Maryland · Nonprofit
HAYSTACK PROJECT INC
HAYSTACK PROJECT INC (Maryland) receives grants from 1 organization whose IRS filings report $15,000 to it, the largest being PHARMACEUTICAL RESEARCH AND MANUFACTURERS OF AMERICA ($15,000). 0 of them have funded it in more than one year.
- Revenue FY2025
- $448k
- Funders on record
- 1
- Grants received
- $15k
- Net assets
- $328k
What Haystack Project Inc does
Mission
Haystack project brings together stakeholders connected to rare and ultra rare medical conditions to educate them and assist them with their self advocacy efforts.
As stated on its FY2025 Form 990.
Program
The organization brings together patient organizations representing patients suffering from or caring for patients with extremely rare diseases. This is accomplished through educating policymakers and stakeholders about the barriers fda processes and insurance frameworks create and perpetuate in rare and ultra-rare diseases and help them recognize the circumstances of extremely rare conditions and treatments and expand incentives critical to ensuring they can reach patients. Policy initiatives and rare disease priorities: haystack project works with patients to help them learn how to advocate for their communities and improve. Modernization of rare disease clinical trials: work focused on rethinking clinical trials for rare diseases. Patient education & engagement: speaker series where we bring various experts to speak to issues related to rare diseases. Member organizations are able to listen and ask questions. Also conduct member meetings to educate about current events, haystack initiatives, and help answer questions.
$519,281 spent100% of program spending
The program described on its FY2025 Form 990. Program spending in total: $519,281.
The organization over time
Each line starts at 100 in 2020, so what you read is the shape rather than the size: 150 means half as much again as 2020, 50 means half. The number beside each label in the key is where it ended. The shaded band is where the middle 50% of its peers' revenue would sit, given their growth.
Balance sheet
Total assets and total liabilities at each year end, in dollars. The largest one-year move in total assets was 2023 to 2024, from $175k to $402k (+130%).
How it's funded, over time
Each bar is one year's revenue split into where it came from, and every bar is the same height — these are shares, not amounts, so a year that raised twice as much looks the same size. Hover a bar for the split.
100% of HAYSTACK PROJECT INC’s revenue is contributions — more reliant on donations than three-quarters of its peers (82% for the typical peer).
Surplus & reserves
Operating surplus or deficit each year, and months of liquidity in hand. 2 of the last 6 reported years ran a deficit.
reserve
Leadership and staff
The officers, directors, trustees and key employees listed on each return. Joined and no longer listed compare each filing with the year before, matching people by surname and first initial; a year after a gap, or a roster under three people, has no comparison.
Chief executive
Kara Berasi
CEO
Board chair
Susan Thornton
Board chair/
As listed on its FY2025 Form 990.
The chief executive listed changed between the FY2021 and FY2022, and between the FY2022 and FY2023 filings.
Who funds it, year by year
Grant support over time, funder by funder — shade shows the grant size each year.
From the IRS filings of HAYSTACK PROJECT INC’s funders (the co-funder graph). Association, not causation. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
Where its funders are
HAYSTACK PROJECT INC draws 100% of its grant income from funders outside Maryland, across 1 state in all.
Funder states come from each funder’s own filing. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
Against its field
HAYSTACK PROJECT INC is better cushioned than half of the 7,883 health nonprofits its size.
this organization peer median middle 50% of peers· 7,883 health nonprofits $100k–$1M, FY2025
Organizations like HAYSTACK PROJECT INC
Organizations whose mission and program text most resemble this one, by semantic similarity over every organization in the US filings — the closest peers, and often the clearest route to shared or prospective funders.
In Maryland
Nationally
Read directly from this organization’s own Form 990, as neutral context.
Where the money goes
100% of spending goes to programs.
Governance
Public support
51%
Share of support from the public (Schedule A) — the basis for its public-charity status.
Footprint & structure
Files a return copy in 1 state
Screen this organization
A dated, signed PDF of the compliance screen for HAYSTACK PROJECT INC: IRS status (Business Master File, Publication 78, auto-revocation), the OFAC sanctions lists, the Internal Revenue Bulletin, and California registration, with the Rev. Proc. 2018-32 §8.01 reliance elements stated element by element. Generated from the current files at the moment you download it.
Screens are triage, not determinations; a source that cannot be read reports not screened, never clear. Screen this nonprofit · How the screen works · on the API as GET /api/screening/{ein}?format=pdf
Questions and answers
- Who funds HAYSTACK PROJECT INC?
- HAYSTACK PROJECT INC (Maryland) receives grants from 1 organization whose IRS filings report $15,000 to it, the largest being PHARMACEUTICAL RESEARCH AND MANUFACTURERS OF AMERICA ($15,000). 0 of them have funded it in more than one year.
- How many funders does HAYSTACK PROJECT INC have?
- IRS filings report 1 organization giving $15,000 in grants to HAYSTACK PROJECT INC.
- Who is the largest funder of HAYSTACK PROJECT INC?
- PHARMACEUTICAL RESEARCH AND MANUFACTURERS OF AMERICA is the largest funder on record, with $15,000 in grants. The full list of funders is on this page.
- How can an organization like HAYSTACK PROJECT INC find more funders?
- Start with the funders already giving here, then look at the foundations that back similar organizations in Maryland. The funding by cause and by state pages list the largest funders for a given area and how to approach them.
These figures are read directly from IRS Form 990 / 990-PF e-file XML: this organization’s own return for FY2025 (financials across 2020–2025), and the filings of 1 funders that report grants to it. “On record” means captured in the filings we have parsed — a funder that does not e-file, or whose grant detail is not itemized, will not appear. Filings run roughly 12–24 months behind. Trends on this page end at FY2023, the last fiscal year that has finished arriving; later years are shown and marked, and move no figure. Data on this page was exported October 14, 2026. What this page cannot tell you · view filing