Florida · Nonprofit
AMYOTROPHIC LATERAL SCLEROSIS ASSOCIATION
AMYOTROPHIC LATERAL SCLEROSIS ASSOCIATION (Florida) receives grants from 58 organizations whose IRS filings report $1,712,645 to it, the largest being AMYOTROPHIC LATERAL SCLEROSIS ASSN ($338,652). 32 of them have funded it in more than one year, and 50% of the money arrives through donor-advised or pass-through sponsors rather than from an institution directly.
- Revenue FY2023
- $55k
- Funders on record
- 58
- Grants received
- $1.7M
- Net assets
- $0
What Amyotrophic Lateral Sclerosis Association does
Mission
Our mission is to discover treatments and a cure for als, and to serve, advocate for, and empower people affected by als to live their lives to the fullest.
As stated on its FY2023 Form 990.
Program
On its FY2023 return the organization reported starting a significant new program and a significant change in how it conducts a program.
The organization managed reserve funds raised by the florida chapter prior to its unification date, which occurred on november 1, 2022. Additionally, the organization completed its fy 2022-23 contractual obligations with the state of florida related to the bitner plante als initiative of florida.
Its own explanation, from Schedule O of that return (Part III, line 2).
In october 2022, the association entered into a transfer agreement ("agreement") with Amyotrophic Lateral Sclerosis Association ("alsa or "national") for the purpose of transferring specified operations, assets, and liabilities to alsa with the goal of achieving a unified structure and unified delivery of program services. The transfer closing date specified in the agreement was november 1, 2022. The association remained an independent legal entity after the closing date and retained certain cash balances as specified in the agreement. Programming previously carried out by the association prior to the closing date is now conducted by alsa. The agreement also specified that, between the closing date and december 31, 2024, the association and alsa will effectuate a legal merger in which alsa or a wholly owned subsidiary of alsa will be the surviving corporation and the association will cease to exist as a separate legal entity. A legal merger was effectuated september 1, 2023 (see schedule n).
Its own explanation, from Schedule O of that return (Part III, line 3).
The als association florida chapter board established 3 new restricted accounts to support new programs and services designed to help als families in florida. These programs, which will be created and managed by staff with the als association, included: (1) respite care program; (2) ramp program; and (3) panhandle clinic program. Additionally, the board contributed funds to an existing restricted account to support the als association's equipment loan program in florida. All remaining reserve funds were transferred to the als association on august 29, 2023.
$1,829,845 spentof which $1,829,845 as grants100% of program spending
The program described on its FY2023 Form 990. Program spending in total: $1,829,845.
The organization over time
Each line starts at 100 in 2017, so what you read is the shape rather than the size: 150 means half as much again as 2017, 50 means half. The number beside each label in the key is where it ended.
Balance sheet
Total assets and total liabilities at each year end, in dollars. The largest one-year move in total assets was 2022 to 2023, from $2.7M to $0 (−100%).
How it's funded, over time
Each bar is one year's revenue split into where it came from, and every bar is the same height — these are shares, not amounts, so a year that raised twice as much looks the same size. Hover a bar for the split.
Government-grant reliance: 2017 18% · 2018 18% · 2019 16% · 2020 9% · 2021 19% · 2022 31%. Grants only. Government contracts and fees sit inside program revenue.
Surplus & reserves
Operating surplus or deficit each year, and months of liquidity in hand. 5 of the last 7 reported years ran a deficit.
reserve
Leadership and staff
The officers, directors, trustees and key employees listed on each return. Joined and no longer listed compare each filing with the year before, matching people by surname and first initial; a year after a gap, or a roster under three people, has no comparison.
Board chair
Glenn Stambaugh
Chairman
As listed on its FY2023 Form 990.
Who funds it, year by year
2017 → 2023: the base broadened from 13 funders to 20 funders, grant income rose $94k → $224k.
16 of 58 of your funders are donor-advised or pass-through sponsors (tagged DAF) — 50% of grant dollars received. That money is really individual donors directing a sponsor; the institutions to cultivate are the non-DAF funders.
From the IRS filings of AMYOTROPHIC LATERAL SCLEROSIS ASSOCIATION’s funders (the co-funder graph). Top 30 of 58 funders by total. Association, not causation. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How concentrated its funding is
AMYOTROPHIC LATERAL SCLEROSIS ASSOCIATION has a broad base — no single funder exceeds 20% of grant income, and it takes 4 funders to reach half.
the vertical line marks half of all grant income — 4 funders to its left
77% of the income these shares are computed over arrives through pass-through sponsors or from payers whose filings do not say what kind of payment it is. Concentration is still measured over all of it, because the money is real; what it does not support is a claim about how many institutions have chosen to fund AMYOTROPHIC LATERAL SCLEROSIS ASSOCIATION.
Largest funder’s share by year: 2017 30% · 2018 44% · 2019 29% · 2020 24% · 2021 40% · 2022 22% · 2023 22% — diversifying over time.
“Effective funders” = inverse Herfindahl index (1 / Σ shareᵢ²) — the number of equal-sized funders that would give the same concentration. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How long its funders stay
36% of AMYOTROPHIC LATERAL SCLEROSIS ASSOCIATION's funders are still giving 3 years after their first grant; 55% give in more than one year at all.
Share of funders still giving k years after their first recorded grant, pooled across every acquisition cohort. A funder counts as retained in a year only if it made a grant that year. Measured to FY2023, the last fiscal year that has finished arriving — a funder cannot be counted as lapsed in a year most filers have not reached.
Where its funders are
50% of AMYOTROPHIC LATERAL SCLEROSIS ASSOCIATION's grant income arrives through donor-advised or pass-through sponsors, whose addresses record where the money is held rather than where the donor is. Of the $854k that is directly attributable, 67% of it comes from funders outside Florida, across 15 states.
In-state vs out-of-state, by year
Funder states come from each funder’s own filing. $859k arriving through sponsors registered in 12 states is excluded from the map and the split above: a sponsor holds money on a donor’s behalf, so its registered address would place those dollars somewhere no donor need ever have been. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
Organizations like AMYOTROPHIC LATERAL SCLEROSIS ASSOCIATION
Organizations whose mission and program text most resemble this one, by semantic similarity over every organization in the US filings — the closest peers, and often the clearest route to shared or prospective funders.
In Florida
Nationally
Read directly from this organization’s own Form 990, as neutral context.
Where the money goes
100% of spending goes to programs.
Governance
Public support
98%
Share of support from the public (Schedule A) — the basis for its public-charity status.
Footprint & structure
Files a return copy in 1 state
Screen this organization
A dated, signed PDF of the compliance screen for AMYOTROPHIC LATERAL SCLEROSIS ASSOCIATION: IRS status (Business Master File, Publication 78, auto-revocation), the OFAC sanctions lists, the Internal Revenue Bulletin, and California registration, with the Rev. Proc. 2018-32 §8.01 reliance elements stated element by element. Generated from the current files at the moment you download it.
Screens are triage, not determinations; a source that cannot be read reports not screened, never clear. Screen this nonprofit · How the screen works · on the API as GET /api/screening/{ein}?format=pdf
Questions and answers
- Who funds AMYOTROPHIC LATERAL SCLEROSIS ASSOCIATION?
- AMYOTROPHIC LATERAL SCLEROSIS ASSOCIATION (Florida) receives grants from 58 organizations whose IRS filings report $1,712,645 to it, the largest being AMYOTROPHIC LATERAL SCLEROSIS ASSN ($338,652). 32 of them have funded it in more than one year, and 50% of the money arrives through donor-advised or pass-through sponsors rather than from an institution directly.
- How many funders does AMYOTROPHIC LATERAL SCLEROSIS ASSOCIATION have?
- IRS filings report 58 organizations giving $1,712,645 in grants to AMYOTROPHIC LATERAL SCLEROSIS ASSOCIATION, 32 of which have funded it in more than one year.
- Who is the largest funder of AMYOTROPHIC LATERAL SCLEROSIS ASSOCIATION?
- AMYOTROPHIC LATERAL SCLEROSIS ASSN is the largest funder on record, with $338,652 in grants. The full list of funders is on this page.
- How can an organization like AMYOTROPHIC LATERAL SCLEROSIS ASSOCIATION find more funders?
- Start with the funders already giving here, then look at the foundations that back similar organizations in Florida. The funding by cause and by state pages list the largest funders for a given area and how to approach them.
These figures are read directly from IRS Form 990 / 990-PF e-file XML: this organization’s own return for FY2023 (financials across 2017–2023), and the filings of 58 funders that report grants to it. “On record” means captured in the filings we have parsed — a funder that does not e-file, or whose grant detail is not itemized, will not appear. Filings run roughly 12–24 months behind. Trends on this page end at FY2023, the last fiscal year that has finished arriving; later years are shown and marked, and move no figure. Data on this page was exported October 14, 2026. What this page cannot tell you · view filing