Maryland · Nonprofit
ADULT CONGENITAL HEART ASSOCIATION
ADULT CONGENITAL HEART ASSOCIATION (Maryland) receives grants from 67 organizations whose IRS filings report $2,181,429 to it, the largest being THE MEIL FAMILY FOUNDATION INC ($657,575). 33 of them have funded it in more than one year.
- Revenue FY2025
- $1.9M
- Funders on record
- 67
- Grants received
- $2.2M
- Net assets
- $1.5M
What Adult Congenital Heart Association does
Mission
To empower the congenital heart disease (chd) community by advancing access to resources and specialized care that improve patient-centered outcomes.
As stated on its FY2025 Form 990.
Programs
Accreditation, support, education, and awareness activities:-medical center accreditation program: the accreditation program started in 2014. As of december 2025, there are a total of 59 accredited sites in the us. There are several additional sites currently in various stages of the accreditation process.-peer support program: Adult Congenital Heart Association (acha) manages volunteers to provide one-on-one support to achd patients, and those affected by chd, seeking such help.(continued on schedule o).- educational materials and webinars: through its website, webinars, videos, and social media channels, acha provides 24-hour access to relevant, up-to-date information and resources. From the webinars and videos, patients learn more about specific chd conditions and defects, and the issues that affect their lives. Leading experts and advocates cover a range of interesting, diverse, and timely topics in patient-friendly language.- achd clinic directory: acha expanded its online listing with close to 400 achd clinics (including satellite clinics) in the united states; each listing highlights the board-certified achd providers, and the directory continues to be the only resource of…
$856,408 spent$158,904 earned by the program69% of program spendingAdvocacy, outreach and research activities:advocacy- the congenital heart futures reauthorization act of 2024 was signed into law in november 2024 and reauthorized funding of up to $10 million annually through fy 2029. Acha educated elected officials and our community members about the legislation and other policies that improve health and psychosocial outcomes for chd patients. This includes addressing the achd workforce shortage by identifying barriers to training new fellows to follow an achd career path. (continued on schedule o).research - in 2025, acha funded 4 research grants, bringing the total number of grants issued to 24 and over $700,000 since its inception in 2019.
$391,769 spentof which $85,000 as grants$6,270 earned by the program31% of program spending
The 2 programs described on its FY2025 Form 990, listed largest first by expense. Program spending in total: $1,248,177.
The organization over time
Each line starts at 100 in 2017, so what you read is the shape rather than the size: 150 means half as much again as 2017, 50 means half. The number beside each label in the key is where it ended. The shaded band is where the middle 50% of its peers' revenue would sit, given their growth.
Balance sheet
Total assets and total liabilities at each year end, in dollars. The largest one-year move in total assets was 2017 to 2018, from $1.8M to $1.3M (−30%).
How it's funded, over time
Each bar is one year's revenue split into where it came from, and every bar is the same height — these are shares, not amounts, so a year that raised twice as much looks the same size. Hover a bar for the split.
Government-grant reliance: 2021 23%. Grants only. Government contracts and fees sit inside program revenue.
90% of ADULT CONGENITAL HEART ASSOCIATION’s revenue is contributions — more donation-reliant than the typical peer (51% for the typical peer).
Surplus & reserves
Operating surplus or deficit each year, and months of liquidity in hand. 4 of the last 9 reported years ran a deficit.
reserve
Leadership and staff
The officers, directors, trustees and key employees listed on each return. Joined and no longer listed compare each filing with the year before, matching people by surname and first initial; a year after a gap, or a roster under three people, has no comparison.
Chief executive
Mark Roeder
President and CEO
Board chair
Stephen Back
Chair
As listed on its FY2025 Form 990.
Who funds it, year by year
2017 → 2023: the base broadened from 11 funders to 16 funders, grant income rose $39k → $359k.
14 of 67 of your funders are donor-advised or pass-through sponsors (tagged DAF) — 50% of grant dollars received. That money is really individual donors directing a sponsor; the institutions to cultivate are the non-DAF funders.
From the IRS filings of ADULT CONGENITAL HEART ASSOCIATION’s funders (the co-funder graph). Top 30 of 67 funders by total. Association, not causation. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How concentrated its funding is
ADULT CONGENITAL HEART ASSOCIATION leans on a few funders — its largest provides 30% of grant income and the top three 59%; half comes from just 2 funders.
the vertical line marks half of all grant income — 2 funders to its left
55% of the income these shares are computed over arrives through pass-through sponsors or from payers whose filings do not say what kind of payment it is. Concentration is still measured over all of it, because the money is real; what it does not support is a claim about how many institutions have chosen to fund ADULT CONGENITAL HEART ASSOCIATION.
Largest funder’s share by year: 2017 19% · 2018 33% · 2019 55% · 2020 47% · 2021 43% · 2022 29% · 2023 38% — growing more concentrated.
“Effective funders” = inverse Herfindahl index (1 / Σ shareᵢ²) — the number of equal-sized funders that would give the same concentration. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How long its funders stay
29% of ADULT CONGENITAL HEART ASSOCIATION's funders are still giving 3 years after their first grant; 49% give in more than one year at all.
Share of funders still giving k years after their first recorded grant, pooled across every acquisition cohort. A funder counts as retained in a year only if it made a grant that year. Measured to FY2023, the last fiscal year that has finished arriving — a funder cannot be counted as lapsed in a year most filers have not reached.
Where its funders are
61% of ADULT CONGENITAL HEART ASSOCIATION's grant income comes from Maryland funders.
In-state vs out-of-state, by year
Funder states come from each funder’s own filing. $1.1M arriving through sponsors registered in 12 states is excluded from the map and the split above: a sponsor holds money on a donor’s behalf, so its registered address would place those dollars somewhere no donor need ever have been. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
Against its field
ADULT CONGENITAL HEART ASSOCIATION is better cushioned than half of the 4,665 health nonprofits its size.
this organization peer median middle 50% of peers· 4,665 health nonprofits $1M–$10M, FY2025
Organizations like ADULT CONGENITAL HEART ASSOCIATION
Organizations whose mission and program text most resemble this one, by semantic similarity over every organization in the US filings — the closest peers, and often the clearest route to shared or prospective funders.
In Maryland
Nationally
Read directly from this organization’s own Form 990, as neutral context.
Where the money goes
68% of spending goes to programs.
Governance
Public support
81%
Share of support from the public (Schedule A) — the basis for its public-charity status.
Footprint & structure
Files a return copy in 28 states
Screen this organization
A dated, signed PDF of the compliance screen for ADULT CONGENITAL HEART ASSOCIATION: IRS status (Business Master File, Publication 78, auto-revocation), the OFAC sanctions lists, the Internal Revenue Bulletin, and California registration, with the Rev. Proc. 2018-32 §8.01 reliance elements stated element by element. Generated from the current files at the moment you download it.
Screens are triage, not determinations; a source that cannot be read reports not screened, never clear. Screen this nonprofit · How the screen works · on the API as GET /api/screening/{ein}?format=pdf
Questions and answers
- Who funds ADULT CONGENITAL HEART ASSOCIATION?
- ADULT CONGENITAL HEART ASSOCIATION (Maryland) receives grants from 67 organizations whose IRS filings report $2,181,429 to it, the largest being THE MEIL FAMILY FOUNDATION INC ($657,575). 33 of them have funded it in more than one year.
- How many funders does ADULT CONGENITAL HEART ASSOCIATION have?
- IRS filings report 67 organizations giving $2,181,429 in grants to ADULT CONGENITAL HEART ASSOCIATION, 33 of which have funded it in more than one year.
- Who is the largest funder of ADULT CONGENITAL HEART ASSOCIATION?
- THE MEIL FAMILY FOUNDATION INC is the largest funder on record, with $657,575 in grants. The full list of funders is on this page.
- How can an organization like ADULT CONGENITAL HEART ASSOCIATION find more funders?
- Start with the funders already giving here, then look at the foundations that back similar organizations in Maryland. The funding by cause and by state pages list the largest funders for a given area and how to approach them.
These figures are read directly from IRS Form 990 / 990-PF e-file XML: this organization’s own return for FY2025 (financials across 2017–2025), and the filings of 67 funders that report grants to it. “On record” means captured in the filings we have parsed — a funder that does not e-file, or whose grant detail is not itemized, will not appear. Filings run roughly 12–24 months behind. Trends on this page end at FY2023, the last fiscal year that has finished arriving; later years are shown and marked, and move no figure. Data on this page was exported October 14, 2026. What this page cannot tell you · view filing