North Carolina · Nonprofit
ALS UNITED NORTH CAROLINA
ALS UNITED NORTH CAROLINA (North Carolina) receives grants from 41 organizations whose IRS filings report $906,731 to it, the largest being VANGUARD CHARITABLE ENDOWMENT PROGRAM ($166,500). 20 of them have funded it in more than one year, and 69% of the money arrives through donor-advised or pass-through sponsors rather than from an institution directly.
- Revenue FY2025
- $1.5M
- Funders on record
- 41
- Grants received
- $907k
- Net assets
- $2.0M
What Als United North Carolina does
Mission
To discover treatments and a cure for als and to serve, advocate for, and empower people affected by als to live their lives to the fullest.
As stated on its FY2025 Form 990.
Programs
Care services is a program that serves families living with als in all 100 counties in north carolina. Als United North Carolina continues to support all als clinics in north carolina, maintain a medical equipment loan program, host monthly support groups, and provide financial support to families to help alleviate stress related to the cost of medical treatments and services for als as identified in the focus survey "understanding insurance needs and financial burdens." in the 2024 fiscal year alsunc held 104 virtual support group meetings, loaned nearly 500 pieces of durable medical equipment, paid for more than 2,700 hours of in-home care, and supported our multidisciplinary clinics that served over 1500 hours of patient visits.
$1,638,503 spent$8,215 earned by the program72% of program spendingThe global research program provides funding to support international medical research to discover effective treatments and a cure for als.
The public education and awareness program is designed to increase understanding, education, and awareness of the impact of als and the role that the association plays in providing care services, advancing global als research, and advancing important public policy initiatives.
$643,195 spent28% of program spending
The 3 programs described on its FY2024 Form 990, listed largest first by expense. Program spending in total: $2,281,698.
The organization over time
Each line starts at 100 in 2021, so what you read is the shape rather than the size: 150 means half as much again as 2021, 50 means half. The number beside each label in the key is where it ended. The shaded band is where the middle 50% of its peers' revenue would sit, given their growth.
Balance sheet
Total assets and total liabilities at each year end, in dollars. The largest one-year move in total assets was 2024 to 2025, from $2.8M to $2.2M (−23%).
How it's funded, over time
Each bar is one year's revenue split into where it came from, and every bar is the same height — these are shares, not amounts, so a year that raised twice as much looks the same size. Hover a bar for the split.
Government-grant reliance: 2021 29% · 2022 22% · 2023 19% · 2024 12% · 2025 1%. Grants only. Government contracts and fees sit inside program revenue.
110% of ALS UNITED NORTH CAROLINA’s revenue is contributions — more reliant on donations than three-quarters of its peers (51% for the typical peer).
Surplus & reserves
Operating surplus or deficit each year, and months of liquidity in hand. 2 of the last 5 reported years ran a deficit.
reserve
Leadership and staff
The officers, directors, trustees and key employees listed on each return. Joined and no longer listed compare each filing with the year before, matching people by surname and first initial; a year after a gap, or a roster under three people, has no comparison.
Chief executive
David Shore
President & CEO
Board chair
Douglas Noreen
Chair
As listed on its FY2025 Form 990.
Who funds it, year by year
2017 → 2023: the base broadened from 6 funders to 13 funders, grant income rose $32k → $149k.
14 of 41 of your funders are donor-advised or pass-through sponsors (tagged DAF) — 69% of grant dollars received. That money is really individual donors directing a sponsor; the institutions to cultivate are the non-DAF funders.
From the IRS filings of ALS UNITED NORTH CAROLINA’s funders (the co-funder graph). Top 30 of 41 funders by total. Association, not causation. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How concentrated its funding is
ALS UNITED NORTH CAROLINA has a broad base — no single funder exceeds 18% of grant income, and it takes 4 funders to reach half.
the vertical line marks half of all grant income — 4 funders to its left
86% of the income these shares are computed over arrives through pass-through sponsors or from payers whose filings do not say what kind of payment it is. Concentration is still measured over all of it, because the money is real; what it does not support is a claim about how many institutions have chosen to fund ALS UNITED NORTH CAROLINA.
Largest funder’s share by year: 2017 31% · 2018 33% · 2019 27% · 2020 51% · 2021 49% · 2022 45% · 2023 35% — growing more concentrated.
“Effective funders” = inverse Herfindahl index (1 / Σ shareᵢ²) — the number of equal-sized funders that would give the same concentration. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How long its funders stay
23% of ALS UNITED NORTH CAROLINA's funders are still giving 3 years after their first grant; 49% give in more than one year at all.
Share of funders still giving k years after their first recorded grant, pooled across every acquisition cohort. A funder counts as retained in a year only if it made a grant that year. Measured to FY2023, the last fiscal year that has finished arriving — a funder cannot be counted as lapsed in a year most filers have not reached.
Where its funders are
69% of ALS UNITED NORTH CAROLINA's grant income arrives through donor-advised or pass-through sponsors, whose addresses record where the money is held rather than where the donor is. Of the $277k that is directly attributable, 53% of it comes from funders outside North Carolina, across 12 states.
In-state vs out-of-state, by year
Funder states come from each funder’s own filing. $629k arriving through sponsors registered in 12 states is excluded from the map and the split above: a sponsor holds money on a donor’s behalf, so its registered address would place those dollars somewhere no donor need ever have been. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
Against its field
ALS UNITED NORTH CAROLINA's revenue fell 35% between 2021 and 2025.
this organization peer median middle 50% of peers· 4,665 health nonprofits $1M–$10M, FY2025
Organizations like ALS UNITED NORTH CAROLINA
Organizations whose mission and program text most resemble this one, by semantic similarity over every organization in the US filings — the closest peers, and often the clearest route to shared or prospective funders.
In North Carolina
Nationally
Read directly from this organization’s own Form 990, as neutral context.
Where the money goes
84% of spending goes to programs.
Governance
Public support
94%
Share of support from the public (Schedule A) — the basis for its public-charity status.
Screen this organization
A dated, signed PDF of the compliance screen for ALS UNITED NORTH CAROLINA: IRS status (Business Master File, Publication 78, auto-revocation), the OFAC sanctions lists, the Internal Revenue Bulletin, and California registration, with the Rev. Proc. 2018-32 §8.01 reliance elements stated element by element. Generated from the current files at the moment you download it.
Screens are triage, not determinations; a source that cannot be read reports not screened, never clear. Screen this nonprofit · How the screen works · on the API as GET /api/screening/{ein}?format=pdf
Questions and answers
- Who funds ALS UNITED NORTH CAROLINA?
- ALS UNITED NORTH CAROLINA (North Carolina) receives grants from 41 organizations whose IRS filings report $906,731 to it, the largest being VANGUARD CHARITABLE ENDOWMENT PROGRAM ($166,500). 20 of them have funded it in more than one year, and 69% of the money arrives through donor-advised or pass-through sponsors rather than from an institution directly.
- How many funders does ALS UNITED NORTH CAROLINA have?
- IRS filings report 41 organizations giving $906,731 in grants to ALS UNITED NORTH CAROLINA, 20 of which have funded it in more than one year.
- Who is the largest funder of ALS UNITED NORTH CAROLINA?
- VANGUARD CHARITABLE ENDOWMENT PROGRAM is the largest funder on record, with $166,500 in grants. The full list of funders is on this page.
- How can an organization like ALS UNITED NORTH CAROLINA find more funders?
- Start with the funders already giving here, then look at the foundations that back similar organizations in North Carolina. The funding by cause and by state pages list the largest funders for a given area and how to approach them.
Play a game about who funds Als United North Carolina →
These figures are read directly from IRS Form 990 / 990-PF e-file XML: this organization’s own return for FY2025 (financials across 2021–2025), and the filings of 41 funders that report grants to it. “On record” means captured in the filings we have parsed — a funder that does not e-file, or whose grant detail is not itemized, will not appear. Filings run roughly 12–24 months behind. Trends on this page end at FY2023, the last fiscal year that has finished arriving; later years are shown and marked, and move no figure. Data on this page was exported October 14, 2026. What this page cannot tell you · view filing