Virginia · Nonprofit
AMYOTROPHIC LATERAL SCLEROSIS ASSN
AMYOTROPHIC LATERAL SCLEROSIS ASSN (Virginia) receives grants from 815 organizations whose IRS filings report $41,377,874 to it, the largest being FIDELITY INVESTMENTS CHARITABLE GIFT FUND ($5,867,030). 347 of them have funded it in more than one year.
- Revenue FY2025
- $69M
- Funders on record
- 815
- Grants received
- $41M
- Net assets
- $89M
What Amyotrophic Lateral Sclerosis Assn does
Mission
The mission of the als association is to make als livable and cure it.
As stated on its FY2025 Form 990.
Programs
Patient and community services: the association is committed to providing fully developed, managed and evaluated programs and services to people living with als, families, caregivers and professionals across the united states. Programs incorporate the perspectives from key stakeholders including people living with the disease, subject matter experts, clinical best practice, caregivers, technology, academicians and research. Activities address current needs and explore future services, creating a foundation for innovative and advanced program development based on specific community needs and knowledge advancements. Specific activities include 1) developing and implementing clinical and professional education programs based on ongoing needs assessments and best practice; 2) implementing certified care center certification and recertification programs based on nationally-recognized standards of practice, including grants to support centers of excellence; 3) developing strategies and actualizing plans to deliver care through other than certified centers; 4) providing current information, resources and referrals to the communities we serve; and 5) developing and implementing…
$11,142,906 spentof which $3,561,117 as grants63% of program spendingResearch programs - the association funds scientific research grants to doctors/scientists to find the cause and cure of amyotrophic lateral sclerosis (als).
$3,229,230 spentof which $2,669,758 as grants18% of program spendingThe als association develops awareness and understanding of als and the work of the association among the general public, healthcare professionals, the scientific community and elected and other government officials. The als association's advocacy efforts help secure federal and state funding in support of als research and support for people living with als. The advocacy efforts include advances in legislation to help those living with als navigate insurance and other government programs.
$3,181,196 spent18% of program spending
The 3 programs described on its FY2024 Form 990, listed largest first by expense. Program spending in total: $17,553,332.
The organization over time
Each line starts at 100 in 2017, so what you read is the shape rather than the size: 150 means half as much again as 2017, 50 means half. The number beside each label in the key is where it ended. The shaded band is where the middle 50% of its peers' revenue would sit, given their growth.
Balance sheet
Total assets and total liabilities at each year end, in dollars. The largest one-year move in total assets was 2023 to 2024, from $94M to $128M (+35%).
How it's funded, over time
Each bar is one year's revenue split into where it came from, and every bar is the same height — these are shares, not amounts, so a year that raised twice as much looks the same size. Hover a bar for the split.
Government-grant reliance: 2017 1% · 2018 2% · 2019 1% · 2020 1% · 2021 1% · 2022 14% · 2023 4% · 2024 4% · 2025 15%. Grants only. Government contracts and fees sit inside program revenue.
96% of AMYOTROPHIC LATERAL SCLEROSIS ASSN’s revenue is contributions — more reliant on donations than three-quarters of its peers (7% for the typical peer).
Surplus & reserves
Operating surplus or deficit each year, and months of liquidity in hand. 8 of the last 9 reported years ran a deficit.
reserve
Leadership and staff
The officers, directors, trustees and key employees listed on each return. Joined and no longer listed compare each filing with the year before, matching people by surname and first initial; a year after a gap, or a roster under three people, has no comparison.
Chief executive
Calaneet Balas
President and CEO
As listed on its FY2025 Form 990.
Who funds it, year by year
2017 → 2023: the base broadened from 145 funders to 253 funders, grant income rose $3.9M → $6.7M.
80 of 815 of your funders are donor-advised or pass-through sponsors (tagged DAF) — 43% of grant dollars received. That money is really individual donors directing a sponsor; the institutions to cultivate are the non-DAF funders.
Left out of every figure on this page: $42k from one payer (the same organization on both sides, largest Amyotrophic Lateral Sclerosis Assn). These are real filings, and they are not money AMYOTROPHIC LATERAL SCLEROSIS ASSN raised.
From the IRS filings of AMYOTROPHIC LATERAL SCLEROSIS ASSN’s funders (the co-funder graph). Top 30 of 815 funders by total. Association, not causation. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How concentrated its funding is
AMYOTROPHIC LATERAL SCLEROSIS ASSN has a broad base — no single funder exceeds 14% of grant income, and it takes 8 funders to reach half.
the vertical line marks half of all grant income — 8 funders to its left
72% of the income these shares are computed over arrives through pass-through sponsors or from payers whose filings do not say what kind of payment it is. Concentration is still measured over all of it, because the money is real; what it does not support is a claim about how many institutions have chosen to fund AMYOTROPHIC LATERAL SCLEROSIS ASSN.
Largest funder’s share by year: 2017 14% · 2018 16% · 2019 14% · 2020 16% · 2021 15% · 2022 17% · 2023 27% — growing more concentrated.
“Effective funders” = inverse Herfindahl index (1 / Σ shareᵢ²) — the number of equal-sized funders that would give the same concentration. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How long its funders stay
28% of AMYOTROPHIC LATERAL SCLEROSIS ASSN's funders are still giving 3 years after their first grant; 43% give in more than one year at all.
Share of funders still giving k years after their first recorded grant, pooled across every acquisition cohort. A funder counts as retained in a year only if it made a grant that year. Measured to FY2023, the last fiscal year that has finished arriving — a funder cannot be counted as lapsed in a year most filers have not reached.
Where its funders are
AMYOTROPHIC LATERAL SCLEROSIS ASSN draws 94% of its grant income from funders outside Virginia, across 48 states in all.
In-state vs out-of-state, by year
Funder states come from each funder’s own filing. $18M arriving through sponsors registered in 31 states is excluded from the map and the split above: a sponsor holds money on a donor’s behalf, so its registered address would place those dollars somewhere no donor need ever have been. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
Against its field
AMYOTROPHIC LATERAL SCLEROSIS ASSN has grown faster than half of the 2,969 health nonprofits its size.
this organization peer median middle 50% of peers· 2,969 health nonprofits $10M–$100M, FY2025
Government funding AMYOTROPHIC LATERAL SCLEROSIS ASSN receives
Grants and contracts to this organization from federal (USASpending) and state checkbooks, reconciled to its EIN. $1.6M on record.
- Department of Health and Human Services$1.6M
Federal grants vs contracts are distinguished; state line items keep their reported category. Matched by name + geography (the BMF), so coverage is partial and precision-first.
Organizations like AMYOTROPHIC LATERAL SCLEROSIS ASSN
Organizations whose mission and program text most resemble this one, by semantic similarity over every organization in the US filings — the closest peers, and often the clearest route to shared or prospective funders.
In Virginia
Nationally
Read directly from this organization’s own Form 990, as neutral context.
Where the money goes
69% of spending goes to programs.
Governance
Public support
80%
Share of support from the public (Schedule A) — the basis for its public-charity status.
Footprint & structure
Files a return copy in 50 states
Screen this organization
A dated, signed PDF of the compliance screen for AMYOTROPHIC LATERAL SCLEROSIS ASSN: IRS status (Business Master File, Publication 78, auto-revocation), the OFAC sanctions lists, the Internal Revenue Bulletin, and California registration, with the Rev. Proc. 2018-32 §8.01 reliance elements stated element by element. Generated from the current files at the moment you download it.
Screens are triage, not determinations; a source that cannot be read reports not screened, never clear. Screen this nonprofit · How the screen works · on the API as GET /api/screening/{ein}?format=pdf
Questions and answers
- Who funds AMYOTROPHIC LATERAL SCLEROSIS ASSN?
- AMYOTROPHIC LATERAL SCLEROSIS ASSN (Virginia) receives grants from 815 organizations whose IRS filings report $41,377,874 to it, the largest being FIDELITY INVESTMENTS CHARITABLE GIFT FUND ($5,867,030). 347 of them have funded it in more than one year.
- How many funders does AMYOTROPHIC LATERAL SCLEROSIS ASSN have?
- IRS filings report 815 organizations giving $41,377,874 in grants to AMYOTROPHIC LATERAL SCLEROSIS ASSN, 347 of which have funded it in more than one year.
- Who is the largest funder of AMYOTROPHIC LATERAL SCLEROSIS ASSN?
- FIDELITY INVESTMENTS CHARITABLE GIFT FUND is the largest funder on record, with $5,867,030 in grants. The full list of funders is on this page.
- How can an organization like AMYOTROPHIC LATERAL SCLEROSIS ASSN find more funders?
- Start with the funders already giving here, then look at the foundations that back similar organizations in Virginia. The funding by cause and by state pages list the largest funders for a given area and how to approach them.
These figures are read directly from IRS Form 990 / 990-PF e-file XML: this organization’s own return for FY2025 (financials across 2017–2025), and the filings of 815 funders that report grants to it. “On record” means captured in the filings we have parsed — a funder that does not e-file, or whose grant detail is not itemized, will not appear. Filings run roughly 12–24 months behind. Trends on this page end at FY2023, the last fiscal year that has finished arriving; later years are shown and marked, and move no figure. Data on this page was exported October 22, 2026. What this page cannot tell you · view filing