Missouri · Nonprofit
SPASTIC PARAPLEGIA FOUNDATION INC
SPASTIC PARAPLEGIA FOUNDATION INC (Missouri) receives grants from 40 organizations whose IRS filings report $3,266,681 to it, the largest being NETWORK FOR GOOD ($1,468,976). 21 of them have funded it in more than one year, and 82% of the money arrives through donor-advised or pass-through sponsors rather than from an institution directly.
- Revenue FY2025
- $1.7M
- Funders on record
- 40
- Grants received
- $3.3M
- Net assets
- $2.2M
What Spastic Paraplegia Foundation Inc does
Mission
1. To fund scientific research to discover the cures for hereditary spastic paraplegia and primary lateral sclerosis. 2. To provide information about the disorders to patients and their loved ones, and to the general public. 3. To provide emotional support to patients and their loved ones
As stated on its FY2025 Form 990.
Programs
Scientific research grants are awarded to academic researchers in universities both in the United States and internationally. A Scientific Advisory Board generally reviews and ranks grant proposals received. The Foundation funds only the top ranked proposals using the same ranking criteria for each proposal. Grants are divided into up to five installments. The first installment is issued after a countersigned Research Grant Agreement is returned to the Foundation. Each of the remaining installments are issued after a satisfactory progress report or final report from the researcher. The amount above reflects the amount of grant expense in 2025.
$1,121,008 spentof which $1,121,008 as grants88% of program spendingThe Foundation holds an annual conference each year for individuals suffering from the disease, their families, and caregivers. Researchers speak about primary lateral sclerosis and hereditary spastic paraplegia, including updates on the current state of their research. Attendees meet others affected by the disorders, typically the first time these individuals have met others with the same condition in person. Attendees pay a registration fee to attend.
$122,042 spent$32,350 earned by the program10% of program spendingThe Foundation prints and distributes "Synapse", a periodical about the disorders, activities of the Foundation, and articles about research.
$11,762 spent1% of program spendingSoftware to facilitate advocacy of rare diseases, grant accounting, Sponsorships/Grants to organizations with complementary services to Spastic Paraplegia Foundation, Inc.
$12,600 spent1% of program spending
The 4 programs described on its FY2025 Form 990, listed largest first by expense. Program spending in total: $1,267,412.
The organization over time
Each line starts at 100 in 2020, so what you read is the shape rather than the size: 150 means half as much again as 2020, 50 means half. The number beside each label in the key is where it ended. The shaded band is where the middle 50% of its peers' revenue would sit, given their growth.
Balance sheet
Total assets and total liabilities at each year end, in dollars. The largest one-year move in total assets was 2024 to 2025, from $3.1M to $3.6M (+15%).
How it's funded, over time
Each bar is one year's revenue split into where it came from, and every bar is the same height — these are shares, not amounts, so a year that raised twice as much looks the same size. Hover a bar for the split.
91% of SPASTIC PARAPLEGIA FOUNDATION INC’s revenue is contributions — more donation-reliant than the typical peer (51% for the typical peer).
Surplus & reserves
Operating surplus or deficit each year, and months of liquidity in hand. 2 of the last 6 reported years ran a deficit.
reserve
Leadership and staff
The officers, directors, trustees and key employees listed on each return. Joined and no longer listed compare each filing with the year before, matching people by surname and first initial; a year after a gap, or a roster under three people, has no comparison.
Who funds it, year by year
2017 → 2023: the base broadened from 5 funders to 15 funders, grant income rose $120k → $510k.
12 of 40 of your funders are donor-advised or pass-through sponsors (tagged DAF) — 82% of grant dollars received. That money is really individual donors directing a sponsor; the institutions to cultivate are the non-DAF funders.
From the IRS filings of SPASTIC PARAPLEGIA FOUNDATION INC’s funders (the co-funder graph). Top 30 of 40 funders by total. Association, not causation. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How concentrated its funding is
SPASTIC PARAPLEGIA FOUNDATION INC leans on a few funders — its largest provides 45% of grant income and the top three 75%; half comes from just 2 funders.
the vertical line marks half of all grant income — 2 funders to its left
82% of the income these shares are computed over arrives through pass-through sponsors or from payers whose filings do not say what kind of payment it is. Concentration is still measured over all of it, because the money is real; what it does not support is a claim about how many institutions have chosen to fund SPASTIC PARAPLEGIA FOUNDATION INC.
Largest funder’s share by year: 2017 59% · 2018 66% · 2019 60% · 2020 52% · 2021 48% · 2022 38% · 2023 53% — diversifying over time.
“Effective funders” = inverse Herfindahl index (1 / Σ shareᵢ²) — the number of equal-sized funders that would give the same concentration. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How long its funders stay
65% of SPASTIC PARAPLEGIA FOUNDATION INC's funders are still giving 3 years after their first grant; 53% give in more than one year at all.
Share of funders still giving k years after their first recorded grant, pooled across every acquisition cohort. A funder counts as retained in a year only if it made a grant that year. Measured to FY2023, the last fiscal year that has finished arriving — a funder cannot be counted as lapsed in a year most filers have not reached.
Where its funders are
82% of SPASTIC PARAPLEGIA FOUNDATION INC's grant income arrives through donor-advised or pass-through sponsors, whose addresses record where the money is held rather than where the donor is. Of the $576k that is directly attributable, 100% of it comes from funders outside Missouri, across 19 states.
In-state vs out-of-state, by year
Funder states come from each funder’s own filing. $2.7M arriving through sponsors registered in 10 states is excluded from the map and the split above: a sponsor holds money on a donor’s behalf, so its registered address would place those dollars somewhere no donor need ever have been. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
Against its field
SPASTIC PARAPLEGIA FOUNDATION INC runs a healthier operating margin than three-quarters of the 4,665 health nonprofits its size.
this organization peer median middle 50% of peers· 4,665 health nonprofits $1M–$10M, FY2025
Organizations like SPASTIC PARAPLEGIA FOUNDATION INC
Organizations whose mission and program text most resemble this one, by semantic similarity over every organization in the US filings — the closest peers, and often the clearest route to shared or prospective funders.
In Missouri
Nationally
Read directly from this organization’s own Form 990, as neutral context.
Where the money goes
89% of spending goes to programs.
Governance
Public support
75%
Share of support from the public (Schedule A) — the basis for its public-charity status.
Footprint & structure
Files a return copy in 37 states
Screen this organization
A dated, signed PDF of the compliance screen for SPASTIC PARAPLEGIA FOUNDATION INC: IRS status (Business Master File, Publication 78, auto-revocation), the OFAC sanctions lists, the Internal Revenue Bulletin, and California registration, with the Rev. Proc. 2018-32 §8.01 reliance elements stated element by element. Generated from the current files at the moment you download it.
Screens are triage, not determinations; a source that cannot be read reports not screened, never clear. Screen this nonprofit · How the screen works · on the API as GET /api/screening/{ein}?format=pdf
Questions and answers
- Who funds SPASTIC PARAPLEGIA FOUNDATION INC?
- SPASTIC PARAPLEGIA FOUNDATION INC (Missouri) receives grants from 40 organizations whose IRS filings report $3,266,681 to it, the largest being NETWORK FOR GOOD ($1,468,976). 21 of them have funded it in more than one year, and 82% of the money arrives through donor-advised or pass-through sponsors rather than from an institution directly.
- How many funders does SPASTIC PARAPLEGIA FOUNDATION INC have?
- IRS filings report 40 organizations giving $3,266,681 in grants to SPASTIC PARAPLEGIA FOUNDATION INC, 21 of which have funded it in more than one year.
- Who is the largest funder of SPASTIC PARAPLEGIA FOUNDATION INC?
- NETWORK FOR GOOD is the largest funder on record, with $1,468,976 in grants. The full list of funders is on this page.
- How can an organization like SPASTIC PARAPLEGIA FOUNDATION INC find more funders?
- Start with the funders already giving here, then look at the foundations that back similar organizations in Missouri. The funding by cause and by state pages list the largest funders for a given area and how to approach them.
These figures are read directly from IRS Form 990 / 990-PF e-file XML: this organization’s own return for FY2025 (financials across 2020–2025), and the filings of 40 funders that report grants to it. “On record” means captured in the filings we have parsed — a funder that does not e-file, or whose grant detail is not itemized, will not appear. Filings run roughly 12–24 months behind. Trends on this page end at FY2023, the last fiscal year that has finished arriving; later years are shown and marked, and move no figure. Data on this page was exported October 14, 2026. What this page cannot tell you · view filing