· Public charity
Amyotrophic Lateral Sclerosis Assn
The mission of the als association is to make als livable and cure it.
What you funded, over time
Every grant placed by its stated purpose and the recipient’s mission, by year — across FY2017–2025.
Where the money goes
Your grants by size, and where they go.
The 143 grants below total $8,360,937 — the rows itemised in this filing. The $16,679,289 headline is the total grant expense reported on the return, so the remaining $8,318,352 is giving the schedule does not break out: grants under the $5,000 itemisation floor, grants to individuals, and grants reported on other schedules. Every figure below describes the itemised rows only.
By grant size · FY2025
- Under $10k3 grants · $19k
- $10k–50k96 grants · $1.7M
- $50k–250k38 grants · $4.1M
- $250k+6 grants · $2.5M
| Recipient | Amount |
|---|---|
| UNIVERSITY OF MIAMI | $652,154 |
| UNIVERSITY MEDICAL SERVICE ASSOCIATION INC | $551,417 |
| MAYO CLINIC FLORIDA | $426,327 |
| AMERICAN BRAIN FOUNDATION | $323,000 |
| ASHA THERAPEUTICS | $250,000 |
| MODULO BIO INC | $250,000 |
| PROJENX INC | $247,700 |
| NOVA SOUTHEASTERN UNIVERSITY | $239,332 |
| EVERYLIFE FOUNDATION FOR RARE DISEASES | $210,711 |
| THE BRIGHAM AND WOMEN'S HOSPITAL INC | $200,000 |
| PICASSO INTELLIGENCE | $199,411 |
| TACONIC BIOSCIENCES INC | $167,202 |
| ORLANDO HEALTH INC | $165,421 |
| SAMSARA THERAPEUTICS LTD | $150,000 |
| HOLY CROSS HOSPITAL | $147,101 |
Do your dollars go where the need is?
Each grant placed by the hardship in its grantee’s ZIP, then read against the area’s typical level.
Your human-services grants (FY17–21, $187k) land where the poverty rate runs at 11%, against an area that typically sits at 10%. 100% of those dollars go to grantees based in above-average-need neighborhoods. Most of your grants land in higher-need ZIPs.
Matched: human-services grants are those whose grantee’s IRS cause code is Human Services. Placed by people below the poverty linein the grantee’s ZIP, averaged from the tracts in that ZIP; grantee ZIP can differ from where services are delivered.
Which US states your grants reach
Grants abroad, by region — $2.8M on the FY2025 return
Schedule F, as filed: 2 regions. The IRS asks for region and purpose, not the recipient, so no country or grantee can be named here.
Stated purpose: CLINICAL TRIAL AWARD · DRUG DEVELOPMENT CONTRACT · PREVENTION PROGRAM
Stated purpose: DRUG DEVELOPMENT CONTRACT
US grants placed by each grantee’s ZIP, which can differ from where services are actually delivered. Need from public data — U.S. Census/ACS, CDC PLACES, Eviction Lab, USDA — shown as context about the area, never attributed to your giving. Grants abroad on Schedule F are filed by region, purpose and amount with no recipient name, so they are shown by region and cannot be placed on the country map or matched to a grantee.
Who you back again
Which organizations you funded more than once, and which you funded a single time. Each grantee is matched to its own filings.
And the relationships you keep tend to grow: grantees you re-up on have seen median revenue of +29% since the first grant, against +10% for the ones you funded once.
240 repeat relationships — 110 still active in FY2025, 130 since wound down; 9 grantees were first funded in FY2025 (too recent to call).
How the two cohorts compare
Organizations
Total granted
Median revenue growth · since first grant
Still filing today
New vs renewed · share of each year
In FY2025, 87% of grant dollars renewed an existing relationship; $1.0M went to new ones.
Where new relationships form · theme of each grantee’s first grant
First-time = a grantee’s first year in your filing window; renewed = funded in an earlier year too. As a portfolio matures the renewed share naturally climbs — once funded, an org stays “renewable” — so the signal is the years that buck it (a new-grantee intake wave). The earliest year is left-censored: relationships that predate the data read as “new.” Theme is the grantee’s IRS cause.
Backed again, and grew
JOHNS HOPKINS UNIVERSITY9× · 2017–2025 · $6.6M · revenue +64%- NYNEW YORK GENOME CENTER INC5× · 2019–2025 · $3.5M · revenue +95%
CEDARS-SINAI MEDICAL CENTER9× · 2017–2025 · $2.7M · revenue +63%
Funded once
- CICYTOKINETICS INCone grant, 2018 · $800k
- FUFOCUSED ULTRASOUND FOUNDATIONgraduatedone grant, 2023 · $500k · revenue +97%
- OLOPTIKIRA LLCone grant, 2018 · $499k
Repeat = funded in two or more distinct years; growth and survival are read from each grantee’s own subsequent IRS filings.
The map has a center of gravity: the average direction from the rest of the sector toward the organizations the foundation funds — the shape of its giving. Scoring every nonprofit along that direction surfaces the ones that look most like the portfolio. These are the closest matchesthat aren’t grantees — a resemblance in what they say they do, not a recommendation.
University of minnesota physicians serves as the integrated group practice for the university of minnesota medical school full-time faculty to provide the highest quality healthcare to patients and their families.university of minnesota…
The mission of Rush is to improve the health of the individuals and diverse communities we serve through the integration of outstanding patient care, education, research and community partnerships.
Mass general brigham incorporated is developing an integrated health care delivery system throughout the region that offers patients a continuum of coordinated, high-quality care.
For more than 125 years, the mission of the johns hopkins hospital has been to lead the world in the diagnosis and treatment of disease and to train tomorrow's great physicians, nurses and scientists. above all, we aim to provide the…
Fred hutch cancer center ("fred hutch") unites innovative research and compassionate care to prevent and eliminate cancer and infectious disease. continued on schedule o
Leadership in the prevention, treatment, and cure of cancer through excellence, vision and cost effectiveness in patient care, outreach programs, research, and education.
University health is an academic health center providing accessible, state-of-the-art quality healthcare to our community regardless of the ability to pay.
Our mission at the university of chicago medicine is to provide superior health care through rigorous research, innovative education, and comprehensive care and healing. in partnership with our colleagues, we pursue life-changing…
THE MASSACHUSETTS EYE AND EAR INFIRMARY ("THE INFIRMARY") IS A NOT-FOR-PROFIT TEACHING HOSPITAL CONDUCTING PATIENT CARE AND RESEARCH. THE INFIRMARY IS A TEACHING HOSPITAL OF HARVARD MEDICAL SCHOOL AND AN INTERNATIONAL CENTER FOR RESEARCH.…
We, loyola university health system and trinity health, serve together in the spirit of the gospel as a compassionate and transforming healing presence within our communities.lumc is a member of loyola university health system and trinity…
Under the medical service plan of the university of maryland school of medicine, medical services are rendered by the members of the faculty on behalf of the school of medicine in connection with their duties to provide clinical…
The Academy's mission is to enhance member career fulfillment and promote brain health for all.
For reference, the grantee most central to the portfolio’s shape is The Medstar-Georgetown Medical Center Inc and the most unlike its peers is The Leandro P Rizzuto Foundation. Resemblance is measured on each organization’s own IRS 990 mission text; it reflects how work is described, not its quality or impact.
For each theme you fund, this compares how the sector’s money is shifting with how your own giving is shifting.
Sector change and giving change are each shown relative to their own range, growing (right) or shrinking (left); both normalized, so inflation isn’t mistaken for growth.
Your grantees are a median of 36 years old; the field is 16. You back the established end — and your money leans older still.
The field is 22% startups (under 5 years old) — 10% of your grantees by number, and just 1% of your money.
The orgs you fund almost never close — 0.6% lost their exemption, against 13% of the field you don’t fund.
Age = years since IRS exemption (a founding proxy). “Closed” = auto-revocation for 3 years of non-filing — a floor on closure, not proof, and bigger established orgs lapse least. Association, not causation.
186 grantees tracked through their own filings, 2017–2026.
Each one resolved to its own IRS returns and tracked year by year — your grant beside their revenue from every source. Association, dated; never a causal claim.
Counted here: distinct organizations you funded across 2017–2026, not grant rows in a single year — so this will not match the grant count on the cover. 186 of the 319 grantees resolved in that span have returns of their own we could reconcile; the rest are funded organizations whose filings we could not track year by year.
Where your money sits — by cause, then by grantee
Showing your 200 largest grantees by grant value.
Each org by its size and your share of it — top-left is where you’re load-bearing
Go grantee by grantee — a decade per org, and how each moved after you funded them
A decade per grantee — revenue shaded, your grants as bars, all rows on one timeline.
- Who funds JOHNS HOPKINS UNIVERSITY ↗
- Who funds THE TRUSTEES OF COLUMBIA UNIVERSITY IN THE CITY OF NEW YORK ↗
- Who funds NEW YORK GENOME CENTER INC ↗
- Who funds CEDARS-SINAI MEDICAL CENTER ↗
- Who funds Ludwig Institute for Cancer Research Ltd ↗
- Who funds AMERICAN BRAIN FOUNDATION ↗
- Who funds University of Miami ↗
- Who funds AMYOTROPHIC LATERAL SCLEROSIS ASSN MASSACHUSETTS CHAPTER INC ↗
- Who funds ST JUDE CHILDREN'S RESEARCH HOSPITAL INC ↗
- Who funds THE J DAVID GLADSTONE INSTITUTES ↗
- Who funds WASHINGTON UNIVERSITY ↗
- Who funds TRUSTEES OF THE UNIVERSITY OF PENNSYLVANIA ↗
- Who funds NORTH EAST ALS CONSORTIUM INC ↗
- Who funds UNIVERSITY OF SOUTHERN CALIFORNIA ↗
- Who funds President and Fellows of Harvard College ↗
- Who funds Emory University ↗
- Who funds UNIVERSITY MEDICAL SERVICE ASSOCIATION INC ↗
- Who funds DIGNITY HEALTH ↗
- Who funds TARGET ALS FOUNDATION INC ↗
- Who funds UNIVERSITY OF KANSAS MEDICAL CENTER RESEARCH INSTITUTE ↗
The grantmakers whose grantees overlap with yours far more than size alone predicts. Each orbits closer the stronger the alignment; the arcs between them show where they also fund each other. Here it reads as a tightly interlocked camp — most of these funders back each other's grantees too.
Open a dossier: Muscular Dystrophy Association Inc · American Cancer Society Inc · Mayo Clinic · Christopher Reeve Foundation · American Heart Association Inc · Northwestern University · Cystic Fibrosis Foundation · Vanderbilt University Medical Center · Johns Hopkins University · Yale University · The Trustees of Columbia University in the City of New York · University of Pittsburgh
Affinity is a Gamma-Poisson posterior co-funding rate, re-centered on the typical rate, so thin evidence shrinks toward no signal. A research starting point: overlap is association, not proof of shared intent.
Government reliance of your grantees
Every dot is one organization Amyotrophic Lateral Sclerosis Assn funds. Left–right is the share of its income from government; up–down is the share from you. Bigger dots raise more. Filter to federal, a single department, or state — and drag the year to watch it move.
- Johns Hopkins University — 12% of income from government
- Yale University — 12% of income from government
- Children's Hospital Corporation — 10% of income from government
- Als Therapy Development Foundation Inc — 8% of income from government
- President and Fellows of Harvard College — 7% of income from government
- Northeastern University — 7% of income from government
- University of Miami — 5% of income from government
- Nova Southeastern University Inc — 2% of income from government
- Lahey Clinic Inc — 1% of income from government
- The University of Vermont Medical Center — 1% of income from government
- Orlando Health Inc — 0% of income from government
- Hospital for Special Care — 0% of income from government
- Holy Cross Hospital Inc — 0% of income from government
Government income is each org’s traced federal awards (USASpending — grants and contracts) plus state payments (open checkbooks) as a share of its total revenue (IRS Form 990); the self-reported government-grant line (990 line 1e) is carried for cross-check: a grantee that reports government grants we could not trace to a source is left off the chart rather than shown as receiving none. An association, not a claim that your grant caused the public funding. Coverage is precision-first — a floor, not a census; state records exist for 9 states, so a grantee outside them shows no state figure (dimmed) rather than a false zero. Federal award amounts are obligations, which can span years, so a single-year share is indicative. 990 filings lag 12–24 months.