation

The hemophilia alliance foundation is dedicated to receiving and administering funds to enable eligible organizations in the inherited bleeding and thrombotic disorders community to build capacity in order to achieve their mission and to…

Health
3
Bleeding Disorders of Kentucky Inc

Bleeding disorders of kentucky (bdoky) is dedicated to improving the quality of life for individuals with inheritable bleeding disorders through education, engagement, and support.

Health
4
Cascade Hemophilia Consortium
Health
5
The Bleeding Disorder Foundation of Washington

The Bleeding Disorder Foundation of Washington mission: The BDFW serves and educates the bleeding disorder community and advocates for access to care for those with rare diseases.

—
6
Colburn-Keenan Foundation Inc
Philanthropy
7
Hemophilia of Indiana Inc

The organization is dedicated to the treatment and cure of hemophilia and related bleeding disorders through support of research, education, and service.

—
8
Northwest Ohio Hemophilia Foundation

The Northwest Ohio Hemophilia Foundation is a volunteer Non Profit organization. The foundation the foundation is a chapter of the national hemophilia foundation and has over a 30 year history of meeting the needs of individuals and…

Health
9
Tri-State Bleeding Disorder Foundation

Education, research & specific help for individuals with bleeding disorders

Health
10
Kentucky Hemophilia Foundation Inc

The Kentucky Hemophilia Foundation assists individuals with hemophilia and similar bleeding disorders through education, advocacy, and support services and by promoting research for a cure.

—
11
Hemophelia Outreach of Wisconsin Inc
Education
12
Hemophilia Foundation of Greater Florida Inc

Hemophilia foundation of greater florida is dedicated to improving the quality of life for people with related bleeding disorders and their families through education, information and referral services, advocacy and research.

Health
How this is measured
The grantee most central to the portfolio’s shape is Hemophilia Association of the Capital Area; the most unlike its peers is Asociacion Puertorriquena De Hemofilia Inc. Resemblance is measured on each organization’s own IRS 990 mission text; it reflects how work is described, not its quality or impact.
05the grantee network

37 grantees tracked through their own filings, 2017–2025.

Each grant beside the grantee’s revenue from every source, year by year.

How this is measured

Counted here: distinct organizations funded across 2017 to 2025, not grant rows in a single year, so this will not match the grant count on the cover.

Each grantee is resolved to its own IRS returns. Association, dated; never a causal claim.

0
Load-bearing (≥25% of a budget)
3
Early backer (in before they grew)
36/37
Grantees still filing
26/37
Grew since first funded

Where the money sits, by cause and then by grantee

TENNESSEE HEMOPHILIA & BLEEDING DISORDER FOUNDATIO: $36,000 · HealthTENNESSEE HEMOPHILIA & BLEEDING DISORDER FOUNDATIOUnited Hemophilia Foundation: $27,500 · HealthUnited Hemophilia FoundationHemophilia Foundation of Michigan: $27,000 · HealthHemophilia Foundation of MichiganROCKY MOUNTAIN HEMOPHILIA AND BLEEDING DISORDER ASSOCIATION: $26,500 · HealthROCKY MOUNTAIN HEMOPHILIA AND BLEEDING DISORDER ASSO…CENTRAL CALIFORNIA BLEEDING DISORDERS FOUNDATION: $25,000 · HealthCENTRAL CALIFORNIA BLEEDING DISORDERS FOUNDATIONEASTERN PENNSYLVANIA BLEEDING DISORDERS FOUNDATION: $25,000 · HealthEASTERN PENNSYLVANIA BLEEDING DISORDERS FOUNDATIONASOCIACION PUERTORRIQUENA DE HEMOFILIA INC: $23,000 · HealthASOCIACION PUERTORRIQUENA DE HEMOFILIA INCGREATER OHIO BLEEDING DISORDERS FOUNDATION: $22,000 · HealthGREATER OHIO BLEEDING DISORDERS FOUNDATIONHEMOPHILIA ASSOCIATION OF THE SOUTHERN TIER INC: $21,000 · HealthHEMOPHILIA ASSOCIATION OF THE SOUTHERN TIER INCNEW YORK CITY HEMOPHILIA CHAPTER INC: $20,000 · HealthNEW YORK CITY HEMOPHILIA CHAPTER INCNORTHERN CALIFORNIA BLEEDING DISORDERS FOUNDATION FORMERLY HEMOPHILIA FOUNDTN: $18,790 · HealthHEMOPHILIA ASSOCIATION OF NEW YORK INC: $18,000 · HealthUTAH HEMOPHILIA FOUNDATION: $18,000 · HealthHEMOPHILIA ASSOCIATION OF THE CAPITAL AREA: $16,000 · HealthBleeding Disorders Alliance of North Dakota: $14,000 · HealthBleeding Disorders Alliance Illinois: $13,000 · Health+1 more: $8,000 · HealthHEMOPHILIA FOUNDATION OF SOUTHERN CALIFORNIA: $33,000 · OtherHEMOPHILIA FOUNDATION OF SOUTHER…PACIFIC NORTHWEST BLEEDING DISORDERS: $27,000 · OtherPACIFIC NORTHWEST BLEEDING DISOR…LOUISIANA HEMOPHILIA FOUNDATION: $24,000 · OtherLOUISIANA HEMOPHILIA FOUNDATIONFlorida Bleeding Disorders Association Inc: $22,000 · OtherFlorida Bleeding Disorders Assoc…HEMOPHILIA ASSOCIATION OF NEW JERSEY: $20,000 · OtherHEMOPHILIA ASSOCIATION OF NEW JE…OKLAHOMA HEMOPHILIA FOUNDATION INC: $19,000 · OtherOKLAHOMA HEMOPHILIA FOUNDATION I…MIDWEST HEMOPHILIA ASSOCIATION: $16,000 · OtherMIDWEST HEMOPHILIA ASSOCIATIONHEMOPHILIA OF IOWA INC: $14,000 · OtherHEMOPHILIA OF IOWA INCBLEEDING DISORDERS ASSOCIATION OF NORTHEASTERN NY: $13,000 · OtherBLEEDING DISORDERS ASSOCIATION O…HEMOPHILIA ALLIANCE OF MAINE INC: $10,000 · OtherGateway Hemophilia Association: $10,000 · OtherGREAT LAKES HEMOPHILIA FOUNDATION INC: $10,000 · OtherVIRGINIA BLEEDING DISORDERS FOUNDATION: $29,000 · Human ServicesVIRGINIA BLEED…WESTERN PENNSYLVANIA BLEEDING DISORDERS FOUNDATION: $29,000 · Human ServicesWESTERN PENNSY…BLEEDING DISORDERS FOUNDATION OF NORTH CAROLINA: $29,000 · Human ServicesBLEEDING DISOR…LONE STAR BLEEDING DISORDERS FOUNDATION: $8,000 · Human ServicesLONE STAR BLEE…Sisters & Caregivers Bleeding Disorder Network Inc: $6,000 · Human ServicesSisters & Care…NEW ENGLAND HEMOPHILIA ASSOCIATION INC: $34,000 · PhilanthropyNEW ENGLA…Hemophilia Foundation of MD Inc: $31,000 · PhilanthropyHemophili…Bleeding Disorders Association of South Carolina: $24,500 · Housing & Shelter
Health$358,790Other$218,000Human Services$101,000Philanthropy$65,000Housing & Shelter$24,500

Each grantee by its size and the funder’s share of it; top left is load-bearing

25%50%75%100%$1.0Mgrantee revenue →↑ funder's share of their budgetTENNESSEE HEMOPHILIA & BLEEDING DISORDER FOUNDATIO: $36,000 over 3y, 3.9% of budgetNEW ENGLAND HEMOPHILIA ASSOCIATION INC: $34,000 over 2y, 1.2% of budgetHEMOPHILIA FOUNDATION OF SOUTHERN CALIFORNIA: $33,000 over 3y, 1.3% of budgetHemophilia Foundation of MD Inc: $31,000 over 2y, 4.7% of budgetVIRGINIA BLEEDING DISORDERS FOUNDATION: $29,000 over 2y, 3.7% of budgetWESTERN PENNSYLVANIA BLEEDING DISORDERS FOUNDATION: $29,000 over 2y, 3.6% of budgetBLEEDING DISORDERS FOUNDATION OF NORTH CAROLINA: $29,000 over 3y, 1.6% of budgetUnited Hemophilia Foundation: $27,500 over 2y, 7.7% of budgetPACIFIC NORTHWEST BLEEDING DISORDERS: $27,000 over 2y, 2.1% of budgetHemophilia Foundation of Michigan: $27,000 over 2y, 0.4% of budgetROCKY MOUNTAIN HEMOPHILIA AND BLEEDING DISORDER ASSOCIATION: $26,500 over 2y, 7.0% of budgetCENTRAL CALIFORNIA BLEEDING DISORDERS FOUNDATION: $25,000 over 2y, 5.3% of budgetEASTERN PENNSYLVANIA BLEEDING DISORDERS FOUNDATION: $25,000 over 2y, 3.4% of budgetBleeding Disorders Association of South Carolina: $24,500 over 2y, 3.2% of budgetLOUISIANA HEMOPHILIA FOUNDATION: $24,000 over 2y, 3.1% of budgetASOCIACION PUERTORRIQUENA DE HEMOFILIA INC: $23,000 over 2y, 4.4% of budgetFlorida Bleeding Disorders Association Inc: $22,000 over 2y, 2.8% of budgetGREATER OHIO BLEEDING DISORDERS FOUNDATION: $22,000 over 2y, 1.3% of budgetHEMOPHILIA ASSOCIATION OF NEW JERSEY: $20,000 over 2y, 1.1% of budgetNEW YORK CITY HEMOPHILIA CHAPTER INC: $20,000 over 2y, 1.8% of budgetOKLAHOMA HEMOPHILIA FOUNDATION INC: $19,000 over 2y, 5.2% of budgetNORTHERN CALIFORNIA BLEEDING DISORDERS FOUNDATION FORMERLY HEMOPHILIA FOUNDTN: $18,790 over 2y, 1.6% of budgetHEMOPHILIA ASSOCIATION OF NEW YORK INC: $18,000 over 2y, 1.8% of budgetUTAH HEMOPHILIA FOUNDATION: $18,000 over 2y, 2.3% of budgetMIDWEST HEMOPHILIA ASSOCIATION: $16,000 over 1y, 6.0% of budgetHEMOPHILIA ASSOCIATION OF THE CAPITAL AREA: $16,000 over 2y, 2.7% of budgetHEMOPHILIA OF IOWA INC: $14,000 over 1y, 10% of budgetBleeding Disorders Alliance of North Dakota: $14,000 over 1y, 16% of budgetBleeding Disorders Alliance Illinois: $13,000 over 1y, 2.9% of budgetBLEEDING DISORDERS ASSOCIATION OF NORTHEASTERN NY: $13,000 over 1y, 12% of budgetHEMOPHILIA ALLIANCE OF MAINE INC: $10,000 over 1y, 5.3% of budgetGateway Hemophilia Association: $10,000 over 1y, 2.9% of budgetGREAT LAKES HEMOPHILIA FOUNDATION INC: $10,000 over 1y, 0.6% of budgetLONE STAR BLEEDING DISORDERS FOUNDATION: $8,000 over 1y, 0.9% of budgetTEXAS CENTRAL HEMOPHILIA ASSOCIATION INC: $8,000 over 1y, 2.9% of budgetSisters & Caregivers Bleeding Disorder Network Inc: $6,000 over 1y, 3.4% of budget
Grantee by grantee: a decade per organization, before and after funding

A decade per grantee: revenue shaded, grants as bars, all rows on one timeline.

Co-funders

Grantmakers whose grantees overlap with this funder’s far more than size alone predicts. Closer means stronger alignment; arcs show where they also fund each other. Here they form a tightly interlocked group: most of these funders back each other's grantees too.

National Bleeding Dis…The Hemophilia Allian…The Hemophilia Allian…Colburn-Keenan Founda…Pharmaceutical Resear…Global ImpactGlobal GenesThe Pfizer Foundation…Ge Aerospace Foundati…Good360Jpmorgan Chase Founda…The Bank of America C…
National Bleeding Disorders FoundationNY81.2× affinity36 shared granteesties to 11 of 11Hover any node to trace its alignments.Compare side by side →

Open a dossier: National Bleeding Disorders Foundation · The Hemophilia Alliance Foundation · The Hemophilia Alliance Group Purchasing Organization · Colburn-Keenan Foundation Inc · Pharmaceutical Research and Manufacturers of America · Global Impact · Global Genes · The Pfizer Foundation Inc · Ge Aerospace Foundation · Good360 · Jpmorgan Chase Foundation · The Bank of America Charitable Foundation Inc

How this is measured
Affinity is a Gamma-Poisson posterior co-funding rate, re-centered on the typical rate, so thin evidence shrinks toward no signal. Overlap is association, not proof of shared intent.

How much its grantees rely on government

Each dot is one organization Hemophilia Federation of America funds: left to right is the share of its income from government, bottom to top the share from Hemophilia Federation of America. Bigger dots raise more.

2024
’20’21’22’23’24’25
no gov · 60%1%5%11%20%funder's share of their income ↑0%10%20%30%40%share of the org’s income from government →
    no gov moneyreceives it· size = income
    6get no government money at all
    4report government grants on their 990 we could not trace to a source (not plotted)
    0rely on government for over half their income
    ⤢ axis zoomed · 0–40%
    typical government reliance, FY20–25
    How this is measured
    Government income is each org’s traced federal awards (USASpending grants and contracts) plus state payments (open checkbooks) as a share of its total revenue (IRS Form 990); the self-reported government-grant line (990 line 1e) is carried for cross-check: a grantee that reports government grants we could not trace to a source is left off the chart rather than shown as receiving none. An association, not a claim that a grant caused the public funding. Coverage is precision-first, a floor rather than a census; state records exist for 9 states, so a grantee outside them shows no state figure (dimmed) rather than a false zero. Federal award amounts are obligations, which can span years, so a single-year share is indicative. 990 filings lag 12 to 24 months.

    On method. Every financial figure here is read from IRS e-file XML, the funder’s own 990/990-PF, and from the multi-year returns of the 37 grantees we resolved, each linked to its source. Grantee outcomes are each organization’s own program-service reporting (Form 990, Part III), read as association with funding, never as caused by it. Low-confidence name matches are suppressed rather than guessed. How we build these →

    How this is measured
    Each figure carries one of six labels. Filed is what the funder reported on its return. Official is another government record about an organization, such as a federal award or a charity register, joined by name where no shared identifier exists. Resolved is an identity we worked out where the filing named a recipient without an EIN, kept only above a measured confidence threshold. Computed is arithmetic over those, like themes, portfolio clusters and co-funder strength. Context is a statistic about a place rather than about an organization, which is what the need overlay is: it describes the area a grantee’s address sits in, not where its work lands. Inferred is drawn by a model from text, like the partnerships read out of public news and organization websites. Each is labeled where it appears.

    Generated from the IRS Form 990 e-file return for fiscal year 2024, released 2024. Filings run roughly 12 to 24 months behind; figures are dated accordingly.

    Source object · view filing

    Play a game based on Hemophilia Federation of America’s filings →

    More from the funding graph

    The unnamed billions
    grants reported with no recipient in the public record
    The regranting layer
    51% of grant dollars land in the regranting layer
    The DAF merry-go-round
    $9.7B circulates between donor-advised funds
    The endowment market
    who holds foundation money, and what just moved
    The camps
    funders cluster by geography, not ideology
    By state
    where grant money is based, and what stays home