Texas · Nonprofit
RESTLESS LEGS SYNDROME FOUNDATION
RESTLESS LEGS SYNDROME FOUNDATION (Texas) receives grants from 39 organizations whose IRS filings report $1,335,413 to it, the largest being DONOR ADVISED CHARITABLE GIVING INC ($371,510). 20 of them have funded it in more than one year, and 79% of the money arrives through donor-advised or pass-through sponsors rather than from an institution directly.
- Revenue FY2025
- $1.2M
- Funders on record
- 39
- Grants received
- $1.3M
- Net assets
- $790k
What Restless Legs Syndrome Foundation does
Mission
The corporation is organized to increase scientific and public understanding of restless legs syndrome or rls, to encourage and provide funding for research leading to treatments and cure for the disease, to provide support to those suffering from the disease, to be the leading center for information on all aspects of the disease, and to carry on such other activities related to the disease, its treatments and cure, as may be designated by the board from time to time.
As stated on its FY2025 Form 990.
Programs
Educational. Providing trusted, unbiased information about restless leg syndrome to individuals and healthcare providers through publications, webinars, a website, social media sites, and direct communications. Publications include: a general informational brochure on rls and rls and plmd in children and adolescents; rls guide for teens, rls guide for children, twenty-four different handouts on rls specific topics directed towards patients; a quarterly news magazine; monthly online e-newsletter; two specialty brochures directed to healthcare providers; and a medical bulletin issued as developments merit. During this fiscal year, nine webinars on rls-related topics were offered to the public. Over 1200 registrants viewed these webinars. The 12-part educational physician webinar series was open to physicians, nurse practitioners and physician assistants to enhance clinical knowledge regarding diagnosis, treatment and management of rls patients. This webinar series is available on demand. The organization's website www.rls.org attracts over 640,000 online visitors that generate over 27,900,00 page views each year. The rls facebook page has 14,595 supporters and participants. The rlsf…
$493,760 spent$5,000 earned by the program49% of program spendingMembership. The rls foundation serves as a support structure for over 640,000 individuals who, on an annual basis, seek information on rls, either as one who has rls or as one who has a friend or loved one who suffers from the disease. 5,400 members have joined the rls foundation and take advantage of the clearinghouse of services that provide information on latest developments in treatment, counseling and conversation with others who share the affliction. Over 160 medical professionals specializing in the treatment of rls are members of the healthcare provider directory. Member benefits include access to a proprietary collection of educational materials including an rls medical bulletin for healthcare providers, a quarterly news magazine, a monthly e-newsletter, a medical-alert card and access to the members-only section of the rls website. The foundation provides scholarship memberships for those needing assistance and never turns anyone away seeking information and support. The member website provides visitors with information about rls, treatment guidelines, research advancements, advocacy outreach, discussion panels and links to rls foundation social media sites.
$235,898 spent23% of program spendingResearch. The rlsf supports and funds rls related research projects. During the current fiscal year, five research grants were awarded: one grant was awarded for the multi-center longitudinal pilot observational study of the efficacy and tolerability of long-term treatment of rls using opioids (opioid registry), defective transferrin receptor regulation in the blood- brain barrier endothelial cells underlies brain iron insufficiency in rls, proteomic approach to understanding the mechanism of action for exercise as a non-pharmacological management method in rls : a pilot study, cerebrospinal fluid melanocortin and endorphin in restless legs syndrome- related augmentation, and involvement of calcitonin gene-related peptide (cgrp) in restless legs syndrome (rls): cerebrospinal fluid proteomics analysis.
$227,229 spentof which $209,482 as grants22% of program spendingSupport groups: the rls foundation supports sixty-one support group leaders, virtual support group leaders and contact volunteers in twenty-one states and canada. Each leader holds at least one in-person meeting per year in their local community. At these meetings, rls foundation educational materials are distributed to attendees. Support group leaders may work with a medical speaker to present on rls topics of interest. Local support group leaders suggest other meeting presenters and facilitate conversations that provide overall support to the group. Virtual support groups (vsg), program is an rlsf program that provides four regularly scheduled monthly virtual group meetings to connect and support individuals with rls using video conferencing accessible to all in the rls community. Rlsf educational materials for download are given to vsg attendees. The number of individuals reached through virtual support groups 400+, with over 300 unique visitors attending multiple meetings throughout the year.
$56,404 spent6% of program spending
The 4 programs described on its FY2024 Form 990, listed largest first by expense. Program spending in total: $1,013,291.
The organization over time
Each line starts at 100 in 2017, so what you read is the shape rather than the size: 150 means half as much again as 2017, 50 means half. The number beside each label in the key is where it ended. The shaded band is where the middle 50% of its peers' revenue would sit, given their growth.
Balance sheet
Total assets and total liabilities at each year end, in dollars. The largest one-year move in total assets was 2019 to 2020, from $405k to $718k (+78%).
How it's funded, over time
Each bar is one year's revenue split into where it came from, and every bar is the same height — these are shares, not amounts, so a year that raised twice as much looks the same size. Hover a bar for the split.
Government-grant reliance: 2020 1% · 2021 5% · 2022 5%. Grants only. Government contracts and fees sit inside program revenue.
97% of RESTLESS LEGS SYNDROME FOUNDATION’s revenue is contributions — more reliant on donations than three-quarters of its peers (51% for the typical peer).
Surplus & reserves
Operating surplus or deficit each year, and months of liquidity in hand. 4 of the last 9 reported years ran a deficit.
reserve
Leadership and staff
The officers, directors, trustees and key employees listed on each return. Joined and no longer listed compare each filing with the year before, matching people by surname and first initial; a year after a gap, or a roster under three people, has no comparison.
Board chair
Jeffrey Durmer
Chair
As listed on its FY2025 Form 990.
Who funds it, year by year
2017 → 2023: the base broadened from 9 funders to 14 funders, grant income rose $157k → $163k.
15 of 39 of your funders are donor-advised or pass-through sponsors (tagged DAF) — 79% of grant dollars received. That money is really individual donors directing a sponsor; the institutions to cultivate are the non-DAF funders.
From the IRS filings of RESTLESS LEGS SYNDROME FOUNDATION’s funders (the co-funder graph). Top 30 of 39 funders by total. Association, not causation. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How concentrated its funding is
RESTLESS LEGS SYNDROME FOUNDATION leans on a few funders — its largest provides 28% of grant income and the top three 61%; half comes from just 2 funders.
the vertical line marks half of all grant income — 2 funders to its left
81% of the income these shares are computed over arrives through pass-through sponsors or from payers whose filings do not say what kind of payment it is. Concentration is still measured over all of it, because the money is real; what it does not support is a claim about how many institutions have chosen to fund RESTLESS LEGS SYNDROME FOUNDATION.
Largest funder’s share by year: 2017 66% · 2018 35% · 2019 35% · 2020 45% · 2021 27% · 2022 35% · 2023 28% — diversifying over time.
“Effective funders” = inverse Herfindahl index (1 / Σ shareᵢ²) — the number of equal-sized funders that would give the same concentration. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How long its funders stay
42% of RESTLESS LEGS SYNDROME FOUNDATION's funders are still giving 3 years after their first grant; 51% give in more than one year at all.
Share of funders still giving k years after their first recorded grant, pooled across every acquisition cohort. A funder counts as retained in a year only if it made a grant that year. Measured to FY2023, the last fiscal year that has finished arriving — a funder cannot be counted as lapsed in a year most filers have not reached.
Where its funders are
79% of RESTLESS LEGS SYNDROME FOUNDATION's grant income arrives through donor-advised or pass-through sponsors, whose addresses record where the money is held rather than where the donor is. Of the $279k that is directly attributable, 100% of it comes from funders outside Texas, across 13 states.
In-state vs out-of-state, by year
Funder states come from each funder’s own filing. $1.1M arriving through sponsors registered in 11 states is excluded from the map and the split above: a sponsor holds money on a donor’s behalf, so its registered address would place those dollars somewhere no donor need ever have been. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
Against its field
RESTLESS LEGS SYNDROME FOUNDATION's revenue grew 56% between 2017 and 2025.
this organization peer median middle 50% of peers· 5,002 health nonprofits $1M–$10M, FY2025
Organizations like RESTLESS LEGS SYNDROME FOUNDATION
Organizations whose mission and program text most resemble this one, by semantic similarity over every organization in the US filings — the closest peers, and often the clearest route to shared or prospective funders.
In Texas
Nationally
Read directly from this organization’s own Form 990, as neutral context.
Where the money goes
82% of spending goes to programs.
Governance
Public support
91%
Share of support from the public (Schedule A) — the basis for its public-charity status.
Footprint & structure
Files a return copy in 28 states
Screen this organization
A dated, signed PDF of the compliance screen for RESTLESS LEGS SYNDROME FOUNDATION: IRS status (Business Master File, Publication 78, auto-revocation), the OFAC sanctions lists, the Internal Revenue Bulletin, and California registration, with the Rev. Proc. 2018-32 §8.01 reliance elements stated element by element. Generated from the current files at the moment you download it.
Screens are triage, not determinations; a source that cannot be read reports not screened, never clear. Screen this nonprofit · How the screen works · on the API as GET /api/screening/{ein}?format=pdf
Questions and answers
- Who funds RESTLESS LEGS SYNDROME FOUNDATION?
- RESTLESS LEGS SYNDROME FOUNDATION (Texas) receives grants from 39 organizations whose IRS filings report $1,335,413 to it, the largest being DONOR ADVISED CHARITABLE GIVING INC ($371,510). 20 of them have funded it in more than one year, and 79% of the money arrives through donor-advised or pass-through sponsors rather than from an institution directly.
- How many funders does RESTLESS LEGS SYNDROME FOUNDATION have?
- IRS filings report 39 organizations giving $1,335,413 in grants to RESTLESS LEGS SYNDROME FOUNDATION, 20 of which have funded it in more than one year.
- Who is the largest funder of RESTLESS LEGS SYNDROME FOUNDATION?
- DONOR ADVISED CHARITABLE GIVING INC is the largest funder on record, with $371,510 in grants. The full list of funders is on this page.
- How can an organization like RESTLESS LEGS SYNDROME FOUNDATION find more funders?
- Start with the funders already giving here, then look at the foundations that back similar organizations in Texas. The funding by cause and by state pages list the largest funders for a given area and how to approach them.
These figures are read directly from IRS Form 990 / 990-PF e-file XML: this organization’s own return for FY2025 (financials across 2017–2025), and the filings of 39 funders that report grants to it. “On record” means captured in the filings we have parsed — a funder that does not e-file, or whose grant detail is not itemized, will not appear. Filings run roughly 12–24 months behind. Trends on this page end at FY2023, the last fiscal year that has finished arriving; later years are shown and marked, and move no figure. Data on this page was exported October 22, 2026. What this page cannot tell you · view filing