New York · Nonprofit
WORLD FEDERATION OF HEMOPHILIA USA
WORLD FEDERATION OF HEMOPHILIA USA (New York) receives grants from 11 organizations whose IRS filings report $4,376,090 to it, the largest being Hemophilia of Georgia Inc ($2,605,000). 8 of them have funded it in more than one year.
- Revenue FY2024
- $1.1B
- Funders on record
- 11
- Grants received
- $4.4M
- Net assets
- $377M
What World Federation of Hemophilia USA does
Mission
The specific purpose of WFH USA is to advance the global mission of the World Federation of Hemophilia WFH within the United States to improve and sustain care for people with inherited bleeding disorders around the world by developing resources and building awareness within the US for the global vision of Treatment for All.
As stated on its FY2024 Form 990.
Programs
The WFH Humanitarian Aid program improves the lack of access to care and treatment by providing support to national member organizations hemophilia treatment centres and healthcare practitioners in emerging countries. This support comes in the form of education training and donated factor and non-factor replacement therapy.The reported $59.37 million deficit is primarily attributable to fluctuations in the value of donated pharmaceutical products which are recorded as in-kind revenue and expense. These are non-cash transactions impacting the total change in net assets without reflecting a change in operating cash flow or program delivery. WFH USA provides tens of thousands of people with hemophilia reliable access to care enabling prophylaxis and elective surgeries in over seventy countries worldwide. Per the Collaboration Agreement with the WFH WFH USA is exclusively responsible for soliciting in-kind contributions of pharmaceutical products and monetary donations for the program. WFH USA periodically grants the received contributions to the WFH as needed to carry out the program.
$1,153,880,637 spentof which $1,153,186,208 as grants$1,094,378,239 earned by the program100% of program spendingThe WFH Training and Education program provides the global bleeding disorders community with the information and tools required to improve access to diagnosis and ensure reliable access to safe treatment and care. Training and education may be delivered through healthcare development programs in-person and virtual workshops and educational events and the development and distribution of educational resources that are available in printed and electronic format. In accordance with the Collaboration agreement between WFH USA and the WFH WFH USA periodically grants contributions received to support the WFH Training and Education programs to the WFH as needed to carry out the WFHs responsibilities with respect to the WFH Training and Education Program.
$647,000 spentof which $582,300 as grants$647,000 earned by the program0% of program spendingThe WFH Research and Data Collection Program includes the Annual Global Survey the World Bleeding Disorder Registry the Gene Therapy Registry and their accompanying education and capacity-building programs. The objective of this program is to provide National Member Organizations NMOs and Hemophilia Treatment Centers HTCs with the tools to increase their capacity the framework to collect data on people with bleeding disorders and the education and training to use that data to conduct research and advocate for better care. In accordance with the Collaboration Agreement between the WFH USA and the WFH WFH USA periodically grants contributions received to support the WFH Research Program to the WFH as needed to carry out the WFHs responsibilities with respect to the WFH Research Program.
$155,000 spentof which $139,500 as grants$155,000 earned by the program0% of program spendingOther programs include the Awareness Building and Travel Fund. This initiative is dedicated to increasing awareness about bleeding disorders in the United States and worldwide.
$33,165 spent0% of program spending
The 4 programs described on its FY2024 Form 990, listed largest first by expense. Program spending in total: $1,154,715,802.
The organization over time
Each line starts at 100 in 2020, so what you read is the shape rather than the size: 150 means half as much again as 2020, 50 means half. The number beside each label in the key is where it ended. The shaded band is where the middle 50% of its peers' revenue would sit, given their growth.
Balance sheet
Total assets and total liabilities at each year end, in dollars. The largest one-year move in total assets was 2022 to 2023, from $1.9M to $437M (+23437%).
How it's funded, over time
Each bar is one year's revenue split into where it came from, and every bar is the same height — these are shares, not amounts, so a year that raised twice as much looks the same size. Hover a bar for the split.
100% of WORLD FEDERATION OF HEMOPHILIA USA’s revenue is contributions — more reliant on donations than three-quarters of its peers (1% for the typical peer).
Surplus & reserves
Operating surplus or deficit each year, and months of liquidity in hand. 1 of the last 5 reported years ran a deficit.
reserve
Leadership and staff
The officers, directors, trustees and key employees listed on each return. Joined and no longer listed compare each filing with the year before, matching people by surname and first initial; a year after a gap, or a roster under three people, has no comparison.
Chief executive
Alain Baumann
Secretary Exec Director
As listed on its FY2024 Form 990.
Who funds it, year by year
2017 → 2023: the base broadened from 2 funders to 6 funders, grant income rose $65k → $881k.
3 of 11 of your funders are donor-advised or pass-through sponsors (tagged DAF) — 10% of grant dollars received. That money is really individual donors directing a sponsor; the institutions to cultivate are the non-DAF funders.
From the IRS filings of WORLD FEDERATION OF HEMOPHILIA USA’s funders (the co-funder graph). Association, not causation. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How concentrated its funding is
WORLD FEDERATION OF HEMOPHILIA USA leans on a few funders — its largest provides 60% of grant income and the top three 91%; half comes from just 1 funder.
the vertical line marks half of all grant income — 1 funder to its left
100% of the income these shares are computed over arrives through pass-through sponsors or from payers whose filings do not say what kind of payment it is. Concentration is still measured over all of it, because the money is real; what it does not support is a claim about how many institutions have chosen to fund WORLD FEDERATION OF HEMOPHILIA USA.
Largest funder’s share by year: 2017 85% · 2018 63% · 2019 53% · 2020 78% · 2021 58% · 2022 61% · 2023 66% — diversifying over time.
“Effective funders” = inverse Herfindahl index (1 / Σ shareᵢ²) — the number of equal-sized funders that would give the same concentration. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How long its funders stay
75% of WORLD FEDERATION OF HEMOPHILIA USA's funders are still giving 3 years after their first grant; 73% give in more than one year at all.
Share of funders still giving k years after their first recorded grant, pooled across every acquisition cohort. A funder counts as retained in a year only if it made a grant that year. Measured to FY2023, the last fiscal year that has finished arriving — a funder cannot be counted as lapsed in a year most filers have not reached.
Where its funders are
WORLD FEDERATION OF HEMOPHILIA USA draws 97% of its grant income from funders outside New York, across 7 states in all.
In-state vs out-of-state, by year
Funder states come from each funder’s own filing. $425k arriving through sponsors registered in 3 states is excluded from the map and the split above: a sponsor holds money on a donor’s behalf, so its registered address would place those dollars somewhere no donor need ever have been. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
Against its field
WORLD FEDERATION OF HEMOPHILIA USA has grown faster than three-quarters of the 2,075 health nonprofits its size.
this organization peer median middle 50% of peers· 2,075 health nonprofits over $100M, FY2024
Organizations like WORLD FEDERATION OF HEMOPHILIA USA
Organizations whose mission and program text most resemble this one, by semantic similarity over every organization in the US filings — the closest peers, and often the clearest route to shared or prospective funders.
In New York
Nationally
Read directly from this organization’s own Form 990, as neutral context.
Where the money goes
100% of spending goes to programs.
Governance
Public support
13%
Share of support from the public (Schedule A) — the basis for its public-charity status.
Footprint & structure
Files a return copy in 34 states
Part of a family of 1 related entity
- World Federation of Hemophilia · exempt
Screen this organization
A dated, signed PDF of the compliance screen for WORLD FEDERATION OF HEMOPHILIA USA: IRS status (Business Master File, Publication 78, auto-revocation), the OFAC sanctions lists, the Internal Revenue Bulletin, and California registration, with the Rev. Proc. 2018-32 §8.01 reliance elements stated element by element. Generated from the current files at the moment you download it.
Screens are triage, not determinations; a source that cannot be read reports not screened, never clear. Screen this nonprofit · How the screen works · on the API as GET /api/screening/{ein}?format=pdf
Questions and answers
- Who funds WORLD FEDERATION OF HEMOPHILIA USA?
- WORLD FEDERATION OF HEMOPHILIA USA (New York) receives grants from 11 organizations whose IRS filings report $4,376,090 to it, the largest being Hemophilia of Georgia Inc ($2,605,000). 8 of them have funded it in more than one year.
- How many funders does WORLD FEDERATION OF HEMOPHILIA USA have?
- IRS filings report 11 organizations giving $4,376,090 in grants to WORLD FEDERATION OF HEMOPHILIA USA, 8 of which have funded it in more than one year.
- Who is the largest funder of WORLD FEDERATION OF HEMOPHILIA USA?
- Hemophilia of Georgia Inc is the largest funder on record, with $2,605,000 in grants. The full list of funders is on this page.
- How can an organization like WORLD FEDERATION OF HEMOPHILIA USA find more funders?
- Start with the funders already giving here, then look at the foundations that back similar organizations in New York. The funding by cause and by state pages list the largest funders for a given area and how to approach them.
Play a game about who funds World Federation of Hemophilia USA →
These figures are read directly from IRS Form 990 / 990-PF e-file XML: this organization’s own return for FY2024 (financials across 2020–2024), and the filings of 11 funders that report grants to it. “On record” means captured in the filings we have parsed — a funder that does not e-file, or whose grant detail is not itemized, will not appear. Filings run roughly 12–24 months behind. Trends on this page end at FY2023, the last fiscal year that has finished arriving; later years are shown and marked, and move no figure. Data on this page was exported October 14, 2026. What this page cannot tell you · view filing