Skip to content

· Public charity

The Hemophilia Alliance Group Purchasing Organization

The hemophilia alliance provides member hemophilia treatment centers with resources and services to sustain the comprehensive care model for individuals with bleeding and clotting disorders.

$3.0M
Granted FY2024still arriving
7
Grants FY2024still arriving
4
States reached
$869k
Largest
01What it funds
01100% classified

What it funded, over time

Every grant placed by its stated purpose and the recipient’s mission, by year, FY2017 to 2024.

Health$20MHuman Services$10k
02FY2024 · 7 grants

Where the money goes

Grants by size, and the largest recipients.

By grant size · FY2024

  • Under $10k1 grant · $8k
  • $10k–50k1 grant · $28k
  • $50k–250k1 grant · $135k
  • $250k+4 grants · $2.8M
$402,000
Median grant
4
States reached
$26M
Total assets
Largest grants
RecipientAmount
THE HEMOPHILIA ALLIANCE FOUNDATION$869,000
NATIONAL BLEEDING DISORDERS FOUNDATION$819,353
AMERICAN THROMBOSIS AND HEMOSTATIS NETWORK$700,000
INDIANA HEMOPHILIA & THROMBOSIS CENTER INC$402,000
WORLD FEDERATION OF HEMOPHILIA$135,000
THE COALITION FOR HEMOPHILIA B INC$27,500
VERSITI INC$8,012
02The need
03

Does the money reach high-need areas?

Each grant placed by the hardship in its grantee’s ZIP, against the area’s typical level.

show:

Its human-services grants (FY17–20, $58k) land where the poverty rate runs at 12%, against an area that typically sits at 10%. 61% of those dollars go to grantees based in above-average-need neighborhoods. Most of its grants land in higher-need ZIPs.

area typical 10%WESTERN PENNSYLVANIA CHAPTER OF NHF: $8k → 9%THE NATIONAL AIDS MEMORIAL GROVE A PROJECT OF TIDES CENTER: $10k → 10%LONE STAR CHAPTER OF NATIONAL HEMOPHILIA FOUNDATION: $10k → 16%HEMOPHILIA OF NORTH CAROLINA: $8k → 8%VIRGINIA HEMOPHILIA FOUNDATION: $8k → 9%LONE STAR CHAPTER OF THE NATIONAL HEMOPHILIA FOUNDATION: $8k → 16%BLOOD BOND BLEEDING DISORDERS NETWORK: $8k → 14%0%20%40%50%more need →
grant to an above-average-need area below average· circle size = grant amount
How this is measured
Matched: human-services grants are those whose grantee’s IRS cause code is Human Services. Placed by people below the poverty line in the grantee’s ZIP, averaged from the tracts in that ZIP.

Which US states its grants reach

ME
WA
ID
MT
ND
MN
IL
WI
MI
NY
MA
OR
NV
IA
IN
OH
PA
NJ
CT
CA
UT
CO
NE
MO
KY
WV
VA
MD
AZ
NM
TN
NC
SC
DC
HI
OK
LA
TX
FL
How this is measured
US grants placed by each grantee’s ZIP, which can differ from where services are delivered. Need from public data (U.S. Census/ACS, CDC PLACES, Eviction Lab, USDA), shown as context about the area, never attributed to the funder’s giving.
03Its grantees
repeat funding

Who it funds again

Organizations funded in more than one year, against those funded once.

98%of every dollar goes to organizations it has funded before.
$20M · 13 repeat orgs$404k to everyone else

13 repeat relationships: 7 still active in FY2024, 6 since wound down.

How the two cohorts compare

Re-uppedFunded once

Organizations

13
49

Total granted

$20M
$404k

Median revenue growth · since first grant

+10%
+16%

Still filing today

100%
96%

New vs renewed · share of each year

In FY2024, 100% of grant dollars renewed an existing relationship; $0 went to new ones.

50%100%’17’18’19’20’21’22’23’24
RenewedFirst-time

Where new relationships form · theme of each grantee’s first grant

’17’18’19’20’21’22’23’24
HealthHuman ServicesPhilanthropyHousing & ShelterOther
How this is measured
First-time means a grantee’s first year in the filing window; renewed means funded in an earlier year too. The renewed share climbs naturally as a portfolio matures, so the signal is a year that bucks it (a wave of new grantees). The earliest year is left-censored: relationships that predate the data read as new. Theme is the grantee’s IRS cause.

Backed again, and grew

  • TH
    THE HEMOPHILIA ALLIANCE FOUNDATION
    8× · 2017–2024 · $6.4M · revenue +11% · 100% of their budget
  • AT
    AMERICAN THROMBOSIS AND HEMOSTASIS NETWORK INC
    8× · 2017–2024 · $5.6M · revenue +49%
  • WF
    WORLD FEDERATION OF HEMOPHILIA USA
    8× · 2017–2024 · $984k · revenue +175%

Funded once

  • AF
    ALLIANCE FOR INTEGRATED MEDICATION MANAGEMENT
    one grant, 2018 · $25k · revenue -67%
  • AP
    ASOCIACION PUERTORRIQUENA DE HEMOFILIA INCgraduated
    one grant, 2020 · $24k · revenue +77%
  • NA
    National AIDS Memorial Inc
    one grant, 2023 · $10k · revenue +13%
How this is measured

Repeat means funded in two or more distinct years. Growth and survival are read from each grantee’s own subsequent IRS filings.

04Its field

Closest unfunded matches

The nonprofits that most resemble its grantees but are not funded by it, scored along the direction from the rest of the field toward the portfolio. A resemblance in what they say they do, not a recommendation.

1
Cascade Hemophilia Consortium
Health
2
Bleeding Disorders of Kentucky Inc

Bleeding disorders of kentucky (bdoky) is dedicated to improving the quality of life for individuals with inheritable bleeding disorders through education, engagement, and support.

Health
3
The Hemophilia Alliance Group Purchasing Organization

The hemophilia alliance provides member hemophilia treatment centers with resources and services to sustain the comprehensive care model for individuals with bleeding and clotting disorders.

Health
4
Hemophilia of Georgia Inc

Hemophilia of georgia exists so that people in georgia affected by bleeding disorders live as normally and productively as possible.

Health
5
North American Thrombosis Forum Inc D/B/a Vasculearn Network
Education
6
Colburn-Keenan Foundation Inc
Philanthropy
7
Famohio Inc

FAMOHIOs mission is to provide education and support for individuals and families in Ohio dealing with hemophilia and other bleeding disorders. The organization hosts an annual weekend meeting offering various educational sessions and…

Health
8
Hemophelia Outreach of Wisconsin Inc
Education
9
Auto-Immune Hepatitis Association

Auto-immune hepatitis association was formed to help support auto-immune hepatitis wellness and provide hope through disease education and giving our patients research opportunities. we want to ensure that all patients, no matter what…

Health
10
Foundation Hope and Life Usa Corp

Help and support patients with hemophilia and their relatives by doing seminars, programs and activities to inform and educate them in health, social and emotional areas

Health
11
Western New York Bloodcare Inc

Western new york bloodcare, inc. provides specialized diagnostic and health maintenance services to individuals with hemophilia and other genetic bleeding and clotting disorders that require lifelong medical management. for people affected…

Health
12
Hereditary Angioedema Association Inc
Health
How this is measured
The grantee most central to the portfolio’s shape is New England Hemophilia Association Inc; the most unlike its peers is The Coalition for Hemophilia B Inc. Resemblance is measured on each organization’s own IRS 990 mission text; it reflects how work is described, not its quality or impact.
04the grantee network

62 grantees tracked through their own filings, 2017–2025.

Each grant beside the grantee’s revenue from every source, year by year.

How this is measured

Counted here: distinct organizations funded across 2017 to 2025, not grant rows in a single year, so this will not match the grant count on the cover. 62 of the 63 grantees resolved in that span have returns of their own we could reconcile.

Each grantee is resolved to its own IRS returns. Association, dated; never a causal claim.

1
Load-bearing (≥25% of a budget)
14
Early backer (in before they grew)
61/62
Grantees still filing
40/62
Grew since first funded

Where the money sits, by cause and then by grantee

THE HEMOPHILIA ALLIANCE FOUNDATION: $6,366,000 · HealthTHE HEMOPHILIA ALLIANCE FOUNDATIONAMERICAN THROMBOSIS AND HEMOSTASIS NETWORK INC: $5,600,000 · HealthAMERICAN THROMBOSIS AND HEMOSTASIS NETWORK INCINDIANA HEMOPHILIA & THROMBOSIS CENTER INC: $1,217,930 · HealthINDIANA HEMOPHILIA & THROMBOSIS CENTER INCWORLD FEDERATION OF HEMOPHILIA USA: $984,000 · HealthWORLD FEDERATION OF HEMOPHILIA USA+29 more: $699,012 · HealthNATIONAL BLEEDING DISORDERS FOUNDATION: $5,231,217 · OtherNATIONAL BLEEDING DISORDERS FO…+20 more: $262,500 · OtherLONE STAR BLEEDING DISORDERS FOUNDATION: $17,500 · Human ServicesTIDES CENTER: $10,000 · Human ServicesBLEEDING DISORDERS FOUNDATION OF NORTH CAROLINA: $7,500 · Human ServicesSisters & Caregivers Bleeding Disorder Network Inc: $7,500 · Human ServicesWESTERN PENNSYLVANIA BLEEDING DISORDERS FOUNDATION: $7,500 · Human ServicesVIRGINIA BLEEDING DISORDERS FOUNDATION: $7,500 · Human ServicesNEW ENGLAND HEMOPHILIA ASSOCIATION INC: $7,500 · PhilanthropyHemophilia Foundation of MD Inc: $7,500 · PhilanthropyBleeding Disorders Association of South Carolina: $7,500 · Housing & Shelter
Health$14,866,942Other$5,493,717Human Services$57,500Philanthropy$15,000Housing & Shelter$7,500

Each grantee by its size and the funder’s share of it; top left is load-bearing

25%50%75%100%$1.0M$10M$100Mgrantee revenue →↑ funder's share of their budgetTHE HEMOPHILIA ALLIANCE FOUNDATION: $6,366,000 over 8y, 100% of budgetAMERICAN THROMBOSIS AND HEMOSTASIS NETWORK INC: $5,600,000 over 8y, 8.2% of budgetNATIONAL BLEEDING DISORDERS FOUNDATION: $5,231,217 over 8y, 4.9% of budgetINDIANA HEMOPHILIA & THROMBOSIS CENTER INC: $1,217,930 over 3y, 1.0% of budgetWORLD FEDERATION OF HEMOPHILIA USA: $984,000 over 8y, 0.0% of budgetVERSITI INC: $258,012 over 2y, 0.8% of budgetHEMOPHILIA FEDERATION OF AMERICA: $110,000 over 3y, 1.0% of budgetHEMOSTASIS AND THROMBOSIS RESEARCH SOCIETY INC: $100,000 over 2y, 3.3% of budgetThe Coalition for Hemophilia B Inc: $67,000 over 4y, 0.7% of budgetLOUISIANA HEMOPHILIA FOUNDATION: $27,500 over 2y, 6.8% of budgetALLIANCE FOR INTEGRATED MEDICATION MANAGEMENT: $25,000 over 1y, 4.1% of budgetBLEEDING DISORDERS COUNCIL OF CALIFORNIA formerly HEMOPHILIA COUNCIL OF CALIF: $25,000 over 2y, 4.5% of budgetASOCIACION PUERTORRIQUENA DE HEMOFILIA INC: $24,000 over 1y, 13% of budgetBleeding Disorders Alliance Illinois: $22,500 over 2y, 3.3% of budgetLONE STAR BLEEDING DISORDERS FOUNDATION: $17,500 over 2y, 2.3% of budgetNational AIDS Memorial Inc: $10,000 over 1y, 0.4% of budgetTIDES CENTER: $10,000 over 1y, 0.0% of budgetROCKY MOUNTAIN HEMOPHILIA AND BLEEDING DISORDER ASSOCIATION: $7,500 over 1y, 2.8% of budgetHEMOPHILIA OF INDIANA INC: $7,500 over 1y, 0.7% of budgetSOUTHWESTERN OHIO HEMOPHILIA FOUNDATION: $7,500 over 1y, 3.7% of budgetBLEEDING DISORDERS FOUNDATION OF NORTH CAROLINA: $7,500 over 1y, 1.4% of budgetBLEEDING DISORDERS ASSOCIATION OF NORTHEASTERN NY: $7,500 over 1y, 10% of budgetKentucky Hemophilia Foundation Inc: $7,500 over 1y, 3.0% of budgetTHE HEMOPHILIA ASSOC OF SAN DIEGO COUNTY: $7,500 over 1y, 3.6% of budgetNEW ENGLAND HEMOPHILIA ASSOCIATION INC: $7,500 over 1y, 0.6% of budgetUPPER MIDWEST BLEEDING DISORDERS ALLIANC: $7,500 over 1y, 2.7% of budgetUnited Hemophilia Foundation: $7,500 over 1y, 3.6% of budgetOKLAHOMA HEMOPHILIA FOUNDATION INC: $7,500 over 1y, 3.5% of budgetTRI-STATE BLEEDING DISORDER FOUNDATION: $7,500 over 1y, 2.7% of budgetEASTERN PENNSYLVANIA BLEEDING DISORDERS FOUNDATION: $7,500 over 1y, 1.5% of budgetWESTERN NEW YORK BLOODCARE FOUNDATION IN: $7,500 over 1y, 0.1% of budgetGateway Hemophilia Association: $7,500 over 1y, 3.3% of budgetMIDWEST HEMOPHILIA ASSOCIATION: $7,500 over 1y, 4.0% of budgetNEW YORK CITY HEMOPHILIA CHAPTER INC: $7,500 over 1y, 1.3% of budgetHEMOPHILIA FOUNDATION OF SOUTHERN CALIFORNIA: $7,500 over 1y, 0.7% of budgetHEMOPHILIA ASSOCIATION OF THE CAPITAL AREA: $7,500 over 1y, 2.8% of budgetNORTHWEST OHIO HEMOPHILIA FOUNDATION: $7,500 over 1y, 9.4% of budgetHEMOPHILIA ASSOCIATION OF NEW YORK INC: $7,500 over 1y, 0.3% of budgetFlorida Bleeding Disorders Association Inc: $7,500 over 1y, 1.9% of budgetBleeding Disorders Alliance of North Dakota: $7,500 over 1y, 6.8% of budgetHEMOPHILIA FOUNDATION OF GREATER FLORIDA INC: $7,500 over 1y, 1.3% of budgetTEXAS CENTRAL HEMOPHILIA ASSOCIATION INC: $7,500 over 1y, 4.1% of budgetThe Bleeding Disorder Foundation of Washington: $7,500 over 1y, 1.4% of budgetTENNESSEE HEMOPHILIA & BLEEDING DISORDER FOUNDATIO: $7,500 over 1y, 2.5% of budgetWESTERN PENNSYLVANIA BLEEDING DISORDERS FOUNDATION: $7,500 over 1y, 2.2% of budgetHEMOPHILIA OF IOWA INC: $7,500 over 1y, 7.2% of budgetHemophilia Foundation of MD Inc: $7,500 over 1y, 2.1% of budgetVIRGINIA BLEEDING DISORDERS FOUNDATION: $7,500 over 1y, 1.7% of budget
Grantee by grantee: a decade per organization, before and after funding

A decade per grantee: revenue shaded, grants as bars, all rows on one timeline.

Co-funders

Grantmakers whose grantees overlap with this funder’s far more than size alone predicts. Closer means stronger alignment; arcs show where they also fund each other. Here they form a tightly interlocked group: most of these funders back each other's grantees too.

National Bleeding Disorders FoundationNY118.8× affinity54 shared granteesties to 11 of 11Hover any node to trace its alignments.Compare side by side →

Open a dossier: National Bleeding Disorders Foundation · The Hemophilia Alliance Foundation · Colburn-Keenan Foundation Inc · Hemophilia Federation of America · Pharmaceutical Research and Manufacturers of America · Positudes Inc Dba the Alliance Pharmacy · Indiana Hemophilia & Thrombosis Center Inc · Hemophilia of Georgia Inc · Cascade Hemophilia Consortium · Global Impact · FAMOHIO Inc · American Thrombosis and Hemostasis Network Inc

How this is measured
Affinity is a Gamma-Poisson posterior co-funding rate, re-centered on the typical rate, so thin evidence shrinks toward no signal. Overlap is association, not proof of shared intent.

How much its grantees rely on government

Each dot is one organization The Hemophilia Alliance Group Purchasing Organization funds: left to right is the share of its income from government, bottom to top the share from The Hemophilia Alliance Group Purchasing Organization. Bigger dots raise more.

2024
’20’21’22’23’24’25
no gov · 80%6%25%56%100%funder's share of their income ↑0%10%20%30%40%share of the org’s income from government →
    no gov moneyreceives it· size = income
    8get no government money at all
    8report government grants on their 990 we could not trace to a source (not plotted)
    0rely on government for over half their income
    ⤢ axis zoomed · 0–40%
    typical government reliance, FY20–25
    How this is measured
    Government income is each org’s traced federal awards (USASpending grants and contracts) plus state payments (open checkbooks) as a share of its total revenue (IRS Form 990); the self-reported government-grant line (990 line 1e) is carried for cross-check: a grantee that reports government grants we could not trace to a source is left off the chart rather than shown as receiving none. An association, not a claim that a grant caused the public funding. Coverage is precision-first, a floor rather than a census; state records exist for 9 states, so a grantee outside them shows no state figure (dimmed) rather than a false zero. Federal award amounts are obligations, which can span years, so a single-year share is indicative. 990 filings lag 12 to 24 months.

    On method. Every financial figure here is read from IRS e-file XML, the funder’s own 990/990-PF, and from the multi-year returns of the 63 grantees we resolved, each linked to its source. Grantee outcomes are each organization’s own program-service reporting (Form 990, Part III), read as association with funding, never as caused by it. Low-confidence name matches are suppressed rather than guessed. How we build these →

    How this is measured
    Each figure carries one of six labels. Filed is what the funder reported on its return. Official is another government record about an organization, such as a federal award or a charity register, joined by name where no shared identifier exists. Resolved is an identity we worked out where the filing named a recipient without an EIN, kept only above a measured confidence threshold. Computed is arithmetic over those, like themes, portfolio clusters and co-funder strength. Context is a statistic about a place rather than about an organization, which is what the need overlay is: it describes the area a grantee’s address sits in, not where its work lands. Inferred is drawn by a model from text, like the partnerships read out of public news and organization websites. Each is labeled where it appears.

    Generated from the IRS Form 990 e-file return for fiscal year 2024, released 2024. Filings run roughly 12 to 24 months behind; figures are dated accordingly.

    Source object · view filing

    Play a game based on Hemophilia Alliance Group Purchasing Organization’s filings →

    More from the funding graph