Missouri · Nonprofit
VASCULITIS FOUNDATION
VASCULITIS FOUNDATION (Missouri) receives grants from 38 organizations whose IRS filings report $3,297,514 to it, the largest being DONOR ADVISED CHARITABLE GIVING INC ($1,100,050). 24 of them have funded it in more than one year, and 88% of the money arrives through donor-advised or pass-through sponsors rather than from an institution directly.
- Revenue FY2025
- $2.5M
- Funders on record
- 38
- Grants received
- $3.3M
- Net assets
- $5.9M
What Vasculitis Foundation does
Mission
Building upon the collective strength of the vasculitis community, the Vasculitis Foundation supports, inspires and empowers individuals with vasculitis and their families through a wide range of education, research, clinical, and awareness initiatives. Our vision is to be the leading organization in the world dedicated to diganosing, treating, and curing all forms of vasculitis.
As stated on its FY2025 Form 990.
Programs
Building upon the collective strength of the vasculitis community, the Vasculitis Foundation (vf) supports, inspires, and empowers individuals with vasculitis and their families through a wide range of education, fellowship, research, clinical, and awareness initiatives. Our vision is to be the leading organization in the world dedicated to diagnosing, treating, and curing all forms of vasculitis. The vf provides support through its extensive website, montlhy e-newsletters, electronic and printed educational materials, phone and email outreach. Website visitors: 35,000 annually; youtube subscribers: 10,000+ annually; monthly e-newsletter distribution: more than 14,000 subscribers; and 3,500 phone and email requests for assistance this year. The vf offers 9 virtual support group meetings monthly for patients of all ages and their parents and caregivers, attracting as many as 275 participants a month. The vf offers wide-ranging live and on-demand webinars which address disease spotlights, mental health/wellness, research, therapies and treatments. The vf had 100+ webinars with 7,020 hours watched, and 150,000+ views on vf's youtube education channel. The vf team has been on the road…
$900,946 spent$64,436 earned by the program59% of program spendingVasculitis - building outcomes, leading discoveries (v-bold) program combines research, fellowships, vasculitis centers, and the vpprn with the goal to improve the quality of life for patients with vasculitis, and ultimately find the cause(s) and cure for vasculitis. Research: the vf young investigator award provides one or two-year grants of up to 50,000 to support researchers within five years of the completion of their fellowships. The funding supports pilot studies in researching diagnosis, etiology/pathogenesis, epidemiology, and treatment/management. Fellowships: the vf partners with academic institutions and the vasculitis clinical research consortium (vcrc) to provide fellowships for physician- investigators who have a strong interest in vasculitis. This mentored training program emphasizes clinical, patient-oriented investigation. Vasculitis centers are essential in the patient journey - from diagnosis to treatment to remission, with the potential for cures. Vasculitis centers provide comprehensive, high-quality, and compassionate care to patients with vasculitis. In addition, they have the capacity to advance our understanding of vasculitis through research. With experts…
$621,816 spentof which $246,907 as grants41% of program spending
The 2 programs described on its FY2024 Form 990, listed largest first by expense. Program spending in total: $1,522,762.
The organization over time
Each line starts at 100 in 2017, so what you read is the shape rather than the size: 150 means half as much again as 2017, 50 means half. The number beside each label in the key is where it ended.
Balance sheet
Total assets and total liabilities at each year end, in dollars. The largest one-year move in total assets was 2022 to 2023, from $2.5M to $4.5M (+84%).
How it's funded, over time
Each bar is one year's revenue split into where it came from, and every bar is the same height — these are shares, not amounts, so a year that raised twice as much looks the same size. Hover a bar for the split.
Government-grant reliance: 2021 11%. Grants only. Government contracts and fees sit inside program revenue.
Surplus & reserves
Operating surplus or deficit each year, and months of liquidity in hand. 1 of the last 9 reported years ran a deficit.
reserve
Leadership and staff
The officers, directors, trustees and key employees listed on each return. Joined and no longer listed compare each filing with the year before, matching people by surname and first initial; a year after a gap, or a roster under three people, has no comparison.
Who funds it, year by year
2017 → 2023: the base broadened from 10 funders to 15 funders, grant income rose $213k → $1.3M.
14 of 38 of your funders are donor-advised or pass-through sponsors (tagged DAF) — 88% of grant dollars received. That money is really individual donors directing a sponsor; the institutions to cultivate are the non-DAF funders.
From the IRS filings of VASCULITIS FOUNDATION’s funders (the co-funder graph). Top 30 of 38 funders by total. Association, not causation. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How concentrated its funding is
VASCULITIS FOUNDATION leans on a few funders — its largest provides 33% of grant income and the top three 67%; half comes from just 2 funders.
the vertical line marks half of all grant income — 2 funders to its left
88% of the income these shares are computed over arrives through pass-through sponsors or from payers whose filings do not say what kind of payment it is. Concentration is still measured over all of it, because the money is real; what it does not support is a claim about how many institutions have chosen to fund VASCULITIS FOUNDATION.
Largest funder’s share by year: 2017 73% · 2018 37% · 2019 86% · 2020 49% · 2021 36% · 2022 38% · 2023 79% — growing more concentrated.
“Effective funders” = inverse Herfindahl index (1 / Σ shareᵢ²) — the number of equal-sized funders that would give the same concentration. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How long its funders stay
38% of VASCULITIS FOUNDATION's funders are still giving 3 years after their first grant; 63% give in more than one year at all.
Share of funders still giving k years after their first recorded grant, pooled across every acquisition cohort. A funder counts as retained in a year only if it made a grant that year. Measured to FY2023, the last fiscal year that has finished arriving — a funder cannot be counted as lapsed in a year most filers have not reached.
Where its funders are
88% of VASCULITIS FOUNDATION's grant income arrives through donor-advised or pass-through sponsors, whose addresses record where the money is held rather than where the donor is. Of the $398k that is directly attributable, 100% of it comes from funders outside Missouri, across 13 states.
In-state vs out-of-state, by year
Funder states come from each funder’s own filing. $2.9M arriving through sponsors registered in 13 states is excluded from the map and the split above: a sponsor holds money on a donor’s behalf, so its registered address would place those dollars somewhere no donor need ever have been. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
Organizations like VASCULITIS FOUNDATION
Organizations whose mission and program text most resemble this one, by semantic similarity over every organization in the US filings — the closest peers, and often the clearest route to shared or prospective funders.
In Missouri
Nationally
Read directly from this organization’s own Form 990, as neutral context.
Where the money goes
64% of spending goes to programs.
Governance
Public support
67%
Share of support from the public (Schedule A) — the basis for its public-charity status.
Screen this organization
A dated, signed PDF of the compliance screen for VASCULITIS FOUNDATION: IRS status (Business Master File, Publication 78, auto-revocation), the OFAC sanctions lists, the Internal Revenue Bulletin, and California registration, with the Rev. Proc. 2018-32 §8.01 reliance elements stated element by element. Generated from the current files at the moment you download it.
Screens are triage, not determinations; a source that cannot be read reports not screened, never clear. Screen this nonprofit · How the screen works · on the API as GET /api/screening/{ein}?format=pdf
Questions and answers
- Who funds VASCULITIS FOUNDATION?
- VASCULITIS FOUNDATION (Missouri) receives grants from 38 organizations whose IRS filings report $3,297,514 to it, the largest being DONOR ADVISED CHARITABLE GIVING INC ($1,100,050). 24 of them have funded it in more than one year, and 88% of the money arrives through donor-advised or pass-through sponsors rather than from an institution directly.
- How many funders does VASCULITIS FOUNDATION have?
- IRS filings report 38 organizations giving $3,297,514 in grants to VASCULITIS FOUNDATION, 24 of which have funded it in more than one year.
- Who is the largest funder of VASCULITIS FOUNDATION?
- DONOR ADVISED CHARITABLE GIVING INC is the largest funder on record, with $1,100,050 in grants. The full list of funders is on this page.
- How can an organization like VASCULITIS FOUNDATION find more funders?
- Start with the funders already giving here, then look at the foundations that back similar organizations in Missouri. The funding by cause and by state pages list the largest funders for a given area and how to approach them.
These figures are read directly from IRS Form 990 / 990-PF e-file XML: this organization’s own return for FY2025 (financials across 2017–2025), and the filings of 38 funders that report grants to it. “On record” means captured in the filings we have parsed — a funder that does not e-file, or whose grant detail is not itemized, will not appear. Filings run roughly 12–24 months behind. Trends on this page end at FY2023, the last fiscal year that has finished arriving; later years are shown and marked, and move no figure. Data on this page was exported October 14, 2026. What this page cannot tell you · view filing