Maryland · Nonprofit
HYDROCEPHALUS ASSOCIATION
HYDROCEPHALUS ASSOCIATION (Maryland) receives grants from 124 organizations whose IRS filings report $5,117,773 to it, the largest being THE CRAIG AND VICKI BROWN FOUNDATION ($1,052,500). 65 of them have funded it in more than one year.
- Revenue FY2024
- $3.6M
- Funders on record
- 124
- Grants received
- $5.1M
- Net assets
- $3.0M
What Hydrocephalus Association does
Mission
Find a cure for hyrocephalus and improve the lives of those impacted. We will accomplish this by collaborating with patients, caregivers, researchers and industry, raising awareness, and funding innovative, high-impact research to prevent, treat and cure hydrocephalus.
As stated on its FY2024 Form 990.
Programs
Researchthe Hydrocephalus Association (ha) is dedicated to advancing high-quality research. Each year the ha funds talented researchers through direct grant funding enabling them to leverage these projects and secure larger federal grants for greater impact. The ha funds research that is aligned with patient-identified priorities to improve understanding of the condition, identify and test new treatments, move discoveries towards clinical use, enhance diagnosis, improve access to care, and ultimately elevate the quality of life of those living with hydrocephalus. Grant programs include the innovator award, accelerator award, neuropsychology and cognition award, engineering prize, residents prize, and the next generation award. Ha's impact is amplified through the many research networks that we support: the ha patient-powered interactive engagement registry (happier), ha network for discovery science (hands), hydrocephalus clinical research network (hcrn), and adult hcrn (ahcrn). Happier provides patients and caregivers the opportunity to engage in research while providing researchers with access to critical data. Hands provides the connections, technology, and tools needed to spur…
$1,319,818 spentof which $711,292 as grants42% of program spendingSupport and education the Hydrocephalus Association is deeply committed to improving the lives of those affected by hydrocephalus by providing direct support as well as educational resources in collaboration with a wide range of stakeholders to raise awareness and knowledge. In 2024, ha staff provided one-on-one support through phone calls, emails, and interactions on social media totaling over 3,744 touches. Ha conducted a total of 216 virtual social gatherings and/or educational meetings with medical and other professionals joining as guest speakers in our local support groups - community networks. These events provided our community with the opportunity to find friendship and receive education. Our peer support volunteers made 65 connections to provide first-hand knowledge and experience on living with hydrocephalus.the association promotes free usage of our hydroassist mobile app, to include self-reported health information and symptom logs to enable patients to have access to this information at their fingertips.the association continues to support our young adults' academic pursuits through our scholarship program. Established in 1994, ha has awarded 265 scholarships to…
$1,606,110 spent51% of program spendingAdvocacy the Hydrocephalus Association advocacy committee has continued to monitor and support key legislation that will benefit the hydrocephalus community. Hydrocephalus was once again included on the list of eligible conditions to receive funding under the congressionally directed medical research programs (cdmrp) and administered by the department of defense (dod). The cdmrp has appropriations of $1.27 billion, which are used to fund the best scientific and medical research. We are proud of this continued accomplishment. Ha co-leads the american association of neurological surgeons nonprofit advisory council focused on developing improved healthcare models for children with chronic medical conditions transitioning to adult medical care and services. Ha also continues to be active in advocacy meetings and sign-on letters put together as part of the national health council (nhc), american brain coalition (abc), national organization for rare disease (nord), research!america, and the national defense health research consortium (dhrc).
$133,949 spent4% of program spendingConferences
$113,811 spent4% of program spendingMerchandise sales, net
$-6,218 earned by the program
The 5 programs described on its FY2025 Form 990, listed largest first by expense. Program spending in total: $3,173,688.
The organization over time
Each line starts at 100 in 2017, so what you read is the shape rather than the size: 150 means half as much again as 2017, 50 means half. The number beside each label in the key is where it ended. The shaded band is where the middle 50% of its peers' revenue would sit, given their growth.
Balance sheet
Total assets and total liabilities at each year end, in dollars. The largest one-year move in total assets was 2020 to 2021, from $2.8M to $3.8M (+38%).
How it's funded, over time
Each bar is one year's revenue split into where it came from, and every bar is the same height — these are shares, not amounts, so a year that raised twice as much looks the same size. Hover a bar for the split.
Government-grant reliance: 2018 0% · 2019 0% · 2020 10% · 2021 15%. Grants only. Government contracts and fees sit inside program revenue.
94% of HYDROCEPHALUS ASSOCIATION’s revenue is contributions — more reliant on donations than three-quarters of its peers (51% for the typical peer).
Surplus & reserves
Operating surplus or deficit each year, and months of liquidity in hand. 5 of the last 8 reported years ran a deficit.
reserve
Leadership and staff
The officers, directors, trustees and key employees listed on each return. Joined and no longer listed compare each filing with the year before, matching people by surname and first initial; a year after a gap, or a roster under three people, has no comparison.
Chief executive
Diana Gray
President and CEO
Board chair
Stephanie Vogt
Chair
As listed on its FY2025 Form 990.
Who funds it, year by year
2017 → 2023: the base broadened from 24 funders to 44 funders, grant income rose $567k → $717k.
19 of 124 of your funders are donor-advised or pass-through sponsors (tagged DAF) — 40% of grant dollars received. That money is really individual donors directing a sponsor; the institutions to cultivate are the non-DAF funders.
From the IRS filings of HYDROCEPHALUS ASSOCIATION’s funders (the co-funder graph). Top 30 of 124 funders by total. Association, not causation. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How concentrated its funding is
HYDROCEPHALUS ASSOCIATION has a broad base — no single funder exceeds 21% of grant income, and it takes 4 funders to reach half.
the vertical line marks half of all grant income — 4 funders to its left
53% of the income these shares are computed over arrives through pass-through sponsors or from payers whose filings do not say what kind of payment it is. Concentration is still measured over all of it, because the money is real; what it does not support is a claim about how many institutions have chosen to fund HYDROCEPHALUS ASSOCIATION.
Largest funder’s share by year: 2017 71% · 2018 48% · 2019 40% · 2020 33% · 2021 19% · 2022 14% · 2023 42% — diversifying over time.
“Effective funders” = inverse Herfindahl index (1 / Σ shareᵢ²) — the number of equal-sized funders that would give the same concentration. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How long its funders stay
32% of HYDROCEPHALUS ASSOCIATION's funders are still giving 3 years after their first grant; 52% give in more than one year at all.
Share of funders still giving k years after their first recorded grant, pooled across every acquisition cohort. A funder counts as retained in a year only if it made a grant that year. Measured to FY2023, the last fiscal year that has finished arriving — a funder cannot be counted as lapsed in a year most filers have not reached.
Where its funders are
HYDROCEPHALUS ASSOCIATION draws 100% of its grant income from funders outside Maryland, across 30 states in all.
In-state vs out-of-state, by year
Funder states come from each funder’s own filing. $2.1M arriving through sponsors registered in 14 states is excluded from the map and the split above: a sponsor holds money on a donor’s behalf, so its registered address would place those dollars somewhere no donor need ever have been. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
Against its field
HYDROCEPHALUS ASSOCIATION's funding base is broadening — from 24 funders to 44 as grant income climbed.
this organization peer median middle 50% of peers· 8,126 health nonprofits $1M–$10M, FY2024
Organizations like HYDROCEPHALUS ASSOCIATION
Organizations whose mission and program text most resemble this one, by semantic similarity over every organization in the US filings — the closest peers, and often the clearest route to shared or prospective funders.
In Maryland
Nationally
Read directly from this organization’s own Form 990, as neutral context.
Where the money goes
86% of spending goes to programs.
Governance
Public support
97%
Share of support from the public (Schedule A) — the basis for its public-charity status.
Footprint & structure
Files a return copy in 35 states
Screen this organization
A dated, signed PDF of the compliance screen for HYDROCEPHALUS ASSOCIATION: IRS status (Business Master File, Publication 78, auto-revocation), the OFAC sanctions lists, the Internal Revenue Bulletin, and California registration, with the Rev. Proc. 2018-32 §8.01 reliance elements stated element by element. Generated from the current files at the moment you download it.
Screens are triage, not determinations; a source that cannot be read reports not screened, never clear. Screen this nonprofit · How the screen works · on the API as GET /api/screening/{ein}?format=pdf
Questions and answers
- Who funds HYDROCEPHALUS ASSOCIATION?
- HYDROCEPHALUS ASSOCIATION (Maryland) receives grants from 124 organizations whose IRS filings report $5,117,773 to it, the largest being THE CRAIG AND VICKI BROWN FOUNDATION ($1,052,500). 65 of them have funded it in more than one year.
- How many funders does HYDROCEPHALUS ASSOCIATION have?
- IRS filings report 124 organizations giving $5,117,773 in grants to HYDROCEPHALUS ASSOCIATION, 65 of which have funded it in more than one year.
- Who is the largest funder of HYDROCEPHALUS ASSOCIATION?
- THE CRAIG AND VICKI BROWN FOUNDATION is the largest funder on record, with $1,052,500 in grants. The full list of funders is on this page.
- How can an organization like HYDROCEPHALUS ASSOCIATION find more funders?
- Start with the funders already giving here, then look at the foundations that back similar organizations in Maryland. The funding by cause and by state pages list the largest funders for a given area and how to approach them.
These figures are read directly from IRS Form 990 / 990-PF e-file XML: this organization’s own return for FY2024 (financials across 2017–2024), and the filings of 124 funders that report grants to it. “On record” means captured in the filings we have parsed — a funder that does not e-file, or whose grant detail is not itemized, will not appear. Filings run roughly 12–24 months behind. Trends on this page end at FY2023, the last fiscal year that has finished arriving; later years are shown and marked, and move no figure. Data on this page was exported October 22, 2026. What this page cannot tell you · view filing