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National Bleeding Disorders Foundation at a glanceMostly funded, not a grantmaker: see who funds it →

· Public charity

National Bleeding Disorders Foundation

The NATIONAL BLEEDING DISORDERS FOUNDATION (formerly the national hemophilia foundation) is dedicated to finding cures for inheritable blood and bleeding disorders and to addressing and preventing the complications of these disorders through research, education, and advocacy enabling people and families to thrive.

$1.1M
Granted FY2024still arriving
23
Grants FY2024still arriving
19
States reached
$200k
Largest
01What it fundsRead
02The needRead
03Its granteesRead
04Its fieldRead
01What it funds
01100% classified

What it funded, over time

Every grant placed by its stated purpose and the recipient’s mission, by year, FY2017 to 2024.

Health$9.0MScience & Tech$615kEducation$498kEmployment$220kSocial Science$156kPublic Safety & Disaster$31kHuman Services$16kRecreation & Sports$14kOther$0
02FY2024 · 23 grants

Where the money goes

Grants by size, and the largest recipients.

How this is measured
The 23 grants below total $838,500, the rows itemized in this filing. The $1,138,320 headline is the total grant expense on the return; the other $299,820 is giving the schedule does not break out (grants under the $5,000 itemization floor, grants to individuals, grants on other schedules). Every figure below describes the itemized rows only.

By grant size · FY2024

  • Under $10k5 grants · $34k
  • $10k–50k12 grants · $167k
  • $50k–250k6 grants · $638k
$14,000
Median grant
19
States reached
$31M
Total assets
Largest grants
RecipientAmount
UNIVERSITY OF NORTH CAROLINA AT CHAPEL HILL$200,000
BETH ISRAEL DEACONESS MEDICAL CENTER$104,000
THE BOARD OF TRUSTEES OF THE LELAND STANFORD JUNIOR UNIVERSITY$104,000
WORLD FEDERATION OF HEMOPHILIA USA$90,000
BRIGHAM AND WOMEN'S HOSPITAL$70,000
EMORY UNIVERSITY$70,000
ASOCIACION PUERTORRIQUENA DE HEMOFILIA$18,000
UNIVERSITY OF FLORIDA$15,000
MAINE HEALTH$15,000
INTERMOUNTAIN HEALTHCARE FOUNDATION INC$15,000
HEMOPHILIA FOUNDATION OF MICHIGAN$14,000
BLEEDING DISORDER ASSOCIATION OF SC$14,000
WESTERN PENNSYLVANIA BLEEDING DISORDERS$13,500
GREAT LAKES HEMOPHILIA FOUNDATION$13,500
PACIFIC NORTHWEST BLEEDING DISORDERS$12,500
02The need
03

Does the money reach high-need areas?

Each grant placed by the hardship in its grantee’s ZIP, against the area’s typical level.

show:

Its human-services grants (FY17–24, $317k) land where the poverty rate runs at 9%, against an area that typically sits at 10%. 8% of those dollars go to grantees based in above-average-need neighborhoods. Its grants skew toward lower-need ZIPs.

area typical 10%WESTERN PA CHAPTER OF NHF: $12k → 9%WESTERN PENNSYLVANIA BLEEDING DISORDERS: $27k → 10%HEMOPHILIA OF NORTH CAROLINA: $13k → 8%VIRGINIA HEMOPHILIA FOUNDATION: $19k → 6%VIRGINIA HEMOPHILIA FOUNDATION: $45k → 9%THE HEMOPHILIA CENTER OF WESTERN PENNSYLVANIA: $10k → 9%WESTERN PENNSYLVANIA BLEEDING DISORDERS: $18k → 10%LONE STAR CHAPTER OF NHF: $10k → 16%BLEEDING DISORDERS FOUNDATION OF NC: $12k → 8%VIRGINIA HEMOPHILIA FOUNDATION: $19k → 6%VIRGINIA HEMOPHILIA FOUNDATION: $25k → 9%WESTERN PA CHAPTER OF NHF: $10k → 9%WESTERN PENNSYLVANIA BLEEDING DISORDERS: $14k → 10%LONE STAR CHAPTER OF NHF: $7k → 16%BLEEDING DISORDERS FOUNDATION OF NC: $11k → 8%VIRGINIA HEMOPHILIA FOUNDATION: $11k → 6%VIRGINIA HEMOPHILIA FOUNDATION: $21k → 9%WESTERN PA CHAPTER OF NHF: $6k → 9%BLEEDING DISORDERS FOUNDATION OF NC: $8k → 8%VIRGINIA HEMOPHILIA FOUNDATION: $6k → 6%VIRGINIA HEMOPHILIA FOUNDATION: $9k → 9%SISTERS AND CAREGIVERS BLEEDING DISORDERS: $8k → 14%0%20%40%50%more need →
grant to an above-average-need area below average· circle size = grant amount
How this is measured
Matched: human-services grants are those whose grantee’s IRS cause code is Human Services. Placed by people below the poverty line in the grantee’s ZIP, averaged from the tracts in that ZIP.

Which US states its grants reach

AK
ME
WA
ID
MT
ND
MN
IL
WI
MI
NY
MA
OR
NV
IA
IN
OH
PA
NJ
CT
CA
UT
CO
MO
KY
WV
VA
MD
DE
AZ
NM
AR
TN
NC
SC
OK
LA
GA
TX
FL
How this is measured
US grants placed by each grantee’s ZIP, which can differ from where services are delivered. Need from public data (U.S. Census/ACS, CDC PLACES, Eviction Lab, USDA), shown as context about the area, never attributed to the funder’s giving.
03Its grantees
repeat funding

Who it funds again

Organizations funded in more than one year, against those funded once.

82%of every dollar goes to organizations it has funded before.
$8.5M · 52 repeat orgs$1.9M to everyone else

Grantees it renews have grown median revenue +36% since the first grant, against +15% for those funded once.

52 repeat relationships: 19 still active in FY2024, 33 since wound down; 3 grantees were first funded in FY2024 (too recent to call).

How the two cohorts compare

Re-uppedFunded once

Organizations

52
47

Total granted

$8.5M
$1.7M

Median revenue growth · since first grant

+36%
+15%

Still filing today

81%
81%

New vs renewed · share of each year

In FY2024, 84% of grant dollars renewed an existing relationship; $120k went to new ones.

50%100%’17’18’19’20’21’22’23’24
RenewedFirst-time

Where new relationships form · theme of each grantee’s first grant

’17’18’19’20’21’22’23’24
HealthEducationHuman ServicesPhilanthropyHousing & ShelterOther
How this is measured
First-time means a grantee’s first year in the filing window; renewed means funded in an earlier year too. The renewed share climbs naturally as a portfolio matures, so the signal is a year that bucks it (a wave of new grantees). The earliest year is left-censored: relationships that predate the data read as new. Theme is the grantee’s IRS cause.

Backed again, and grew

  • EU
    Emory University
    6× · 2017–2024 · $1.1M · revenue +80%
  • TC
    THE CHILDREN'S HOSPITAL OF PHILADELPHIA
    4× · 2017–2022 · $576k · revenue +88%
  • TM
    THE MEDICAL COLLEGE OF WISCONSIN INC
    3× · 2017–2020 · $484k · revenue +54%

Funded once

  • AT
    AMERICAN THROMBOSIS AND HEMOSTASIS NETWORK INC
    one grant, 2020 · $250k · revenue +25%
  • TM
    Texas Medical Center Central Heating and Cooling Services Corporation
    one grant, 2020 · $208k · revenue +22%
  • THE CLEVELAND CLINIC FOUNDATION
    one grant, 2021 · $208k · revenue +20%
How this is measured

Repeat means funded in two or more distinct years. Growth and survival are read from each grantee’s own subsequent IRS filings.

04Its field

Closest unfunded matches

The nonprofits that most resemble its grantees but are not funded by it, scored along the direction from the rest of the field toward the portfolio. A resemblance in what they say they do, not a recommendation.

1
National Bleeding Disorders Foundation

The national bleeding disorders foundation (formerly the national hemophilia foundation) is dedicated to finding cures for inheritable blood and bleeding disorders and to addressing and preventing the complications of these disorders…

—
2
Cascade Hemophilia Consortium
Health
3
The Hemophilia Alliance Foundation

The hemophilia alliance foundation is dedicated to receiving and administering funds to enable eligible organizations in the inherited bleeding and thrombotic disorders community to build capacity in order to achieve their mission and to…

Health
4
Washington Institute for Coagulation

The washington center for bleeding disorders is dedicated to assuring optimal health for people with bleeding disorders through comprehensive care, education, and research.

Health
5
Bleeding Disorders of Kentucky Inc

Bleeding disorders of kentucky (bdoky) is dedicated to improving the quality of life for individuals with inheritable bleeding disorders through education, engagement, and support.

Health
6
The Coalition for Hemophilia B Inc
Health
7
Western New York Bloodcare Inc

Western new york bloodcare, inc. provides specialized diagnostic and health maintenance services to individuals with hemophilia and other genetic bleeding and clotting disorders that require lifelong medical management. for people affected…

Health
8
The Hemophilia Alliance Group Purchasing Organization

The hemophilia alliance provides member hemophilia treatment centers with resources and services to sustain the comprehensive care model for individuals with bleeding and clotting disorders.

Health
9
North American Thrombosis Forum Inc D/B/a Vasculearn Network
Education
10
Hereditary Angioedema Association Inc
Health
11
Hemophilia of Georgia Inc

Hemophilia of georgia exists so that people in georgia affected by bleeding disorders live as normally and productively as possible.

Health
12
Colburn-Keenan Foundation Inc
Philanthropy
How this is measured
The grantee most central to the portfolio’s shape is New England Hemophilia Association Inc; the most unlike its peers is MaineHealth. Resemblance is measured on each organization’s own IRS 990 mission text; it reflects how work is described, not its quality or impact.
04the grantee network

87 grantees tracked through their own filings, 2017–2025.

Each grant beside the grantee’s revenue from every source, year by year.

How this is measured

Counted here: distinct organizations funded across 2017 to 2025, not grant rows in a single year, so this will not match the grant count on the cover. 87 of the 103 grantees resolved in that span have returns of their own we could reconcile.

Each grantee is resolved to its own IRS returns. Association, dated; never a causal claim.

4
Load-bearing (≥25% of a budget)
15
Early backer (in before they grew)
84/87
Grantees still filing
56/87
Grew since first funded

Where the money sits, by cause and then by grantee

THE CHILDREN'S HOSPITAL OF PHILADELPHIA: $575,674 · HealthTHE CHILDREN'S HOSPITAL OF PHILADELPHIABLOODWORKS: $432,519 · HealthBLOODWORKSChildren's Hospital Corporation: $395,397 · HealthChildren's Hospital CorporationAMERICAN THROMBOSIS AND HEMOSTASIS NETWORK INC: $249,700 · HealthAMERICAN THROMBOSIS AND HEMOSTASIS NETWO…Texas Medical Center Central Heating and Cooling Services Corporation: $208,000 · HealthTexas Medical Center Central Heating and…THE CLEVELAND CLINIC FOUNDATION: $208,000 · HealthTHE CLEVELAND CLINIC FOUNDATIONBETH ISRAEL DEACONESS MEDICAL CENTER INC: $162,886 · Health+37 more: $1,505,291 · Health+37 moreUNIVERSITY OF NORTH CAROLINA AT CHAPEL HILL: $644,000 · OtherUNIVERSITY OF NORTH CAROLINA AT CHAPE…REGENTS OF THE UNIVERSITY OF MICHIGAN: $425,000 · OtherREGENTS OF THE UNIVERSITY OF MICHIGANUNIVERSITY OF WASHINGTON: $356,000 · OtherUNIVERSITY OF WASHINGTONState University of Iowa: $325,000 · OtherState University of IowaIndiana University School of Medicine: $210,000 · OtherIndiana University School of MedicineUNIVERSITY OF MICHIGAN CLUB OF ANN ARBOR: $191,000 · OtherUNIVERSITY OF MICHIGAN CLUB OF ANN AR…REGENTS OF THE UNIVERSITY OF CALIFORNIA: $160,000 · OtherMASS GENERAL BRIGHAM INCORPORATED: $155,000 · Other+30 more: $992,238 · Other+30 moreEmory University: $1,138,256 · EducationEmory UniversityTHE MEDICAL COLLEGE OF WISCONSIN INC: $484,328 · EducationTHE MEDICAL COLLEGE OF WISCON…Baylor College of Medicine: $371,231 · EducationBaylor College of MedicineUNIVERSITY OF DENVER: $214,289 · EducationUNIVERSITY OF DENVERTHE BOARD OF TRUSTEES OF THE LELAND STANFORD JUNIOR UNIVERSITY: $208,000 · EducationTHE BOARD OF TRUSTEES OF THE …UNIVERSITY OF PITTSBURGH: $104,000 · EducationFOUNDATION FOR WESTERN WASHINGTON UNIVERSITY AND ALUMNI: $104,000 · Education+5 more: $118,767 · EducationVIRGINIA BLEEDING DISORDERS FOUNDATION: $153,900 · Human ServicesWESTERN PENNSYLVANIA BLEEDING DISORDERS FOUNDATION: $96,290 · Human ServicesBLEEDING DISORDERS FOUNDATION OF NORTH CAROLINA: $43,100 · Human ServicesLONE STAR BLEEDING DISORDERS FOUNDATION: $16,629 · Human Services+1 more: $7,500 · Human ServicesNEW ENGLAND HEMOPHILIA ASSOCIATION INC: $185,725 · PhilanthropyHemophilia Foundation of MD Inc: $7,500 · Philanthropy+1 more: $5,000 · PhilanthropyBleeding Disorders Association of South Carolina: $130,757 · Housing & Shelter
Health$3,737,467Other$3,458,238Education$2,742,871Human Services$317,419Philanthropy$198,225Housing & Shelter$130,757

Each grantee by its size and the funder’s share of it; top left is load-bearing

25%50%75%100%$1.0M$10M$100Mgrantee revenue →↑ funder's share of their budgetEmory University: $1,138,256 over 6y, 0.0% of budgetTHE CHILDREN'S HOSPITAL OF PHILADELPHIA: $575,674 over 4y, 0.0% of budgetTHE MEDICAL COLLEGE OF WISCONSIN INC: $484,328 over 3y, 0.0% of budgetBLOODWORKS: $432,519 over 2y, 0.1% of budgetChildren's Hospital Corporation: $395,397 over 4y, 0.0% of budgetBaylor College of Medicine: $371,231 over 3y, 0.0% of budgetAMERICAN THROMBOSIS AND HEMOSTASIS NETWORK INC: $249,700 over 1y, 1.9% of budgetUNIVERSITY OF DENVER: $214,289 over 4y, 0.0% of budgetTexas Medical Center Central Heating and Cooling Services Corporation: $208,000 over 1y, 0.3% of budgetTHE BOARD OF TRUSTEES OF THE LELAND STANFORD JUNIOR UNIVERSITY: $208,000 over 2y, 0.0% of budgetTHE CLEVELAND CLINIC FOUNDATION: $208,000 over 1y, 0.0% of budgetNEW ENGLAND HEMOPHILIA ASSOCIATION INC: $185,725 over 8y, 7.0% of budgetBETH ISRAEL DEACONESS MEDICAL CENTER INC: $162,886 over 3y, 0.0% of budgetVIRGINIA BLEEDING DISORDERS FOUNDATION: $153,900 over 8y, 5.5% of budgetBleeding Disorders Association of South Carolina: $130,757 over 8y, 8.1% of budgetBLEEDING DISORDERS COUNCIL OF CALIFORNIA formerly HEMOPHILIA COUNCIL OF CALIF: $116,500 over 8y, 11% of budgetBleeding Disorders Alliance Illinois: $114,176 over 7y, 9.1% of budgetHemophilia Foundation of Michigan: $106,625 over 7y, 0.6% of budgetASOCIACION PUERTORRIQUENA DE HEMOFILIA INC: $104,290 over 5y, 16% of budgetUNIVERSITY OF PITTSBURGH: $104,000 over 1y, 0.0% of budgetFOUNDATION FOR WESTERN WASHINGTON UNIVERSITY AND ALUMNI: $104,000 over 1y, 0.8% of budgetINDIANA HEMOPHILIA & THROMBOSIS CENTER INC: $100,000 over 1y, 0.2% of budgetBleeding Disorders Alliance of North Dakota: $99,875 over 4y, 9.3% of budgetWESTERN PENNSYLVANIA BLEEDING DISORDERS FOUNDATION: $96,290 over 6y, 6.1% of budgetTEXAS CENTRAL HEMOPHILIA ASSOCIATION INC: $94,383 over 8y, 8.0% of budgetWORLD FEDERATION OF HEMOPHILIA USA: $90,000 over 1y, 0.0% of budgetGREAT LAKES HEMOPHILIA FOUNDATION INC: $84,975 over 7y, 1.2% of budgetTHE SCRIPPS RESEARCH INSTITUTE: $83,115 over 2y, 0.0% of budgetOKLAHOMA HEMOPHILIA FOUNDATION INC: $80,965 over 6y, 6.8% of budgetPACIFIC NORTHWEST BLEEDING DISORDERS: $73,588 over 6y, 3.3% of budgetCENTRAL CALIFORNIA BLEEDING DISORDERS FOUNDATION: $68,000 over 2y, 34% of budgetCT HEMOPHILIA SOCIETY INC: $67,500 over 2y, 44% of budgetGREATER OHIO BLEEDING DISORDERS FOUNDATION: $65,050 over 6y, 3.6% of budgetAlaska Hemophilia Association: $64,500 over 2y, 17% of budgetBLEEDING DISORDERS ASSOCIATION OF NORTHEASTERN NY: $60,135 over 4y, 34% of budgetHEMOPHILIA FOUNDATION OF ARKANSAS: $60,000 over 1y, 41% of budgetWAYNE STATE UNIVERSITY FOUNDATION: $60,000 over 1y, 0.2% of budgetGateway Hemophilia Association: $53,200 over 5y, 5.4% of budgetTHE CENTER FOR MEDICAL TECHNOLOGY POLICY INC: $50,000 over 1y, 2.4% of budgetHEMOPHILIA FOUNDATION OF SOUTHERN CALIFORNIA: $49,850 over 5y, 1.3% of budgetBLEEDING DISORDERS FOUNDATION OF NORTH CAROLINA: $43,100 over 4y, 2.3% of budgetNEW YORK CITY HEMOPHILIA CHAPTER INC: $42,625 over 4y, 2.2% of budgetEASTERN PENNSYLVANIA BLEEDING DISORDERS FOUNDATION: $39,552 over 5y, 2.4% of budgetHEMOPHILIA ASSOCIATION OF THE CAPITAL AREA: $37,875 over 5y, 3.0% of budgetLOUISIANA HEMOPHILIA FOUNDATION: $35,100 over 4y, 3.7% of budgetTHE HEMOPHILIA ASSOC OF SAN DIEGO COUNTY: $32,000 over 2y, 9.1% of budgetNORTHERN CALIFORNIA BLEEDING DISORDERS FOUNDATION FORMERLY HEMOPHILIA FOUNDTN: $27,225 over 2y, 3.7% of budgetHEMOPHILIA OF IOWA INC: $25,850 over 3y, 11% of budget
Grantee by grantee: a decade per organization, before and after funding

A decade per grantee: revenue shaded, grants as bars, all rows on one timeline.

Co-funders

Grantmakers whose grantees overlap with this funder’s far more than size alone predicts. Closer means stronger alignment; arcs show where they also fund each other. Here they form a tightly interlocked group: most of these funders back each other's grantees too.

The Hemophilia Allian…The Hemophilia Allian…Colburn-Keenan Founda…Hemophilia Federation…Pharmaceutical Resear…American Thrombosis a…Cascade Hemophilia Co…FAMOHIO IncIndiana Hemophilia & …Hemophilia of Georgia…Global ImpactPositudes Inc Dba the…
The Hemophilia Alliance FoundationFL120.2× affinity55 shared granteesties to 11 of 11Hover any node to trace its alignments.Compare side by side →

Open a dossier: The Hemophilia Alliance Foundation · The Hemophilia Alliance Group Purchasing Organization · Colburn-Keenan Foundation Inc · Hemophilia Federation of America · Pharmaceutical Research and Manufacturers of America · American Thrombosis and Hemostasis Network Inc · Cascade Hemophilia Consortium · FAMOHIO Inc · Indiana Hemophilia & Thrombosis Center Inc · Hemophilia of Georgia Inc · Global Impact · Positudes Inc Dba the Alliance Pharmacy

How this is measured
Affinity is a Gamma-Poisson posterior co-funding rate, re-centered on the typical rate, so thin evidence shrinks toward no signal. Overlap is association, not proof of shared intent.

How much its grantees rely on government

Each dot is one organization National Bleeding Disorders Foundation funds: left to right is the share of its income from government, bottom to top the share from National Bleeding Disorders Foundation. Bigger dots raise more.

2024
’20’21’22’23’24’25
no gov · 70%3%10%23%40%funder's share of their income ↑0%15%30%45%60%share of the org’s income from government →median 10%
  • University of Delaware: 30% of income from government
  • Children's Hospital Corporation: 10% of income from government
  • Beth Israel Deaconess Medical Center Inc: 6% of income from government
  • Orlando Health Inc: 0% of income from government
no gov moneyreceives it· size = income
7get no government money at all
8report government grants on their 990 we could not trace to a source (not plotted)
0rely on government for over half their income
⤢ axis zoomed · 0–60%
typical government reliance, FY20–25
How this is measured
Government income is each org’s traced federal awards (USASpending grants and contracts) plus state payments (open checkbooks) as a share of its total revenue (IRS Form 990); the self-reported government-grant line (990 line 1e) is carried for cross-check: a grantee that reports government grants we could not trace to a source is left off the chart rather than shown as receiving none. An association, not a claim that a grant caused the public funding. Coverage is precision-first, a floor rather than a census; state records exist for 9 states, so a grantee outside them shows no state figure (dimmed) rather than a false zero. Federal award amounts are obligations, which can span years, so a single-year share is indicative. 990 filings lag 12 to 24 months.

On method. Every financial figure here is read from IRS e-file XML, the funder’s own 990/990-PF, and from the multi-year returns of the 103 grantees we resolved, each linked to its source. Grantee outcomes are each organization’s own program-service reporting (Form 990, Part III), read as association with funding, never as caused by it. Low-confidence name matches are suppressed rather than guessed. How we build these →

How this is measured
Each figure carries one of six labels. Filed is what the funder reported on its return. Official is another government record about an organization, such as a federal award or a charity register, joined by name where no shared identifier exists. Resolved is an identity we worked out where the filing named a recipient without an EIN, kept only above a measured confidence threshold. Computed is arithmetic over those, like themes, portfolio clusters and co-funder strength. Context is a statistic about a place rather than about an organization, which is what the need overlay is: it describes the area a grantee’s address sits in, not where its work lands. Inferred is drawn by a model from text, like the partnerships read out of public news and organization websites. Each is labeled where it appears.

Generated from the IRS Form 990 e-file return for fiscal year 2024, released 2024. Filings run roughly 12 to 24 months behind; figures are dated accordingly.

Source object · view filing

Play a game based on National Bleeding Disorders’ filings →

More from the funding graph

The unnamed billions
grants reported with no recipient in the public record
The regranting layer
51% of grant dollars land in the regranting layer
The DAF merry-go-round
$9.7B circulates between donor-advised funds
The endowment market
who holds foundation money, and what just moved
The camps
funders cluster by geography, not ideology
By state
where grant money is based, and what stays home