Indiana · Nonprofit
THE INDIANA CHAPTER OF THE ALS ASSOCIATION INC
THE INDIANA CHAPTER OF THE ALS ASSOCIATION INC (Indiana) receives grants from 16 organizations whose IRS filings report $275,409 to it, the largest being NETWORK FOR GOOD ($66,681). 10 of them have funded it in more than one year, and 77% of the money arrives through donor-advised or pass-through sponsors rather than from an institution directly.
- Revenue FY2022
- $820k
- Funders on record
- 16
- Grants received
- $275k
- Net assets
- $1.5M
What The Indiana Chapter of the Als Association Inc does
Mission
To discover treatments and a cure for als, and to serve, advocate for, and empower people affected by als to live their lives to the fullest.
As stated on its FY2022 Form 990.
Programs
Als clinics and certified center support: to support the highest quality healthcare for people with als, the organization partners with and financially supports community healthcare providers in offering als multidisciplinary clinics. These clinics are evidence-based models that promote coordinated care for people with als. These clinics are held at one of the als association certified centers of excellence at iu neuroscience center, recognized als center at richard l. Roudebush va medical center, as well as the newly established als clinic at parkview neuroscience center. The chapter has assisted with licensed social work staffing, telehealth, nutrition chart, supplies and finical commitment. During the year ended january 31, 2022, the chapter supported over 1000 clinic appointments for families with als and over 200 telehealth appointments.
$194,841 spentof which $74,121 as grants35% of program spendingEducation & support programs: strategically based in and near patient's home communities, care service coordinators work directly with people with als and their families to help them navigate management of als as well as access community resources. In fiscal year end january 31, 2022 care service coordinators served over 500 patients providing 3,000 hours of social work. Coordinators are often the crucial support people need with guidance on finance, employment issues, insurance questions, social security disability, medicare, medicaid and long term care planning. Coordinators transitioned to virtual monthly support groups across the region with 250 attendees. Care services staff also provided professional education for community partners such as hospice, home health and home care agencies to increase their knowledge of als. The chapter has a very extensive lending program. We recognize the importance of proper equipment and assistive devices in maintaining safety, independence and in maximizing patient's functionality and minimizing financial cost associated with als. The equipment loan closet program provides access to the needed medical equipment either as a bridge while…
$264,659 spent47% of program spendingAwareness events: events sponsored by the chapter include the walk to defeat als, bob kravitz golf outing, cruisin' for a cure car show, als research update, may als awareness month, and mission connected social media. November national caregivers' month activities served as opportunities to bring hope and community to people with als and their families. By coming together at awareness events, people with als and their families, as well as those who have lost a loved one to als, find strength and support with one another. More than 5,000 people participate in these efforts to raise the profile of the chapter and engage community awareness of the services and resources available from the indiana chapter.
$83,751 spent15% of program spendingOutreach & advocacy: as one of 39 chapters affiliated with the national als association, the indiana chapter provides ongoing financial support for the national als association to support federal public policy initiatives to improve the lives of families living with als, outreach efforts to raise public awareness about als, as well as global research working towards treatments and a cure for als. Publicpolicy accomplishments during the year ended january 31, 2022 included virtual delegation of people with als to washington d.c. To advocate for social security and disability waiver, the national als registry, the als research program at the department of defense, and promoting federal support for als research.
$20,321 spent4% of program spending
The 4 programs described on its FY2021 Form 990, listed largest first by expense. Program spending in total: $563,572.
The organization over time
Each line starts at 100 in 2017, so what you read is the shape rather than the size: 150 means half as much again as 2017, 50 means half. The number beside each label in the key is where it ended.
Balance sheet
Total assets and total liabilities at each year end, in dollars. The largest one-year move in total assets was 2020 to 2021, from $1.2M to $1.5M (+26%).
How it's funded, over time
Each bar is one year's revenue split into where it came from, and every bar is the same height — these are shares, not amounts, so a year that raised twice as much looks the same size. Hover a bar for the split.
Government-grant reliance: 2021 8% · 2022 7%. Grants only. Government contracts and fees sit inside program revenue.
Surplus & reserves
Operating surplus or deficit each year, and months of liquidity in hand. 2 of the last 6 reported years ran a deficit.
reserve
Leadership and staff
The officers, directors, trustees and key employees listed on each return. Joined and no longer listed compare each filing with the year before, matching people by surname and first initial; a year after a gap, or a roster under three people, has no comparison.
Chief executive
Tina Kaetzel
Executive director
As listed on its FY2022 Form 990.
Who funds it, year by year
2017 → 2023: the base broadened from 1 funder to 3 funders, grant income rose $9k → $26k.
8 of 16 of your funders are donor-advised or pass-through sponsors (tagged DAF) — 77% of grant dollars received. That money is really individual donors directing a sponsor; the institutions to cultivate are the non-DAF funders.
From the IRS filings of THE INDIANA CHAPTER OF THE ALS ASSOCIATION INC’s funders (the co-funder graph). Association, not causation. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How concentrated its funding is
THE INDIANA CHAPTER OF THE ALS ASSOCIATION INC has a broad base — no single funder exceeds 24% of grant income, and it takes 3 funders to reach half.
the vertical line marks half of all grant income — 3 funders to its left
97% of the income these shares are computed over arrives through pass-through sponsors or from payers whose filings do not say what kind of payment it is. Concentration is still measured over all of it, because the money is real; what it does not support is a claim about how many institutions have chosen to fund THE INDIANA CHAPTER OF THE ALS ASSOCIATION INC.
Largest funder’s share by year: 2017 100% · 2018 41% · 2019 32% · 2020 33% · 2021 31% · 2022 31% · 2023 58% — diversifying over time.
“Effective funders” = inverse Herfindahl index (1 / Σ shareᵢ²) — the number of equal-sized funders that would give the same concentration. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How long its funders stay
38% of THE INDIANA CHAPTER OF THE ALS ASSOCIATION INC's funders are still giving 3 years after their first grant; 63% give in more than one year at all.
Share of funders still giving k years after their first recorded grant, pooled across every acquisition cohort. A funder counts as retained in a year only if it made a grant that year. Measured to FY2023, the last fiscal year that has finished arriving — a funder cannot be counted as lapsed in a year most filers have not reached.
Where its funders are
77% of THE INDIANA CHAPTER OF THE ALS ASSOCIATION INC's grant income arrives through donor-advised or pass-through sponsors, whose addresses record where the money is held rather than where the donor is. Of the $63k that is directly attributable, 88% of it comes from Indiana funders.
In-state vs out-of-state, by year
Funder states come from each funder’s own filing. $213k arriving through sponsors registered in 8 states is excluded from the map and the split above: a sponsor holds money on a donor’s behalf, so its registered address would place those dollars somewhere no donor need ever have been. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
Organizations like THE INDIANA CHAPTER OF THE ALS ASSOCIATION INC
Organizations whose mission and program text most resemble this one, by semantic similarity over every organization in the US filings — the closest peers, and often the clearest route to shared or prospective funders.
In Indiana
Nationally
Read directly from this organization’s own Form 990, as neutral context.
Where the money goes
87% of spending goes to programs.
Governance
Public support
90%
Share of support from the public (Schedule A) — the basis for its public-charity status.
Footprint & structure
Files a return copy in 1 state
Screen this organization
A dated, signed PDF of the compliance screen for THE INDIANA CHAPTER OF THE ALS ASSOCIATION INC: IRS status (Business Master File, Publication 78, auto-revocation), the OFAC sanctions lists, the Internal Revenue Bulletin, and California registration, with the Rev. Proc. 2018-32 §8.01 reliance elements stated element by element. Generated from the current files at the moment you download it.
Screens are triage, not determinations; a source that cannot be read reports not screened, never clear. Screen this nonprofit · How the screen works · on the API as GET /api/screening/{ein}?format=pdf
Questions and answers
- Who funds THE INDIANA CHAPTER OF THE ALS ASSOCIATION INC?
- THE INDIANA CHAPTER OF THE ALS ASSOCIATION INC (Indiana) receives grants from 16 organizations whose IRS filings report $275,409 to it, the largest being NETWORK FOR GOOD ($66,681). 10 of them have funded it in more than one year, and 77% of the money arrives through donor-advised or pass-through sponsors rather than from an institution directly.
- How many funders does THE INDIANA CHAPTER OF THE ALS ASSOCIATION INC have?
- IRS filings report 16 organizations giving $275,409 in grants to THE INDIANA CHAPTER OF THE ALS ASSOCIATION INC, 10 of which have funded it in more than one year.
- Who is the largest funder of THE INDIANA CHAPTER OF THE ALS ASSOCIATION INC?
- NETWORK FOR GOOD is the largest funder on record, with $66,681 in grants. The full list of funders is on this page.
- How can an organization like THE INDIANA CHAPTER OF THE ALS ASSOCIATION INC find more funders?
- Start with the funders already giving here, then look at the foundations that back similar organizations in Indiana. The funding by cause and by state pages list the largest funders for a given area and how to approach them.
These figures are read directly from IRS Form 990 / 990-PF e-file XML: this organization’s own return for FY2022 (financials across 2017–2022), and the filings of 16 funders that report grants to it. “On record” means captured in the filings we have parsed — a funder that does not e-file, or whose grant detail is not itemized, will not appear. Filings run roughly 12–24 months behind. Trends on this page end at FY2023, the last fiscal year that has finished arriving; later years are shown and marked, and move no figure. Data on this page was exported October 14, 2026. What this page cannot tell you · view filing