Minnesota · Nonprofit
AMYOTROPHIC LATERAL SCLEROSIS MN MINNESOTANORTH DAKOTASOUTH DAKOTA
AMYOTROPHIC LATERAL SCLEROSIS MN MINNESOTANORTH DAKOTASOUTH DAKOTA (Minnesota) receives grants from 92 organizations whose IRS filings report $6,220,093 to it, the largest being NEVER SURRENDER INC ($3,461,000). 40 of them have funded it in more than one year.
- Revenue FY2023
- $6k
- Funders on record
- 92
- Grants received
- $6.2M
- Net assets
- $0
What Amyotrophic Lateral Sclerosis Mn Minnesotanorth Dakotasouth Dakota does
Mission
To discover treatments and a cure for als, and to serve, advocate, and empower people affected by als to live their lives to the fullest.
As stated on its FY2023 Form 990.
Programs
Care services - helping people with als and their families live as full as a life as possible through direct programs for people living with als (see schedule o for detail), support groups, phone support, and referrals.
$989,021 spent63% of program spendingResearch - the als association, minnesota/north dakota/south dakota chapter is an affiliate of the national als association. Each year since its founding in 1985, the national als association has increased its investment in research grants. Since the ice bucket challenge, the als association has invested 122 million in the quest to unlock the mysteries of als. In the past 25 years the minnesota/north dakota/south dakota chapter has helped raise more than 5.0 million for als research. The als association funds more als research than any other organization and its research enterprise...(continued on schedule o.)
$452,961 spent29% of program spendingPublic awareness - educate and inform the public about the nature of als through advocacy, newsletters, social media, and events.
$123,424 spent8% of program spending
The 3 programs described on its FY2022 Form 990, listed largest first by expense. Program spending in total: $1,565,406.
The organization over time
Each line starts at 100 in 2017, so what you read is the shape rather than the size: 150 means half as much again as 2017, 50 means half. The number beside each label in the key is where it ended.
Balance sheet
Total assets and total liabilities at each year end, in dollars. The largest one-year move in total assets was 2022 to 2023, from $6.1M to $0 (−100%).
How it's funded, over time
Each bar is one year's revenue split into where it came from, and every bar is the same height — these are shares, not amounts, so a year that raised twice as much looks the same size. Hover a bar for the split.
Government-grant reliance: 2021 8% · 2022 6%. Grants only. Government contracts and fees sit inside program revenue.
Surplus & reserves
Operating surplus or deficit each year, and months of liquidity in hand. 1 of the last 7 reported years ran a deficit.
reserve
Leadership and staff
The officers, directors, trustees and key employees listed on each return. Joined and no longer listed compare each filing with the year before, matching people by surname and first initial; a year after a gap, or a roster under three people, has no comparison.
Who funds it, year by year
2017 → 2023: the base broadened from 18 funders to 23 funders, grant income fell $411k → $382k.
21 of 92 of your funders are donor-advised or pass-through sponsors (tagged DAF) — 31% of grant dollars received. That money is really individual donors directing a sponsor; the institutions to cultivate are the non-DAF funders.
Left out of every figure on this page: $14k from one payer (the payer shares this organization's board, largest Amyotrophic Lateral Sclerosis Assn). These are real filings, and they are not money AMYOTROPHIC LATERAL SCLEROSIS MN MINNESOTANORTH DAKOTASOUTH DAKOTA raised.
From the IRS filings of AMYOTROPHIC LATERAL SCLEROSIS MN MINNESOTANORTH DAKOTASOUTH DAKOTA’s funders (the co-funder graph). Top 30 of 92 funders by total. Association, not causation. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How concentrated its funding is
AMYOTROPHIC LATERAL SCLEROSIS MN MINNESOTANORTH DAKOTASOUTH DAKOTA leans on a few funders — its largest provides 56% of grant income and the top three 69%; half comes from just 1 funder.
the vertical line marks half of all grant income — 1 funder to its left
92% of the income these shares are computed over arrives through pass-through sponsors or from payers whose filings do not say what kind of payment it is. Concentration is still measured over all of it, because the money is real; what it does not support is a claim about how many institutions have chosen to fund AMYOTROPHIC LATERAL SCLEROSIS MN MINNESOTANORTH DAKOTASOUTH DAKOTA.
Largest funder’s share by year: 2017 78% · 2018 19% · 2019 23% · 2020 18% · 2021 77% · 2022 71% · 2023 21% — diversifying over time.
“Effective funders” = inverse Herfindahl index (1 / Σ shareᵢ²) — the number of equal-sized funders that would give the same concentration. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How long its funders stay
32% of AMYOTROPHIC LATERAL SCLEROSIS MN MINNESOTANORTH DAKOTASOUTH DAKOTA's funders are still giving 3 years after their first grant; 43% give in more than one year at all.
Share of funders still giving k years after their first recorded grant, pooled across every acquisition cohort. A funder counts as retained in a year only if it made a grant that year. Measured to FY2023, the last fiscal year that has finished arriving — a funder cannot be counted as lapsed in a year most filers have not reached.
Where its funders are
92% of AMYOTROPHIC LATERAL SCLEROSIS MN MINNESOTANORTH DAKOTASOUTH DAKOTA's grant income comes from Minnesota funders.
In-state vs out-of-state, by year
Funder states come from each funder’s own filing. $2.0M arriving through sponsors registered in 15 states is excluded from the map and the split above: a sponsor holds money on a donor’s behalf, so its registered address would place those dollars somewhere no donor need ever have been. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
Organizations like AMYOTROPHIC LATERAL SCLEROSIS MN MINNESOTANORTH DAKOTASOUTH DAKOTA
Organizations whose mission and program text most resemble this one, by semantic similarity over every organization in the US filings — the closest peers, and often the clearest route to shared or prospective funders.
In Minnesota
Nationally
Read directly from this organization’s own Form 990, as neutral context.
Where the money goes
0% of spending goes to programs.
Governance
Public support
98%
Share of support from the public (Schedule A) — the basis for its public-charity status.
Footprint & structure
Files a return copy in 1 state
Screen this organization
A dated, signed PDF of the compliance screen for AMYOTROPHIC LATERAL SCLEROSIS MN MINNESOTANORTH DAKOTASOUTH DAKOTA: IRS status (Business Master File, Publication 78, auto-revocation), the OFAC sanctions lists, the Internal Revenue Bulletin, and California registration, with the Rev. Proc. 2018-32 §8.01 reliance elements stated element by element. Generated from the current files at the moment you download it.
Screens are triage, not determinations; a source that cannot be read reports not screened, never clear. Screen this nonprofit · How the screen works · on the API as GET /api/screening/{ein}?format=pdf
Questions and answers
- Who funds AMYOTROPHIC LATERAL SCLEROSIS MN MINNESOTANORTH DAKOTASOUTH DAKOTA?
- AMYOTROPHIC LATERAL SCLEROSIS MN MINNESOTANORTH DAKOTASOUTH DAKOTA (Minnesota) receives grants from 92 organizations whose IRS filings report $6,220,093 to it, the largest being NEVER SURRENDER INC ($3,461,000). 40 of them have funded it in more than one year.
- How many funders does AMYOTROPHIC LATERAL SCLEROSIS MN MINNESOTANORTH DAKOTASOUTH DAKOTA have?
- IRS filings report 92 organizations giving $6,220,093 in grants to AMYOTROPHIC LATERAL SCLEROSIS MN MINNESOTANORTH DAKOTASOUTH DAKOTA, 40 of which have funded it in more than one year.
- Who is the largest funder of AMYOTROPHIC LATERAL SCLEROSIS MN MINNESOTANORTH DAKOTASOUTH DAKOTA?
- NEVER SURRENDER INC is the largest funder on record, with $3,461,000 in grants. The full list of funders is on this page.
- How can an organization like AMYOTROPHIC LATERAL SCLEROSIS MN MINNESOTANORTH DAKOTASOUTH DAKOTA find more funders?
- Start with the funders already giving here, then look at the foundations that back similar organizations in Minnesota. The funding by cause and by state pages list the largest funders for a given area and how to approach them.
Play a game about who funds Amyotrophic Lateral Sclerosis Mn Minnesotanorth Dakotasouth Dakota →
These figures are read directly from IRS Form 990 / 990-PF e-file XML: this organization’s own return for FY2023 (financials across 2017–2023), and the filings of 92 funders that report grants to it. “On record” means captured in the filings we have parsed — a funder that does not e-file, or whose grant detail is not itemized, will not appear. Filings run roughly 12–24 months behind. Trends on this page end at FY2023, the last fiscal year that has finished arriving; later years are shown and marked, and move no figure. Data on this page was exported October 14, 2026. What this page cannot tell you · view filing